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From Diane

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

She asked mi if I could hang it on the board to share it with you!. http://www.cancercompass.com/ Hugs,mates!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

good site,

interesting articles.

hugs,
pete

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Where is Diane ?

Stay well!

John

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

At least that's what I been told.

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

thankyou!

PGLGreg's picture
PGLGreg
Posts: 741
Joined: Jul 2006

Diane was banned? This is not something I can put up with. Is Greta having a fit of some sort?

--Greg

greta's picture
greta
Posts: 240
Joined: Jun 2000

Anyone who has concerns about CSN terms & conditions and their enforcement, please send me a PM or email via the contact CSN link. I will be more than happy to address questions about T&C and reiterate my responsibility to enforce them.

Some people who have violated T&C fabricate reasons that their accounts have been blocked. Some react angrily and lash out. When they do so in a way that causes confusion, anger, and dissention on the site -- even after their account is disabled -- it only confirms the necessity of having disabled it. Some people lack insight, some are unable or unwilling to accept responsibility for their behavior, and others simply refuse to adhere to site T&C despite any communication from me.

Best,
Greta
Your CSN staff

PGLGreg's picture
PGLGreg
Posts: 741
Joined: Jul 2006

This is not an adequate reply, and this is no longer a place where I want to be.

--Greg

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

As your a resident of the Colon Club, hope you'll be happy there.

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

http://csn.cancer.org/node/179783

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Okay...so I just spent the last year doing chemo/radiation, 2 surgeries, and then topped it off with 6 more months of chemo....tried to go back to work to find trouble doing it.....now because I'm single my survival rate is down the tubes????

Why didn't I just keep working and going about my life for as long I was given instead of putting my loving children through the stuff I did only to lose my battle because I don't have a spouse. A slap in the face is what that was to me today.

Happy 4th

wolfen's picture
wolfen
Posts: 1328
Joined: Apr 2009

Please do not think you will lose your battle at all, especially because you don't have a spouse. For the few that have the perfect fairy tale marriage, I'm sure that this report was meaningful. For those of us that live in the "real" world, just remember that being married sometimes causes major stress which definitely isn't good for cancer, or life in general. To echo Buzzard, being mentally fit has a lot to do with it. A loving partner is good, but not a necessity.

Luv,

Wolfen

PhillieG's picture
PhillieG
Posts: 4912
Joined: May 2005

That "study" is one of those ridiculous study's along the line of "People who don't die from something will live longer than those who do die from something". No kidding???
I guess those who are married two or three times must be slap-happy by now!

I really don't see the point of it being posted. Being a good person who helps others will help you more than being married. Marriage and happiness are not always synonymous.
Hugs
-phil
BS: "The study also found that married patients were diagnosed at earlier stages of colon cancer and sought more aggressive treatment, which echoes findings from studies of other types of cancer." Hmmm, maybe THAT is why they lived longer, it has to do with being aware and/or having a good caregiver.

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Re:
"....The study also found that married patients........
............sought more aggressive treatment...."

Parsed, it really does make more sense!

The vows are: "Till death do us part".

So why not double-dose the chemo; insurance won't
pay for a decent shotgun blast to the noggin.

Oh well..... call me when it's over.

Be well,

John

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Well, if my husband doesn't kill me off first, this board may. lol. We are losing people to being banned, than to cancer. Wow!

dorookie
Posts: 1736
Joined: Jul 2007

How did she get banned? I dont understand she got banned for posting her results? That makes no sense at all???

Beth

greta's picture
greta
Posts: 240
Joined: Jun 2000

It doesn't make any sense at all. In fact, it's ludicrous. There wouldn't be a CSN if posting test results were grounds for an account being blocked.

Best,
Greta

dorookie
Posts: 1736
Joined: Jul 2007

I get the picture.

Thanks
Beth

ellamenno's picture
ellamenno
Posts: 145
Joined: Aug 2010

Diane was banned because she posted a verse from the bible that insinuated that she got good results because of her faith and those of us who are undecided or just don't believe would be doomed. This seems a clear violation of the T&C of THIS site..not to mention mean.

What's more, she has joined another site and is bad-mouthing CSN. Very sad.

Peace, Laurie

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

You beat me to it, that was the reason according to others who told me. And Diane is a member of the Colon Club if anyone is missing her, she is also on Facebook.

ellamenno's picture
ellamenno
Posts: 145
Joined: Aug 2010

I will probably catch some flak for making my statements but it really hurts when people are deservedly banned and turn around and make this board sound like we don't support free speech...it's about R.E.S.P.E.C.T.

Laurie

Buckwirth's picture
Buckwirth
Posts: 1271
Joined: Jun 2010

I figured something was left out of Diane's story.

PhillieG's picture
PhillieG
Posts: 4912
Joined: May 2005

Only the facts were left out. They're not important to some apparently.
PS: I REALLY wish there was a "Like" button on here for some of these responses...

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

Love ya Phil! You are so right. (There are "facts" on this that go back a long ways... Often there is history that some are not aware of...) Sometimes the best thing people should do is let it go and move on. I'm always amazed at how the gossip mill works to distort things by people that really don't know the full stories.

It is sad to see what I thought was a good site for support for colorectal cancer, that was comforting to come to, turn into something that too often makes me uncomfortable and pushes me away.

Any site needs rules to keep order. If anyone wants 100% free speech, no matter if that means dealing with spam, or personal insults, or chaos caused by those that get their jollies stirring the pot on the Internet, then they can start their OWN site. It really is that simple. The American Cancer Society is the sponsor of this site, and they are a great organization. I continue to support them, including participating in Relay for Life. And I am glad they have limits on what is tolerated or not on their support boards. I've seen too many Internet message boards destroyed over the years when there are no rules enforced.

I come back here and lurk now and then to check on old friends to see how they are doing, but I rarely post anymore. I have enough stress in my life fighting stage IV cancer. It would be nice to see more postings having to do with the reason this site exists - questions, information and support for colorectal cancer patients, and those affected by colorectal cancer, and less of the crazy fighting, second-guessing, rumor mills, and antagonization. I realize I can choose what to read and not read, but often until you open a thread you don't realize what is going to be in there. So instead, I choose to stay away from the site most of the time. That is my way of choosing what I do and don't read. And it is my way of keeping myself from posting and getting involved in the crazy sadness of it all. (Until this post right now.) I know several others (we keep in touch via email, FaceBook, or other colon cancer support systems) that have done the same - they have left CSN because the tension and negativity is not something they want to deal with. I hope someday it turns around so more people will feel good about coming to this site for information and support, and not be chased away.

I think of many of you often, and wish you all the best as you live with colorectal cancer, whether you are in current treatment, NED or cured.

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

Kathryn,

Right on.

peace, emily

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

As a fellow singleton, and with many others in our group you are not alone. But you have mentioned you are single on here, I'm sure the eligible men like Ron50 etc will be queuing up now outside your door. ;-)

Hugs

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Are you saying that being married makes me ineligible?

Man...... the things I learn too late!

Best wishes,

John

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

I don't know John, you'll have to ask Gail.

here4lfe
Posts: 306
Joined: Jan 2010

There is a well-known danger in looking at a lot of data. If you look at a lot if it, for long enough, you will find all kinds of patterns. It's called Data Mining. The problem is, you don't know the truth story to begin with, so any random pattern found could be right or wrong.

Shovel it out.

Best

thingy45's picture
thingy45
Posts: 633
Joined: Apr 2011

Sweet Gail,

Happiness is not given to you by a partner, it has to come from yourself first. I have been alone and happy. I have been alone and unhappy. I have learned that the only person who can make me happy is me and then my animals. They can make me happy any time of the day. Receiving love from friends and neighbours and even unknown people can make yoou happy. And when you are happy, you live longer I was told.
If being married makesy ou live longer... why are there so many divorces, half the population shuold be dead by now if that was true.
I have been in a not so good marriage and the stress probably contributed to my cancer.Yes I am in my third relationship and extremely lucky and happy and therefor hope to live a long long time.
I wish the same for you to live a long long time.
Hugs,Marjan

geotina's picture
geotina
Posts: 2123
Joined: Oct 2009

Diane has not posted in quite a while. Maybe I missed something along the way. I thought she wasn't posting because she is NED and moved on like so many do.

I, personally, have not been posting much. Ever since the "Stage IV Death is an Option" post that hurt so very much I stopped logging on. Yes, the title was changed but many of us did see the original and then were blasted because we didn't agree with the posting. If someone wants to choose death over any type of treatments, that is their choice. I must admit I did get a good chuckle when someone quite rudely blased the posters for not receiving the information favorably yet she is Stage IV and taking the chemo that the original poster said she should not take and should consider death instead.

I would like to think sharing info is key to the fight. Maybe John and Emily gets us thinking of things to do other than just chemo. Reading of side effects although horrible gives us valuable information as to what to expect and what may or may not happen during treatments. The more you arm youself with information the more prepared you are to do battle.

Take care everyone,

Tina

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