CSN Login
Members Online: 5

You are here

Starting New Treatment...

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Well, time to get back to the battle. My CEA continues to rise....high enough now that anything else has been ruled out except recurrance. Even though the scans show nothing.... that nasty crap is out there lurking...somewhere. Onc said no sense in letting it grow till we can see it so we might as well nip it in the bud now. He thinks it has returned to my right lung but is difficult to see because of all the scar tissue caused by Cyberknife. I am still trying to accept we are treating a number and not something I can see. Thats not sitting real good with me BUT...I will try a few rounds and see if CEA comes down.

At first the Onc wanted to try Erbitux. I am a very outdoor person and sunlight is a big no-no with Erbitux. Onc said since I have not been on Folfiri since July, 2010..and it worked at that time...that we would try that again instead.....kind of. I am actually going to be doing the Camptosar ONLY...no 5FU, Leuco or Avastin. He warned diarrhea WILL be an issue. So I will play it by ear and see if I get results with none of that other junk. I am happy I won't be taking that dumb fanny pack home. Not looking forward to losing all my hair again but really.... that is a side effect I can LIVE with. After all, my husband lives with it every day and he don't even have cancer!!! LOL.

Some of you have been asking about my recent vacation to the Dominican Republic. It was AWESOME!!!! My second time there and I love it. My Sister went with me. Every day was beautiful .... Bahama Mama's....Cabana Boys....Bahama Mama's....Cabana Boys.... Mamajuana...Cabana Boys.... El Presidente beer... Cabana Boys....Did I mention Cabana Boys..LOL!! John23... I did look into your request...however...customs dogs ruined that!!!

Anyway.... I am waiting to start treatment till next week as I have a big wedding to attend Saturday and it is the grand opening of a winery I am an investor in..sooooo ...I may be doing a tiny...ok a lot...of partying this week-end...one last hurrah...for now!

Ya'll take care

Jennie

AnneCan
Posts: 3692
Joined: Oct 2009

I am sorry to hear you need treatment, but it sounds like the onc is on top of this + I am glad the new treatment plan is in place. Enjoy the weekend!

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

You know what??? You are such a sweetheart! Thanks for always giving encouragement.... you rock!!

Jennie

Anonymous user (not verified)

This comment has been removed by the Moderator

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

On occasion I seem to be leaving letters out and bringing letters in on words (why this is I don't know, I blame chemo)so I totally read cabana boys and then "drinks" I saw drinks as something else, I was laughing so hard and then I reread it and saw it was drinks. Oh well, it was fun while I was laughing!!
Winter Marie

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

All I can say is WATCH OUT CHICAGO!!!!!! CP9 is gonna be awesome this year!!!

Jennie

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

That goes for you too..... always an encouraging word!!! Thank you for being you!

Jennie

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

hope just a few rounds of camptosar will be enough to sort the problem out!
Praying for that!

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Re:
"John23...
I did look into your request...however...customs dogs ruined that!!!"

Oh, fer cryin' out #$%^&*. You coulda' tossed a piece of liver
and thwarted those dumb dogs!

Oh, BTW, I can do the "cabana boy" trick, if youse wanna'?
I can duct-tape my ostomy pouches so they won't be as distracting.

(just sayin')

Stay well, babe!

John

wolfen's picture
wolfen
Posts: 1326
Joined: Apr 2009

So sorry to hear that you will be "enjoying" a repeat performance, but it sounds like you and your onc are well prepared.

Enjoy the wine party.

Take Care,

Wolfen

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

I will definately be enjoying the wine tasting events!!

Jennie

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Yep..... I sure do wanna see your "cabana boy trick" ... yes sir....surely do! Come to CP9 and let's see what ya got......Gotta love a man with duct tape talents! You bring your herbs and I'll bring mine... LOL

Huggs!

Jennie

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Did I hear herbs? Are my legal California herbs legal Chicago herbs? I've got the best truffles!!!

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Jennie,
Damn that your CEA has continued to rise. I think your onc is wise to treat now and see what happens to your CEA. Let us know how it is only being on Camptosar. I hope your side effects are minimal.
You are an amazing gal Jennie. We all know it.

Have fun this weekend.

Aloha,
Kathleen

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Thank you both for your responses. Kathleen, you are the amazing gal! Dick is a lucky guy and I am sure he knows that. Take care.

Jennie

Subscribe to Comments for "Starting New Treatment..."