Starting New Treatment...

idlehunters
idlehunters Member Posts: 1,787
Well, time to get back to the battle. My CEA continues to rise....high enough now that anything else has been ruled out except recurrance. Even though the scans show nothing.... that nasty crap is out there lurking...somewhere. Onc said no sense in letting it grow till we can see it so we might as well nip it in the bud now. He thinks it has returned to my right lung but is difficult to see because of all the scar tissue caused by Cyberknife. I am still trying to accept we are treating a number and not something I can see. Thats not sitting real good with me BUT...I will try a few rounds and see if CEA comes down.

At first the Onc wanted to try Erbitux. I am a very outdoor person and sunlight is a big no-no with Erbitux. Onc said since I have not been on Folfiri since July, 2010..and it worked at that time...that we would try that again instead.....kind of. I am actually going to be doing the Camptosar ONLY...no 5FU, Leuco or Avastin. He warned diarrhea WILL be an issue. So I will play it by ear and see if I get results with none of that other junk. I am happy I won't be taking that dumb fanny pack home. Not looking forward to losing all my hair again but really.... that is a side effect I can LIVE with. After all, my husband lives with it every day and he don't even have cancer!!! LOL.

Some of you have been asking about my recent vacation to the Dominican Republic. It was AWESOME!!!! My second time there and I love it. My Sister went with me. Every day was beautiful .... Bahama Mama's....Cabana Boys....Bahama Mama's....Cabana Boys.... Mamajuana...Cabana Boys.... El Presidente beer... Cabana Boys....Did I mention Cabana Boys..LOL!! John23... I did look into your request...however...customs dogs ruined that!!!

Anyway.... I am waiting to start treatment till next week as I have a big wedding to attend Saturday and it is the grand opening of a winery I am an investor in..sooooo ...I may be doing a tiny...ok a lot...of partying this week-end...one last hurrah...for now!

Ya'll take care

Jennie

Comments

  • AnneCan
    AnneCan Member Posts: 3,673
    Jennie
    I am sorry to hear you need treatment, but it sounds like the onc is on top of this + I am glad the new treatment plan is in place. Enjoy the weekend!
  • idlehunters
    idlehunters Member Posts: 1,787
    AnneCan said:

    Jennie
    I am sorry to hear you need treatment, but it sounds like the onc is on top of this + I am glad the new treatment plan is in place. Enjoy the weekend!

    Hey Anne
    You know what??? You are such a sweetheart! Thanks for always giving encouragement.... you rock!!

    Jennie
  • Hey Anne
    You know what??? You are such a sweetheart! Thanks for always giving encouragement.... you rock!!

    Jennie

    This comment has been removed by the Moderator
  • John23
    John23 Member Posts: 2,122
    Jennie -
    Re:
    "John23...
    I did look into your request...however...customs dogs ruined that!!!"


    Oh, fer cryin' out #$%^&*. You coulda' tossed a piece of liver
    and thwarted those dumb dogs!

    Oh, BTW, I can do the "cabana boy" trick, if youse wanna'?
    I can duct-tape my ostomy pouches so they won't be as distracting.

    (just sayin')

    Stay well, babe!

    John
  • herdizziness
    herdizziness Member Posts: 3,624
    unknown said:

    This comment has been removed by the Moderator

    dang
    On occasion I seem to be leaving letters out and bringing letters in on words (why this is I don't know, I blame chemo)so I totally read cabana boys and then "drinks" I saw drinks as something else, I was laughing so hard and then I reread it and saw it was drinks. Oh well, it was fun while I was laughing!!
    Winter Marie
  • idlehunters
    idlehunters Member Posts: 1,787
    unknown said:

    This comment has been removed by the Moderator

    Hey Graci....
    That goes for you too..... always an encouraging word!!! Thank you for being you!

    Jennie
  • wolfen
    wolfen Member Posts: 1,324
    John23 said:

    Jennie -
    Re:
    "John23...
    I did look into your request...however...customs dogs ruined that!!!"


    Oh, fer cryin' out #$%^&*. You coulda' tossed a piece of liver
    and thwarted those dumb dogs!

    Oh, BTW, I can do the "cabana boy" trick, if youse wanna'?
    I can duct-tape my ostomy pouches so they won't be as distracting.

    (just sayin')

    Stay well, babe!

    John

    Jennie
    So sorry to hear that you will be "enjoying" a repeat performance, but it sounds like you and your onc are well prepared.

    Enjoy the wine party.

    Take Care,

    Wolfen
  • idlehunters
    idlehunters Member Posts: 1,787

    dang
    On occasion I seem to be leaving letters out and bringing letters in on words (why this is I don't know, I blame chemo)so I totally read cabana boys and then "drinks" I saw drinks as something else, I was laughing so hard and then I reread it and saw it was drinks. Oh well, it was fun while I was laughing!!
    Winter Marie

    Oh Dizz......
    All I can say is WATCH OUT CHICAGO!!!!!! CP9 is gonna be awesome this year!!!

    Jennie
  • pepebcn
    pepebcn Member Posts: 6,331

    Hey Anne
    You know what??? You are such a sweetheart! Thanks for always giving encouragement.... you rock!!

    Jennie

    Feel so sorry to hear this news!
    hope just a few rounds of camptosar will be enough to sort the problem out!
    Praying for that!
  • idlehunters
    idlehunters Member Posts: 1,787
    John23 said:

    Jennie -
    Re:
    "John23...
    I did look into your request...however...customs dogs ruined that!!!"


    Oh, fer cryin' out #$%^&*. You coulda' tossed a piece of liver
    and thwarted those dumb dogs!

    Oh, BTW, I can do the "cabana boy" trick, if youse wanna'?
    I can duct-tape my ostomy pouches so they won't be as distracting.

    (just sayin')

    Stay well, babe!

    John

    John...John...John................
    Yep..... I sure do wanna see your "cabana boy trick" ... yes sir....surely do! Come to CP9 and let's see what ya got......Gotta love a man with duct tape talents! You bring your herbs and I'll bring mine... LOL

    Huggs!

    Jennie
  • herdizziness
    herdizziness Member Posts: 3,624

    John...John...John................
    Yep..... I sure do wanna see your "cabana boy trick" ... yes sir....surely do! Come to CP9 and let's see what ya got......Gotta love a man with duct tape talents! You bring your herbs and I'll bring mine... LOL

    Huggs!

    Jennie

    herbs? Herbs?
    Did I hear herbs? Are my legal California herbs legal Chicago herbs? I've got the best truffles!!!
  • Kathleen808
    Kathleen808 Member Posts: 2,342
    Jennie
    Jennie,
    Damn that your CEA has continued to rise. I think your onc is wise to treat now and see what happens to your CEA. Let us know how it is only being on Camptosar. I hope your side effects are minimal.
    You are an amazing gal Jennie. We all know it.

    Have fun this weekend.

    Aloha,
    Kathleen
  • idlehunters
    idlehunters Member Posts: 1,787
    wolfen said:

    Jennie
    So sorry to hear that you will be "enjoying" a repeat performance, but it sounds like you and your onc are well prepared.

    Enjoy the wine party.

    Take Care,

    Wolfen

    Thank you Wolfen!!!
    I will definately be enjoying the wine tasting events!!

    Jennie
  • idlehunters
    idlehunters Member Posts: 1,787

    Jennie
    Jennie,
    Damn that your CEA has continued to rise. I think your onc is wise to treat now and see what happens to your CEA. Let us know how it is only being on Camptosar. I hope your side effects are minimal.
    You are an amazing gal Jennie. We all know it.

    Have fun this weekend.

    Aloha,
    Kathleen

    Kathleen/Pepe
    Thank you both for your responses. Kathleen, you are the amazing gal! **** is a lucky guy and I am sure he knows that. Take care.

    Jennie