CA125

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Hissy_Fitz
Hissy_Fitz Member Posts: 1,834
in Ovarian Cancer #1
My CA125 is still in the "normal" range, but it has gone up exactly 2 points a month, for the last 3 months. Both my local gyn/oncologist and the gorgeous NY doctor seem unconcerned. Still....I hate it when it goes in this direction. DOWN, damn number....DOWN.

It's now 13.

Carlene

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  • pattysoo
    pattysoo Member Posts: 170
    #2
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    Slow rise
    Oh, THANK you for posting that. My numbers went up for the first time by just a point or two last month. Until then they'd been dropping. I've decided not to be retested for 3 months, but It's really hard. I'm changing to a new doctor and clinic in July so I think it will be CT scan time then.
    It's good to know I'm not the only worry wart out there.
    We're still in remission. We really are!
  • upsofloating
    upsofloating Member Posts: 466 Member
    #3
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    Darn annoyance that number
    Darn annoyance that number can be! At least your doc's aren't concerned at this time. It's still quite low, not doing a spike, but I know you liked those pretty single digits way better. I'll do a verse of "Down number...DOWN!" for you as well.
    Annie
  • Tina Brown
    Tina Brown Member Posts: 1,036 Member
    #4
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    These numbers rule our lives
    I have just had my latest numbers. It is 6 weeks since I finished chemo yet my numbers have dropped :) They have gone from 122 to 95. I know I am still not in the normal range but I was 1280 back in October 2010.

    I think it is all relative to each of us. I am so happy that I am now in double figures as opposed to quadruple and triple figures from 6 months ago.

    The main thingthat both I & my doctor agree on is that I am feeling really really well which is a much better indicator for me and my cancer. I know that my cancer will never go away so the key word is management.

    I know the numbers are a good way to monitor our cancer activity in a non invasive way, but how you are feeling is also a strong indicator of what your cancer is doing.

    I have learnt (it has taken some doing I can tell you)to enjoy the times when I feel well. Yes the numbers will rise again and I will feel unwell sometime in the future, but until that happens I will enjoy feeling good.

    Love Tina xxx
  • kayandok
    kayandok Member Posts: 1,202 Member
    #5
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    Yep!
    Those numbers tend to control our life one way or another. I vowed that I would not let the number control my emotions, but I have to admit I have broken that vow a few times.
    k
  • Disneynutt
    Disneynutt Member Posts: 134 Member
    #6
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    That number does rule our
    That number does rule our lives. It's horrible. Maybe the vaccine is causing it? Sometimes we just don't know why the number goes up or down. It may have nothing to do with ovca. I guess it's the not knowing. Well crap... just plain crap. I hope it goes down next time.

    -Kate
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #7
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    Disneynutt said:

    That number does rule our
    That number does rule our lives. It's horrible. Maybe the vaccine is causing it? Sometimes we just don't know why the number goes up or down. It may have nothing to do with ovca. I guess it's the not knowing. Well crap... just plain crap. I hope it goes down next time.

    -Kate

    me too!!
    When my dr told me I was all clear I asked her what mt # were and it went up one stinkin point and I was upset. The dr told me it means nothing so I put it out of my minf. You do the same ok? How is Nancy is she home now?...val
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #8
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    Damm Numbers
    It is such a love hate relatonship, mine is also creeping in the wrong direction from a 1,2,3,6,9,and now 11. I know there are woman who would love these numbers so it is really silly to complain but we are all dfferent. I understand what you mean Carlene ,I would feel better if it would have a dip in the numbers every once in awhile. Maybe next time !
    Colleen
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #9
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    Cafewoman53 said:

    Damm Numbers
    It is such a love hate relatonship, mine is also creeping in the wrong direction from a 1,2,3,6,9,and now 11. I know there are woman who would love these numbers so it is really silly to complain but we are all dfferent. I understand what you mean Carlene ,I would feel better if it would have a dip in the numbers every once in awhile. Maybe next time !
    Colleen

    CW.....was your nadir
    CW.....was your nadir (lowest number) a ONE??? That's marvelous. I don't think I've ever met anyone who scored a one.

    Carlene
  • srwruns
    srwruns Member Posts: 343
    #10
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    Hissy_Fitz said:

    CW.....was your nadir
    CW.....was your nadir (lowest number) a ONE??? That's marvelous. I don't think I've ever met anyone who scored a one.

    Carlene

    At Stanford Med Center where
    At Stanford Med Center where I was treated they don't measure the CA125 below 6. The lowest you can get is "<6".
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #11
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    Hissy_Fitz said:

    CW.....was your nadir
    CW.....was your nadir (lowest number) a ONE??? That's marvelous. I don't think I've ever met anyone who scored a one.

    Carlene

    Yes
    Yes but on the other end when I was full of cancer at surgery and sub-optimally debulked it was only 338 . But I'll take 1 any day in fact lets have 1's all around !
    Colleen
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #12
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    srwruns said:

    At Stanford Med Center where
    At Stanford Med Center where I was treated they don't measure the CA125 below 6. The lowest you can get is "<6".</p>

    My doctor says any number
    My doctor says any number between 0 and 10 is the same number

    Carlene
  • kikz
    kikz Member Posts: 1,345 Member
    #13
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    Cafewoman53 said:

    Yes
    Yes but on the other end when I was full of cancer at surgery and sub-optimally debulked it was only 338 . But I'll take 1 any day in fact lets have 1's all around !
    Colleen

    My last CA 125 was a three
    and in January it was 5. It's crazy but I found myself thinking I wish it wasn't so low because then the only way is up. Damned if it's high, damned if it's low.

    Sheeeeeesh!

    Karen
  • LaundryQueen
    LaundryQueen Member Posts: 676
    #14
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    kikz said:

    My last CA 125 was a three
    and in January it was 5. It's crazy but I found myself thinking I wish it wasn't so low because then the only way is up. Damned if it's high, damned if it's low.

    Sheeeeeesh!

    Karen

    No kidding!
    I totally agree with you Karen! I really don't even want to know WHAT my number is but I'll be checking it at the longest possible interval the oncologist will agree with.

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