Labs not so good

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forme
forme CSN Member Posts: 1,161 Member
in Lymphoma (Hodgkin and Non-Hodgkin) #1
Hi All,
Well, I received a call this morning form MD Anderson, the nurse for my onc was concerned about my recent lab results. She didn't like the numbers. They are wanting to do some adjustments with my meds. I really hate that. It seems that I just get used to one change and then they get changed again.
I am still thinking that I may go alone for my next set of scans and dr visit. I am going to book a room at the hotel that is connected to Anderson. that way it will be easy to go between the two places. I still have a little time before I need to book my flight, so until then I will still try to decide about going alone.
Peaceful healing
Lisha

Comments

  • dixiegirl
    dixiegirl CSN Member Posts: 1,043 Member
    #2
    Aww.
    I am so sorry to see this Lisha. I hope they get you straightened out soon my friend. I wish there was something I could do.

    I wish you all kinds of good thoughts!!

    Beth
  • cookingirl
    cookingirl Member Posts: 183
    #3
    lab results not good
    Lisha - so very sorry to hear about your lab results. How far is your flight to Houston? I'm fortunate to be able to drive 2 1/2 hours to reach Moffitt Cancer Center in Tampa. There's a nice Marriot hotel a mile away we stay in.

    You're be in my thoughts and prayers - keep us posted. So much sad news lately from dear friends on this site! Guess that's part of our game and what we're dealing with from month to moth. We all want happy news of remissions and life that returns a bit more to normal - that happens to the lucky few. Hopefully to us one day too! Fondly, Fran
  • forme
    forme CSN Member Posts: 1,161 Member
    #4
    dixiegirl said:

    Aww.
    I am so sorry to see this Lisha. I hope they get you straightened out soon my friend. I wish there was something I could do.

    I wish you all kinds of good thoughts!!

    Beth

    You are amazing
    Hi Beth,
    Thanks so much for the kind thoughts, With all you have going on right now, and to still have such warm kind thoughts for others, well you are amazing.
    Good thoughts right back at ya!
    Lisha
  • forme
    forme CSN Member Posts: 1,161 Member
    #5
    cookingirl said:

    lab results not good
    Lisha - so very sorry to hear about your lab results. How far is your flight to Houston? I'm fortunate to be able to drive 2 1/2 hours to reach Moffitt Cancer Center in Tampa. There's a nice Marriot hotel a mile away we stay in.

    You're be in my thoughts and prayers - keep us posted. So much sad news lately from dear friends on this site! Guess that's part of our game and what we're dealing with from month to moth. We all want happy news of remissions and life that returns a bit more to normal - that happens to the lucky few. Hopefully to us one day too! Fondly, Fran

    Thanks
    Hi Fran,

    It's always so nice to hear from you. I am so sorry to read that your struggles are many. I hope and pray that the gastro doc will find an answer, You must be so so tired.

    Travel to Houston is about 4 and 1/2 hours , I have a plane change in Dallas so it adds a little more time. Sure do wish I could drive, but Calif to Texas is a long way.
    When we were in Tampa with MIL, we stayed at the Embassy which is also near Moffitt. I thought that Moffitt was a wonderful hosp. I am happy for you that you're close enough to drive there.

    I too hope that we all reach that happy normal place again. I believe that it just takes a little longer for some, but we will get there...

    Peaceful healing always
    Lisha
  • dixiegirl
    dixiegirl CSN Member Posts: 1,043 Member
    #6
    forme said:

    Thanks
    Hi Fran,

    It's always so nice to hear from you. I am so sorry to read that your struggles are many. I hope and pray that the gastro doc will find an answer, You must be so so tired.

    Travel to Houston is about 4 and 1/2 hours , I have a plane change in Dallas so it adds a little more time. Sure do wish I could drive, but Calif to Texas is a long way.
    When we were in Tampa with MIL, we stayed at the Embassy which is also near Moffitt. I thought that Moffitt was a wonderful hosp. I am happy for you that you're close enough to drive there.

    I too hope that we all reach that happy normal place again. I believe that it just takes a little longer for some, but we will get there...

    Peaceful healing always
    Lisha

    OZ?
    Happy normal place? I'm in Kansas, but it feels like the twilight zone.

    LOL

    Take care both of you!

    Beth
  • vinny59
    vinny59 CSN Member Posts: 1,036 Member
    #7
    positive thoughts!
    Hey Lisha, wish you had better news then that, only positive thoughts your way!!! Vinny
  • Michele23
    Michele23 Member Posts: 168
    #8
    forme said:

    Thanks
    Hi Fran,

    It's always so nice to hear from you. I am so sorry to read that your struggles are many. I hope and pray that the gastro doc will find an answer, You must be so so tired.

    Travel to Houston is about 4 and 1/2 hours , I have a plane change in Dallas so it adds a little more time. Sure do wish I could drive, but Calif to Texas is a long way.
    When we were in Tampa with MIL, we stayed at the Embassy which is also near Moffitt. I thought that Moffitt was a wonderful hosp. I am happy for you that you're close enough to drive there.

    I too hope that we all reach that happy normal place again. I believe that it just takes a little longer for some, but we will get there...

    Peaceful healing always
    Lisha

    Bloodwork
    Lisha,Sorry to see you have yet one more bumpy road to go down.Was surprised to see that you have such a journey to travel.We travel about an hour to treatment and I thought this was far.Just wanted you to know your in my thoughts ,will keep my fingers crossed all goes well.Take good care,Michele Dx95FNHL3
  • miss maggie
    miss maggie CSN Member Posts: 929
    #9
    Labs
    Dear Lisha,

    I am so sorry the lab results were disturbing. You didn't mention the numbers, and where the problem were. I am glad at least MD Anderson is in the loop with your blood work. Do you have your blood test done where you live? And then forworded to Anderson?

    You're a strong lady. I am sure you will do well traveling alone. Get a good nights sleep the night before. Maybe the traveling alone will change??

    I know it is hard changing medications. Think of it this way. It is a change for the better.

    Let us know when you will be traveling.

    All my love, blessings, and prayers to you on your journey. Maggie
  • COBRA666
    COBRA666 CSN Member Posts: 2,401 Member
    #10
    LABS
    Lisha,
    Just hoping they can get all this crap straightened out with some adjustment. We are behind you all the way,but I know you already know that. John(FNHL-1-4A-5/10)
  • forme
    forme CSN Member Posts: 1,161 Member
    #11
    Michele23 said:

    Bloodwork
    Lisha,Sorry to see you have yet one more bumpy road to go down.Was surprised to see that you have such a journey to travel.We travel about an hour to treatment and I thought this was far.Just wanted you to know your in my thoughts ,will keep my fingers crossed all goes well.Take good care,Michele Dx95FNHL3

    Thanks
    Hi Michele,
    thanks for the kind thoughts. I used to see local docs, but was not getting good enough answers. So, now I fly to Texas.
    Hope your doing great...
    Lisha
  • yesyes2
    yesyes2 CSN Member Posts: 591
    #12
    COBRA666 said:

    LABS
    Lisha,
    Just hoping they can get all this crap straightened out with some adjustment. We are behind you all the way,but I know you already know that. John(FNHL-1-4A-5/10)

    Bummer
    Lisha,

    I'm so sorry about the labs not being where they should be. Changing meds is always a challange for me. Hope it goes well for you. Hang in there.

    When do you have to go to MDA?

    Thinking of you my friend,
    Leslie
  • forme
    forme CSN Member Posts: 1,161 Member
    #13
    vinny59 said:

    positive thoughts!
    Hey Lisha, wish you had better news then that, only positive thoughts your way!!! Vinny

    me too
    Hi Vinny,
    Seems like I need to gather up everyones positive wishes and keep them close by. Some days are hard, but there are good days too..
    Hope you and Lisa are doing well.
    Peaceful heaaling
    Lisha
  • forme
    forme CSN Member Posts: 1,161 Member
    #14
    miss maggie said:

    Labs
    Dear Lisha,

    I am so sorry the lab results were disturbing. You didn't mention the numbers, and where the problem were. I am glad at least MD Anderson is in the loop with your blood work. Do you have your blood test done where you live? And then forworded to Anderson?

    You're a strong lady. I am sure you will do well traveling alone. Get a good nights sleep the night before. Maybe the traveling alone will change??

    I know it is hard changing medications. Think of it this way. It is a change for the better.

    Let us know when you will be traveling.

    All my love, blessings, and prayers to you on your journey. Maggie

    Not always strong
    Hi Maggie,
    I have hope that hubby will be able to travel with me. I would much rather go with someone then by myself. I know that I could if I have to, but..
    I do get my labs drawn here and the lab faxes it to MDA. Makes it easy. MDA also has online acess to all my records, so i can look up anything at any time. Super great.
    Take good care and thanks for always having such kind words of hope.
    Lisha
  • forme
    forme CSN Member Posts: 1,161 Member
    #15
    COBRA666 said:

    LABS
    Lisha,
    Just hoping they can get all this crap straightened out with some adjustment. We are behind you all the way,but I know you already know that. John(FNHL-1-4A-5/10)

    Rock
    Hi John,
    Did you know that your a rock. Well to me you are a rock. I can always count on you to offer me great advice and or words to get through the next day or hour with. So, your a rock.
    And yes I know that you all are there for me anytime.
    Thanks so much. I'm here for you too...
    Lisha
  • forme
    forme CSN Member Posts: 1,161 Member
    #16
    yesyes2 said:

    Bummer
    Lisha,

    I'm so sorry about the labs not being where they should be. Changing meds is always a challange for me. Hope it goes well for you. Hang in there.

    When do you have to go to MDA?

    Thinking of you my friend,
    Leslie

    Hanging in
    Hi Leslie,
    Trying to take it day to day. Some days are hard but I do have some that are less difficult.
    Everything is set for two months from now. All appointments etc. Feels like a long way away. I'm sure that will change as the date gets closer.
    You hang in there too. Try and find a little peace within..
    Lisha
  • dixiegirl
    dixiegirl CSN Member Posts: 1,043 Member
    #17
    forme said:

    Rock
    Hi John,
    Did you know that your a rock. Well to me you are a rock. I can always count on you to offer me great advice and or words to get through the next day or hour with. So, your a rock.
    And yes I know that you all are there for me anytime.
    Thanks so much. I'm here for you too...
    Lisha

    Rock
    I agree Lisha, he is a rock...one that plays with his port, but a rock none the less!

    Thanks John.

    You get some rest my dear woman!

    Night all, pain pills a working I am going to bed.

    Beth
  • COBRA666
    COBRA666 CSN Member Posts: 2,401 Member
    #18
    dixiegirl said:

    Rock
    I agree Lisha, he is a rock...one that plays with his port, but a rock none the less!

    Thanks John.

    You get some rest my dear woman!

    Night all, pain pills a working I am going to bed.

    Beth

    Run off to bed
    Beth,
    Thats it,Get the final word in and run off to bed. :) John
  • dixiegirl
    dixiegirl CSN Member Posts: 1,043 Member
    #19
    COBRA666 said:

    Run off to bed
    Beth,
    Thats it,Get the final word in and run off to bed. :) John

    Yep
    First one in the am too :)


    You crack me up!
    Beth
  • JoanieP
    JoanieP Member Posts: 573
    #20
    forme said:

    You are amazing
    Hi Beth,
    Thanks so much for the kind thoughts, With all you have going on right now, and to still have such warm kind thoughts for others, well you are amazing.
    Good thoughts right back at ya!
    Lisha

    Good thoughts
    Hi
    Hope your hubby can go with you and this drug change will be a positive thing. Take care and keep that positive attitude you have. It'a refreshing.

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