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Labs not so good

forme's picture
forme
Posts: 1162
Joined: Aug 2010

Hi All,
Well, I received a call this morning form MD Anderson, the nurse for my onc was concerned about my recent lab results. She didn't like the numbers. They are wanting to do some adjustments with my meds. I really hate that. It seems that I just get used to one change and then they get changed again.
I am still thinking that I may go alone for my next set of scans and dr visit. I am going to book a room at the hotel that is connected to Anderson. that way it will be easy to go between the two places. I still have a little time before I need to book my flight, so until then I will still try to decide about going alone.
Peaceful healing
Lisha

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

I am so sorry to see this Lisha. I hope they get you straightened out soon my friend. I wish there was something I could do.

I wish you all kinds of good thoughts!!

Beth

forme's picture
forme
Posts: 1162
Joined: Aug 2010

Hi Beth,
Thanks so much for the kind thoughts, With all you have going on right now, and to still have such warm kind thoughts for others, well you are amazing.
Good thoughts right back at ya!
Lisha

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Hi
Hope your hubby can go with you and this drug change will be a positive thing. Take care and keep that positive attitude you have. It'a refreshing.

cookingirl's picture
cookingirl
Posts: 183
Joined: May 2010

Lisha - so very sorry to hear about your lab results. How far is your flight to Houston? I'm fortunate to be able to drive 2 1/2 hours to reach Moffitt Cancer Center in Tampa. There's a nice Marriot hotel a mile away we stay in.

You're be in my thoughts and prayers - keep us posted. So much sad news lately from dear friends on this site! Guess that's part of our game and what we're dealing with from month to moth. We all want happy news of remissions and life that returns a bit more to normal - that happens to the lucky few. Hopefully to us one day too! Fondly, Fran

forme's picture
forme
Posts: 1162
Joined: Aug 2010

Hi Fran,

It's always so nice to hear from you. I am so sorry to read that your struggles are many. I hope and pray that the gastro doc will find an answer, You must be so so tired.

Travel to Houston is about 4 and 1/2 hours , I have a plane change in Dallas so it adds a little more time. Sure do wish I could drive, but Calif to Texas is a long way.
When we were in Tampa with MIL, we stayed at the Embassy which is also near Moffitt. I thought that Moffitt was a wonderful hosp. I am happy for you that you're close enough to drive there.

I too hope that we all reach that happy normal place again. I believe that it just takes a little longer for some, but we will get there...

Peaceful healing always
Lisha

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Happy normal place? I'm in Kansas, but it feels like the twilight zone.

LOL

Take care both of you!

Beth

Michele23
Posts: 168
Joined: Mar 2011

Lisha,Sorry to see you have yet one more bumpy road to go down.Was surprised to see that you have such a journey to travel.We travel about an hour to treatment and I thought this was far.Just wanted you to know your in my thoughts ,will keep my fingers crossed all goes well.Take good care,Michele Dx95FNHL3

forme's picture
forme
Posts: 1162
Joined: Aug 2010

Hi Michele,
thanks for the kind thoughts. I used to see local docs, but was not getting good enough answers. So, now I fly to Texas.
Hope your doing great...
Lisha

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hey Lisha, wish you had better news then that, only positive thoughts your way!!! Vinny

forme's picture
forme
Posts: 1162
Joined: Aug 2010

Hi Vinny,
Seems like I need to gather up everyones positive wishes and keep them close by. Some days are hard, but there are good days too..
Hope you and Lisa are doing well.
Peaceful heaaling
Lisha

miss maggie
Posts: 929
Joined: Mar 2010

Dear Lisha,

I am so sorry the lab results were disturbing. You didn't mention the numbers, and where the problem were. I am glad at least MD Anderson is in the loop with your blood work. Do you have your blood test done where you live? And then forworded to Anderson?

You're a strong lady. I am sure you will do well traveling alone. Get a good nights sleep the night before. Maybe the traveling alone will change??

I know it is hard changing medications. Think of it this way. It is a change for the better.

Let us know when you will be traveling.

All my love, blessings, and prayers to you on your journey. Maggie

forme's picture
forme
Posts: 1162
Joined: Aug 2010

Hi Maggie,
I have hope that hubby will be able to travel with me. I would much rather go with someone then by myself. I know that I could if I have to, but..
I do get my labs drawn here and the lab faxes it to MDA. Makes it easy. MDA also has online acess to all my records, so i can look up anything at any time. Super great.
Take good care and thanks for always having such kind words of hope.
Lisha

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Lisha,
Just hoping they can get all this crap straightened out with some adjustment. We are behind you all the way,but I know you already know that. John(FNHL-1-4A-5/10)

yesyes2
Posts: 592
Joined: Jul 2009

Lisha,

I'm so sorry about the labs not being where they should be. Changing meds is always a challange for me. Hope it goes well for you. Hang in there.

When do you have to go to MDA?

Thinking of you my friend,
Leslie

forme's picture
forme
Posts: 1162
Joined: Aug 2010

Hi Leslie,
Trying to take it day to day. Some days are hard but I do have some that are less difficult.
Everything is set for two months from now. All appointments etc. Feels like a long way away. I'm sure that will change as the date gets closer.
You hang in there too. Try and find a little peace within..
Lisha

forme's picture
forme
Posts: 1162
Joined: Aug 2010

Hi John,
Did you know that your a rock. Well to me you are a rock. I can always count on you to offer me great advice and or words to get through the next day or hour with. So, your a rock.
And yes I know that you all are there for me anytime.
Thanks so much. I'm here for you too...
Lisha

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

I agree Lisha, he is a rock...one that plays with his port, but a rock none the less!

Thanks John.

You get some rest my dear woman!

Night all, pain pills a working I am going to bed.

Beth

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Beth,
Thats it,Get the final word in and run off to bed. :) John

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

First one in the am too :)

You crack me up!
Beth

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