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My hair

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

First I hate asking something like this when it is such a very sad time here. I sure would love to hear Kerry's answer. He is so fun and loving also. I could use his sense of humor now. ....... So I have a question. How do you shave your head? What is the best way. I feel funny asking this. It's just that I've never had to do it and I think it's coming soon. My hair is now really thinning and I don't know if I'm supposed to go to my salon, get out a razor for my legs, buy one of those that cuts it close with short stubbles....?? I went through 6 treatments of folfox and it only thinned some that was tolerable. Then my Dr changed me to folfiri and it began to fall. Handfulls with the hairwash, brushfulls, fingerfulls, ...there are thinning spots....so I think it's almost time to let the pride go. It's just that I only have 3 treatments left, about 7 weeks. I think it's not right I made it through 9 months of treatments and in the last month and a half I'm beginning to look like I need a bigtime combover. No offense if anyone chooses this style, I've just never been there....till now.

So please, what is the best way to do this?

Okay....that's it, thank you, Gail

TMac52's picture
TMac52
Posts: 358
Joined: Aug 2010

Do you have Buzzers?? If not you can buy a cheap one at your pharmacy. Buzz it then use the razor. Have two boys and have been buzzing there heads since they were little.
Good luck.
Tom

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

I have clippers but really do you have to buzz it all off? I will text you after my scan. Hugs!,,

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

That picture I text you before I cut it is soo funny. I'm glad I did the short look, I've always wondered what I would look like :) but of course there's the hat.....lol

Hugs, Gail

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Look Tom..no buzzers yet :) Just short!

Hugs, Gail

AnneCan
Posts: 3692
Joined: Oct 2009

I don't think there is one right way to do it. Some seem to do it themselves, others go to a salon. I just had my daughter cut mine really short, + lo + behold, when she did, we saw new growth starting. That cheered me up. I have to say that some of the most striking women at my cancer centre seem to the ones who have little or no hair. My hair is still growing, it is quite shot. I started on my new regimen ~ 1 month ago + noticed more thinning.

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

My first round of Folfiri... I just thinned... After 2 doses of my second round.... it all fell out. I cut it real short and put on a wig....the rest fell out on its own till I was bald. After having real long hair my entire life.... this is a HUGE change. I never seen my scalp before...uhhh, it was ugly...brown streaks on it that I had no idea even existed!! My eyebrows and lashes were gone too. I have never felt more like a cancer patient. After several days of crying and feeling sorry for myself I said "Hey, wait a minute...since when have you EVER settled for ugly?" I went to a beauty supply and got a few different wigs,,,different colors..styles... One of my hats I put velcro in and just bought a "halo" of hair and velcro'd it in...that was REAL comfy and since it was not a FULL wig it was much cooler. I bought eyebrow stencils cause when I tried to draw them on I looked like a clown. I went to a beauty shop and had lashes put on...they do sets or individual lashes. I felt like a beauty queen....HA..Take that cancer!!!! At this time, I am no longer on Folfiri and my hair has grown out about 3 inches. I am waiting for 1 more inch and then I am having extensions put on. They are expensive but I miss my long hair!!! That is my Mothers Day gift to me....and then I am leaving Mothers Day and going to the Dominican Republic for a week!!!! Gotta show off my hair!!!! You can use all this fake stuff to keep you as purdy as you are now...and remember...its only temporary! You take care.

Jennie

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Hi Jennie, by two rounds do you mean two intirely different treatments? or is two rounds the second month into the chemo?....I'm sorry I get a little confused as I hear people refer to it differently. I've had 3 infusions of folfiri and get my 4th next Tuesday. This after 6 of folfox before my onc switched me. ....Thank you for all of your thoughts and words. It really means a lot. I am just very thin now and especially in the front. I stopped by the CTC just now and spoke with the nurse and she thinks it will all come out or thin beyond my comfort without a doubt. It's the stress of seeing it in my fingers and on my clothes and in the lint tray in the dryer and in the hood on my jacket and knowing I need to put my hair in a pony tail and hat to cook. This is what upsets and stresses me so. Seeing it right in front of me. I'm not going to cut it today (at least I don't think at this moment...lol) but I have a VERY STRONG feeling it's not going to be long.

Thanks so much, Gail

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Hi Jennie...look :) I decided to do short first while it's only thinning and I guess I will see after another folfiri or two. I really don't like the folfiri, it wipes me out. I feel so weak after I get it, the first time I almost fell twice before I got home......your trip sounds wonderful and it's going to be a blast!

Hugs, Gail

AnneCan
Posts: 3692
Joined: Oct 2009

You look gorgeous with the new do!

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plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Graci your words are full of love and support :) like Jennie but in a different way, you been there and done that and I appreciate the advice, ideas, and personal experience look on things. As you can see in my new picture, I went for the short cut at first. It doesn't help with the thinness but doesn't look so scragly and long. lol....It seems after I get the chemo is when it comes out the most the first week...but I could be wrong on that too.?? ....anyway I will take it as it goes and be happy I have each day :)

Hugs, Gail

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

I agree with you Anne, the women with little or no hair are very beautiful. There is something about them...is it strength? courage? honesty? I don't quite know, but it radiates from them and makes me want to know them.

Hugs, Gail

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Thank you dear friends for the support and info. I know it's only my hair but dang it! I hate that this is so stressful but seeing it wrapped in my fingers and in the drain and brush, clothes..lint tray..etc......I think is what is making it worse for me and I'm just about there with the cutting. I can almost feel it's going to happen and soon but today I'm going to wear a hat....again. I talked to the nurse at CTC and she too thinks it's either going to all come out or get very thin. She was soo nice and supportive and gave me ideas. So now I know it's not my imagination I showed 3 people this morning and all said yep they see what I see. I hate that hair can do this to me but I think it's what kept people telling me I looked good all this time.

Love you all, Gail

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

By 2 rounds I mean the first round lasted 6 months getting an infusion bi-weekly. the second round was only 2 treatments. BTW.... I think you are a real purdy gal with or without hair...your smile makes you glow!

Jennie

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Wow....how strange is this chemo stuff....it left your hair for the first round with 12 treatments and then just bam took it with the next 2.

Ok off to put my baseball cap on and head to the dentist...lol...tomorrow I'm shopping with my wonderful daughter Tara and I think I will wear these cute new summer high heels with my cap...lol....ahh life

Gail

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

Though I would say you are stunningly beautiful!

Bald will be a temporary experience, have fun with it! Wigs, hats, scarves, heck, go and get a henna tattoo!

And go to the parlor. You can do it yourself, but they will do a better job, and can give you some tips on how to maintain it.

Regardless, stunning is stunning, with or without hair!

Blake

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Thank you dear Blake for the beautiful compliment. As you can see...for now I went with the short cut. And a hat. lol....ya know...its the in between thinning that is frustrating...too much there to buzz it all, and not enough to cover my scalp.....but hey...I've got hats now :)

Hugs, Gail

SisterSledge's picture
SisterSledge
Posts: 342
Joined: Feb 2011

I have long hair and the thought of losing it makes me shudder...but at the same time, I've had long hair all my life and kinda looked forward to the novelty of short hair or baldness. I've admired the beauty of many women who wear their hair very short. However, they're saying I likely won't lose my hair from the chemo I'm taking and I wouldn't ever shave my head on a lark so if it doesn't come out on it's own it's not gonna happen. Looking at your pic, I'd guess you're going to look like a goddess without your hair.
Janine

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Janine you beautiful long haired lady...I also admire the look of the women with the very short or bald. This in between....kinda stinks LOL. So....for now it's gonna be short with hats :)

Hugs, Gail

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi sweet Gail,

Sorry about the hair! Hair is just hair but, especially as women, our hair gives us confidence and makes us feel naked if it's not there. You will get through this & it will make you tougher when you come through it! At least it is temporary.
If mine all fell out, I'd really be in for it because I'm on the forever chemo plan. It's thinned, but not come out totally. I had hoped that would be the case for you, but it is what it is! As so many others have said, you have such a pretty face and nice figure that you will still be stunning!

You hang in there, girl!

Hugs,
Lisa

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Hey there girly...wondering if I text you that picture before I cut my hair...soo funny now, the look on my face showing my hair. You are beautiful and amazing inside and out and even if you did lose your hair on your plan, it would give us all strength, courage, and inspiration and we would all want to look just like you!

Hugs, Gail

pscott1
Posts: 207
Joined: Jan 2011

I agree Gail....I think you are a beautiful woman and it wouldn't matter to me if I had hair or not if I looked like you. I too fear the thinning of the hair going to baldness (I don't think combover would be my look either)! I have only had my first treatment of Folfox and 5 1/2 months to go....I'll let you know what happens with me. My Onc says it will fall out but from what I read on the board, the consensus is thinning. (I opt for the later and with an emphasis on "very little" thinning)! :)

Pam

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Gail, we do need to get together soon!!

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

I agree...let's celebrate your scan results. We can meet in Visalia or what ever sounds good for the day. I can't wait to be finished with this chemo!!! Then lets get together and head outta town again :)

Hugs and smiles, Gail

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

You guys are definitely hired for my cheer team! I talked (and cried) with my hairdresser today and when she started trying to show me how I can fix it by holding it up and teasing it to make it bigger and it only showed me how thin it actually is on top I started sobbing and said stopstopstopstop just give me my hat I want my hat....now I smile as I write my experience. Poor girl was in tears. I'm going to wait it out as long as I can but I have a feeling if I have another day like yesterday....that will be the deal breaker.

Love you all and thank you for the kind words....I did need it very much. I think what is actually so hard for me is all along I heard "you look so good" and I think it's because I had my hair. If you have hair like normal..then it's just you. But when there is no hair when there ought to be, that's when we look like the chemo cancer patient. I made it this whole time and to think at the end I'm going to get the looks and comments, even from my friends that don't know, now they will. And without me telling them. ........OH WELL!!! :)

Huggin you, Gail

ketziah35
Posts: 1154
Joined: Jun 2010

My mom went to my dad's barber. Check out a song by India Arie- I am not My hair" I think having no hair shows the beauty in one's face. It shows the eyes and the cheekbones. Check out that song. It is simply girl power. I usually follow it up with Shania's "Feel Like a Woman".Go ahead and listen to that one.

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

You already know how I feel about the hair, we've have already been there.. :) Love to you sweetheart, I know its a pain but as they say its temporary...Love to you....buzz

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Buzz you wonderful man...yes I remember what you said. And thank you so much, I just want to hug you...how do you like it short? We will see in the next week or so if it needs anymore changes :) I got your love and sent some back!

Hugs, Gail

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

That song is great! and to make sure you know I'm going to tell you in a whole new post! :)

Hugs, Gail

pscott1
Posts: 207
Joined: Jan 2011

Gail, Honestly....being over 50 myself, I have to tell you the key word in your whole comment above "OH WELL" is the attitude you should stick with. I also adore my hair and I don't care how thin it gets, I'm not shaving it or cutting it real short. You are so close to being done with treatments, I say ride it out with hats!

Whatever you decide, let it be YOUR decision and one that you're comfortable with!

Love,

Pam

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Thank you Pam :) not sure if you saw my other picture, but I dedided on a cut for now. It's much much shorter and I am very happy with it. Not sure what next week will bring but I'll get to that later. lol

Mostly, rather than the idea of losing hair, the stress comes when I see it coming out....well honestly....its looking at the baldish spot too...LOL....whatever...it is what it is and I'm happy to be alive!

Hugs, Gail

jjaj133's picture
jjaj133
Posts: 869
Joined: Mar 2011

Hi Gail, I agree with everyone else, you are so lovely you could put a mop on your head and still turn heads!!
But I get it. The first question I asked, was not am i going to die. It was, "am I going to lose my Hair!!!???"
I didn't, it just got thinner. I was on oxi, zeloda, 5fu, avastan (?) and lord know what else.
So maybe you ought to hang in there?
Sending prayers, Judy

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Hi Judy, this picture is the cut after the freakin out the other day LOL...and I am so much happier with it...for now :)

Hugs, Gail

jjaj133's picture
jjaj133
Posts: 869
Joined: Mar 2011

You look great! And freakin out is acceptable under these circumstances.
Hugs to you, judy

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Hugs!

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Thank you dear Pepe and lovin the hug.

Gail

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

love the new doo.my sister cut mine short so it would not come out in long handfuls.it took me 18 months to get my hair back from thinning the first time while on folfox.now i have only had 2 tx of irritatican and although i am not bald yet it is thinning alot.so i feel your pain...Godbless....johnnybegood

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Yes thats it! It was just long handfuls and making it harder on me emotionally not to mention I thought it was gross and nothing I do covers up the thin areas....I like the cut better than the way it was and it will probably get even shorter...on no :) I have 3 of the folfiri left...

hugs to you my thin haired sister, Gail

SisterSledge's picture
SisterSledge
Posts: 342
Joined: Feb 2011

I love your new look!

amandab2010
Posts: 4
Joined: Apr 2011

When I had cancer my mom cut it as short as possible and then used some clippers. It was a very difficult experience for me but I got through it. Now, my hair has grown back curly! I had the straightest hair imaginable and now it's curly.

Good luck and congrats on being so close to finishing treatment!

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Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

I had very long, very thick hair all my life. Everyone knew me by my hair. My first two questions when I was told I would have to do chemo were would I lose my hair, and could I still travel to my favorite island?

I was very worried about losing my hair. But I did FOLFOX first - you normally don't lose hair on it, but might thin a bit. HA! I lost about 9/10 of my hair on FOLFOX, but mine was so thick to start with I got by. I pulled my hair back into a ponytail (very small one) to give the illusion of more hair. In my summer off from chemo it started to grow back thick again.

Last fall I had to start FOLFIRI, which pretty much everyone thins on, and many lose their hair. My experience with the FOLFOX helped prepare me a bit. For the first time in my life I got a short style to help prepare for most likely losing it all. And it wasn't the end of the world - it was actually kind of cute.

But after a few tx of FOLFIRI the old-man comb-over just wasn't cutting it anymore. So my two boys and my husband shaved their heads first, and I went last. We just used the clippers I have always used on the guys - but intead of buzzing a 2, 3, or 4, we all went down to zero. It turns out my head is pretty small - it just looked bigger with all that hair all my life! Luckily my head has a nice shape to it, so I don't look bad bald. I tried a wig but it was uncomfortable. Instead I found turbans and hats more comfortable.

I went on maintenance chemo the beginning of February and I have been growing hair back. I colored it red so it could be seen (blonde and gray wasn't showing up much). I've been having fun with it, and have finally realized that I am NOT my hair - it is a very small part of who I am, and a change was a good thing. I actually look younger now with my short hair! And it doesn't blow in my face in the wind, and I don't need all the hair accessories, and use a lot less shampoo and conditioner!

Back on FOLFIRI as of this cycle, so I will probably be saying goodbye to my hair again. I'm not worried about it now at all. In the big scheme of things, it is just hair. We put way too much stock in our hair and our looks in my opinion. There are much more important things in life!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

hi gail,

you are simply beautiful........

its easy being a guy and having this side effect.

our societies put such pressure to look good, but its so superficial.

don't stress over your hair, be at peace anyway you can.

i was half bald anyway since 25 so i did the shave thing just because my wife likes bald movie stars.

after my first shave i had all these strange red spots on scalp where my hair used to be.
it looked pretty bad, but cleared soon and has not returned.

my barber does the head and the face shave for $30 and he is next to my naturopath.
a few times i went to a trendy shop and they did the head massage and a facial for $100.
its was a once off treat.

try and smile,
hugs,
pete

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