The Verdict Is In!

rose_marie
rose_marie Member Posts: 75
edited March 2011 in Ovarian Cancer #1
All that worry about my ca125 going up, I thught it was nothing to worry about. Not so! Went to visit my son and grandchildren March 3rd. Had a heck of a time breathing and thought for sure the altitude had something to do with it (even though I have been to SLC many times before and never had a breathing problem). Came home after 4 days and went to my doctor. She ordered some x-rays with me standing and on my back. Seems as though there was fluid in the sack around my right lung. Step 2, see the a pulmonologist and that lovely lady drained the fluid and I though I was going to cough my brains out. She drained 3+ liters.
Step 3. The fluid is taken to the lab and more x-rays. Final verdict, my ovarian cancer came back (after almost 5 yrs) and I go for my first chemo treatment this Friday, which also happens to be my granddaught's 3rd birthday!

This must be a very bad dream and I know that before Friday, I will wake up and go back to living as before.

How do you ladies deal with this type of situation? You think the cancer is gone and BINGO it appears again!
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Comments

  • azgrandma
    azgrandma Member Posts: 609 Member
    So sorry to hear this
    Rose Marie
    I am so sorry you are going through this. My heart is breaking for you at this moment. I will pray for you and put you on the prayer list as well.
    Please be strong, God will see you though
    Hugs Lynda
  • srwruns
    srwruns Member Posts: 343
    Very sad to hear this. You
    Very sad to hear this. You beat it back once, and so you will again. It looks as if your profile pic is in Yosemite? I live in Northern CA and spend alot of time in Yosemite...are you in North. Cal area?
  • kikz
    kikz Member Posts: 1,345 Member
    azgrandma said:

    So sorry to hear this
    Rose Marie
    I am so sorry you are going through this. My heart is breaking for you at this moment. I will pray for you and put you on the prayer list as well.
    Please be strong, God will see you though
    Hugs Lynda

    I want to ask someone
    when is enough, enough but who do I ask? Please be strong. You have fought the fight before and you can do it again. I have been NED for just 4 months and I pray that if it does come back I will have a long remission. You are in my prayers.

    Karen
  • djinco
    djinco Member Posts: 87
    You Can Win
    I am sorry to hear of your recent diagnosis. I will pray for you. I know chemo can be tiring, but you can prevail. Allow your body to rest. Ask your family and friends to help you with food preparation. God is with you always.
  • Trine
    Trine Member Posts: 1
    Dear Rose Marie
    I am on my fifth recurrence, and still alive and kicking. After the first depression, which is always there when the terrible messages come, I try to concentrate on what is good in my life, how much I enjoy living and how lucky I am to have made it so far. It is difficult, but possible, to change your train of thoughts, but, as I said, after you have allowed yourself to feel the grief first. At least this works for me and has given me what I think is a very good life. What about thinking about how lucky you have been to have had FIVE years - and at least one grandchild - without having had cancer!
  • Mum2bellaandwilliam
    Mum2bellaandwilliam Member Posts: 412
    Trine said:

    Dear Rose Marie
    I am on my fifth recurrence, and still alive and kicking. After the first depression, which is always there when the terrible messages come, I try to concentrate on what is good in my life, how much I enjoy living and how lucky I am to have made it so far. It is difficult, but possible, to change your train of thoughts, but, as I said, after you have allowed yourself to feel the grief first. At least this works for me and has given me what I think is a very good life. What about thinking about how lucky you have been to have had FIVE years - and at least one grandchild - without having had cancer!

    I am sorry to hear your
    I am sorry to hear your diagnosis ,after five years you must think you are out of the woods , try to think positive , you have had a good remission and chances are that you will have remission again , my understanding is the longer you have in remission the better your chances are of achieving it again. Be strong and put this beast in it's place xxx
  • clamryn
    clamryn Member Posts: 508
    Rising CA125
    Hello Rose Marie, I truly remember that rising CA125 and my doctor telling me....not to worry. I knew better. I went for 17 years cancer free and I never even gave the beast a second thought after all that time had past. Of course, I always went to the doctor yearly for my CA125 and it was fine for all those years. Then one day, it jumped about 10 points. I was still within the normal range, but it worried me. The doctor said, let's go for another month and we will do it again. You got it...jumped again. Doctor ordered a CT Scan and sure enough it was back. My original diagnosis was 1991 and my reoccurence came in 2008. I was NED in 2009 and then it showed me again that it wasn't down for the count. I want you to know that I am still here. I have been living my life pretty good. Yes, I am still in treatment and still battling the beast.
    So many of these ladies have been through it and have made it to NED (No evidence of disease). YOU CAN DO IT too. Just don't let it run your life. Do what you want to do and enjoy your granddaughter. You have a lot to show her...make it count.

    Many blessings to you,
    Linda
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    Terrible News
    You can fight it just like you did the first time, this disease is a heart-breaker. But in five years they are doing better so take a deep breath and push on !Good Luck.
    Colleen
  • mopar
    mopar Member Posts: 1,972 Member
    HANG IN THERE, ROSE MARIE
    Allow yourself to have these weak moments - it's part of the process. I know that once it all settles in, you'll get right to it and do what you have to do. We all do, even when it's difficult. Keep looking up. And keep your eyes on those grandchildren. They truly are a blessing, aren't they? Seeing my grandsons take the 'bite' out of any day.

    Sending lots of hugs and prayers. Keep us up-to-date when you can.

    (((HUGS)))
    Monika
  • joan60
    joan60 Member Posts: 89
    Damn the beast!
    Hang in there, you beat it once for 5 years, you can do it again. You have a great support team here and we will all wish it to be gone again. I'm on my second round of chemo now and keeping a positive attitude about it, not going to let it win!!! In the mean time laugh and play and be happy and enjoy every day!!
    Joan
  • rose_marie
    rose_marie Member Posts: 75
    srwruns said:

    Very sad to hear this. You
    Very sad to hear this. You beat it back once, and so you will again. It looks as if your profile pic is in Yosemite? I live in Northern CA and spend alot of time in Yosemite...are you in North. Cal area?

    North CA
    Yes, I am in the Bay Area. That photo was taken in 2007, shortly after my last treatment. I had never been to Yosemite before and it was beautiful.
  • rose_marie
    rose_marie Member Posts: 75
    Trine said:

    Dear Rose Marie
    I am on my fifth recurrence, and still alive and kicking. After the first depression, which is always there when the terrible messages come, I try to concentrate on what is good in my life, how much I enjoy living and how lucky I am to have made it so far. It is difficult, but possible, to change your train of thoughts, but, as I said, after you have allowed yourself to feel the grief first. At least this works for me and has given me what I think is a very good life. What about thinking about how lucky you have been to have had FIVE years - and at least one grandchild - without having had cancer!

    Five Years
    Yes, Trine, I will be thankful for what I have had. During those 5 yrs I did lots of travel all over the world (UAL retiree) and saw such beauty. I took more walks and used my car less. It was amazing all the different flowers I saw, just in my own area. I even met the neighbors cats, who would come out to greet me as I walked past.
  • rose_marie
    rose_marie Member Posts: 75
    clamryn said:

    Rising CA125
    Hello Rose Marie, I truly remember that rising CA125 and my doctor telling me....not to worry. I knew better. I went for 17 years cancer free and I never even gave the beast a second thought after all that time had past. Of course, I always went to the doctor yearly for my CA125 and it was fine for all those years. Then one day, it jumped about 10 points. I was still within the normal range, but it worried me. The doctor said, let's go for another month and we will do it again. You got it...jumped again. Doctor ordered a CT Scan and sure enough it was back. My original diagnosis was 1991 and my reoccurence came in 2008. I was NED in 2009 and then it showed me again that it wasn't down for the count. I want you to know that I am still here. I have been living my life pretty good. Yes, I am still in treatment and still battling the beast.
    So many of these ladies have been through it and have made it to NED (No evidence of disease). YOU CAN DO IT too. Just don't let it run your life. Do what you want to do and enjoy your granddaughter. You have a lot to show her...make it count.

    Many blessings to you,
    Linda

    Rising CA125
    Oh Linda, I can't imagine going 17 yrs cancer free and then "it" comes back.
    This past Sunday in church, my minister told me that if anyone could make lemonade out of lemons it was me! I do not want to prove her wrong.
    Sounds like you are doing the same thing. Perhaps we should get a large clear plastic glass and fill it with those plastic lemons, to remind us of our determination to beat this again, and again.
    Thank you for your blessings,
    Rosemarie
  • rose_marie
    rose_marie Member Posts: 75
    mopar said:

    HANG IN THERE, ROSE MARIE
    Allow yourself to have these weak moments - it's part of the process. I know that once it all settles in, you'll get right to it and do what you have to do. We all do, even when it's difficult. Keep looking up. And keep your eyes on those grandchildren. They truly are a blessing, aren't they? Seeing my grandsons take the 'bite' out of any day.

    Sending lots of hugs and prayers. Keep us up-to-date when you can.

    (((HUGS)))
    Monika

    Grandchildren
    Yes, my grandchildren are such a joy. I am blessed to have a total of 4 boys and 1 Princess. Perhaps I wll dance at her wedding!!!
  • rose_marie
    rose_marie Member Posts: 75
    joan60 said:

    Damn the beast!
    Hang in there, you beat it once for 5 years, you can do it again. You have a great support team here and we will all wish it to be gone again. I'm on my second round of chemo now and keeping a positive attitude about it, not going to let it win!!! In the mean time laugh and play and be happy and enjoy every day!!
    Joan

    Thank You
    Thank you Joan, I will attempt to keep my situation updated. Something I just don't understand is that my ca125 keeps dropping in number. March 10th it was 197 and this past Monday it was 110. What do you make of that?

    Rosemarie
  • anicca
    anicca Member Posts: 334 Member

    Thank You
    Thank you Joan, I will attempt to keep my situation updated. Something I just don't understand is that my ca125 keeps dropping in number. March 10th it was 197 and this past Monday it was 110. What do you make of that?

    Rosemarie

    How could a dropping CA-125
    How could a dropping CA-125 be anything but good? Think positive!
  • srwruns
    srwruns Member Posts: 343

    North CA
    Yes, I am in the Bay Area. That photo was taken in 2007, shortly after my last treatment. I had never been to Yosemite before and it was beautiful.

    Awesome...I am in Santa
    Awesome...I am in Santa Cruz. I was treated at Stanford. 2 weeks out from my last chemo. The Valley is snowed in right now, I was up there last in January.
  • rose_marie
    rose_marie Member Posts: 75
    srwruns said:

    Awesome...I am in Santa
    Awesome...I am in Santa Cruz. I was treated at Stanford. 2 weeks out from my last chemo. The Valley is snowed in right now, I was up there last in January.

    Santa Cruz
    My parents used to take me there when I was little. Then I took my son's there. I have a neice living there now. Such a beautiful place.
    How are you doing? I have not kept up (new to this site).
    Perhaps someday we will run into each other at the Boardwalk.
    Rosemarie
  • rose_marie
    rose_marie Member Posts: 75
    anicca said:

    How could a dropping CA-125
    How could a dropping CA-125 be anything but good? Think positive!

    Positive Thinking
    Today I went out in the horrible rainy weather looking for plastic lemons. I was all over the Peninsula and not one lemon. Oh I did find lots in a dispay at Williams Sonoma but the sales lady told me they were not for sale. Bummer.
    I thought if I had a pitcher or large plastic glass full of plastic lemons, it would be a great reminder that I can make lemonade out of lemons!
    Next it is Amazon.
  • srwruns
    srwruns Member Posts: 343

    North CA
    Yes, I am in the Bay Area. That photo was taken in 2007, shortly after my last treatment. I had never been to Yosemite before and it was beautiful.

    doing well. My scan was
    doing well. My scan was clear last Wednesday. I have followup gyn/onc appt. this Friday. Then off to Joshua Tree for a road trip next week. My primary also got the scan report and she said it said something about a "nodule" in my left breast. The gyn/onc phone message didn't say anything about that and my mammo in January was clean but did mention I had "dense" breasts and a lesion could be difficult to see. So, fingers crossed that there isn't something else on the horizon. My primary didn't seem overly concerned about it either but said they may recommend mammos every six months rather than yearly. So Friday is the face to face and I am looking forward to going over everything and get next steps for followup defined.