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Waiting for surgery re: Kidney removal

DarrylPe's picture
DarrylPe
Posts: 75
Joined: Mar 2011

Hi I was diagnosis wth stage 1 kidney cancer two weeks ago. I'm currently waiting for a date for the surgery. I would appreciate any advise on things to prepare for and, things to expect after surgery. Thanks in advance this is a wonderful site

Jamie1.3cm's picture
Jamie1.3cm
Posts: 188
Joined: Jan 2011

I hope your surgery goes well. Reading these forums is the best way to prepare yourself for both surgery and life after surgery.

If they are able to do it laproscopically, your recovery will be shorter. Good luck!

kidkenpo's picture
kidkenpo
Posts: 20
Joined: May 2011

Jamie,

Thank you, yes it will be laproscopically removed. I am hoping to be on my feet in a week..

I hope :),

Again the more I read, the better I feel

Heath

DarrylPe's picture
DarrylPe
Posts: 75
Joined: Mar 2011

Hi all. Kidkenpo you do fine get as much info as you can about your surgery knowledge is power the more you know the more comfortable you feel.I had my right kidney removed on April 13 . I keep you in my prayers .

kidkenpo's picture
kidkenpo
Posts: 20
Joined: May 2011

Thank you Darryl

I am reading as much as possible and thank you for your prayers. I hope that you are doing well and back up on your feet! and starting to feel normal again

Heath

Jamie1.3cm's picture
Jamie1.3cm
Posts: 188
Joined: Jan 2011

Hey Darryl, it's good to see you posting again! I've been sending you healing vibes. How's it going? I bet you're still pretty sore and moving slowly.

DarrylPe's picture
DarrylPe
Posts: 75
Joined: Mar 2011

Hi Jamie good to hear from you. Yes boy have I been sore. This week is the frist week that I've felt close to normal I've been so tired and taking alot of power naps. My Creatine has been high since the surgery about 3.7 my doctor says that he expected it to be high for me as of the last blood test it's down to 3.2. How are you hope your feeling great. Thanks for the healing vibes. take care

Darryl

Jamie1.3cm's picture
Jamie1.3cm
Posts: 188
Joined: Jan 2011

They'll have you up walking the day after surgery! But you really wont be eager to move for a few weeks. Take it slow. Let your body tell you your limits.

kidkenpo's picture
kidkenpo
Posts: 20
Joined: May 2011

Heading into Surgery next Tuesday.. wish me luck..

Heath

icemantoo's picture
icemantoo
Posts: 3261
Joined: Jan 2010

Good luck on your surgery. Don't rush the recovery.

Icemantoo

kidkenpo's picture
kidkenpo
Posts: 20
Joined: May 2011

Thanks Icemantoo,

puppetman
Posts: 53
Joined: Apr 2011

I had My right kidney out on May 4, 2011, after You have Your kidney out don't do anything but walk and drink water, it does take time.

Hang in there

kidkenpo's picture
kidkenpo
Posts: 20
Joined: May 2011

Thanks Puppetman, I am glad you are doing better. may I ask how many days you were in the hospital? again thanks for the information.

Heath

puppetman
Posts: 53
Joined: Apr 2011

I was in the hospital for 3 days.

I am going to go see My Doc today, wish Me luck?

lbinmsp's picture
lbinmsp
Posts: 266
Joined: Jun 2006

None of this is a cake-walk - but you will get through it! Your surgery is just a few days away now so your anxiety level is undoubtedly increasing. Stay busy - you'll get enough 'rest' after the surgery. After surgery it's so important to listen to your body - when it says STOP, then you should STOP. Eat many small meals throughout the day and drink plenty of water. Walking is the best exercise you can do.
We're all pulling for you!

kidkenpo's picture
kidkenpo
Posts: 20
Joined: May 2011

Ibinmsp,

Thank you for your input and kind words. "Yes a little nervous" but really want to get it over with also.

H

Katielynn
Posts: 61
Joined: Apr 2011

I was wondering what kind of surgery you'll be having? I looked back into some posts and couldn't find you original post.... I know exactly how you're feeling, I can't wait to have my surgery done and over with...Waiting is so difficult, I'm having a partial (for now) nephrectomy left kidney for a 3.4 cm mass....I'm having it done robotically ( another super scarey thought) but if all goes well and he can get it all, I'll only have the partial. If he can't once he's in there I'll have the whole kidney removed...My thoughts and prayers will be with you....God bless

kidkenpo's picture
kidkenpo
Posts: 20
Joined: May 2011

Hi Katelynn,

I am having a full nephrectomy, I believe that it will be a hand assisted laparoscopic, My Mass is 3.8 and unfortunately it is located in the center of my kidney, so a partial is not recommended:( but i guess it will have to do :) (didn't want it anyways) (insert laugher here).. I will fill in more, hopefully after Tuesday.

Thank you again and I wish you the best as well

H

kidkenpo's picture
kidkenpo
Posts: 20
Joined: May 2011

Back home and feeling better..

Thank you everyone for your support.. I am a little sore and definitely tired most of the time.. I will take each day slowly.

Again thank you to everyone and there wonderful support.

H

DarrylPe's picture
DarrylPe
Posts: 75
Joined: Mar 2011

Hi Health great to see you back. Get plenty of rest and walk as much as you can it really helps.

Darryl

kidkenpo's picture
kidkenpo
Posts: 20
Joined: May 2011

It’s been a little over two months since the surgery and feeling better every day. Question to all! I did have the laparoscopic done, but the scar below my belly button was big then they had original planned. My question is about scar tissue building up... has anyone addressed this? I was told by friends to massage the area to keep it from getting worse. Any thoughts would be great! Also I hope all on this page are doing well, and hope everyone is feeling better every day.

Heath

jona187's picture
jona187
Posts: 74
Joined: Apr 2011

welcome back and I wish you a speedy recovery.

Try to rest alot and walk like others said. Don't over exert yourself as well :)

puppetman
Posts: 53
Joined: Apr 2011

I had My right kidney removed on May 4th 2011, it does take time, My Doc told Me to walk a lot, don't lift nothing and just take it easy, after a week of being home you will fell like doing a little bit of stuff "but don't or you will end up back in the hospital like I did", after three weeks you will start feeling pretty ok and want to do things, but ONLY do very light house work and do lots of walking, and drink lots of water.

I thought I could Handel anything, but when the Doc first told Me I had kidney cancer, it kind of rocked My world, even after the Doc told Me He got it all, I still feel really down and sad, the hardest part of being home for me is being around people and hiding how down and sad I really feel, but still do what Your Doc says.

jona187's picture
jona187
Posts: 74
Joined: Apr 2011

hang in there man

we are here to support you

VeryAnxious
Posts: 67
Joined: Sep 2010

Also glad to see you positng again Darryl. Don't rush the recovery. I know I got depressed and antsy and it does not help. Rest is so important.

VeryAnxious
Posts: 67
Joined: Sep 2010

Also glad to see you positng again Darryl. Don't rush the recovery. I know I got depressed and antsy and it does not help. Rest is so important.

puppetman
Posts: 53
Joined: Apr 2011

Sorry I have not been on here much, but I am doing good, I am healing up very good and faster then most "My Doc told Me that"

DarrylPe's picture
DarrylPe
Posts: 75
Joined: Mar 2011

Good to hear from you puppetman. Glad your healing well. Its surprising how fast you can recover. Stay strong

Darryl

kjwarner
Posts: 7
Joined: Jul 2011

My precious Dad is 85 and is going to have his right kidney removed. He has a 2.6cm tumor in the right one and the left is small and is not promising for taking the load after surgery. He is ok with dialysis and has a great attitude. He is VERY active and is extremely independent. He is most concerned about his ability to recover. He mows grass, works in the wood shop, helps my Mom and does many things for others. It is all about QUALITY for him.

Most of you appear to be much younger. From your experience do you think he can recover from such a dramatic surgery. He is not ready to give up, I know he will try.

Please give me your thoughts. All I have read has been encouraging but I wanted to tell you his story and get your ideas.

Many thanks!!

Jamie1.3cm's picture
Jamie1.3cm
Posts: 188
Joined: Jan 2011

Statistically, the majority of kidney cancer cases are men over 60; I guess they just don't spend much time in the forums.

I'm guessing that given the situation the docs will want to be as kidney-sparing as possible. And his tumor is still small, so that gives us all sorts of options.

Ask about cryoablating (freeze-killing) the tumor while leaving the kidney intact. Or, they could do a partial nephrectomy, only taking half the kidney. Taking the entire kidney would be the last resort.

The surgery could be an open abdominal surgery, which is a ***** to recover from. Or whatever they do, could be done laproscopically, which is less traumatic and easier to recover from. From what I've read, they are more likely to do laproscopic in the older folks.

If you're in an area where they don't give you many options, I'd go to the nearest major medical center, like a teaching hospital, where they might offer more options. It would be well worth it in the long run.

After surgery, just be sure to get follow up ct scans done at least annually. For those of us with tumors <3cm, that is usually all that is needed. Surgery is usually the "cure."

Hope that info helps!

kjwarner
Posts: 7
Joined: Jul 2011

Thank you for all the information. I was incorrect and found out last night the tumor is 6.6 cm which I understand is an entirely different subject. They are going to try to do the surgery laproscopy or robotic, will know more in a day or two. We are thinking they will schedule surgery in the next couple of days.

Dad is nervous but very willing to do this if they think this is best. He just doesn't want them to do it "just because". They have given us every reason to believe that the cancer (if it is and that is likely) is still contained in the kidney.

My biggest concern is recovery. He is very active and a tough guy. I surely appreciate your input and looks like you really hang in there to help those new to this sight. Thank you so much, it's at times like these than you learn how many compassionate people are out there!!!

BG
Posts: 85
Joined: Jun 2011

I just finished a partial laproscopic nephrectomy with the davinci and I can say I feel the recovery has not been bad. I am ome, after 3 days in hospital, eating, walking around, with minimal pain.

Wish you all the best, and my prayers are with you all.

BG

kjwarner
Posts: 7
Joined: Jul 2011

BG- glad to hear you are doing so well. Please keep posting your progress. It helps so much. We should know tomorrow when my Dad is scheduled for his surgery. It will be a total removal and he is 85 but in great shape. I am very inspired by all of the posts and hope he can recover from all of this!!!

Thanks again and I am praying for each of you.

DarrylPe's picture
DarrylPe
Posts: 75
Joined: Mar 2011

Hi KJ Warner your dad sounds like a great guy and tough too. I had a radical nephrectomy complete removal of my right kidney in mid April. Your dad will be tired for awhile after the surgery so tell him that's normal. Also it could take several days before he feels like eating normal amounts of food. He may have trouble sleeping if he dosen't like sleeping on his back . I slept on my couch and lounge chair for the first few days. Good luck and keep us posted . I'll keep your father and your family in my prays.

Darryl

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