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Waiting for surgery re: Kidney removal

DarrylPe's picture
DarrylPe
Posts: 75
Joined: Mar 2011

Hi I was diagnosis wth stage 1 kidney cancer two weeks ago. I'm currently waiting for a date for the surgery. I would appreciate any advise on things to prepare for and, things to expect after surgery. Thanks in advance this is a wonderful site

antjeanne's picture
antjeanne
Posts: 13
Joined: Aug 2010

I will pray for your total healing and speedy recovery. I told you about the not sleeping. Best of luck, and after when you get tired easy its ok its normal.I look forward to you posting about how you used to have Cancer.and are now a survivor.
All the best to you.
Anthony

DarrylPe's picture
DarrylPe
Posts: 75
Joined: Mar 2011

Hi All fellow survivors and,much gratitude for your input kind words , thoughts and prayers.Without you it would surely have been a tougher journey. What I recieved from all of you I could have never gotten from a healthcare provider that hadn't been where we have.
My surgery went well it was hand assisted laproscopic and took about an hour. Boy am I sore, constipated and tired. Just the thought of food makes me sick but, I trying to nibble and drink alittle soup. I'm also drinkng a lot of water trying to stay hydrated.
My doctor has alread gotten the path report and the 5 cm. cyst was dertermined to be cancer but appeared to be contained inside the kidney thank God. Talk to you soon.
Thanks Again and God Bless you all
Darryl

icemantoo's picture
icemantoo
Posts: 3261
Joined: Jan 2010

DarrylPe,

Glad to see you are up and doing well.

Best regards,

Icemantoo

VeryAnxious
Posts: 67
Joined: Sep 2010

Am so glad to hear you are doing ok. Take care of yourself. You will get better day by day

antjeanne's picture
antjeanne
Posts: 13
Joined: Aug 2010

Very Great News, Almost the same as mine, I was 4.9 cm, contained also. Remember to listen to your body.and rest. you will get better every day. My big thrill was being able to sleep on my side, and walking to the beach at the end of my street. I would make little milestones.
All the best to you and Prayers coming your way.
Anthony

Jamie1.3cm's picture
Jamie1.3cm
Posts: 188
Joined: Jan 2011

I'm glad you're doing so well. The constipation is just from the pain meds. As you wean off the meds, it will get better. Walking helps as well. Cheers!

trulytall's picture
trulytall
Posts: 14
Joined: Mar 2011

Hi Darryl: So happy to hear your surgery went well!!
Wishing you all the best in your recovery.
Denise

puppetman
Posts: 53
Joined: Apr 2011

I am so happy Your doing ok, how sore was You after You got back to Your room? I heard from My Doc, I go in on May 4th "I am dressed as the Bunny right now" May 4th will be the day He will take all of My right kidney out, I Pray I won't have a lot of pain.

icemantoo's picture
icemantoo
Posts: 3261
Joined: Jan 2010

I wish I could sugar coat the surgery and tell you that it will be pain free. To be honest I can not tell a lie. The good thing is that if they get it all out this may be your only treatment and that it does beat the alternative.

Best wishes,

Icemantoo

trulytall's picture
trulytall
Posts: 14
Joined: Mar 2011

I know you must be feeling very anxious and feeling all kinds of other emotions as well. Keeping all kinds of support around is definitely going to help you get through all of this. :) I had my left kidney completely removed on January 17th. Although the tumour was cancerous the surgeon and team do feel confident that they got it all!! So far, a clean bill of health. My next checkup is scheduled for May 20th so I pray everyday for continued good health. In regards to pain control and because of my intolerance to pain med's, the team thought it best for an epidural. I was frozen at and closely around the incision site.it worked very well for me with pain management. Anyway, I'll be praying for you and like I said,staying in touch with the support on this site is very helpful as well.
All the best.
Denise

puppetman
Posts: 53
Joined: Apr 2011

Thank You for Your Prayers

puppetman
Posts: 53
Joined: Apr 2011

Thank You for Your Prayers

puppetman
Posts: 53
Joined: Apr 2011

I go into the hospital on the 4th of May to get all of My right kidney removed, I wonder how long will it take for Me to be back to being 100% again, also , I am trying to find out what I cant eat after I have My kidney removed, I have talked to a Lady at My Church that was born with 1 kidney and says She eats anything She wants, I was born with 2 kidneys and will have 1 removed, so will I be able to eat the same as I do now?

Jamie1.3cm's picture
Jamie1.3cm
Posts: 188
Joined: Jan 2011

Everyone recovers differently, of course. And it makes a difference whether they do an open surgery or a laproscopic surgery. I'm only familiar with open surgery, so I'll give you the worse-case-scenario. Your mileage may vary.

It will take at least a couple weeks to several weeks before you can find a comfortable sleeping position. Smaller pillows you can use support yourself may be helpful. (I use stuffed animals, but that's just me.) Moving around will be very painful for several weeks. The rule of thumb for open abdominal surgery is 6-12 weeks recovery for returning to daily activities. Um.... I hear more 12weeks+ than 6 weeks, so don't feel like a failure if you are still in pain at 6 weeks. Expect to be exhausted for several months. Some doctors even say that you won't be back to your pre-surgery energy for a year. Again, depends on a lot of things, including the surgery. Just take it slow. Let this be your slow year. Don't push yourself into a hernia, which is very common with kidney surgery.

There are a couple forums on diet with one kidney. My doc agrees with your church lady, saying that you can live a perfectly normal life. Some are more cautious and say you should be careful to protect the one kidney you have left by keeping your blood pressure as low as possible and limiting protein, which is hard on the kidney. I'm going to side with protecting the one kidney.

Hope that helps!

trulytall's picture
trulytall
Posts: 14
Joined: Mar 2011

I just wanted to quickly say hi and to let you know that your posts are so helpful to me! :)
Thanks....
Denise

Jamie1.3cm's picture
Jamie1.3cm
Posts: 188
Joined: Jan 2011

Thanks, TrulyTall, that's nice of you to say. It feels good to think some good can come of this.

Has anyone heard from Darryl lately? I check in every night, hoping he would have updated us.

trulytall's picture
trulytall
Posts: 14
Joined: Mar 2011

No, I haven't heard from Darryl. I'm sure he's catching up on his well-deserved rest. :)
Have a great day Jamie.
Denise

DarrylPe's picture
DarrylPe
Posts: 75
Joined: Mar 2011

Hi everybody. All is going well. I'm recovering slowly and still don't don't feel very hungry. Boy am I tired I took the dogs for a short walk and, then had to take a nap as soon I got home. Seems like whenever I sit I fall asleep. Is that normal? My creatnine level was kind of high after I came from the hospital 3.9 last Friday so we checked again on Monday and it has started to go back down the doctor thinks it was due to the antibiotics. Any how it's great to be alive and cancer free today. God bless you all your all in my prays everynight.

Talk to you soon
Darryl

babycakes11's picture
babycakes11
Posts: 7
Joined: Apr 2011

Hi there, I recently had my left kidney removed ( March 3rd) and it has been a long road for me since then. On the plus side I am able to move around much better this past week and a half. I have had a lot of back pain due to having open surgery on my abdomen and over compensating all my movement with my back, but it's not too bad. Mentally I am coping but knowing that my cancer may come back since the tumor was so large and stage3, I have had really bad anxiety for some time now. As for a diet, I am on a vitamin regimen and easy on the proteins and salt. Drink lots of water and when you do feel like having a drink, that's if you do at all, you should limit yourself to 2 drinks per day. Eat your veggies! You definitely want to take care of that other kidney and not make it work any harder then it already has to. I will be going back to work next Wednesday and I am a bit nervous. I am just going to take things slow and go at my own pace until I am up to doing things as normal. Best of luck to you and keep us posted on how your surgery goes. If you have any specific questions just feel free to ask and I will try to give you the best information that I can.

puppetman
Posts: 53
Joined: Apr 2011

Thanks, once They started, how ling did it take foy then to take the kidney out, and how long did You stay in the hospital and did they have someone come out to help You like a Nurse?

puppetman
Posts: 53
Joined: Apr 2011

Thanks, once They started, how ling did it take foy then to take the kidney out, and how long did You stay in the hospital and did they have someone come out to help You like a Nurse?

puppetman
Posts: 53
Joined: Apr 2011

Thanks Babycakes11, once They started, how ling did it take foy then to take the kidney out, and how long did You stay in the hospital and did they have someone come out to help You like a Nurse?

puppetman
Posts: 53
Joined: Apr 2011

Dont know why it put it on here 3 times, but did You have to drink anything the day before , I got Me a bottle of magnesium citrate to drink

DarrylPe's picture
DarrylPe
Posts: 75
Joined: Mar 2011

Hi puppetman my doctor didn't give me anything the day before or the night before to take but I've heard others on this site who have. I would suggest after the surgery a glass of prune juice to help get you going to the bathroom after surgery.

Darryl

babycakes11's picture
babycakes11
Posts: 7
Joined: Apr 2011

Hi Puppetman. My surgery lasted 4 and a half hours and I stayed in the hospital four days after. My husband was off from work for a few days and he took care of me along with my children. For the first week all I wanted to do was sleep and didn't have an appetite at all but as the days progressed it got better. I stopped taking the pain meds three days out of surgery because I was tired of the way they made me feel. I managed the pain ok on my own. The day before I had to drink the same stuff you have to and was on a clear liquid diet. It wasn't fun ( it was my birthday) but it wasn't the worse thing either. Are you having the open surgery?

DarrylPe's picture
DarrylPe
Posts: 75
Joined: Mar 2011

Hi Puppetman I believe the length of time the surgery takes varies from patient to patient. My surgery took about a hour and ahalf in total and was done hand assisted laproscopic. As far as my pain right after surgery it wasn't bad but after the meds from surgery wear off you might become sore in the area of the surgery.Walking helps alot and my pain meds kept the pain down and allowed me to sleep at night. My doctor wanted to send me home the next day but I asked him to let me stay for one more night. You'll do fine and it will be over quickly I'll keep you in my prays God bless.

Darryl

puppetman
Posts: 53
Joined: Apr 2011

Thanks

puppetman
Posts: 53
Joined: Apr 2011

I went for My pre-op today, just wondering , I have kidney cancer and they going to remove My right kidney on May 4th, so I am wondering why would they xray my chest today, has this been done to any of You before You had Your kidney out?

icemantoo's picture
icemantoo
Posts: 3261
Joined: Jan 2010

A chest Xray is part of a general physical before undergoing major surgery. In the case of Kidney Cancer they wznt to rule out any metastisizing to the lungs which would be one of the first evidences if Kidney Cancer has spread, but not likely for a small tumor. That being said I as well as I believe many members of our club had a chest Xray before our surgery.

Jamie1.3cm's picture
Jamie1.3cm
Posts: 188
Joined: Jan 2011

Yep, it's required before any major surgery. I always thought screening for TB.

babycakes11's picture
babycakes11
Posts: 7
Joined: Apr 2011

Yeppers, Iceman is correct. They just want to make sure nothing spread to the lungs. I also had a bone scan prior to my surgery to make sure nothing settled in my bones. Both tests came back negative!!

puppetman
Posts: 53
Joined: Apr 2011

Thanks, I was very worried

puppetman
Posts: 53
Joined: Apr 2011

I was worried that they had found something wrong from the xray that they took, but I am starting to get a little worried and scared about what is coming this Wed. I go in at 7am and they start working on my kidney at 9am "Mississippi time" but I am starting to get worried, being on here is great and full of info, but reading about what I will be going through with pain and not being to get around much, has me worried , I know I will need some help for a few days, I stay with My Mom and Dad, My Dad is 85 and not in good shape and My Mom is 81 and not in good shape, maybe the Doc can keep Me in the hospital for a few more days till I can start doing for My self, I hope.

icemantoo's picture
icemantoo
Posts: 3261
Joined: Jan 2010

Puppetman,

You are going to get through this. Yes it is going to hurt and yes you are going to have a tough week or two after surgery. From there everything is uphill. You have to get thru this with flying colors so you can help me welcome the newcomers after you.

Best Wishes,

Icemantoo

lbinmsp's picture
lbinmsp
Posts: 266
Joined: Jun 2006

I've been reading this thread for quite a while and I hear your anxiety. I live alone (and did when I had my nephrectomy - open) - and did pretty well by myself. Now, I lived in an apartment so there were no stairs, I didn't have a dog that needed walking, so I could just sort of 'wobble' from room to room as needed. That was my exercise at first, just walking around the apartment with a solid wall or piece of furniture available if I needed to grab something. Make sure you have groceries in the house - soups, sandwich fixings, juice, anything easy to fix for the first days. You probably won't feel much like eating but it's important that you do! I quit the pain meds about the 4th day after discharge since I knew I wouldn't be able to drive while on them. Being a painfully independent person, I wanted to get moving sooner than later. I did have someone stop by my place each day for the first couple of days and of course family and friends called a couple of times a day too, just to make sure I was still 'right end up'. I know this is scary - you'd be crazy if you weren't! But as you've read here - we've all been through it and survived it. You will too! I'll say a prayer for you.

puppetman
Posts: 53
Joined: Apr 2011

thanks so much, it does help to know that so many People are Praying for Me, I hope I will be able to get on here afew days after having My kidney out, so I can let You all know how I am doing.

puppetman
Posts: 53
Joined: Apr 2011

thanks so much, it does help to know that so many People are Praying for Me, I hope I will be able to get on here afew days after having My kidney out, so I can let You all know how I am doing.

puppetman
Posts: 53
Joined: Apr 2011

Well, Tomorrow at 7am is the big day, I drank that stuff "nasty" I am watching tv and waiting, but so far it just made me sick and making my head hurt.

icemantoo's picture
icemantoo
Posts: 3261
Joined: Jan 2010

It has been almost 9 hours since your surgery and we have not heard from You. Are you OK?

Icemantoo

kidkenpo's picture
kidkenpo
Posts: 20
Joined: May 2011

I have been following quite intently.. as I just found out that I might have to have my left Kidney removed... I will be seeing my urologist tomorrow and will update everyone. I hope that Puppetman is doing well

puppetman
Posts: 53
Joined: Apr 2011

Well, I. Only have 1 kidney left, I am hurting alot, my back pain went down 60%, they should get me up to walk, I am doing ok, just lots of pain.

rae_rae's picture
rae_rae
Posts: 300
Joined: Oct 2010

Good to hear from you. You will be sore for some time but it gets better each day. Rest a lot and try to keep moving even if only a little at a time.

God Bless
Rae

kidkenpo's picture
kidkenpo
Posts: 20
Joined: May 2011

Glad you are moving along.. I just talked to my Urologist today, and he broke the news.. RCC in left Kidney.. and need to do a full removal. :(

I am glad to read and hear everyones story's, as this does help a lot..

Puppetman, best of luck and hope to hear from you soon

H

puppetman
Posts: 53
Joined: Apr 2011

I am will in the hospital , I am still hurting alot but not as much

trulytall's picture
trulytall
Posts: 14
Joined: Mar 2011

It was great hearing from you, especially so quickly after surgery!! :)
Wishing you all the best in your recovery.
Take care.
Denise

trulytall's picture
trulytall
Posts: 14
Joined: Mar 2011

Do you know your surgery date yet???
I had my left kidney removed in January and just wanted to say that I'm recovering quite well...3 1/2 months later and definitely feeling like the worst is behind me now.
I agree, everyones stories and support here is very helpful and encouraging.
Thoughts and prayers going out to you.
Denise

puppetman
Posts: 53
Joined: Apr 2011

I have been home for almost 2 days now, the only thing the told Me was, stay away from dark stuff like drinks "cokes" stuff like that, stay away from table salt, high protein, the only thing I can say for now is, walk as much as You can, don't move fast and take thangs slow , DO NOT lay flat for the first week or so, trying to get up is painful "TRUST ME, IT IS VERY PAINFUL" and drink lots of water.

kidkenpo's picture
kidkenpo
Posts: 20
Joined: May 2011

Puppetman,

I am glad you are doing well. As you read from my post to Denise, I will be having surgery in about 1 1/2 weeks. May 17th to be exact. I appreciate yours and everyones advice and hope your days get better. ( I am sure they will)

Heath

kidkenpo's picture
kidkenpo
Posts: 20
Joined: May 2011

Hi Denise,

I am glad you are doing well, and hope that it only gets better from here. I am scheduled for my surgery on the 17th May, Right around the corner. Yes, very nervous (about the RN) and very glad to read your posts that you are doing great. Thank you for your prayers and I will post updates when I am able, after surgery.

Thank you all!
Heath (San Diego ca) In case anyone wanted to know.

P.S. did you have a Laparoscopic removal?

Jamie1.3cm's picture
Jamie1.3cm
Posts: 188
Joined: Jan 2011

Try this:

While lying down, roll over onto your right side. With your arms in front of your chest, plant your right elbow into the matress. Make a fist with your right hand. Cover your fist with your left hand and use your left arm to push yourself up.

That method uses your arm muscles, rather than your shredded abdmoninals to get yourself up.

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