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Had number 1 chemo for recurrence on Tuesday

Ro10's picture
Ro10
Posts: 1579
Joined: Jan 2009

Had my first Taxol/Carbo for my recurrence. Really chemo number 7 which I will receive every 3 weeks. My CA 125 went from 1510 two weeks ago to 1740, so I am confident it was time to start the treatment again. I remain asymptomatic. My HGB and WBC look very good, so I should do well again with the treatment.

It was a very long day of treatment. Had to be there for lab at 7:30 and finished chemo at7:20 p.m. Both my chemo drugs needed to be given slower as I previously had reactions to both drugs on the first go around. I just pray that the carbo/taxol will reduce the those slowly growing lymph nodes.

Today I am tired, but take compazine for three days as part of my post chemo drugs. The decadron keeps me awake at night, so I am ready for a normal sleep routine, too. But luckily I have no nausea.

Hope everyone else receiving treatment are doing okay, too. And may all of you who are NED remain NED for a very long time. In peace and caring.

nempark
Posts: 683
Joined: Apr 2010

Wow!! You spent 12 hours what a day!!Any way, I am sure it's worth it. I had this treatment and was very pleased that I really had not much side effects a little here and there. I am keeping you in my prayers and thoughts that this treatment will reduce the menacing nodes. Keep strong and positive Ro, you did it once and you can do it again and will soon be NED. My sincerest best wishes to you for a speedy NED. June

hopeful girl 1
Posts: 454
Joined: May 2010

You certainly did have a long day-I'll bet you were glad to get home and relax on the couch or go straight to bed.

Taxol/carbo is a super effective cocktail. I am sure it will go right to work on your lymph nodes.

Be positive, pray, and be good to yourself and you will be NED in no time.

Hugs,
Cindy

HellieC's picture
HellieC
Posts: 524
Joined: Nov 2010

Sorry that you're having to go down the taxol/carbo route again, but it's a powerful combination and I so hope it will knock the progression back to NED pretty quickly.
I have everything crossed for you - I've done the carbo/taxol combo, so know how it feels - it takes a lot out of you but will be worth it in the end.
Thinking of you
Helen

Kaleena's picture
Kaleena
Posts: 1854
Joined: Nov 2009

Ro,

I am glad you were able to complete your (7th) treatment. However, what a long day for you! Although a very long day for you, I hope this is the right combo for you.

By the way, the flowers behind you look beautiful. It makes me smile to think of spring. Are they day lilies? Did you plant them?

I pray that you can get some normal sleep and that your treatments are successful. My best to you.

Kathy

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Ro, so good to get your update, however, that was one LONG day for you. WOW! Am glad that you didn't have any allergic reaction and that you now in that period of time where you don't feel quite so good yet. You know that routine though!

Am praying that you fly through the rest of your treatments and will soon be back to taking cruises and traveling to fun places!

Best wishes to you always! Big hugs!

Karen

upsofloating's picture
upsofloating
Posts: 473
Joined: Dec 2009

Quite a re-entry to chemo experience - that was one long day, Ro! I hope you don't also have to travel far to treatment location.
It sounds like, at least with the help of meds, you tolerated it all well. I hope your recovery from this session is short and you can continue to enjoy your symptom-free life before the next one.
Do you have a set number of rounds planned, or is it based on response?
Hope this takes care of those nodes for you, and quickly!
Annie

Double Whammy's picture
Double Whammy
Posts: 2826
Joined: Jun 2010

Good to heear you did well with your first (or 7th) cycle. Hope it continues and does a good job of putting you back in remission. We do what we have to do, but chemo is not fun to do once, let alone twice. Keep us posted.

Suzanne

Ro10's picture
Ro10
Posts: 1579
Joined: Jan 2009

This chemo session was not as easy as the first 6 were. I have not slept for a week, so I am very emotional. I think the steroids the first days really messed up my sleep pattern. I had problems with constipation, which I had never had before. When I got the constipation taken care of, I went to the bathroom about every 30-60 minutes. I am not sure which is worse. Due to my lack of sleep I have been very emotional these past days. I have that metallic taste in my mouth, so food does not taste good either. I have no energy, but I have still been taking my walks. Today was a little better day, so I hope tomorrow is even better. I hope for a good night sleep tonight. My husband has been a great support and understanding of everything. Hope everyone is doing better than me. In peace and caring.

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Oh, Ro, I am so sorry to hear that things are not going very smoothly for you! Not feeling good and no sleep is a very bad combo! Am hoping that sleep comes you way tonight and that you awake feeling refreshed in the morning and with lots of energy!

Enjoy those walks even if they are short! Blessing to you and your husband. He sounds like a terrific partner!

Sending you BIG HUGS!!

Karen

Sara Zipora's picture
Sara Zipora
Posts: 231
Joined: Sep 2010

Don't fret about site sluggishness. The other day the site was in slow mo cause of overload. Just think your multiple posts have a life of their own after you send them out. Much in the same way that I, we, might visualize our Chemo rounds. Doing their healing work in a ripple effect and the circles of protection from The Beast becomes ever wider.

Ro, enjoy the good days and viualize away ennui, boredom, and frustration and even exhaustion, as alternative states of YOUR army fighting and relaxing between skirmishes.

Your list friends are cheering you on!

Sara

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Sorry!

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

How does this happen.....I pushed the post button ONE time and it took forever to post.. and then posted NUMEROUS times!

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

more duplication

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Hopefully this is all of them!

Double Whammy's picture
Double Whammy
Posts: 2826
Joined: Jun 2010

I hope this rough time is short lived. For me (different cocktail) diarrhea was worse than being constipated. I was told to take Immodium and given an Rx for Lomotil if that wasn't enough. Immodium really helped. What helped me with the metallic taste was to eat things like smoothies and milkshakes - anything I could get down through a straw so I really didn't taste them, but when I did taste, they seemed to be ok.

I hate that this is so hard so soon for you and wish I could make it better.

Suzanne

susafina
Posts: 134
Joined: May 2010

Hi Ro

This stinks amd I am sorry that you are having a rough go of it .But we all all know you are much tougher than any disease thrown at you. Take it easy, I am glad that you are still taking walks. Hopefully the weather will get better and as spring arrives you will be getting better and dancing with NED real soon Matter of fact I know you will.
I am swnding lots of good thoughts and hugs your way.
SUE

Becky444's picture
Becky444
Posts: 29
Joined: Jul 2010

Dear Ro,
So sorry you are having a tough time this time around. I also had terrible constipation with carbo/taxol. My gyno/ono put me on dex a day or so before starting chemo. I also used Miralax for the 3 days following chemo. I tried the stool softeners but they didn't work at all. I took that under the doctor's care. I also had neurophathy & read it can affect the colon as well. At any rate, it was nasty & feel for you.

The only thing I found for that metallic taste was chewing peppermint gum. As soon as I would quit chewing it, the taste would come back but it did give me a break.

I sure hope you are feeling better by now.

Best wishing & caring...
Becky

Cindy Bear
Posts: 570
Joined: Jul 2009

Sorry to hear about the rough week.. it sucks it really does... I get the sense that you're a tough, no nonsense lady and if anyone can show cancer who the boss is, it's you. I have heard several ladies comment about the metallic taste and that sucking on candy like mints or lemon drops really helped. Also, I remember somebody day that using plastic utensils for whatever reason, seemed to help.
Keep taking those walks and I hope you get some good quality sleep soon.

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I'm so sorry that you are suffering with this new go-round of carbo/taxol. Because you had such a nice long remission, I honestly believe this combo has the potential to get you BACK into a 2nd long remission. (& LONG remissions are the way to LONG survival!) And your oncologist must believe that to, or he wouuld be giving you a lower dose in deference to your quality of life. He'd never let you suffer these side effects if he didn't believe there was a big pay-off for you at the end of this regime. Hang in there, Ro! I know you will. ((((Ro)))

Ro10's picture
Ro10
Posts: 1579
Joined: Jan 2009

Today is a better day than yesterday. I have been taking benadryl at night to help me sleep, and it makes the day so much better. Since I have been getting some sleep at night, I am not so tired (or emotional). The bowel issue is a little better now. When I have to go, though, I really have to go. The metallic taste is still there. I have tried lemon drops, licorice and other hard candy. I too read that using plastic utensils helps, but have not resorted to that yet.

Since each day gets a little better, I'll be ready to start over again in two weeks. I'll drink apple juice the day of chemo, so hopefully I can avoid the constipation issue. I drank water all day long at chemo (like 5000 cc), so I thought I would be okay.

Thanks again for all the encouragement. It means so much. I do plan on "hanging in there". The side effects are tolerable (not pleasant mind you), I just hope the chemo is doing the job it needs to do. In peace and caring.

Linda I hope you had a great trip to the Dominican Republic. Hope your treatment is still going well for you.

lkchapman's picture
lkchapman
Posts: 106
Joined: Jan 2011

Hi Ro,
I can really commiserate with the constipation issues you are having with your treatment and I wanted to offer this observation I had while on carbo/taxol. I found that if I could eliminate Zofran use I didn't experience constipation at all. So if you are using it to ward off nausea, try to go without it. It just completely stops the natural peristalsis that moves food through the gi tract. After I realized Zofran was the culprit and quit using it my gi system went back to almost normal,(As normal as can be after being zapped with radiation)and I really didn't experience any nausea either.

After reading the above I realize I failed to specify that it's oral Zofran (ondansetron) that I'm referring to. I still got IV Zofran along with my chemotherapy.

I hope this bit of info helps and that you sail through the rest of your chemo.

Laura

Songflower's picture
Songflower
Posts: 631
Joined: Apr 2009

I think carbo/taxo is harder the second time; it is cumulative. I learned from my breast cancer years ago to ask for a sleep med from those steroids. It helps not to be so worn out. Sometimes ativan helps when you feel so agitated. It helps to keep your energy up and your mood up too. Sometimes I take antidepressants during chemo as chemo can drain your serotonin (chemicals that make you feel normal and good). Do you get pain from carbo?

You have been such a trooper and I too see a long remission ahead.
Take care of yourself. I am not pushing drugs but I found if I took these meds I could function better. I didn't have trouble stopping them. Chemo can be alot of suffering and it helps to treat the symptoms.

Love,
Diane

Songflower's picture
Songflower
Posts: 631
Joined: Apr 2009

I think carbo/taxo is harder the second time; it is cumulative. I learned from my breast cancer years ago to ask for a sleep med from those steroids. It helps not to be so worn out. Sometimes ativan helps when you feel so agitated. It helps to keep your energy up and your mood up too. Sometimes I take antidepressants during chemo as chemo can drain your serotonin (chemicals that make you feel normal and good). Do you get pain from carbo?

You have been such a trooper and I too see a long remission ahead.
Take care of yourself. I am not pushing drugs but I found if I took these meds I could function better. I didn't have trouble stopping them. Chemo can be alot of suffering and it helps to treat the symptoms.

Love,
Diane

Songflower's picture
Songflower
Posts: 631
Joined: Apr 2009

I think carbo/taxo is harder the second time; it is cumulative. I learned from my breast cancer years ago to ask for a sleep med from those steroids. It helps not to be so worn out. Sometimes ativan helps when you feel so agitated. It helps to keep your energy up and your mood up too. Sometimes I take antidepressants during chemo as chemo can drain your serotonin (chemicals that make you feel normal and good). Do you get pain from carbo?

You have been such a trooper and I too see a long remission ahead.
Take care of yourself. I am not pushing drugs but I found if I took these meds I could function better. I didn't have trouble stopping them. Chemo can be alot of suffering and it helps to treat the symptoms.

Love,
Diane

Songflower's picture
Songflower
Posts: 631
Joined: Apr 2009

I think carbo/taxo is harder the second time; it is cumulative. I learned from my breast cancer years ago to ask for a sleep med from those steroids. It helps not to be so worn out. Sometimes ativan helps when you feel so agitated. It helps to keep your energy up and your mood up too. Sometimes I take antidepressants during chemo as chemo can drain your serotonin (chemicals that make you feel normal and good). Do you get pain from carbo?

You have been such a trooper and I too see a long remission ahead.
Take care of yourself. I am not pushing drugs but I found if I took these meds I could function better. I didn't have trouble stopping them. Chemo can be alot of suffering and it helps to treat the symptoms.

Love,
Diane

HellieC's picture
HellieC
Posts: 524
Joined: Nov 2010

Hi Ro
Just been catching up with all the posts over the past couple of days. I am so sorry you are having a worse time on the carbo/taxol second time around. I, too had trouble with constipation (no fun when you've got a colostomy like me!), and the lack of sleep. It really wears you down but hopefully by the time you read this, you will be coming up again and feeling more like your old self. Hang on in there, Ro - you will soon be back to NED. We're all here for you.
Kindest wishes
Helen

Kaleena's picture
Kaleena
Posts: 1854
Joined: Nov 2009

Ro, just letting you know I am thinking about you too. Hoping you are feeling great soon. Have you tried popsicles? Someone had told me to try that for the metallic taste.

Kathy

Ro10's picture
Ro10
Posts: 1579
Joined: Jan 2009

I am much better now. No more constipation. I have not needed the stool softeners anymore. I just drink my apple juice everyday, and that keeps me going. The metallic taste is better. Lemon drops seemed to help the most. I have not tried the popsicles, but will give them a try.

My sleeping is better. I tried Ativan a couple of nights when I could not sleep, but it did not seem to help. One night I took one and then an hour later took another because I was still awake and it still did not help.

My husband did want me to get an antidepressant when I was so emotional last weekend. But I knew I just needed sleep. I will certainly get something if I continue to be emotional, but since I have gotten sleep I am not as emotional.

My post chemo drugs are decadron 8mg (steroid) twice a day and compazine 10 mg (for nausea)twice a day for three days. I do get zofran, zantac, and chlorotrimeton as a pre chemo drug before both the taxol and the carbo. I get medicated before both chemo's as they both take much longer to go in. I do get decadron IV before they start anything. I don't get IV benadry, as the chorotrimeton lasts longer than the IV benadryl. So I don't get anything that makes me tired and want to sleep during chemo.

I feel like I did before I got the chemo. Which I am glad to be feeling good again. Hopefully my lab work will continue to be good. I will be ready for the next round on 3/15.

I have my good friend from IL here with her husband, so I will have great distraction for a week. I am so glad I feel well enough to enjoy their company.

Thank you everyone for you thoughts and concerns. I appreciate the advice and encouragement. You all make this journey so much easier. In peace and caring.

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Ro, I am so happy to hear that you feeling MUCH better! That is definitely good news!

Enjoy your company....Know you will have fun and that sure beats feeling crummy from chemo treatments.

You are a strong lady!!

Hugs, Karen

lociee's picture
lociee
Posts: 102
Joined: Apr 2009

Hi Ro, I too suffer from constipation. What I have found helpful are the following: Probiotic All -Flora capsules; Psyllium Husks Veg Caps; and Swiss Kriss herbal laxative tabs. All can be found at local health food stores. I found with this combo that I didn't get the pain and cramps that regular laxative meds give. Everything seems more natural - Actually, I take these still daily - the Swiss Tabs I adjust as needed - sometimes 1 a day, sometimes just a half - and when things get stuck I take 1 am and 1 pm. I would recommend trying these. Especially the Probiotic All Flora Caps - they help digestion big time. Best to get regular and have a plan before you go back to chemo.
All the best!
Mia

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