Had number 1 chemo for recurrence on Tuesday
It was a very long day of treatment. Had to be there for lab at 7:30 and finished chemo at7:20 p.m. Both my chemo drugs needed to be given slower as I previously had reactions to both drugs on the first go around. I just pray that the carbo/taxol will reduce the those slowly growing lymph nodes.
Today I am tired, but take compazine for three days as part of my post chemo drugs. The decadron keeps me awake at night, so I am ready for a normal sleep routine, too. But luckily I have no nausea.
Hope everyone else receiving treatment are doing okay, too. And may all of you who are NED remain NED for a very long time. In peace and caring.
Comments
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Hi Ro
Wow!! You spent 12 hours what a day!!Any way, I am sure it's worth it. I had this treatment and was very pleased that I really had not much side effects a little here and there. I am keeping you in my prayers and thoughts that this treatment will reduce the menacing nodes. Keep strong and positive Ro, you did it once and you can do it again and will soon be NED. My sincerest best wishes to you for a speedy NED. June0 -
Ronempark said:Hi Ro
Wow!! You spent 12 hours what a day!!Any way, I am sure it's worth it. I had this treatment and was very pleased that I really had not much side effects a little here and there. I am keeping you in my prayers and thoughts that this treatment will reduce the menacing nodes. Keep strong and positive Ro, you did it once and you can do it again and will soon be NED. My sincerest best wishes to you for a speedy NED. June
You certainly did have a long day-I'll bet you were glad to get home and relax on the couch or go straight to bed.
Taxol/carbo is a super effective cocktail. I am sure it will go right to work on your lymph nodes.
Be positive, pray, and be good to yourself and you will be NED in no time.
Hugs,
Cindy0 -
Keep going, Rohopeful girl 1 said:Ro
You certainly did have a long day-I'll bet you were glad to get home and relax on the couch or go straight to bed.
Taxol/carbo is a super effective cocktail. I am sure it will go right to work on your lymph nodes.
Be positive, pray, and be good to yourself and you will be NED in no time.
Hugs,
Cindy
Sorry that you're having to go down the taxol/carbo route again, but it's a powerful combination and I so hope it will knock the progression back to NED pretty quickly.
I have everything crossed for you - I've done the carbo/taxol combo, so know how it feels - it takes a lot out of you but will be worth it in the end.
Thinking of you
Helen0 -
Ro,
I am glad you were able
Ro,
I am glad you were able to complete your (7th) treatment. However, what a long day for you! Although a very long day for you, I hope this is the right combo for you.
By the way, the flowers behind you look beautiful. It makes me smile to think of spring. Are they day lilies? Did you plant them?
I pray that you can get some normal sleep and that your treatments are successful. My best to you.
Kathy0 -
Ro, so good to get your update, however, that was one LONG day for you. WOW! Am glad that you didn't have any allergic reaction and that you now in that period of time where you don't feel quite so good yet. You know that routine though!
Am praying that you fly through the rest of your treatments and will soon be back to taking cruises and traveling to fun places!
Best wishes to you always! Big hugs!
Karen0 -
Quite a re-entry to chemo
Quite a re-entry to chemo experience - that was one long day, Ro! I hope you don't also have to travel far to treatment location.
It sounds like, at least with the help of meds, you tolerated it all well. I hope your recovery from this session is short and you can continue to enjoy your symptom-free life before the next one.
Do you have a set number of rounds planned, or is it based on response?
Hope this takes care of those nodes for you, and quickly!
Annie0 -
One down . .upsofloating said:Quite a re-entry to chemo
Quite a re-entry to chemo experience - that was one long day, Ro! I hope you don't also have to travel far to treatment location.
It sounds like, at least with the help of meds, you tolerated it all well. I hope your recovery from this session is short and you can continue to enjoy your symptom-free life before the next one.
Do you have a set number of rounds planned, or is it based on response?
Hope this takes care of those nodes for you, and quickly!
Annie
Good to heear you did well with your first (or 7th) cycle. Hope it continues and does a good job of putting you back in remission. We do what we have to do, but chemo is not fun to do once, let alone twice. Keep us posted.
Suzanne0 -
It's been a rough week since TuesdayDouble Whammy said:One down . .
Good to heear you did well with your first (or 7th) cycle. Hope it continues and does a good job of putting you back in remission. We do what we have to do, but chemo is not fun to do once, let alone twice. Keep us posted.
Suzanne
This chemo session was not as easy as the first 6 were. I have not slept for a week, so I am very emotional. I think the steroids the first days really messed up my sleep pattern. I had problems with constipation, which I had never had before. When I got the constipation taken care of, I went to the bathroom about every 30-60 minutes. I am not sure which is worse. Due to my lack of sleep I have been very emotional these past days. I have that metallic taste in my mouth, so food does not taste good either. I have no energy, but I have still been taking my walks. Today was a little better day, so I hope tomorrow is even better. I hope for a good night sleep tonight. My husband has been a great support and understanding of everything. Hope everyone is doing better than me. In peace and caring.0 -
Sorry about your Crummy week!Ro10 said:It's been a rough week since Tuesday
This chemo session was not as easy as the first 6 were. I have not slept for a week, so I am very emotional. I think the steroids the first days really messed up my sleep pattern. I had problems with constipation, which I had never had before. When I got the constipation taken care of, I went to the bathroom about every 30-60 minutes. I am not sure which is worse. Due to my lack of sleep I have been very emotional these past days. I have that metallic taste in my mouth, so food does not taste good either. I have no energy, but I have still been taking my walks. Today was a little better day, so I hope tomorrow is even better. I hope for a good night sleep tonight. My husband has been a great support and understanding of everything. Hope everyone is doing better than me. In peace and caring.
Oh, Ro, I am so sorry to hear that things are not going very smoothly for you! Not feeling good and no sleep is a very bad combo! Am hoping that sleep comes you way tonight and that you awake feeling refreshed in the morning and with lots of energy!
Enjoy those walks even if they are short! Blessing to you and your husband. He sounds like a terrific partner!
Sending you BIG HUGS!!
Karen0 -
Double postRo10 said:It's been a rough week since Tuesday
This chemo session was not as easy as the first 6 were. I have not slept for a week, so I am very emotional. I think the steroids the first days really messed up my sleep pattern. I had problems with constipation, which I had never had before. When I got the constipation taken care of, I went to the bathroom about every 30-60 minutes. I am not sure which is worse. Due to my lack of sleep I have been very emotional these past days. I have that metallic taste in my mouth, so food does not taste good either. I have no energy, but I have still been taking my walks. Today was a little better day, so I hope tomorrow is even better. I hope for a good night sleep tonight. My husband has been a great support and understanding of everything. Hope everyone is doing better than me. In peace and caring.
Sorry!0 -
OopsRo10 said:It's been a rough week since Tuesday
This chemo session was not as easy as the first 6 were. I have not slept for a week, so I am very emotional. I think the steroids the first days really messed up my sleep pattern. I had problems with constipation, which I had never had before. When I got the constipation taken care of, I went to the bathroom about every 30-60 minutes. I am not sure which is worse. Due to my lack of sleep I have been very emotional these past days. I have that metallic taste in my mouth, so food does not taste good either. I have no energy, but I have still been taking my walks. Today was a little better day, so I hope tomorrow is even better. I hope for a good night sleep tonight. My husband has been a great support and understanding of everything. Hope everyone is doing better than me. In peace and caring.
How does this happen.....I pushed the post button ONE time and it took forever to post.. and then posted NUMEROUS times!0 -
SorryRo10 said:It's been a rough week since Tuesday
This chemo session was not as easy as the first 6 were. I have not slept for a week, so I am very emotional. I think the steroids the first days really messed up my sleep pattern. I had problems with constipation, which I had never had before. When I got the constipation taken care of, I went to the bathroom about every 30-60 minutes. I am not sure which is worse. Due to my lack of sleep I have been very emotional these past days. I have that metallic taste in my mouth, so food does not taste good either. I have no energy, but I have still been taking my walks. Today was a little better day, so I hope tomorrow is even better. I hope for a good night sleep tonight. My husband has been a great support and understanding of everything. Hope everyone is doing better than me. In peace and caring.
more duplication0 -
Last duplicateRo10 said:It's been a rough week since Tuesday
This chemo session was not as easy as the first 6 were. I have not slept for a week, so I am very emotional. I think the steroids the first days really messed up my sleep pattern. I had problems with constipation, which I had never had before. When I got the constipation taken care of, I went to the bathroom about every 30-60 minutes. I am not sure which is worse. Due to my lack of sleep I have been very emotional these past days. I have that metallic taste in my mouth, so food does not taste good either. I have no energy, but I have still been taking my walks. Today was a little better day, so I hope tomorrow is even better. I hope for a good night sleep tonight. My husband has been a great support and understanding of everything. Hope everyone is doing better than me. In peace and caring.
Hopefully this is all of them!0 -
Double and triple postskkstef said:Sorry about your Crummy week!
Oh, Ro, I am so sorry to hear that things are not going very smoothly for you! Not feeling good and no sleep is a very bad combo! Am hoping that sleep comes you way tonight and that you awake feeling refreshed in the morning and with lots of energy!
Enjoy those walks even if they are short! Blessing to you and your husband. He sounds like a terrific partner!
Sending you BIG HUGS!!
Karen
Don't fret about site sluggishness. The other day the site was in slow mo cause of overload. Just think your multiple posts have a life of their own after you send them out. Much in the same way that I, we, might visualize our Chemo rounds. Doing their healing work in a ripple effect and the circles of protection from The Beast becomes ever wider.
Ro, enjoy the good days and viualize away ennui, boredom, and frustration and even exhaustion, as alternative states of YOUR army fighting and relaxing between skirmishes.
Your list friends are cheering you on!
Sara0 -
Dang!kkstef said:Last duplicate
Hopefully this is all of them!
I hope this rough time is short lived. For me (different cocktail) diarrhea was worse than being constipated. I was told to take Immodium and given an Rx for Lomotil if that wasn't enough. Immodium really helped. What helped me with the metallic taste was to eat things like smoothies and milkshakes - anything I could get down through a straw so I really didn't taste them, but when I did taste, they seemed to be ok.
I hate that this is so hard so soon for you and wish I could make it better.
Suzanne0 -
Chemo againDouble Whammy said:Dang!
I hope this rough time is short lived. For me (different cocktail) diarrhea was worse than being constipated. I was told to take Immodium and given an Rx for Lomotil if that wasn't enough. Immodium really helped. What helped me with the metallic taste was to eat things like smoothies and milkshakes - anything I could get down through a straw so I really didn't taste them, but when I did taste, they seemed to be ok.
I hate that this is so hard so soon for you and wish I could make it better.
Suzanne
Hi Ro
This stinks amd I am sorry that you are having a rough go of it .But we all all know you are much tougher than any disease thrown at you. Take it easy, I am glad that you are still taking walks. Hopefully the weather will get better and as spring arrives you will be getting better and dancing with NED real soon Matter of fact I know you will.
I am swnding lots of good thoughts and hugs your way.
SUE0 -
Rough WeekRo10 said:It's been a rough week since Tuesday
This chemo session was not as easy as the first 6 were. I have not slept for a week, so I am very emotional. I think the steroids the first days really messed up my sleep pattern. I had problems with constipation, which I had never had before. When I got the constipation taken care of, I went to the bathroom about every 30-60 minutes. I am not sure which is worse. Due to my lack of sleep I have been very emotional these past days. I have that metallic taste in my mouth, so food does not taste good either. I have no energy, but I have still been taking my walks. Today was a little better day, so I hope tomorrow is even better. I hope for a good night sleep tonight. My husband has been a great support and understanding of everything. Hope everyone is doing better than me. In peace and caring.
Dear Ro,
So sorry you are having a tough time this time around. I also had terrible constipation with carbo/taxol. My gyno/ono put me on dex a day or so before starting chemo. I also used Miralax for the 3 days following chemo. I tried the stool softeners but they didn't work at all. I took that under the doctor's care. I also had neurophathy & read it can affect the colon as well. At any rate, it was nasty & feel for you.
The only thing I found for that metallic taste was chewing peppermint gum. As soon as I would quit chewing it, the taste would come back but it did give me a break.
I sure hope you are feeling better by now.
Best wishing & caring...
Becky0 -
Ro
Sorry to hear about the rough week.. it sucks it really does... I get the sense that you're a tough, no nonsense lady and if anyone can show cancer who the boss is, it's you. I have heard several ladies comment about the metallic taste and that sucking on candy like mints or lemon drops really helped. Also, I remember somebody day that using plastic utensils for whatever reason, seemed to help.
Keep taking those walks and I hope you get some good quality sleep soon.0 -
(((Ro))) just a bump in the road to another long remission!Cindy Bear said:Ro
Sorry to hear about the rough week.. it sucks it really does... I get the sense that you're a tough, no nonsense lady and if anyone can show cancer who the boss is, it's you. I have heard several ladies comment about the metallic taste and that sucking on candy like mints or lemon drops really helped. Also, I remember somebody day that using plastic utensils for whatever reason, seemed to help.
Keep taking those walks and I hope you get some good quality sleep soon.
I'm so sorry that you are suffering with this new go-round of carbo/taxol. Because you had such a nice long remission, I honestly believe this combo has the potential to get you BACK into a 2nd long remission. (& LONG remissions are the way to LONG survival!) And your oncologist must believe that to, or he wouuld be giving you a lower dose in deference to your quality of life. He'd never let you suffer these side effects if he didn't believe there was a big pay-off for you at the end of this regime. Hang in there, Ro! I know you will. ((((Ro)))0 -
Thanks for all the encouragementlindaprocopio said:(((Ro))) just a bump in the road to another long remission!
I'm so sorry that you are suffering with this new go-round of carbo/taxol. Because you had such a nice long remission, I honestly believe this combo has the potential to get you BACK into a 2nd long remission. (& LONG remissions are the way to LONG survival!) And your oncologist must believe that to, or he wouuld be giving you a lower dose in deference to your quality of life. He'd never let you suffer these side effects if he didn't believe there was a big pay-off for you at the end of this regime. Hang in there, Ro! I know you will. ((((Ro)))
Today is a better day than yesterday. I have been taking benadryl at night to help me sleep, and it makes the day so much better. Since I have been getting some sleep at night, I am not so tired (or emotional). The bowel issue is a little better now. When I have to go, though, I really have to go. The metallic taste is still there. I have tried lemon drops, licorice and other hard candy. I too read that using plastic utensils helps, but have not resorted to that yet.
Since each day gets a little better, I'll be ready to start over again in two weeks. I'll drink apple juice the day of chemo, so hopefully I can avoid the constipation issue. I drank water all day long at chemo (like 5000 cc), so I thought I would be okay.
Thanks again for all the encouragement. It means so much. I do plan on "hanging in there". The side effects are tolerable (not pleasant mind you), I just hope the chemo is doing the job it needs to do. In peace and caring.
Linda I hope you had a great trip to the Dominican Republic. Hope your treatment is still going well for you.0
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