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Thanks

deerhaven
Posts: 5
Joined: Jan 2011

Thanks for all of your caring comments. I was just diagnosed in Dec. (2010) with non-Hodgkin's lymphoma (large cell diffuse) I believe that's it! It's all still new to me. The first round of chemo wiped me out. In fact, I was to begin Round #2 last week, and the Dr. thought I hadn't recovered enough from Round #1, so they put it off a week. My blood pressure is still quite low (86/75) so I'm trying to pump fluids, but my stomach has "shrunk" so I get full easily. Guess that's about it......It's nice to have someone to share with........someone who's been there!

Sandy

merrywinner's picture
merrywinner
Posts: 627
Joined: Aug 2009

Glad you found us. Wow it sounds like you have been through a lot in a very short time. I can well imagine how tired your mind must be. Please know that you are in a safe environment here. These people are the absolute best and can offer tons of support and information to help with any situation. Being in the company of people who know and have firsthand experience with Lymphoma has no equal. There's so much to gain here and it's all for free with no strings or obligations. So use what you need and add what you can. Will look forward to hearing from you. Mary(FNHL-1-2,4A,7/08, remission)

PS: Sometimes you will see a series of numbers,letters and words following someones name. They are the type of lymphoma,the grade,the stage and the year of diagnosis and sometimes the current outcome. This is totally voluntary but is useful in getting accurate answers to specific questions. Hang around, we love to share cuz we've all been there,been scared,been new,been sick and most importantly gotten better!!!

deerhaven
Posts: 5
Joined: Jan 2011

Mary

What does the F in NHL stand for?

Sandy

yesyes2
Posts: 592
Joined: Jul 2009

Hi Sandy, The F stands for follicular, most common form of indolent NHL. There are many people on here who have this type of lymphoma. There are also several CSN members with DLBC like yourself. My type is only known as Lymphoproliferative Disorder (LPD),or if you have had a BMT/SCT or solid organ transplant than it is called Post Transplant Lymphoproliferative Disorder (PTLPD). It is a result of taking medications which suppress your immune system.
Leslie

yesyes2
Posts: 592
Joined: Jul 2009

Hi Sandy, The F stands for follicular, most common form of indolent NHL. There are many people on here who have this type of lymphoma. There are also several CSN members with DLBC like yourself. My type is only known as Lymphoproliferative Disorder (LPD),or if you have had a BMT/SCT or solid organ transplant than it is called Post Transplant Lymphoproliferative Disorder (PTLPD). It is a result of taking medications which suppress your immune system.
Leslie

KC13167's picture
KC13167
Posts: 215
Joined: Jun 2010

Hi Sandy, My blood pressure ran very low during my R-CHOP treatments; I too had DLBNHL, diagnosed in 6/10 and in remission in 10/10. The nurses would up my IV fluids before and during the infusions, which seemed to help. Good luck to you. Kellie

yesyes2
Posts: 592
Joined: Jul 2009

Hi Sandy, I know that Rituxan as a side effect can lower BP. Although I don't know if that is only during the infusion period or if it can have a longer effect.
Leslie

KC13167's picture
KC13167
Posts: 215
Joined: Jun 2010

I should have noted that my average blood pressure is lower than average to begin with at about 88/66. Leslie, I think you are right and it only effects BP during the infusion. Kellie

bluerose's picture
bluerose
Posts: 1112
Joined: Jul 2009

Just a little encouragement as you start your treatments that I went through all that first time fatigue and overwhelming confusion with all the new terms and life changes that come with a diagnosis of cancer and in fact had NHL myself.

The encouragment is that I am considered cured now, the diagnosis was 23 years ago. I had one recurrance about a year a half after the diagnosis and then that was it. Today they are using gentler techniques it seems from what I can gather and that's wonderful.

Continue to use this board for support, I wish I had it when I was in treatment, and take care of yourself - resting when you feel the need - don't fight the fatigue. Your body goes through a great deal when under chemo attack so let it rest when it says so.

All the best, you can do it, and in 20 plus years you will be sitting at your computer encouraging another NHL patient as I am doing with you now.

Blessings,

Bluerose

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