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ANYONE WITH UPSC NOT HAVE A RECURRENCE????

maggie_wilson's picture
maggie_wilson
Posts: 616
Joined: Nov 2009

sisters,

just began wondering if anyone here who has upsc--whatever stage-- has not had a recurrence. would be great to hear from those of you who have not. i know other uterine cancers recur as well, unfortunately, but specifically asking about those with upsc.

thanx,
maggie

sleem
Posts: 92
Joined: Feb 2010

I just met 2 year mark this Jan. Hoping to meet the average & more..:l
My CA 125 just jumped from 13.7 to 21.... hoping it stays the same for much longer time...this is what I didn't wish to see...hope it stays this way. I'm 2 years out & it stayed under 15 until now...

Did anyone CA 125 go up and down over a period up time (ex. 1 year) and still be NED?

Cecile Louise's picture
Cecile Louise
Posts: 135
Joined: Dec 2009

3 years NED since surgery for UPSC 1b - and giving thanks for every day.

Love,
Cecile

Rewriter's picture
Rewriter
Posts: 497
Joined: Dec 2009

Just short of 3 years NED since surgery for UPSC 1a. I pray that NED continues.

Love,

Jill

Rewriter's picture
Rewriter
Posts: 497
Joined: Dec 2009

I just returned home from my checkup--had internal and pap, and the doctor said I am doing "great." My CA-125 was 4. Provided that the pap is fine, I am still doing well and PLAN on doing well for many years.

Jill

Kaleena's picture
Kaleena
Posts: 1980
Joined: Nov 2009

What a wonderful checkup, Jill. I am sooo happy for you. I know you are! I also can see your little dog jumping around with joy too.

Joy to you!

Kathy

Rewriter's picture
Rewriter
Posts: 497
Joined: Dec 2009

I really appreciate your comments. Yes, I am feeling very happy; but I find that sometimes I get so nervous before the appointment that it takes a day or two for good news to sink in.

As for my dog, I'd like to think that she was especially happy to see me when I arrived home (the truth is that she was looking for her next meal).

I am really looking forward to the arrival of warmer weather. Although I live in NYC, my section of Brooklyn is called Carroll Gardens--and there actually are gardens! We have cherry blossom, mimosa, and dogwood trees that should soon be in all their glory. Also, my next-door neighbor, with whom I am great friends, gives me tomatoes, eggplants, and zucchini; and I return to him a container of caponata. I love spring. e.e. cummings has a line from a poem that says:

wholly to be a fool
while spring is in the world
my blood approves

My feeling exactly!

Joy to you, too!

Jill

HellieC's picture
HellieC
Posts: 524
Joined: Nov 2010

So pleased your examination was OK - I am sure the PAP results will be OK too. What a great CA125 score!
I love your descriptions of Spring in Brooklyn. It's Spring in England too with beautiful blossom and daffodils, but the weather has deserted us today - cold, wet, windy and dark!

Rewriter's picture
Rewriter
Posts: 497
Joined: Dec 2009

for everyone's congratulatory wishes. Of course, I wish NED for everyone on this board.

Love,

Jill

Double Whammy's picture
Double Whammy
Posts: 2827
Joined: Jun 2010

And congratulatons.

Suzanne

Rewriter's picture
Rewriter
Posts: 497
Joined: Dec 2009

I appreciate your kind words.

Jill

Rewriter's picture
Rewriter
Posts: 497
Joined: Dec 2009

I appreciate your kind words.

Jill

jmullen16
Posts: 8
Joined: Jan 2009

Hello!

My partner was diagnosed at age 42 with stage 3C uterine cancer. She is at almost 3 years (in September) cancer free. Her last chemo treatment was 3 years ago in September. She just had her 2.5 year check up on Monday. Her CA125 blood test came back as 8 yesterday!

I remember searching the internet for hours in that first year looking for positive stories with such a dismal prognosis. We made a promise that when Claire got through this we were going to do eveything we could to get the word out that there is hope!

Now I find myself looking for when recurrances usually occur so I can feel like we are past it!

BUT, I also find we have days where we don't think about it at all! That is amazing when you know how this thing dominated our life.

Take care and keep the HOPE alive!

just another bump
Posts: 3
Joined: Apr 2011

Hi Maggie, I HAD stage 11B grade 3 uterine w/ sqamous cell at the top of the cervix so I had radiation and chemo at the same time and I only missed the last 2 weeks at work----IN 2005/2006 It was not a good time!!
My gyn/oncolo said I might have some other cancer but not because of this? Now I have procticolitis(radiation damage)that is making me very unhappy. I found another lady who asked about this so I'm going to see if I can find her. Be good to yourself and know we are with you. I'm glad I found this group as I am from a train wreck of a family where my single mother w/6 kids was paralyzed from the waist down when I was 14 so I was not allowed to NEED ANYTHING and so I brushed my fight with cancer aside as well. I never talked about it to anyone before, so here I go. Thanks to all you for being the save place I can go to.
Marsha

RoseyR
Posts: 471
Joined: Feb 2011

Dear Marsha,

I have seen some research suggesting that even AFTER this damage is incurred, daily vitamin E succinate (400 milligrams, three times a day), vitamin C (500 milligrams, three times a day), and Vitamin A with mixed carotenes (10,000 to 20,000 mgs a day) can help to repair the damage.

I would check out the web site of Life Extension for further information; yes, they sell supplements, but they also offer information on many clinical studies and have a good Board of Directors consisting of researchers and doctors.

Best,
Rosey

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