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bad scan - very sad

Kathleen808
Kathleen808 Member Posts: 2,342
edited March 2014 in Colorectal Cancer #1
Dear Friends,
Wow that was a slap in the face. We were hoping that ****'s scan would clear him for flying. Instead we are fighting for "more time." He had his CAT yesterday and he has about 16 small nodes total in both lungs. Also a 5 cm mass up near his aorta. Also numerous small to med size lymph nodes. It's back. We were in shock last night, lots of tears and calls to our family. Had to wait till today to tell our 16 year old as she had her last final this morning. Onc in Hawaii thinks CPT11 + Erbitux and will consult with Dr. Lenz. Dr. Lenz called us back and wants a PET on Monday so he knows what he is dealing with. We are in the fight.
Please pray for all of us. Pray that we can keep peace in our family in the midst of this. Pray for our daughters, this is the only Daddy they can have.

Also, we may fly to Sloan Kettering asap. Any info would be very much appreciated.

Thank you for everything.

Aloha,
Kathleen
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Comments

  • lesvanb
    lesvanb Member Posts: 905
    Oh Kathleen
    Oh Kathleen, my heart just broke when I read your post. All I can think of is wrapping you and your family up and rocking you and loving you. There's no more words right now.

    here for you,
    Leslie
  • Crow71
    Crow71 Member Posts: 679
    I thought you guys had it
    I thought you guys had it beat. You've done everything right. I'm so confused, worried for you, and sad.

    Since my last bad scan I've been investigating different alternative treatments. Folfox and Folfori have failed and I'm not sure if trial are right for me. I have not posted on this yet because I'm sure what I'm going to do. PM me if you want to and we can talk about the options I'm considering.
  • plh4gail
    plh4gail Member Posts: 1,238
    Kathleen and ****, I am
    Kathleen and ****, I am hugging and holding on to you with all my love and prayers.

    Gail
  • AnneCan
    AnneCan Member Posts: 3,673
    Kathleen
    I am so sorry to read this. I really thought everything was going so well for **** + now this bump in the road. This cancer is unpredictable + it is hard to adjust to the bumps. I know you will both fight this hard + win with the help of the medical team. Please know that all of you are in my thoughts.
  • idlehunters
    idlehunters Member Posts: 1,787
    AnneCan said:

    Kathleen
    I am so sorry to read this. I really thought everything was going so well for **** + now this bump in the road. This cancer is unpredictable + it is hard to adjust to the bumps. I know you will both fight this hard + win with the help of the medical team. Please know that all of you are in my thoughts.

    Kathleen
    Dang! So sorry to hear you guys gotta fight the fight...AGAIN!!!! It's just not fair. Give a guy a break! You are all in my prayers! I started with 15+ in both lungs..... chemo wiped them out in a matter of months.... it can be done!!!! Hugs to you both!

    Jennie
  • emrose
    emrose Member Posts: 136
    So sorry
    Kathleen

    I've been following ****'s story through your posts and this just caught me so off gaurd. I can't believe there is so much so soon. I am just devastated for you but also very hopeful! It seems that if anyone can handle this setback, it's ****. I'm so sorry you have to go through this. Please Keep us posted.

    Laura
  • pf78248
    pf78248 Member Posts: 209
    So very sorry
    Kathleen,
    My heart breaks over your news. I will keep you, ****, and the girls in my prayers. Please know there are so many here that love and support you all and we wish for an excellent plan to keep ****'s cancer under control.

    If I can do nothing at all, let me know. David's been gone four months now and I don't want you to have to bear this pain. Oh, I do hate cancer.
    So I will boldly ask God for a miracle for ****.

    Hugs and Healing,
    Priscilla
  • newperson
    newperson Member Posts: 76
    Kathleen
    Oh, Gosh. I so wish this is not true. I'm so sorry for this bad news. I will be thinking of you and ****. Hope you will find a plan to fight again. Keep fighting it. Hugs - Lucy
  • Sonia32
    Sonia32 Member Posts: 1,071
    kathleen
    just months ago **** had clear scans now this :( i dont understand it, really dont. i do know as hard as it is to fight again **** will do it and beat this sob. you are in my prayers.love and hugs to you both
  • pepebcn
    pepebcn Member Posts: 6,331
    Sonia32 said:

    kathleen
    just months ago **** had clear scans now this :( i dont understand it, really dont. i do know as hard as it is to fight again **** will do it and beat this sob. you are in my prayers.love and hugs to you both

    I feel so sorry Kathleen!
    You both will be in my prayers!
  • luv3jay
    luv3jay Member Posts: 533
    I'm so sorry to hear this
    I'm so sorry to hear this news. I will keep you both in my prayers. I know we can beat this one step at a time.

    -Sheri
  • luv3jay said:

    I'm so sorry to hear this
    I'm so sorry to hear this news. I will keep you both in my prayers. I know we can beat this one step at a time.

    -Sheri

    This comment has been removed by the Moderator
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900
    I'll pray for PEACE and HEALING for you and **** and your family
    Dear Kathleen and ****,

    I too am so very sorry to hear of these horrible results.

    Our illness keeps on making our lives so hard and strangely even more vulnerable and precious.

    I loved that you asked us to pray for PEACE IN YOUR family, if that what you desire then I believe thats what you will receive. I firmly belive that PEACE and HEALING are good friends, one follows the other. Don't loose hope even though I know you are really worried.

    God bless you both. I wished my faith were stronger, so even if god is planning to step in don't wait around and get all your next medical options covered.

    Love Pete
  • khl8
    khl8 Member Posts: 807

    I'll pray for PEACE and HEALING for you and **** and your family
    Dear Kathleen and ****,

    I too am so very sorry to hear of these horrible results.

    Our illness keeps on making our lives so hard and strangely even more vulnerable and precious.

    I loved that you asked us to pray for PEACE IN YOUR family, if that what you desire then I believe thats what you will receive. I firmly belive that PEACE and HEALING are good friends, one follows the other. Don't loose hope even though I know you are really worried.

    God bless you both. I wished my faith were stronger, so even if god is planning to step in don't wait around and get all your next medical options covered.

    Love Pete

    Kathleen and ****,
    I am

    Kathleen and ****,
    I am keepning you in my toughts and prayers, and it is with sincere hope that they can find something to do to keep this lastest growth at bay.
    Hugs,
    Kathy
  • jararno
    jararno Member Posts: 186
    So Sorry
    Sorry to hear this news. I know **** has been fighting and will continue to fight will all he has! Hoping for the best for all of you.

    Take Care,

    Barb
  • dorookie
    dorookie Member Posts: 1,731
    Praying
    I am so very sorry, I hate this monster, I will be praying for **** and your daughters and you. God Bless you all..You have been through so much, I am just so sad by this news, my heart hurts for you all..

    HUGS
    Beth
  • Lovekitties
    Lovekitties Member Posts: 3,364
    Dear Kathleen
    I know it must feel like the weight of the world is on you both right now as you try to come to terms with this news.

    Know that each and everyone of us here are reaching out with good thoughts, wishes and prayers that you and **** will find the right treatment to beat back the cancer.

    May God hold you in His hands, bring you peace of mind and healing.

    Hugs,

    Marie who loves kitties
  • maglets
    maglets Member Posts: 2,576

    Dear Kathleen
    I know it must feel like the weight of the world is on you both right now as you try to come to terms with this news.

    Know that each and everyone of us here are reaching out with good thoughts, wishes and prayers that you and **** will find the right treatment to beat back the cancer.

    May God hold you in His hands, bring you peace of mind and healing.

    Hugs,

    Marie who loves kitties

    Kathleen
    Kathleen....I am so very sorry for you and **** and your girls....who wanted this crappy news?

    oh Kath...I just don't know what to say....sending you all the love and prayers I can muster

    maggie
  • snommintj
    snommintj Member Posts: 601
    maglets said:

    Kathleen
    Kathleen....I am so very sorry for you and **** and your girls....who wanted this crappy news?

    oh Kath...I just don't know what to say....sending you all the love and prayers I can muster

    maggie

    tough news
    I'm sorry to hear that. I thought the worst was behind you guys. But please don't get too discouraged. His most recent scan sounds almost exactly like my 1st scan after my Dr said I was NED. That was 2 full years ago. They've been happy, good health years. So I know you guys have some hurdles to cross but I think things will be good for quite some time.
  • LivinginNH
    LivinginNH Member Posts: 1,456
    Oh, Kathleen, I'm so very

    Oh, Kathleen, I'm so very sorry to hear this news. I was expecting a different type of post - but I will pray for him and your family. God Bless you all... Luv and hugs, Cynthia
  • Annabelle41415
    Annabelle41415 Member Posts: 6,712 **
    Sorry
    So sorry to hear this news. Was so hoping that his scan would come back clean. You are both in my thoughts and prayers.

    Kim
  • Aud
    Aud Member Posts: 479
    Dear Kathleen
    I am so sorry. Holding you, ****, and your daughters for Peace, Healing, and Strength for the fight ahead.
    ~Aud
  • hopeforcure49
    hopeforcure49 Member Posts: 111
    God Bless
    I'm sorry to hear this. Just when you think you are clear, it hits you like frieght truck. I'm also waiting for results on my post-op ct scan. I know it hurts with kids. I have two at home a 19 and 16yr old. Have Faith don't lose that. Your in my prayers.
  • Buzzard
    Buzzard Member Posts: 3,043

    God Bless
    I'm sorry to hear this. Just when you think you are clear, it hits you like frieght truck. I'm also waiting for results on my post-op ct scan. I know it hurts with kids. I have two at home a 19 and 16yr old. Have Faith don't lose that. Your in my prayers.

    **** and Kathleen.........
    Realize that this is the same as before and all came out ok...This is just a different path that will need to be taken. It does not mean anything definite. I thought mine was done then boom lung met...After another surgery the met is gone with no nodes, and all clear margins...now I will not wait for it to return, I will do exactly as I did before....Live my Life. ****, I know what your feeling, I also know that it only means that it may take a little longer to get stable again, but you will get there again, I know you....and Kathleen, the caregiver and partner, the both of you did this before and came out ok, you will both do this again, and come out ok...Faith, in both God and in your uncanny ability to overcome all odds as the both of you do everyday......Love and Calm to the both of you, as well as the girls...You will all be fine........Clift
  • Sundanceh
    Sundanceh Member Posts: 4,392
    K & D
    What a shocking turn of events:(

    I also thought that things were moving in a good direction as well...I can tell this is serious from all of the multiple mets and the one big one near the aorta. You're definitely in the fight for sure.

    **** has been a warrior and you've served by his side throughout this whole ordeal - many highs and lows...I'm in the middle of my 3rd recurrence and have been fighting with radiation and chemo, so it's always tough to still be in the arena battling away, especially when we've all been at it for awhile.

    I walk along with you both and hope that this next step will make things better.

    -Craig
  • TMac52
    TMac52 Member Posts: 352
    Sundanceh said:

    K & D
    What a shocking turn of events:(

    I also thought that things were moving in a good direction as well...I can tell this is serious from all of the multiple mets and the one big one near the aorta. You're definitely in the fight for sure.

    **** has been a warrior and you've served by his side throughout this whole ordeal - many highs and lows...I'm in the middle of my 3rd recurrence and have been fighting with radiation and chemo, so it's always tough to still be in the arena battling away, especially when we've all been at it for awhile.

    I walk along with you both and hope that this next step will make things better.

    -Craig

    Sorry about the news!
    There re no words of wisdom from me, just that I am sorry and will offer prayers for your family to heal together.
    Tom
  • geotina
    geotina Member Posts: 2,111
    Oh Kathleen -
    Not what I wanted to log on and read today. I'm so very sorry. Since we also recently received bad news I do know exactly what you are feeling. I have no words of wisdom to get you through the next few weeks as you try to get a new plan of action going. It is tough, so very hard, you try and try and just can't get the upper hand. Like my George, **** is in a tough spot but as long as there are options out there you really never know what will kick it into stability or remission.

    George is curently on CPT-11 so if you need any info on side effects, let me know.

    Take care - Tina
  • Kathleen808
    Kathleen808 Member Posts: 2,342
    You are so special
    Hello all,

    **** and I are awake and eating our oatmeal. The girls are asleep. It looks like a very nice day here in Hawaii so we are going to go out on the boat and zip around. We are both in shock but we want to make the days good.
    Thank you for your thoughts and prayers, they mean so much to me. Really you are amazing people.

    Aloha,
    Kathleen
  • Fight for my love
    Fight for my love Member Posts: 1,522
    Dear Kathleen,this is a very
    Dear Kathleen,this is a very shocking news.I can imagine how much to cope with at right this momemt.You and **** are in my prayers,hope for the best for everyone in your family.Take care.
  • sasjourney
    sasjourney Member Posts: 395
    You will get through this
    **** and Kathleen,

    Stay strong and focus on the plan of attack. I know it is difficult as I am dealing with it again myself (I will post my news today). It is overwhelming and devastating, but you have to keep fighting and keep the faith. Many people have had reoccurances and beat it down again for long periods of time. Like they always say, one day at a time. Good luck at Sloan Kettering. Don't give up!!!

    Hugs,
    Sara