bad scan - very sad
Wow that was a slap in the face. We were hoping that ****'s scan would clear him for flying. Instead we are fighting for "more time." He had his CAT yesterday and he has about 16 small nodes total in both lungs. Also a 5 cm mass up near his aorta. Also numerous small to med size lymph nodes. It's back. We were in shock last night, lots of tears and calls to our family. Had to wait till today to tell our 16 year old as she had her last final this morning. Onc in Hawaii thinks CPT11 + Erbitux and will consult with Dr. Lenz. Dr. Lenz called us back and wants a PET on Monday so he knows what he is dealing with. We are in the fight.
Please pray for all of us. Pray that we can keep peace in our family in the midst of this. Pray for our daughters, this is the only Daddy they can have.
Also, we may fly to Sloan Kettering asap. Any info would be very much appreciated.
Thank you for everything.
Aloha,
Kathleen
Comments
-
I thought you guys had it
I thought you guys had it beat. You've done everything right. I'm so confused, worried for you, and sad.
Since my last bad scan I've been investigating different alternative treatments. Folfox and Folfori have failed and I'm not sure if trial are right for me. I have not posted on this yet because I'm sure what I'm going to do. PM me if you want to and we can talk about the options I'm considering.0 -
Kathleen
I am so sorry to read this. I really thought everything was going so well for **** + now this bump in the road. This cancer is unpredictable + it is hard to adjust to the bumps. I know you will both fight this hard + win with the help of the medical team. Please know that all of you are in my thoughts.0 -
KathleenAnneCan said:Kathleen
I am so sorry to read this. I really thought everything was going so well for **** + now this bump in the road. This cancer is unpredictable + it is hard to adjust to the bumps. I know you will both fight this hard + win with the help of the medical team. Please know that all of you are in my thoughts.
Dang! So sorry to hear you guys gotta fight the fight...AGAIN!!!! It's just not fair. Give a guy a break! You are all in my prayers! I started with 15+ in both lungs..... chemo wiped them out in a matter of months.... it can be done!!!! Hugs to you both!
Jennie0 -
So sorry
Kathleen
I've been following ****'s story through your posts and this just caught me so off gaurd. I can't believe there is so much so soon. I am just devastated for you but also very hopeful! It seems that if anyone can handle this setback, it's ****. I'm so sorry you have to go through this. Please Keep us posted.
Laura0 -
So very sorry
Kathleen,
My heart breaks over your news. I will keep you, ****, and the girls in my prayers. Please know there are so many here that love and support you all and we wish for an excellent plan to keep ****'s cancer under control.
If I can do nothing at all, let me know. David's been gone four months now and I don't want you to have to bear this pain. Oh, I do hate cancer.
So I will boldly ask God for a miracle for ****.
Hugs and Healing,
Priscilla0 -
I feel so sorry Kathleen!Sonia32 said:kathleen
just months ago **** had clear scans now this
i dont understand it, really dont. i do know as hard as it is to fight again **** will do it and beat this sob. you are in my prayers.love and hugs to you both
You both will be in my prayers!0 -
I'll pray for PEACE and HEALING for you and **** and your family
Dear Kathleen and ****,
I too am so very sorry to hear of these horrible results.
Our illness keeps on making our lives so hard and strangely even more vulnerable and precious.
I loved that you asked us to pray for PEACE IN YOUR family, if that what you desire then I believe thats what you will receive. I firmly belive that PEACE and HEALING are good friends, one follows the other. Don't loose hope even though I know you are really worried.
God bless you both. I wished my faith were stronger, so even if god is planning to step in don't wait around and get all your next medical options covered.
Love Pete0 -
Kathleen and ****,pete43lost_at_sea said:I'll pray for PEACE and HEALING for you and **** and your family
Dear Kathleen and ****,
I too am so very sorry to hear of these horrible results.
Our illness keeps on making our lives so hard and strangely even more vulnerable and precious.
I loved that you asked us to pray for PEACE IN YOUR family, if that what you desire then I believe thats what you will receive. I firmly belive that PEACE and HEALING are good friends, one follows the other. Don't loose hope even though I know you are really worried.
God bless you both. I wished my faith were stronger, so even if god is planning to step in don't wait around and get all your next medical options covered.
Love Pete
I am
Kathleen and ****,
I am keepning you in my toughts and prayers, and it is with sincere hope that they can find something to do to keep this lastest growth at bay.
Hugs,
Kathy0 -
Dear Kathleen
I know it must feel like the weight of the world is on you both right now as you try to come to terms with this news.
Know that each and everyone of us here are reaching out with good thoughts, wishes and prayers that you and **** will find the right treatment to beat back the cancer.
May God hold you in His hands, bring you peace of mind and healing.
Hugs,
Marie who loves kitties0 -
KathleenLovekitties said:Dear Kathleen
I know it must feel like the weight of the world is on you both right now as you try to come to terms with this news.
Know that each and everyone of us here are reaching out with good thoughts, wishes and prayers that you and **** will find the right treatment to beat back the cancer.
May God hold you in His hands, bring you peace of mind and healing.
Hugs,
Marie who loves kitties
Kathleen....I am so very sorry for you and **** and your girls....who wanted this crappy news?
oh Kath...I just don't know what to say....sending you all the love and prayers I can muster
maggie0 -
tough newsmaglets said:Kathleen
Kathleen....I am so very sorry for you and **** and your girls....who wanted this crappy news?
oh Kath...I just don't know what to say....sending you all the love and prayers I can muster
maggie
I'm sorry to hear that. I thought the worst was behind you guys. But please don't get too discouraged. His most recent scan sounds almost exactly like my 1st scan after my Dr said I was NED. That was 2 full years ago. They've been happy, good health years. So I know you guys have some hurdles to cross but I think things will be good for quite some time.0 -
Oh, Kathleen, I'm so very
Oh, Kathleen, I'm so very sorry to hear this news. I was expecting a different type of post - but I will pray for him and your family. God Bless you all... Luv and hugs, Cynthia0
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