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Stage 4 NED 2 years

Randy33
Posts: 63
Joined: Jan 2011

I am new to this board. I thought I should share with what I am doing to prevent reoccurrance in case it can help someone else. First let me tell you my story. I was diagnosed in July 08. I had severe stomach pain and they found that cancer had perforated my colon. I had no symptons prior to this. They later found it had spread to my liver and a lymph node in my neck. I had to wear a colostomy bag for 6 months, which has been the worst part of this ordeal so far. I had 9 rounds of Folfox/Avastin before the neuropaphy became too bad that we had to stop. I still have some numbness in my feet. A PET scan showed that my tumors had disappeared. I then had my colon reconnected and was able to get rid of the hated bag. My doctor said that there would be a 95% chance that the cancer would return. I asked him what I could do prevent reoccurance. He told me exercise. That was no problem for me as I have always exercised. I decided at that time to find out all I could about preventing cancer reoccurrance. I read the "Anti-Cancer" book and kept my eyes open to any knews about preventing cancer. I decide to take a shotgun approach and incorporate every practical and sensible idea I could find in hopes that I could prevent reoccurance. The following is what I do:

Exercise 3 hours per day
Every morning walk 1 hr followed by .5 hr yoga
MWF 1 hr weightlifting
T Th Sat- 1 hr running
Every afternoon walk .5 hr

Follow a Mediterrian diet, green tea twice a day and use alot of tumerric and garlic.

Take the following supplements: Aspirin, Vitamin D, resviratrol, multi vitamin, fish
oil

So far it has been working but I still have three years to go before I am considered "cured". If anybody kows of anything else that I should be trying or if anyone else is doing something similar I would appreciate your feedback. Thanks

JoyceSteele's picture
JoyceSteele
Posts: 146
Joined: Nov 2010

So wonderful to read your story Randy and best wishes on you staying NED. And thanks for sharing your program and what you are doing. How many units of Vit D do you take daily?
Welcome and all my best, Joyce

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

To encourage us!
Hugs and welcome again!

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

I'm in a similar boat as you ,very similar, Liver met, and lymph nodes on retroperitoneum All them gone! But now thonking about surgery!
Thanks in advance!

Randy33
Posts: 63
Joined: Jan 2011

I did not get my liver operated on because my tumor had disappeared. My original plan was to operate on my liver after chemo, but since my tumor was gone there was nothing to operate on. If my tumor comes back I am sure my doctor will want to operate.

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

Randy how big was your tumors in the liver and in the colon . As for the lymph nodes did you have any by the main artery .thanks Tina

Randy33
Posts: 63
Joined: Jan 2011

Tina I don't know the size of my colon tumor, but it must have been big to perforate the colon. The tumor in my liver was around 1 cm. The one in my neck was not near a main artery. Randy

Randy33
Posts: 63
Joined: Jan 2011

Thanks for the welcome. I take 2000 IUs of D3 a day, but only in the winter. The rest of the year I am outside alot.

coloCan
Posts: 1956
Joined: Oct 2009

Co-Enzyme Q-10 is supposed to be a good antioxident I think we all should be taking, once approved by onc.....Exercise has been reported to be vital in living with CRC.....steve

Randy33
Posts: 63
Joined: Jan 2011

Steve, thanks for the tip on Q-10. I looked it up and I am going to add it to my arsonal.Randy

AnneCan
Posts: 3692
Joined: Oct 2009

Welcome to this board. It is a great place to share knowledge, joy, pain etc. Thank you for sharing the information about your success.

believeit 2011
Posts: 39
Joined: Dec 2010

Congrats Randy, sounds like you are on the right track. Like Steve, I am a big fan of Coenzyme CO-Q10. There is alot of evidence it is beneficial to cancer patients at any stage. Look it up...
Best luck on staying NED.
Chris

John23's picture
John23
Posts: 2140
Joined: Jan 2007

I got to the part that said:

"MWF 1 hr weightlifting"

And I was wondering if I could use a single girl, instead
of a married white female?

I do think it's something I'd like to try!

Thanks,

John

have2believe
Posts: 135
Joined: Dec 2010

haha- too funny.

<

"MWF 1 hr weightlifting"

And I was wondering if I could use a single girl, instead
of a married white female?

I do think it's something I'd like to try!

Thanks,

John>>

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

OMG is this true .how awesome is that thank you so very much Randy for telling us about your story .hugs Tina

PGLGreg's picture
PGLGreg
Posts: 741
Joined: Jul 2006

I do something like that, except not so much. I think your regimen will be good for your health. I have my doubts that it will actually lower the chances of a recurrence, but if your health is robust, you'll be better able to withstand any hypothetical future treatment for a possible recurrence.

--Greg

lesvanb's picture
lesvanb
Posts: 911
Joined: May 2008

and congrats on your progress so far. Thanks so much for sharing your info!

all the best, Leslie

luvmum
Posts: 457
Joined: Dec 2010

Thank you so much for your sharing. This give me hope and bright my day!!!!

Hope you continue your NED status forever!
Dora

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