Stage 4 NED 2 years

Randy33
Randy33 Member Posts: 69 Member
edited March 2014 in Colorectal Cancer #1
I am new to this board. I thought I should share with what I am doing to prevent reoccurrance in case it can help someone else. First let me tell you my story. I was diagnosed in July 08. I had severe stomach pain and they found that cancer had perforated my colon. I had no symptons prior to this. They later found it had spread to my liver and a lymph node in my neck. I had to wear a colostomy bag for 6 months, which has been the worst part of this ordeal so far. I had 9 rounds of Folfox/Avastin before the neuropaphy became too bad that we had to stop. I still have some numbness in my feet. A PET scan showed that my tumors had disappeared. I then had my colon reconnected and was able to get rid of the hated bag. My doctor said that there would be a 95% chance that the cancer would return. I asked him what I could do prevent reoccurance. He told me exercise. That was no problem for me as I have always exercised. I decided at that time to find out all I could about preventing cancer reoccurrance. I read the "Anti-Cancer" book and kept my eyes open to any knews about preventing cancer. I decide to take a shotgun approach and incorporate every practical and sensible idea I could find in hopes that I could prevent reoccurance. The following is what I do:

Exercise 3 hours per day
Every morning walk 1 hr followed by .5 hr yoga
MWF 1 hr weightlifting
T Th Sat- 1 hr running
Every afternoon walk .5 hr

Follow a Mediterrian diet, green tea twice a day and use alot of tumerric and garlic.

Take the following supplements: Aspirin, Vitamin D, resviratrol, multi vitamin, fish
oil

So far it has been working but I still have three years to go before I am considered "cured". If anybody kows of anything else that I should be trying or if anyone else is doing something similar I would appreciate your feedback. Thanks

Comments

  • JoyceSteele
    JoyceSteele Member Posts: 145
    #2
    Welcome
    So wonderful to read your story Randy and best wishes on you staying NED. And thanks for sharing your program and what you are doing. How many units of Vit D do you take daily?
    Welcome and all my best, Joyce
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #3
    JoyceSteele said:

    Welcome
    So wonderful to read your story Randy and best wishes on you staying NED. And thanks for sharing your program and what you are doing. How many units of Vit D do you take daily?
    Welcome and all my best, Joyce

    Welcome to the board Randy ,we need people like you on the board
    To encourage us!
    Hugs and welcome again!
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #4
    pepebcn said:

    Welcome to the board Randy ,we need people like you on the board
    To encourage us!
    Hugs and welcome again!

    Were yo operated of liver? if not Why?
    I'm in a similar boat as you ,very similar, Liver met, and lymph nodes on retroperitoneum All them gone! But now thonking about surgery!
    Thanks in advance!
  • Randy33
    Randy33 Member Posts: 69 Member
    #5
    pepebcn said:

    Were yo operated of liver? if not Why?
    I'm in a similar boat as you ,very similar, Liver met, and lymph nodes on retroperitoneum All them gone! But now thonking about surgery!
    Thanks in advance!

    I did not get my liver
    I did not get my liver operated on because my tumor had disappeared. My original plan was to operate on my liver after chemo, but since my tumor was gone there was nothing to operate on. If my tumor comes back I am sure my doctor will want to operate.
  • Randy33
    Randy33 Member Posts: 69 Member
    #6
    JoyceSteele said:

    Welcome
    So wonderful to read your story Randy and best wishes on you staying NED. And thanks for sharing your program and what you are doing. How many units of Vit D do you take daily?
    Welcome and all my best, Joyce

    Thanks for the welcome. I
    Thanks for the welcome. I take 2000 IUs of D3 a day, but only in the winter. The rest of the year I am outside alot.
  • coloCan
    coloCan Member Posts: 1,944 Member
    #7
    Randy33 said:

    Thanks for the welcome. I
    Thanks for the welcome. I take 2000 IUs of D3 a day, but only in the winter. The rest of the year I am outside alot.

    What about Q-10?
    Co-Enzyme Q-10 is supposed to be a good antioxident I think we all should be taking, once approved by onc.....Exercise has been reported to be vital in living with CRC.....steve
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #8
    Welcome Randy
    Welcome to this board. It is a great place to share knowledge, joy, pain etc. Thank you for sharing the information about your success.
  • believeit 2011
    believeit 2011 Member Posts: 36
    #9
    Congrats Randy, sounds like
    Congrats Randy, sounds like you are on the right track. Like Steve, I am a big fan of Coenzyme CO-Q10. There is alot of evidence it is beneficial to cancer patients at any stage. Look it up...
    Best luck on staying NED.
    Chris
  • John23
    John23 Member Posts: 2,122 Member
    #10
    Randy -
    I got to the part that said:

    "MWF 1 hr weightlifting"

    And I was wondering if I could use a single girl, instead
    of a married white female?

    I do think it's something I'd like to try!

    Thanks,

    John
  • have2believe
    have2believe Member Posts: 134
    #11
    John23 said:

    Randy -
    I got to the part that said:

    "MWF 1 hr weightlifting"

    And I was wondering if I could use a single girl, instead
    of a married white female?

    I do think it's something I'd like to try!

    Thanks,

    John

    lol
    haha- too funny.

    <<I got to the part that said:

    "MWF 1 hr weightlifting"

    And I was wondering if I could use a single girl, instead
    of a married white female?

    I do think it's something I'd like to try!

    Thanks,

    John>>
  • tina dasilva
    tina dasilva Member Posts: 641
    #12
    OMG
    OMG is this true .how awesome is that thank you so very much Randy for telling us about your story .hugs Tina
  • PGLGreg
    PGLGreg Member Posts: 731
    #13
    I do something like that, except not so much. I think your regimen will be good for your health. I have my doubts that it will actually lower the chances of a recurrence, but if your health is robust, you'll be better able to withstand any hypothetical future treatment for a possible recurrence.

    --Greg
  • lesvanb
    lesvanb Member Posts: 905
    #14
    Welcome Randy 33
    and congrats on your progress so far. Thanks so much for sharing your info!

    all the best, Leslie
  • luvmum
    luvmum Member Posts: 457 Member
    #15
    Thank you so much!
    Thank you so much for your sharing. This give me hope and bright my day!!!!

    Hope you continue your NED status forever!
    Dora
  • tina dasilva
    tina dasilva Member Posts: 641
    #16
    Randy33 said:

    I did not get my liver
    I did not get my liver operated on because my tumor had disappeared. My original plan was to operate on my liver after chemo, but since my tumor was gone there was nothing to operate on. If my tumor comes back I am sure my doctor will want to operate.

    Randy
    Randy how big was your tumors in the liver and in the colon . As for the lymph nodes did you have any by the main artery .thanks Tina
  • Randy33
    Randy33 Member Posts: 69 Member
    #17
    tina dasilva said:

    Randy
    Randy how big was your tumors in the liver and in the colon . As for the lymph nodes did you have any by the main artery .thanks Tina

    Tumor size
    Tina I don't know the size of my colon tumor, but it must have been big to perforate the colon. The tumor in my liver was around 1 cm. The one in my neck was not near a main artery. Randy
  • Randy33
    Randy33 Member Posts: 69 Member
    #18
    coloCan said:

    What about Q-10?
    Co-Enzyme Q-10 is supposed to be a good antioxident I think we all should be taking, once approved by onc.....Exercise has been reported to be vital in living with CRC.....steve

    Q-10
    Steve, thanks for the tip on Q-10. I looked it up and I am going to add it to my arsonal.Randy

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