CSN Login
Members Online: 3

You are here

onc visit

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hello everyone, I have my Onc visit tomorrow, you all know the drill, blood work, port flush. I also will be having my first PET scan scheduled...... dom dom dom!!!! a little nervious to say the least, because I have been feeling lousy the past week, mainly fatigued, I'm at work and I'm ready for bed by 9:00am, I start at 7:00am LMAO....... I know this is probably normal feeling this way, but that little voice in the back of my head keeps saying is it back. When I had head and neck cancer, once they removed the tumor, I had no doubt it was gone. With NHL, it's not the same feeling. Sorry to ramble............. Vinny

yesyes2
Posts: 591
Joined: Jul 2009

Hi Vinny,

I was just going to post a new thread asking how you were doing. I sure know that feeling of dread you are referring to. Just went through it two weeks ago with my latest CT scan.
And the very first PET scan after completion of chem is the scariest of all. Just remember your body has been through hell and back and you are still in the recovery phase. You have lots of reasons for feeling fatigued besides cancer. And you went back to work so very soon after treatments.

I'll be keeping all fingers and toes crossed for you and am looking forward to hearing nothing but good things from you upcoming PET.

Just remember to take it one day at a time..........so what have you been cooking of late?

Leslie

PA_grandma
Posts: 48
Joined: Oct 2010

I'm new here, so am just learning what's going on in your lives. My very best wishes to both of you!
Will be following closely and hope to hear good news.

Joyce

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Welcome Joyce,and thank you, great bunch of people on this site! Hey Leslie what's up! thank's for the feed back, as far as cooking... for New year's i made Beef Wellington, Broil Lobster tails, and Twice baked potatoes. Oh with New York style Cheese Cake! all home made of course! hahahahahaha Vinny

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Vinny,
Try not to worry too much. Its so easy to say I know. Like Leslie was saying youare actually so soon out of treatment and then went back to work. Nothing wrong with wanting to get back to normal again. I know the tired feeling all to well. I amm not really 100% yet and been out over 3 months. Its close but not 100% yet. Those cooking dishes do sound so good. John FNHL-1-4A-5/10 REMISSION

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hey John, you know me, it's going to be, what's it's going to be! but I'm feeling like maybe 40%, kinda suck's..... Vinny

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Vinny,
I'm right there with ya! I won't know until the 25th if I'm even in remission, so I know all too well where your thinking is at. We just need to keep the faith, keep a sense of humor and hope for only the best! We will get there Vinny...I just know it! The New Years diner sounded absolutely yummy!!! Keep us posted and so will I..hang in there!
Love...Sue (FNHL-2-3A-6/10)"WILL BE" in remission!!!!

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hey Sue! You will be in remission!!! I will always keep the sense of humor!!!

merrywinner's picture
merrywinner
Posts: 627
Joined: Aug 2009

You took the words right out of my mouth. I am in the same boat. I am tired a lot or I tire easily and that worries me too. I go back for my 3rd CT since remission on the 28Th of this month and I'm anxious about it. They are all scary, my first one was scary, my second one was scarier and now I'm really scared for this one. I think it may be because more time has gone by between each one and I ask myself if I can be lucky yet a third time! Your post just hit home so closely I almost cried. Of course I think positively but there is that part of this process that tells me to be prepared for what may lie ahead. UUGGHHH! I wish you all the best and I'll be thinking about you. Mary

yesyes2
Posts: 591
Joined: Jul 2009

Hi Mary,
Good to hear from you and after reading your post I just felt I had to reply. I'm right there with you, Vinny and everyone else on the rising fear, dread, terror when it's time for my scans. You just express it so much better than I can. The worst is going in to get the results, dry mouth, heart pounding in ears and an inability to say anything near intelligent as I am stealing myself for the worst. I just went through this 2 weeks ago, with good results after needing an ultra sound on a question on CT about my spleen. Even though the Oncs say all is very good I'm still not so sure. I'm tired almost all the time, and I'm not working like you and Vinny are. I also have stomach problems again, like I did both other times. So I fret and my family thinks I'm crazy. We are so lucky to have the CSN family to listen to us and to care.
Mary, we will be here for you every step of the way. We're the old hands here on the board as finished treatment about the same time. As we both near our one year anniversary there is both happiness at getting through the first year after treatment and also some worry about what will be ahead. All this along with keeping positive. You have been my inspiration as we travel this roller coaster ride called NHL.
Leslie

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hey Mary, I can't agree more, I have a saying that I have stuck to in with dealing with cancer, hope for the best, expect the worst! I have never been disappointed yet!!!!! LMAO

miss maggie
Posts: 929
Joined: Mar 2010

Hi Vinnie,

Your feelings sound so familiar. You have been through so much. Don't beat yourself up. Add to the fact you returned to work. It might take awhile to get back to 100%, but you'll get there. Good luck tomorrow, jan 14.

Love maggie

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Thanks Maggie, I know everyone on this site has been through this more then once. The doctors at the Univ. of Penn said that I will have a new "normal"...........

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

If you didn't feel wierd and confused and tired before the appointment you would not be normal my friend!!

It'll be ok. The weather is nasty, cold, nasty, snowy, crappy winter. That's why you're tired.....been shoveling?

Give yourself a break.

Talk to you soon!
Beth

onlytoday's picture
onlytoday
Posts: 603
Joined: Jun 2010

Praying for you today (and every day)! I understand your feelings. Working is a challenge for me as well. I am sure now (hind sight!) that I went back to work too soon. I have now had 3 infections because of it. This latest one (intestinal) is a real challenge. So I'm out of work for a week to get better. Ugh.

I understand the fatigue too. Maybe because we are trying so hard to be normal we just wear ourselves out. Our bodies are still healing, or trying too. Be kind to yourself and I am praying that is all there is to it and you have a positive Doc appt and negative tests!!

Your New Years food sounds amazaing. My husband made sauerbraughten (sp) with ginger snap gravy this year for Christmas. Yum.

Love,
Donna

NMZ NHL stage IV 05/10 REMISSION 1/11/11

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hey Donna, thanks for the response, you are so right, we strive to be normal to fast!

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Just said a prayer Vinny for good results. We talked at my cancer support group last night that the fear is always there. LET US KNOW.

tcvine's picture
tcvine
Posts: 174
Joined: Aug 2010

Hey Vinny,
Sorry to be a little late in expressing my well-wishes for your onc visit yesterday.
When do you get results?

Along with everyone else, you have my very best wishes and I will be looking for your results.

Tom (DLBCL-Stage 4-7/10-Remission)

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hey Tom, I have my PET scan set for Jan. 25, as far as my Onc. visit it went well, my white counts are still on the low side, but better. She wants me to let her know if I have eye pain or headaches, forgot to ask her if that included hangovers! LMAO Vinny

truckingalong
Posts: 444
Joined: Aug 2010

Hi, Vinny,

All this sounds very familiar unfortunately. I am approaching to my final 12th chemo and I am already thinking - oh I am going back to work etc etc. Too much expectations on ourselves - we gotta slow down!! But it is not easy. And then there is fear of the unknown future what will hold for us. Here I feel we can blow the fears away by sharing our thoughts - it is a blessing!

With positive thoughts,
Liz

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hi, Liz I agree 100% percent, it's great to be able to share our feelings on this site.... Oh and Thanks Maggie!

miss maggie
Posts: 929
Joined: Mar 2010

Good morning Vinnie,

Great sense of humor. I will be thinking of you jan 25, and your following visit with the oncologist. Love your attitude, good for you. maggie

Deb S
Posts: 11
Joined: Jan 2011

Hi all!

I am new to this site, (new dx) I am scheduled for a PET and CT along with bloodwork on Monday (1/24) One oncologist on Tuesday,1/25 with a second opinion on Thursday 1/27. Any info or recommendations you could give me would be appreciated. I'm 54 with grade one NHL. I found an enlarged lymph node-2 cm in my groin, 8 weeks ago. The surgeon didn't feel any enlarged nodes elsewhere, and we waited to see if it would shrink, then did an ultrasound, then the biopsy. I was told it didn't look like anything, but it was sent to pathology, and was shocked with the diagnosis. Research on the internet is scary; my attending told me to stay off the internet. I am a RN, but have had very little exposure to oncology in my 30 year career.

Wishing you all the best, Vinny!

Thanks in advance for all your help. Hope I'm posting in the right place!

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Debbie,
Welcome to this site.I was diagnosed in May 2010 with Follicular non hodgkins lymphoma. I can tell you it is all treatable. Do not feel you have a death sentence. We will have to know a little more about your diagnosis. I am sure you would tell us if you knew yourself. I can tell you the same thing as your friend,Stay away from those websites. They are useful in many ways but not on an individual basis. They will scare the crap out of you. I did the same thing when I was first diagnosed. You feel so alone as it is so you don't need those websites really confusing you. Please do not worry yourself sick over the diagnosis. It is serious to say the least,but not life threatening. You will go thru a battery of tests to get an exact diagnosis. We all went thru that. No, they are not fun,but needed.Keep us informed,I know exactly what you are going thru. You will get quite a few responses with in the next few days. John Follicular non hodgkins lymphoma Grade 1 stage 4 asymtomatic. Remission

Deb S
Posts: 11
Joined: Jan 2011

Glad to hear you are in remission! I too have NHL grade 1 - staging will be done next week. Thanks for the support. I look forward to talking to you again. Deb

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Deb,
June 2010 I was diagnosed with Follicular Non Hodgkins Lymphoma Grade2-Stage3-TypeA(non-symptomatic). My tumors were located in my left groin, abdomen, and neck. As of yet I do not have any bone marrow involvement. I finished 6 rounds of chemo-CVP-R on Dec.14th and will be getting a CT scan in the morning(Tues) to find out if I am in remission...won't get the results of scan until Jan 25th. Anyways....you will be having lots of tests done and it will get very tiresome, leaving you waiting and worrying and quite scared until all of the test results, complete diagnosis, and type of treatment has been determined. The best thing you can do as you start this process is to come here and ask your questions. We have all gone through this process and know exactly what you are going through. It is so scary when you first find out, and still will be as you go along, but having this group to communicate with will keep you sane and make it alot easier to deal with. Having everyone here to talk with has been a life saver for me. Please keep us up-dated and welcome to our family...Best wishes Sue (age 60).
FNHL-2-3A-6/10)

Deb S
Posts: 11
Joined: Jan 2011

Thank you Sue. Did you find it yourself?? I wish I had the biopsy when first found seven weeks earlier, but it wasn't thought to be anything but an enlarged lymph node at that time. My dad was diagnosed with gallbladder cancer 12/1 and died 12/28, so I have been dealing with that also. We were very close. I look forward to the support of the group, and hope I have something to share also. Deb

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Deb,
I am so sorry about your father. You are dealing with alot right now and I'm very glad you have found this group. The support here is just awesome. To answer your question...
Yes...I found a good size lump on my left groin(quarter size, very hard) and a small lump on the left side of my neck(dime size, very hard) in January 2010. I called my primary care physician and went in to see him that same week. I had been sick with a bronchial infection prior to finding the lumps and had been on 2 different kinds of antibiotics. After examining me my PCP felt they were just swollen nodes caused from being sick and said we would check them out again at my next physical scheduled for the first week in May. Went in for my physical in May and my PCP decided that since the lumps hadn't gone away we needed to get some tests done. The rest is history as they say. I sure didn't expect the lumps to be cancer and seriously, the thought didn't even pass through my mind..totally thought they would be benign(sp)cysts or something simple. Blew me away when my PCP said it was cancer! I felt so healthy and good and didn't have a single sign or symptom to think it was cancer. Crazy how thing turn out, but it is what it is, and now we just learn to deal with it I guess. Ive been told we now have a "new normal" instead of the way we were before cancer..our "old normal". This new way of feeling is going to take some time for me to accept....I'm not use to being tired or run down and miss the active energetic person I use to be. Well...enough on me...You take care Deb and keep us up-dated withn the rest of your testing. Stay strong...we are here for you anytime you need us. Love...Sue (FNHL-2-3A-6/10)

Subscribe to Comments for "onc visit"