CSN Login
Members Online: 0

You are here

Today's CT scan results

AnneCan
Posts: 3692
Joined: Oct 2009

I met with my onc today + she had the results from my Dec 23 CT scan. The bottom line is my cancer is fairly stable, with a little bit of progression. My CEA has been going up. My onc is keeping me on my current chemo regimen (folfiri + avastin), will scan me in a few months, + will see what is happening then. She is preparing me that I may have to switch drugs in the next little while, depending what the scan shows. To be honest, I thought she might have had to switch me this time, or even last time. My onc is stretching out each line of treatment as much as she can. I came away reasonably happy; I was not sure what to expect.

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Good news that you are fairly stable. No big crap growing..no new crap growing...good! What is your KRAS status? Has your Onc mentioned what she will try you on next? Hugs to you my friend!

Jennie

AnneCan
Posts: 3692
Joined: Oct 2009

I am KRAS-wild, so my next combo would include Erbitux.

annad723's picture
annad723
Posts: 44
Joined: Nov 2010

Hi Anne,

I am also KRAS wild, and did the Erbitux for almost a year. It worked well. Watch out for the rash. It's like an acne rash that forms all over. My nose looked like Rudolph the red nosed reindeer. It was a small price to pay.

I'm told that since I am KRAS wild, there are still many treatment options for me.

AnneCan
Posts: 3692
Joined: Oct 2009

I have heard about the rash + it worries me a little but I figure I will cross that bridge when I come to it + I am grateful I have the option to use it.

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

I'll be thinking of you tomorrow as I sit in "The Lounge" at the hospital, sipping on Folfiri Margaritas:)

In your honor, I'll even make them a "meltdown" and add a shot of Leucavorin and a 5fu-Bolus shot as well:)

LOL LOL!!!

Pulling for you so much:)

-Craig

AnneCan
Posts: 3692
Joined: Oct 2009

I will be having my own "Folfiri Margarita" on Thursday (too bad we can't "enjoy" these at the same time; regardless I will "cheers" you on Thursday at the end of my chemo break). Good luck tomorrow!

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

Anne any news that isn't really bad news is good news....you still have lots of time and options on your side Anne...keep on keepin on

stay warm

mags

AnneCan
Posts: 3692
Joined: Oct 2009

I felt pretty good after this appointment. Obviously I would like to hear any of the following:

1) You are NED!
2) You are in remission

However I will take this + will likely sleep better than I have the last few weeks.

I have a terrific onc, + she never makes you feel like she is in a rush (probably why she is usually late for appointments). She is professor in the University of Toronto med school as well.

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

LOL. Just know that whatever makes you happy makes me happy too!.
Big Hug dear canuo$&#%#*^£€>. ( never remember the word) hahahaha!

AnneCan
Posts: 3692
Joined: Oct 2009

Thanks so much Pepe, with hugs from the Canuck!

Annabelle41415's picture
Annabelle41415
Posts: 6682
Joined: Feb 2009

Stable is good. Sounds like your doctor is on top of things. Glad it turned out pretty much what you had hoped. Keep up the great attitude.

Kim

Lilmiss82's picture
Lilmiss82
Posts: 257
Joined: Dec 2009

Stable is good news and it sounds like you have a great doctor who's ready with a plan B, C, and so on. It seems you too are ready to attack any new treatment which is a great attitude to have, keep it up :)

AnneCan
Posts: 3692
Joined: Oct 2009

I really appreciate your comments + I try to keep my attitude up (not always possible!)

Kerry S's picture
Kerry S
Posts: 607
Joined: Dec 2009

Fairly stable sounds damn good to me. To me it says you are keeping the monster in line until you can find the right chemo mix to kill it off.

Kerry

AnneCan
Posts: 3692
Joined: Oct 2009

I love the way you said this because I am determined to do everything I can to get rid of this stinking cancer. It may take awhile. Heck the one that may kill it off might not be out there yet, so I have to keep the monster in line until that happens.

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Anne,

As others have said, if it isn't bad news, then it's good news! Of course, we're always hoping for "even better", but no bad is good! I'm at a similar situation as you now, sortof anyhow- CEA is rising, but my last two scans have showed mostly stable, with slight progression in some areas. I'm due for another scan soon. My onc ordered it today- if insurance approves it in time, they'll try to set it up for next week, which is my "off" chemo week. If not, then it will be set up for just after my next chemo round.
I had chemo and a dr. appt today & we discussed the "what next" if my next scan shows more progression. He wants me to look at a particular clinical trial out of Mayo (I'd go to their Arizona location). Until/unless I get into a trial, we're going to keep me on Gemzar/Avastin for now, but switch from the Xeloda back to the 5FU pump. I've had a terrible time w/ hand/foot syndrome w/ the xeloda & it's not supposed to be as bad w/ 5FU. We'll see...
Anyhow, I'm glad you came away from your onc appt feeling good, and somewhat relieved I'm sure. Keep plugging away!

Hugs,
Lisa

AnneCan
Posts: 3692
Joined: Oct 2009

I too have thought our situations are similar. I hope that for both of us CEA will decrease + progression will cease altogether + change to regression! I know you will keep us posted + I will be waiting to hear. I am on 5FU but have had little to no hand/foot syndrome; I guess I have been fortunate this way. I am trying to think of my journey similarly to one I read about where you "hitchhike" + use a treatment until it no longer helps, then go to the next one. I did come away from my appointment feeling good; I truly think my onc laid things out well. Thanks for your encouragement!

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

YAY Anne keep it up doing awesome hugs tina

AnneCan
Posts: 3692
Joined: Oct 2009

Thanks for your support Tina!

geotina's picture
geotina
Posts: 2122
Joined: Oct 2009

Fairly stable is good so I can see why you were reasonably happy with this report. Your onc is right, stay on this mix as long as you can before switching stuff around. As long as it is doing a reasonably good job, keep with it. Good job and I sincerely hope this mix contiues to work for you.

Take care - Tina

AnneCan
Posts: 3692
Joined: Oct 2009

I agree; I think my onc has the right idea. I hope this mix will work awhile longer, but if it doesn't my onc is already getting me to think of next steps.

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Anne,
Stable is good. It sounds like your onc is on it and staying on top of things. Good news.

Aloha,
Kathleen

AnneCan
Posts: 3692
Joined: Oct 2009

Thanks so much for your comments!

Crow71's picture
Crow71
Posts: 681
Joined: Jan 2010

Stable is good enough for now. You are smart to get all you can get out of the main line big guns.
You are doing great.
Roger

AnneCan
Posts: 3692
Joined: Oct 2009

I really appreciate your positive comments, especially when you had a tough day. That will change.

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Stable is a good thing, so I'm glad about that. I'm also guessing your onc wants to stay as long as possible on one, before trying another, so another good thing.
I hope stable stays and little bit of progression goes.
Thinking of you, and sending the most positive thoughts your way.
Winter Marie

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Just keep creeping to NED! You can do it!! Hugs!

AnneCan
Posts: 3692
Joined: Oct 2009

My dream is to hear that.

AnneCan
Posts: 3692
Joined: Oct 2009

Your words are a breath of sunshine to me. Thank you!

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

I'm glad to read that word "stable" in there. Praying for even better news next time.

*hugs*
Gail

AnneCan
Posts: 3692
Joined: Oct 2009

That's what I would like too!

Anonymous user (not verified)

This comment has been removed by the Moderator

Anonymous user (not verified)

This comment has been removed by the Moderator

AnneCan
Posts: 3692
Joined: Oct 2009

I really appreciate your support + friendship!

AnneCan
Posts: 3692
Joined: Oct 2009

We were supposed to open a small bottle of champagne, but somehow we forgot. I did have a glass of white wine though.

kristasplace's picture
kristasplace
Posts: 956
Joined: Oct 2007

Some progression? Like you, i'm wondering what they're waiting for? If there's any progression at all, i would think that means the treatments aren't working, and they need to try something else. I'm sorry the news wasn't better, Anne, but i'm thankful it wasn't worse. There seems to be a lot of bad news going around here with progression in particular. Sorry i couldn't agree with everyone else on this. I just don't see the point on continuing with something if it isn't reversing the tumors.

Hang in there, Hon, you're tough as nails!

Krista

AnneCan
Posts: 3692
Joined: Oct 2009

It is so nice to hear from you! Thank-you for your input. I won't continue on this chemo for long if it isn't working. The progression was very minimal. I read on another thread that you are NED - that is awesome. It sounds like you are doing really well, + I am happy for you!

HollyID's picture
HollyID
Posts: 951
Joined: Dec 2009

Anne, good news!! Stable isnt' a bad thing. I'm really glad that there are so many options for you though if you're changing chemo regimens. Love ya girl!!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

i love your username its so positive.
its great to have positive news and to share it.
it keeps us all positive
and thats what keeps us going and enjoying our days.

prayers for your ned,

pete

AnneCan
Posts: 3692
Joined: Oct 2009

Regarding my username, the "Can" part is dual purpose - I am from Canada + I can beat this! I love your positive threads.

Subscribe to Comments for "Today's CT scan results"