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Today's CT scan results

AnneCan
AnneCan CSN Member Posts: 3,673 Member
edited March 2014 in Colorectal Cancer #1
I met with my onc today + she had the results from my Dec 23 CT scan. The bottom line is my cancer is fairly stable, with a little bit of progression. My CEA has been going up. My onc is keeping me on my current chemo regimen (folfiri + avastin), will scan me in a few months, + will see what is happening then. She is preparing me that I may have to switch drugs in the next little while, depending what the scan shows. To be honest, I thought she might have had to switch me this time, or even last time. My onc is stretching out each line of treatment as much as she can. I came away reasonably happy; I was not sure what to expect.
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Comments

  • idlehunters
    idlehunters CSN Member Posts: 1,787 Member
    #2
    YAY Anne!
    Good news that you are fairly stable. No big crap growing..no new crap growing...good! What is your KRAS status? Has your Onc mentioned what she will try you on next? Hugs to you my friend!

    Jennie
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  • AnneCan
    AnneCan CSN Member Posts: 3,673 Member
    #3
    idlehunters said:

    YAY Anne!
    Good news that you are fairly stable. No big crap growing..no new crap growing...good! What is your KRAS status? Has your Onc mentioned what she will try you on next? Hugs to you my friend!

    Jennie

    Thanks Jennie!
    I am KRAS-wild, so my next combo would include Erbitux.
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  • Sundanceh
    Sundanceh CSN Member Posts: 4,392 Member
    #4
    Darlin' Annie
    I'll be thinking of you tomorrow as I sit in "The Lounge" at the hospital, sipping on Folfiri Margaritas:)

    In your honor, I'll even make them a "meltdown" and add a shot of Leucavorin and a 5fu-Bolus shot as well:)

    LOL LOL!!!

    Pulling for you so much:)

    -Craig
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  • AnneCan
    AnneCan CSN Member Posts: 3,673 Member
    #5
    Sundanceh said:

    Darlin' Annie
    I'll be thinking of you tomorrow as I sit in "The Lounge" at the hospital, sipping on Folfiri Margaritas:)

    In your honor, I'll even make them a "meltdown" and add a shot of Leucavorin and a 5fu-Bolus shot as well:)

    LOL LOL!!!

    Pulling for you so much:)

    -Craig

    Thanks Craig!
    I will be having my own "Folfiri Margarita" on Thursday (too bad we can't "enjoy" these at the same time; regardless I will "cheers" you on Thursday at the end of my chemo break). Good luck tomorrow!
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  • maglets
    maglets CSN Member Posts: 2,576 Member
    #6
    AnneCan said:

    Thanks Craig!
    I will be having my own "Folfiri Margarita" on Thursday (too bad we can't "enjoy" these at the same time; regardless I will "cheers" you on Thursday at the end of my chemo break). Good luck tomorrow!

    anne
    Anne any news that isn't really bad news is good news....you still have lots of time and options on your side Anne...keep on keepin on

    stay warm

    mags
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  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #7
    AnneCan said:

    Thanks Craig!
    I will be having my own "Folfiri Margarita" on Thursday (too bad we can't "enjoy" these at the same time; regardless I will "cheers" you on Thursday at the end of my chemo break). Good luck tomorrow!

    you mean free Margarita? Great!
    LOL. Just know that whatever makes you happy makes me happy too!.
    Big Hug dear canuo$&#%#*^£€>. ( never remember the word) hahahaha!
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  • Annabelle41415
    Annabelle41415 CSN Member Posts: 6,744 Member
    #8
    Stable
    Stable is good. Sounds like your doctor is on top of things. Glad it turned out pretty much what you had hoped. Keep up the great attitude.

    Kim
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  • Lilmiss82
    Lilmiss82 CSN Member Posts: 257 Member
    #9
    Annabelle41415 said:

    Stable
    Stable is good. Sounds like your doctor is on top of things. Glad it turned out pretty much what you had hoped. Keep up the great attitude.

    Kim

    I'm with Kim......
    Stable is good news and it sounds like you have a great doctor who's ready with a plan B, C, and so on. It seems you too are ready to attack any new treatment which is a great attitude to have, keep it up :)
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  • Kerry S
    Kerry S CSN Member Posts: 606 Member
    #10
    Ann Darlin

    Fairly stable sounds damn good to me. To me it says you are keeping the monster in line until you can find the right chemo mix to kill it off.

    Kerry
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  • lisa42
    lisa42 CSN Member Posts: 3,625 Member
    #11
    same here
    Hi Anne,

    As others have said, if it isn't bad news, then it's good news! Of course, we're always hoping for "even better", but no bad is good! I'm at a similar situation as you now, sortof anyhow- CEA is rising, but my last two scans have showed mostly stable, with slight progression in some areas. I'm due for another scan soon. My onc ordered it today- if insurance approves it in time, they'll try to set it up for next week, which is my "off" chemo week. If not, then it will be set up for just after my next chemo round.
    I had chemo and a dr. appt today & we discussed the "what next" if my next scan shows more progression. He wants me to look at a particular clinical trial out of Mayo (I'd go to their Arizona location). Until/unless I get into a trial, we're going to keep me on Gemzar/Avastin for now, but switch from the Xeloda back to the 5FU pump. I've had a terrible time w/ hand/foot syndrome w/ the xeloda & it's not supposed to be as bad w/ 5FU. We'll see...
    Anyhow, I'm glad you came away from your onc appt feeling good, and somewhat relieved I'm sure. Keep plugging away!

    Hugs,
    Lisa
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  • tina dasilva
    tina dasilva CSN Member Posts: 641
    #12
    YAY
    YAY Anne keep it up doing awesome hugs tina
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  • geotina
    geotina CSN Member Posts: 2,111 Member
    #13
    Anne:
    Fairly stable is good so I can see why you were reasonably happy with this report. Your onc is right, stay on this mix as long as you can before switching stuff around. As long as it is doing a reasonably good job, keep with it. Good job and I sincerely hope this mix contiues to work for you.

    Take care - Tina
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  • Kathleen808
    Kathleen808 CSN Member Posts: 2,342 Member
    #14
    Anne
    Anne,
    Stable is good. It sounds like your onc is on it and staying on top of things. Good news.

    Aloha,
    Kathleen
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  • annad723
    annad723 CSN Member Posts: 44
    #15
    AnneCan said:

    Thanks Jennie!
    I am KRAS-wild, so my next combo would include Erbitux.

    KRAS wild
    Hi Anne,

    I am also KRAS wild, and did the Erbitux for almost a year. It worked well. Watch out for the rash. It's like an acne rash that forms all over. My nose looked like Rudolph the red nosed reindeer. It was a small price to pay.

    I'm told that since I am KRAS wild, there are still many treatment options for me.
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  • Crow71
    Crow71 CSN Member Posts: 679 Member
    #16
    Hey Anne
    Stable is good enough for now. You are smart to get all you can get out of the main line big guns.
    You are doing great.
    Roger
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  • herdizziness
    herdizziness CSN Member Posts: 3,624 Member
    #17
    Anne
    Stable is a good thing, so I'm glad about that. I'm also guessing your onc wants to stay as long as possible on one, before trying another, so another good thing.
    I hope stable stays and little bit of progression goes.
    Thinking of you, and sending the most positive thoughts your way.
    Winter Marie
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  • AnneCan
    AnneCan CSN Member Posts: 3,673 Member
    #18
    annad723 said:

    KRAS wild
    Hi Anne,

    I am also KRAS wild, and did the Erbitux for almost a year. It worked well. Watch out for the rash. It's like an acne rash that forms all over. My nose looked like Rudolph the red nosed reindeer. It was a small price to pay.

    I'm told that since I am KRAS wild, there are still many treatment options for me.

    Thanks Anna!
    I have heard about the rash + it worries me a little but I figure I will cross that bridge when I come to it + I am grateful I have the option to use it.
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  • Nana b
    Nana b CSN Member Posts: 3,030 Member
    #19
    herdizziness said:

    Anne
    Stable is a good thing, so I'm glad about that. I'm also guessing your onc wants to stay as long as possible on one, before trying another, so another good thing.
    I hope stable stays and little bit of progression goes.
    Thinking of you, and sending the most positive thoughts your way.
    Winter Marie

    Just keep creeping to NED!
    Just keep creeping to NED! You can do it!! Hugs!
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  • tootsie1
    tootsie1 CSN Member Posts: 5,044 Member
    #20
    Stable
    I'm glad to read that word "stable" in there. Praying for even better news next time.

    *hugs*
    Gail
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  • AnneCan
    AnneCan CSN Member Posts: 3,673 Member
    #21
    maglets said:

    anne
    Anne any news that isn't really bad news is good news....you still have lots of time and options on your side Anne...keep on keepin on

    stay warm

    mags

    Thanks Mags!
    I felt pretty good after this appointment. Obviously I would like to hear any of the following:

    1) You are NED!
    2) You are in remission

    However I will take this + will likely sleep better than I have the last few weeks.

    I have a terrific onc, + she never makes you feel like she is in a rush (probably why she is usually late for appointments). She is professor in the University of Toronto med school as well.
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