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NHL and subsequent fluid in Lung

Stumpy
Posts: 4
Joined: Jan 2011

Hi Guys

Im new to this stuff so bare with me. My sister (19) was diagnosed wit NHL last April after discovering a lump just below her neck. Susequently treatment started in June. She has finished the Chemo but it was not as succesfull as the doctors made out it would be so she had to go in for a stem cell harvest. She is subsequently due to start a high intense chemo this monday. During the week she was forced to go into hospital due to a high temperature and a slight cough and although today her temperature has gone back to normal they have found fluid on her lung. As you can imagine this is very worrying for our whole family. She was brought to get the fluid drained out of her but they had to stop as there as a high level of fluid in her. Now they are sending the fluid to check if it is cancerous.

Basically my Question is whether anyone has gone through the same or something similar as my sister and if so how have they fared out?

Thanks for reading

Stumpy

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Stumpy,
I'm sorry I can't help you with your sisters situation..(my cancer is not like hers), but I did want to tell you that this group will be helpful with the support end of what you are all dealing with. Hopefully someone else in the group will have more information or has gone through what you have described and will jump in to help you out. I just wanted to let you know we are for you and your family. Please let us know how things progress for your sister. Take care...Sue..(age 60)
(Follicular NHL stage3-typeA-grade2- diagnosed in June 2010) Dec 14th finished last of 6 chemo rounds CVP-R. Now waiting for CT-scan on 1/18 to determine if I'm in remission. Will have 2 years of Rituxan maintenance.

Stumpy
Posts: 4
Joined: Jan 2011

Hi Sue

Thank you for your support and best wishes. Our whole family is in unchanted territory as none of us have ever experienced any form of cancer so everyones support and information will be greatly apprectiated.

Well it was good news yesterday as results from the fluid have come back clear and has been put down to an infection but she is feeling much better today and yesterday and has been taken of oxygen and fluid tube. Also scans from cardiovascular have come back all clear too.

The family have been very upset for the past week as my sister has had a pretty good time of it so far (if ya can ever call it that) and that was the first set-back and hopefully the last!! Hopefully it will be onward and upward from here!!

Thank you

Stumpy!!

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Great to hear! Vinny

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

great news. congratulations and hope she gets to feeling better every day!

Take care,
Beth

truckingalong
Posts: 444
Joined: Aug 2010

Every little bit of hope always picks up along the way. Glad for you that today is a better day!

Liz

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Stumpy,
Well..that is really good news! We all have set backs in this cancer battle and it can really beat us down. Stay strong and never give up hope. Keep us posted on your sisters progress...onward and upward indeed! I'll be keeping good positive thoughts for your sister along with my prayers.
Best wishes...Sue (FNHL-2-3A-6/10)

Stumpy
Posts: 4
Joined: Jan 2011

Hi guys

After over a week of being in excellent form and the infection clearing and fluid leaving the doctors decided to put her on the new chemo which was much more intensive. Unfortunetley last night Amy took a a reaction to this Chemo and was rushed to intensive care where the doctors have said that she is very ill. So ill in fact that my parents were told to tell My older sister and I ( who are away in college and work respectively) about how sick she is. She has been sleep ever so much since the chemo has started. I pray to god that everything is ok.

Thanks for your time

Stumpy

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

So sorry to hear that, when I was considered for stem cell, they explained to me how much chemo they were going to administer. They really have to knock your body done hard, hopefully they can adjust the dose. I will be praying for her.......... Vinny

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

I hope that your sister will be on the road to recovery soon.

bluerose's picture
bluerose
Posts: 1112
Joined: Jul 2009

I am a 23 year NHL survivor, only had the cancer twice right at the beginning of my journey with cancer and have been considered cured a long time ago. Tell your sister I am thinking of her and sending her lots of prayers, with alot of prayers I hope she will get through this rough part she is going through.

I myself had pneumonia twice during my transplant but you have to remember mine was 21 years ago so hopefully now they have better treatments. When she recovers from this setback do keep an eye on her heart too, I still have a little fluid buildup around my heart that just seems to sit there and has done for years not causing any hastles.

Like the other survivors have told you remember we are here for you and your family, we all understand and are here to help.

Blessings to you and yours Stumpy,

Bluerose

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Stumpy,
I'm so sorry to hear this latest news regarding your sister. I will keep her in my prayers and positive thinking. Take care of yourself and keep coming back to us for support, and please keep us up-dated. God bless you all...Sue (FNHL-2-3A-6/10))

Tracie1981's picture
Tracie1981
Posts: 125
Joined: Mar 2010

I had a thoracentesis when I was first diagnosed. They drained 2 and a half litres of fluid. I also had a tumor wrapped around my heart that went from my left chest cavity to my right that was 10 inches. I had a tumor in my neck and activity in my lymphnodes. When I was first brought in to the hospital my situation was pretty grim. My heartrate soared to around 170 because of the strain and stayed that way for weeks. I was also on oxygen for the longest time. The regimen of chemo they started me on was called ICE and it was so hard on my body all I did was sleep for about a week, I lost all bodily function. It was pretty severe, but as you see I'm here. I am a military wife and had a newborn at the time. So my family was very far away and couldnt come to see me. I didnt even have my husband there because the baby was not allowed in the heart center where I was at the time. The most important thing you can do is be there for her, you and your family. I'm so sorry you are going through this, I'm very sympathetic and empathetic to your families situation. I also have never dealt with cancer before this. I was diagnosed February 6th last year and I'm still here after a long year. And you will have a long year too probably, take care and God Bless!

Stumpy
Posts: 4
Joined: Jan 2011

Hi Guys!!

Its been awhile since i have published on this site. After Amys set back she spent a full week in intensive care and was very closely monitored. We had 2 and a half worrying days wondering would she pull through but thankfully the chemo wore of and she came around. She had a negative reacton to something which was in it. She was then moved out of ICU to another ward and was kept there for a few more days. We had to wait for a new type of drug to come which didnt contain whatever she was reacting to in the previous one. After another week, it arrived and she was well enough to undergo this treatment.

Well.....just over 3 and a half months on, I am delighted to tell you all that Amy recieved news yesterday, after her last pet scan, that she was in COMPLETE REMISSION!! To say she....and everyone around is over the moon is an understatement.

Thanks for the support guys!

Stumpy :)

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

That is "GREAT" news Stumpy! I'm so happy your sister came through with the end result being "Complete Remission". Thanks for coming back and sharing her good news, as it gives all of us hope in our battle. Best wishes for your sisters continued success.
Sue...(FNHL-2-3A-6/10)

miss maggie
Posts: 929
Joined: Mar 2010

Hello,

Your sister certainly went through a hell of a battle. Just hearing the great news in your last paragraph was a blessing. It makes you a believer, and miracles do happen.

Thanks for sharing your story, and our love to your sister Amy.

Love Maggie DX Sept 2009 - extranodal marginal zone b cell NHL remission Jan 2011

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Stumpy,
That is the greatest news to hear. I heard it myself 6 months ago. John(FNHL-1-4A-5/10)

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