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VA-beekeeper
Posts: 6
Joined: Jan 2011

My daughter posted a msg on this board last week as I was diagnosed with Stage III colon cancer on 12/30. This started as a large polyp with two biopsies being benign. After surgery was performed on 12/14 a detailed pathology report indicated that one of 13 lymph nodes removed showed signs of cancer. I am no expert in this field, but apparently the "wall" was not broken but the cancer penetrated through. I have lined up two oncologists - see one tomorrow and the other next week. I am very, very scared and have limited knowledge. Lost my husband to lung cancer two years ago, so I am reliving a nightmare, except this time I am wearing the shoes. Any advice, treatment experiences, positive feedback etc. would be greatly appreciated. In reading some of the postings, it appears this group is like family and always there for each other.

Renee

Annabelle41415's picture
Annabelle41415
Posts: 6722
Joined: Feb 2009

Welcome to the group. We are a great bunch of people that will be here for you through your journey. You need only post a question, thought or concern and someone should post a response shortly even if it's in the middle of the night. There is not a subject that we haven't covered on here since we are a colorectal board so many other problems arise out of this disease. I'm sorry to hear of your husband's passing and now with your diagnosis and you have every right to be scared. You will now be on a rollercoaster of appointments, procedures, thoughts, etc as you move forward on to recovery. Hope that you will post often. We are here if you need us.

Kim

mcgivarenfaith's picture
mcgivarenfaith
Posts: 40
Joined: Jan 2011

Hi Renee!
I am new to this board too. But it is a wealth of testimonies & success stories i have seen. My husband was DX with colorectal cancer with metastis to his liver in May 2010. We have gotten some great drs & he has had great success so far. Just had liver resection surgery in Dec 2010 to remove several lesions. Wishing you the best in your journey!

Lovekitties's picture
Lovekitties
Posts: 3372
Joined: Jan 2010

The feelings you have right now are certainly the norm, but you have found a wonderful place and people at this site who will offer all they can to help you on the journey to better health.

Sounds like you are taking a good approach with having two get-to-know-you appointments with oncs. Having a doctor you feel comfortable with and have faith in is very important.

By the way, if the VA in your CSN name stands for Virginia...I am from that great state too!

Keep us posted on things as they move forward. Any question is ok here and lots of shoulders to help with the emotional burdens as well.

Marie who loves kitties

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pepebcn
Posts: 6352
Joined: Aug 2010

Hugs!

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Then also know that sometimes it takes some smoke to slow us down as well....we may have or had cancer, but it sure isn't gonna slow us down at all...Just let all the smoke clear and you will find that with a little emotional control on your part that this journey will not be near as bad as you have anticipated it would be...It isn't easy but by looking at all of us it is doable, and we are all here as one, to help make each and every journey the easist as it can possibly be for the patient as well as their family and caregivers......Sit back, breathe, and know now that you are in good hands here...and if you have any question at all from poop to peanut butter, just simply ask, someone here has been through it and very soon the most intellectual people on the planet will start bombarding you with their knowledge and before you know it you will be as versed on your disease as your Drs and Nurses...Then you can take total control of your life back, and it starts becoming an easier task than it was before, you actually start making the decisions on what types of treatment you want and you feel good about having the incredible knowledge base to make those decisions. After you have taken control of your life back that a cancer diagnosis can take from you you start to feel actively a part of your health care, and that in itself is a great mental and emotional motivator, which in turn increases physical changes in the body that actually make you smile again...then you finally realize how we can be as upbeat as we are with what we deal with. We celebrate the smallest of victories in this battle because sometimes thats all we get for a long time so we never let one go by without celebration. For the most part, life for all of us is the gift we all cherish, and living it to the fullest by celebrating the most minute' things as a family makes it that much more worth while...
and 1 more thing..................anyone who hasn't met Kerry S yet, is missing out on lifes greatest adventure in human form.......im sure you will know what I speak of soon...Love, Hope, and Happiness to you.......Buzz

Nana2's picture
Nana2
Posts: 255
Joined: Mar 2010

Welcome to the board Renee and to the "family" here. It's true that there is always someone here when you need advise, a shoulder, or in the case of Kerry...a laugh! Seriously, living with cancer in the house (my husband was diagnosed stage IV a little over a year ago) is a scarey thing as you know. (I am so sorry to hear of the loss of your husband.) Coming on here to read or comment day or night makes the battle easier to fight when you sense the incredible army you are in battle with. I can assure you when the dust of the new diagnosis settles and like Buzz says, you become a pretty active part of your health care and decisions, it does get easier.
We're here for you,
April

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Hey Renee!

Welcome to the board... I'm very sorry you have to be here, but am so glad you found us right at the beginning of your journey. There is no reason for you to suffer in silence or alone... and let's face it, no matter how many people we have around us willing to help do whatever we need, the bottom line is we are still having to go through the treatments and results with our own fears and feelings. BUT... as you get to know all the characters... oops... people , here on this board, you will realize that not only do you have this huge group of friends you didn't know you had, each and every one of us has been through the same or similar experience as you. Fear? Scared silly? Guess what... each and every one of us has been there, got used to it, then went through it again. It's never ending, but at the same time, you will have nice long breaks where the fear/terrors will leave you.

I'm so sorry to hear about your husband... the pain of that is still fresh and new in your mind and that's really not what you need to have to keep thinking about as you start your own journey. But keep reminding yourself... every single journey is unique and different... no two journeys are exactly the same. Your husband's journey was one that he was on... yours could (and probably will be) 100% different.

My advice to you since you are just starting? Go to the store and buy yourself a nice shiny new notebook... pick a colour that is special to you. And at the same time, buy yourself a fancy pen... not just the typical Bic pens where you get 12 to a box (I'm partial to those ones that have the little post-it tabs at the top of them... very handy). Now, this book will be your bible! What you want to do is, when something hits you, or you are suddenly scared because of some thought that has entered your mind ... write it down in the form of a question. You want to write any and all questions that you will come up with (and believe me, you will have a lot of them!). Take that notebook with you to all your different doctors' appointments... and ask them these questions you have written down (leave enough room between questions so you can also write down the answers).

When you start your treatments, your notebook really comes into play . Some of us, when we started our chemo, no matter what kind you start with, we get what is commonly referred to as Chemo brain ;) Chemo brain is where you feel like your head is in a fog... or, things that you know you should remember, you forget. All the more reason for writing things down... or checking back to see if what you are forgetting is actually something you did know and wrote down :) Have someone go to the first appointments with you. Why? Because our brains can only withhold so much information at a time... and when we are feeling somewhat stressed and overwhelmed, we can withhold even less. So another set of ears is necessary... and it wouldn't hurt of your second pair of ears brought a notebook as well and wrote down some of the things that the doctors are telling you. Then when you are back at home and a bit more relaxed, you can go over what your second pair of ears wrote and you might be very surprised to find you didn't hear half of that ;)

One thing I can guarantee... once your oncologist gives you the plan of action that he/she is going to put you on... you are going to feel much better. Knowing you have this monster in you is terrifying, not knowing what is going to happen or how you are going to deal with it is terrifying, but having someone say, "Ok, cancer. Right. This is how we attack it...." then you will feel such a sense of relief that there actually is a plan of action and you will have a whole team of doctors and specialists to make sure this plan stays on schedule :)

Ok... enough babble from the Babble Queen... but suffice it to say, you are going to be alright, and we are going to all be here along with you so you will never be alone :)

Cheryl

christinecarl's picture
christinecarl
Posts: 545
Joined: Sep 2009

I am glad you decided to join us. I was diagnosed stage III B on 12-2-08 and I know those first few months are overwhelming and scary. One day you will look back on this and see how far you have come and be amazed. The people here are wondeful and inspiring and will lift you up when you need it. Be sure to keep letting us know how you are doing.

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Hi Renee,

Welcome to our cyber family dear. You've come to the right place for information, lots of great advice, and most of all, comfort and support. Best wishes and hugs, Cynthia

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Just wanted to say...welcome...and we are a close family here. Please join us and ask away...cry away...yell away...whatever YOU need to do.... WE ALL HAVE BEEN THERE!!!

Jennie

Patteee's picture
Patteee
Posts: 950
Joined: Jul 2009

I know you are scared :(

its going to be ok
you probably will have chemo, it is pretty standard in colon cancer that is showing some lymph node activity
on the brighter side, you will ge through it and be just fine

It isn't easy to put the cancer horror behind us, but really, it is what one has to do
face forward, look forward. Take off bite size chunks every single day and let the rest disappear for another day

After my surgery, colon resection 2.7 years ago- it was June 14th- my mother driving me home from Mayo in Rochester, MN The visuals were incredible- the rolling, green lush land of south cental Minnesota ahead of me. The car moving forward, time and miles ticking away. It was as though I knew I had to leave the horror behind and move forward as the battle was ahead of me. And you all too well know that horror, we all do Renee, we all do.

Put one step ahead of you. One at a time. Don't look back and be careful not to go so fast with those steps. Watch a few tv dramas- Desperate Housewives was good for a mental break for me. Take walks, wash your hair, brush your teeth, take another walk. Move forward. First and formost believe you are going to be just FINE. Look in the mirror and tell yourself that, over and ovr and over again.

chicoturner's picture
chicoturner
Posts: 285
Joined: Apr 2009

Welcome Renee,happy you found this group. There are days when these are the only people you will talk to that make sense to you! It is a great group. Best to you. Jean

AnneCan
Posts: 3692
Joined: Oct 2009

First, I am sorry for the loss of your husband. Second, welcome to this incredible forum. I have found it to be a godsend in my cancer journey.

khl8
Posts: 810
Joined: Nov 2009

I mirror what everyone else on the board has said, we are a family and nothing is off limits to talk about. Colorectal cance is not glamourous, in fact you may find when you tell people they may try and not want to talk about it with you. So when to support this is the place to go, we talk about poop and we talk about it quite a bit, and some of us use alot of humor. Some days you can come here and shed a tear from sadness and other times the tears are rollong down your face from laughter! We have all been where you are, some done with treatment, others just beginning, but no matter what stage of treatment we are in there is a wealth of knowledge and support here.
I am stage 3, out of treatment since 8/09 and so far I am NED.
So anything you want or need to know, just ask!

Kathy

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Lori-S
Posts: 1286
Joined: Sep 2010

Welcome to the board. We are sorry to hear of your dx but, so happy that you have founbd us. There are many here with lots of experience and support to share. WELCOME

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

Sure glade you fund us. I'm a stage 3 colorectal and still kicking (real hard) 1 year after finishing treatment (dec 31 2009). I've had my share of bumbs and pot holes but I couldn't do it without these great people on the board. They're truly great people.

Again.. Welcome to the board

Brooks

tootsie1's picture
tootsie1
Posts: 5065
Joined: Feb 2008

Hi, Renee. I'm so sorry about your husband and about your diagnosis. I'm glad you found us, though. This group is so helpful to each other.

Let us know what you find out from the doctors. I know you're scared now, but it will get better.

*hugs*
Gail

Aud's picture
Aud
Posts: 480
Joined: Oct 2009

Welcome, Renee. I'm so sorry that you lost your husband.
This is a good, supportive group. Stop by anytime -- the door is always open. Any and all questions are encouraged and welcomed, as are concerns and thoughts. Sorry about your diagnosis but you've found a good place here.
~Audrey

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Renee, we are here for you. I was diagnosed in June 2010 and joined this group in October. Thank goodness I found this place. My diagnosis was 3C,(I had a 6cm rectal mass into the last layer of the colon with 6/12nodes). I have had the 5 week radiation/continuous chemo, two surgeries, and am now at round 3 of 12 folfox.

You take care my dear and take one day at a time for the most part. You already know cancer. But each one is indivual. This one is yours so it is different. It's ok to be scared, but also throw in some strength, anger, hope, confidence, etc.

Be strong and take care, we will be here for you, Gail

sasjourney
Posts: 395
Joined: Jul 2010

Sorry you had to join, but you will be so thankful you did. We are here for you so please ask anything or just vent anytime.

Hugs,
Sara

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Welcome Renee, so sorry, you are here! We are a family, and welcome you with open arms! I am stage 4 with lesions to the liver, had a liver resection and have been NED for 16 months. The more I read about the folks, here one thing we all seem to have in common is we were all under a lot of stress at the time or a couple years before DX. Try and stay calm while you ride this storm.

ketziah35
Posts: 1154
Joined: Jun 2010

My mom is in Norfolk. She goes to Virginia oncology. The dc there is one of the best in the country. I am assuming that VA stands for Virginia.

walterta's picture
walterta
Posts: 31
Joined: Jan 2011

Welcome Renee, I have just joined this group and it is the best thing I could have done. They are like a family and a great source of support. Lots of prayers and love!

Tausha

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