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Yay they took off the pump today. #1 down and 11 to go.

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

I'm soo glad this is only a two day pump. That 5 week infusion really kicked dirt. I'm on my third day of #1. I was thinking my symptom's would be worse, but so far are tolerable. Some fatigue and nausea. The cold sensitivity is a little strange, but not nearly as bad as some of you get it. Some foods make my mouth and tongue cold and it feels like something kind of sharp is stuck in my throat sometimes when I drink. I don't drink iced drinks, only tap or room temp. What is so strange is when the cold catches my fingers off guard and it feels like ice water being poured over my finger nails. Weird. I warm the water real good and wear gloves outside. I did have a couple of episodes with the fridge touching something cold, but not too bad. Just felt so cold on my nails and finger tips. I just hope I don't get that horrible diarrhea I did with the other chemo/radiation. I have enough poopy issues from my resection. And my hair...it is always all over my clothes and stuff, but has been that way since the other 5FU. I don't know what's going to happen to it. Oh well, just letting you know ......

smiling, Gail

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

And as always, thank you for all the wonderful support! You guys are the best!

Gail

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

have any major problems while on folfox, the odd thing was that my neuropathy didn't start until I was off chemo since 3 months! So anything
can happen, even some times not big issues! Hope you are one those!, l was in folfiri this year too and despite every body said that is easer,I'm not sure about! .
Hugs beuty!

AnneCan
Posts: 3692
Joined: Oct 2009

I am glad things are going pretty smoothly so far! Thanks for letting us know.

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

good girl....remember one at a time.....you can only count to one and next two.....

you did it!!!!

hugs....mags

TMac52's picture
TMac52
Posts: 358
Joined: Aug 2010

Hi Gail,
We are in the same book and pretty close to the same page. I started oxy and 48 hr 5fu pump on monday. I'm scheduld for 8 treatments every 2 weeks. Same side effects so far we should stay in touch and compare notes as we do this. Thanks for responding to my post last week, since then i completed my profile so you can see who i am and what we have in common. We are going to beat this thing Gail.
Talk soon,
Tom

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

Welcome to the FOLFOX club. There are a bunch of us at or just a little or so different rounds. I managed to eek out #4 out of 12 in spite of low platelets this week. Got scared when it looked like I'd have to wait a week or more. I'm trying so hard to stay on schedule because my reversal and hernia and adhesion surgery is on hold until I finish.

Hoping you do well with the FOLFOX!

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

WTG. 1 down. I hope you are feeling better each day. Don't forget to rest if you need to. I'm so bad about pushing myself and I really need to follow my own instructions sometimes. So, since I don't follow my suggestions ... I hope you do. LOL

I am having the hair everywhere thing going on too. Supposedly it's just going to thin and not all go away. We shall see. I'm getting tired of pulling a small pet out of the drain each time.

HUGS

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

I don't like the feeling that I get in my throat. I get thirsty and want to have a drink of juice and it feels like something sharp is stuck there :( and now I am tired and have things that need to be done.

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

I can only drink very warm or hot drinks myself. Everything else feels like glass shards in my throat. Try making your drinks wamrer. It makes a big difference. Teas, warm lemondade, hot chocolate.

I have started planning out my days and do things in spurts. The days before chemo when I'm feeling the best I do the most and get everything ready for what will be the chemo days where I don't do as much. Gotta plan ahead or things get away from me. You'll get the hang of it. Just requires a little adjustment. Stay warm and get some rest. HUGS

braelee2's picture
braelee2
Posts: 130
Joined: Sep 2010

Im will be on round 5 on monday. The drinking thing cold sucks. Im An ice person so haveing to drink warm thing is not fun....

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

I know what you mean. The only good thing is at least it's winter so we're not drinking hot drinks in the middle of summer. Gotta look for the bright side of things. UGH

tr71068's picture
tr71068
Posts: 26
Joined: Dec 2010

I also just did my first round of folfox and am having the same issue with cold sensitivity. I want to drink so bad but even cool water feels weird. And anything I touch makes my fingers feel like razors going over them. I am also sick to my stomach and I have these weird muscle contractions that make my fingers draw together (doc says it can just be meds wait and see) Hair has already started coming out, figured it would. I just feel kinda weird all over hope it goes away soon. Good luck to you keep my posted

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