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Sundance Scope Results AND Chemo Under Way Tomorrow *UPDATE*

Sundanceh
Sundanceh Member Posts: 4,392
edited March 2014 in Colorectal Cancer #1
Hey!

Well, the scope went down. I was hoping for some good news on this front. PET/CT had shown no uptake to the colon area, so I was mildly optimistic that I might win one here.

What do I know?

I couldn't win the lottery in a One Horse town, LOL:)

It looked mostly good, but they did pop my balloon when they found a nodule below the Dentate Line of the rectum. The pictures are scary and just in time for Halloween too:)

But seriously, I'd be lyin' if I said I was not concerned. I got a resident and she did not come by afterwards to tell me what happened, she did talk to my wife, but she was kind of confused by what she said.

And she did not try to cut it out or even biopsy it, because I guess below the dentate line, it gets very painful and her authority with the scope only went so far. OK.

So, I'm being referred now to a colorectal surgeon for analysis and/or....something? We'll see how that goes.

I've done some research and I hope that it is a Hypertrophied Anal Papilla. They can be skin tags from anal fissures (have had) or from previous hemhorroids (had surgery) and it appears they can be addressed, depending on many factors, including just watching them.

But, it's another trip to a new doctor, and you know the drill. On top of everything going on at the moment.

I also start chemo tomorrow and am still waiting on word of when radiation starts. Chemo is going to be Folfiri and 5fu by pump - Vectibix could be added etc. etc.

Cancer and its associated culprits are alot like Al Pacino in Godfather III, where Michael Corleone says, "The more you try to get away - they pull you right back in."

It just seems never ending to me right now. Like quicksand - the harder I flail, the quicker I sink.

Still, it's official and I'm back in the fight, up to my elbows - but still blessed if I try and look at it the right way.

This scope thing will be on my mind until I can get a good answer from the medical community, I'm no doctor after all, but think I've made a reasonable assessment. Until then, I just try not to worry about it and maybe it will be just a "cause and effect" from something I've had prior during all of these treatments and surgeries. Let's hope so.

Take care - that's it from my end - for now. "I'll be in touch, so you stay in touch."

LOL:)

Craig

Comments

  • Lovekitties
    Lovekitties Member Posts: 3,364
    Hang in there
    Dear Craig,

    Sorry for the inconclusive news. Too bad you had just a resident who didn't seem to know too much. Seems the least she could have done was take a still pic to pass on to someone more knowledgable.

    You are one great warrior in efforts and attitude.

    Maybe you should buy a lottery ticket...who knows...you could be the big winner!

    Take care. Hugs

    Marie who loves kitties
  • AnneCan
    AnneCan Member Posts: 3,673
    Craig
    Sorry for this glitch. I want to wish you well as you get back in the fight with the chemo. Remember I am in the trenches with you.
  • lisa42
    lisa42 Member Posts: 3,625
    your news
    Hi Craig,

    So many ups and downs- frustrating, I'm sure. Hey, if the rectal thing does turn out to be a tumor, my onc told me that they can do cyberknife on rectal or colon tumors. I had that discussion since my PET still shows metabolic activity in my rectum. Since I already had radiation on my rectal tumor, I was told then that I had a lifetime max exposure of radiation in the pelvic region. With cyberknife, however, I'm told it can still be done since it's so precise just at the tumor. I haven't gotten to the point of needing to do anything there, though, and am just continuing chemo for now.

    Hang in there, as you're doing. Thinking about ya and praying for you-

    Hugs,
    Lisa
  • abmb
    abmb Member Posts: 311
    Postive thoughts
    I will send you my prayers and postive thoughts. Margaret
  • Annabelle41415
    Annabelle41415 Member Posts: 6,712 **
    Scope
    Wow just so sorry that they didn't give you an all clear on the scope as at least this would have been some good news for you. Hopefully, like you said, it will be the result of something that has happened previously and not cancer related. Good luck on starting your chemo tomorrow. You have a great attitude and love your spirit. Thinking and praying for you always.

    Kim
  • sheri22
    sheri22 Member Posts: 273
    Hope you get some good news soon
    Craig what a rollercoaster ride huh? I am glad you are going to do your best not to worry about this as we all know worry is just a waste of time what will be will be and no matter what we deal with it and do the best we all can

    take care and fight on dont forget them boxing gloves

    Sheri22
  • Sundanceh
    Sundanceh Member Posts: 4,392
    sheri22 said:

    Hope you get some good news soon
    Craig what a rollercoaster ride huh? I am glad you are going to do your best not to worry about this as we all know worry is just a waste of time what will be will be and no matter what we deal with it and do the best we all can

    take care and fight on dont forget them boxing gloves

    Sheri22

    Sheri:)
    The "gloves are off."

    It's bareknuckle fighting now, LOL:)

    -Craig
  • idlehunters
    idlehunters Member Posts: 1,787
    sheri22 said:

    Hope you get some good news soon
    Craig what a rollercoaster ride huh? I am glad you are going to do your best not to worry about this as we all know worry is just a waste of time what will be will be and no matter what we deal with it and do the best we all can

    take care and fight on dont forget them boxing gloves

    Sheri22

    Hey Craig
    No... you not sinking in quicksand..... You just been taking 2 steps forward and 1 back...BUT...that is still keeping you OUT of the hot water!!!! All things considered, you are doing really good.... keeping everything in a forward motion. I know it feels like a never ending thing but your vacation is right around the corner.... I ain't talkin CP8...I am talkin NED. Time off for you and your body to breathe.... and build back up. Oh,just in case... Cyberknife WOULD be an option for you as Lisa said...... I'm kinda up on that info right now for some strange reason...... :) You take care my friend!

    Jen
  • geotina
    geotina Member Posts: 2,111
    Craig:
    So, you are back in the fight and fight you will. Those pictures are really scary. I look at George's and want to puke, it is truly disgusting.

    Your poor wife, when those docs come out they talk so fast you almost can't take in what they are saying. It all becomes a fog after the words "we found something".

    Good luck with your chemo tomorrow. You have been there before so you know what to expect.

    Take care - Tina
  • Luv2lunch
    Luv2lunch Member Posts: 270
    Hi Craig,
    I'm sorry about

    Hi Craig,
    I'm sorry about your news. Keep on fighting though. Me and my mom have a saying we say to each other when the going gets tough. "What's the alternative". Maybe that sounds kind of dumb or simple, but it keeps it in perspective for us.
    Again, you are in our thoughts and prayers,
    Love,
    Linda and Ellie
  • chicoturner
    chicoturner Member Posts: 282
    Good thoughts and prayers
    Good thoughts and prayers are coming for you! You are so courageous and such an encouragement to me! Hang in there. Jean
  • AnnaLeigh
    AnnaLeigh Member Posts: 184
    Hemorrhoid bump in the road
    Craig,

    Really hoping this is just a hemorrhoid bump in the road and all will turn out okay. With your knowledge and experience I would love to be a fly on the wall when you have that consultation with the surgeon. Is he in for a treat !!

    Ask those questions until you get an answer that makes sense and fits the Physician's Desk Reference you carry around in your brain.
  • Fight for my love
    Fight for my love Member Posts: 1,522
    Hi Craig,no matter what it
    Hi Craig,no matter what it is,doctors and you will take care of it.I am happy to know your spirit is high.You fight and you win.Take care.
  • coolvdub
    coolvdub Member Posts: 408

    Hi Craig,no matter what it
    Hi Craig,no matter what it is,doctors and you will take care of it.I am happy to know your spirit is high.You fight and you win.Take care.

    Craig,
    So sorry to find out

    Craig,

    So sorry to find out you didn't get the all clear you were hoping for. Try not to dwell on the unknown, as you know it can really mess with you. You have the right frame of mind, so relax for now and rest up for your upcoming Chemo. Just take on one thing at a time.

    Don
  • Aud
    Aud Member Posts: 479
    Craig
    good luck with starting chemo again. I'm really hoping with you that nodule is nothing to worry about.
    holding you in the Light for strength and a peaceful mind, especially with all you've been through.
    ~Aud
  • tootsie1
    tootsie1 Member Posts: 5,036
    Oh, dear.
    Craig,

    You have such a checkeder medical history! I'm really praying things clear up for you and let you get a good break soon. Love you!

    *hugs*
    Gail
  • herdizziness
    herdizziness Member Posts: 3,624
    Craig
    It is what it is, isn't that what Buzz said? Well, heck, so be it, it is, and we fight, and we win.
    I'll be joining you tomorrow back to the chemo land, I had a wonderful two month break because of low platelets, but I needed it, so tomorrow the battle begins anew and we shall come back victorious!!!!! As with all battles, it is NEVER easy.
    So my brother from another mother, let's go to battle once again, and win this tiresome war!!!
    Winter Marie
  • luv3jay
    luv3jay Member Posts: 533
    Oh Craig! The road does get
    Oh Craig! The road does get long at times, huh? I'm just glad that we all have each other to walk the path with daily. You keep fighting and stay strong. You know I'm praying for and with you. Someone once told me (his wife is fighting breast cancer) that he had to realize that just like the military, God only sends His strongest and bravest soldiers into battle! Keep up the good fight, buddy.

    -sheri
  • pepebcn
    pepebcn Member Posts: 6,331
    luv3jay said:

    Oh Craig! The road does get
    Oh Craig! The road does get long at times, huh? I'm just glad that we all have each other to walk the path with daily. You keep fighting and stay strong. You know I'm praying for and with you. Someone once told me (his wife is fighting breast cancer) that he had to realize that just like the military, God only sends His strongest and bravest soldiers into battle! Keep up the good fight, buddy.

    -sheri

    Feell sorry for this unexpected and uncertain resutl!
    cheers! (can't do a new colonoscopy ?)
  • LivinginNH
    LivinginNH Member Posts: 1,456
    Oh my, you have been through

    Oh my, you have been through so much this year. My best wishes and prayers are being sent your way. My Dad's motto was always, "Never give up!" (ex-Army). These words mean more to me now than they ever did. So, Craig, just keep fighting the good fight. Take care, and God bless. - Cynthia
  • Sundanceh
    Sundanceh Member Posts: 4,392

    Oh my, you have been through

    Oh my, you have been through so much this year. My best wishes and prayers are being sent your way. My Dad's motto was always, "Never give up!" (ex-Army). These words mean more to me now than they ever did. So, Craig, just keep fighting the good fight. Take care, and God bless. - Cynthia

    Work In Progress...
    Well, wrapped up #1 Tx with CPT-11 and Leucovorin, the 5fu bolus, and the lovely 46-hour 5fu fanny pack. Unhooked tomorrow 'bout this time. Have to immediately start taking Neulasta shots, WBC's were low for the first Tx.

    Doing OK so far - no bad news to report. Hopefully, I'll be able to tolerate this better. On Folfox, I would be under the weather by now, but I'm pleased with what's transpired - so far:)

    Radiation plan still being formed. Apparently, I will have to do the 5fu pump 24-hours a day - every day - for the entire radiation treatment, which is going to 5 or 6 weeks long.
    Fill 'er up, eh?

    Another strange thing - I got my CEA's back yesterday and there are the lowest on record @ 0.7 That's with cancer present in the pleura of my lung right now. I guess CEA's really are a strange marker, I used to think mine meant something, but now don't know.

    Thank you for all your wonderful responses and taking the time to reply. I really appreciate everyone!

    -Craig
  • AnneCan
    AnneCan Member Posts: 3,673
    Sundanceh said:

    Work In Progress...
    Well, wrapped up #1 Tx with CPT-11 and Leucovorin, the 5fu bolus, and the lovely 46-hour 5fu fanny pack. Unhooked tomorrow 'bout this time. Have to immediately start taking Neulasta shots, WBC's were low for the first Tx.

    Doing OK so far - no bad news to report. Hopefully, I'll be able to tolerate this better. On Folfox, I would be under the weather by now, but I'm pleased with what's transpired - so far:)

    Radiation plan still being formed. Apparently, I will have to do the 5fu pump 24-hours a day - every day - for the entire radiation treatment, which is going to 5 or 6 weeks long.
    Fill 'er up, eh?

    Another strange thing - I got my CEA's back yesterday and there are the lowest on record @ 0.7 That's with cancer present in the pleura of my lung right now. I guess CEA's really are a strange marker, I used to think mine meant something, but now don't know.

    Thank you for all your wonderful responses and taking the time to reply. I really appreciate everyone!

    -Craig

    Craig
    I am so glad all is well so far with your first chemo treatment in awhile. You are a fantastic role model through this process; I applaud you!
  • pepebcn
    pepebcn Member Posts: 6,331
    AnneCan said:

    Craig
    I am so glad all is well so far with your first chemo treatment in awhile. You are a fantastic role model through this process; I applaud you!

    Craig exctly the same plan I have,exept that I'm having avastin
    too.After that 5 weeks of daily 5fu and radiotherapy and then operate.
  • lisa42
    lisa42 Member Posts: 3,625
    Sundanceh said:

    Work In Progress...
    Well, wrapped up #1 Tx with CPT-11 and Leucovorin, the 5fu bolus, and the lovely 46-hour 5fu fanny pack. Unhooked tomorrow 'bout this time. Have to immediately start taking Neulasta shots, WBC's were low for the first Tx.

    Doing OK so far - no bad news to report. Hopefully, I'll be able to tolerate this better. On Folfox, I would be under the weather by now, but I'm pleased with what's transpired - so far:)

    Radiation plan still being formed. Apparently, I will have to do the 5fu pump 24-hours a day - every day - for the entire radiation treatment, which is going to 5 or 6 weeks long.
    Fill 'er up, eh?

    Another strange thing - I got my CEA's back yesterday and there are the lowest on record @ 0.7 That's with cancer present in the pleura of my lung right now. I guess CEA's really are a strange marker, I used to think mine meant something, but now don't know.

    Thank you for all your wonderful responses and taking the time to reply. I really appreciate everyone!

    -Craig

    you've got a plan
    Hi Craig,

    Well, glad to hear you're hangin' in there & so far aren't under the weather. Weird about your CEA- I guess that goes to show you that it's just not an accurate measure for everyone. One thought I had in reading your plan for the 5FU pump 24-7 during radiation is, is it possible to take Xeloda during radiation instead of having the pump be your constant buddy? I know the pump is the more traditional way, but if Xeloda is essentially the same thing, why not? Oh, how I'd hate the pump attached to me nonstop.
    Worth mentioning to your onc.

    SO glad to hear you're doing okay at the moment- you're like the Timex watch commercial of yesteryear- takes a licking and keeps on ticking!! :)

    Hugs,
    Lisa
  • maglets
    maglets Member Posts: 2,576
    lisa42 said:

    you've got a plan
    Hi Craig,

    Well, glad to hear you're hangin' in there & so far aren't under the weather. Weird about your CEA- I guess that goes to show you that it's just not an accurate measure for everyone. One thought I had in reading your plan for the 5FU pump 24-7 during radiation is, is it possible to take Xeloda during radiation instead of having the pump be your constant buddy? I know the pump is the more traditional way, but if Xeloda is essentially the same thing, why not? Oh, how I'd hate the pump attached to me nonstop.
    Worth mentioning to your onc.

    SO glad to hear you're doing okay at the moment- you're like the Timex watch commercial of yesteryear- takes a licking and keeps on ticking!! :)

    Hugs,
    Lisa

    hello sweetie boy
    man o man and round and round and up and down we go.....or sometimes I think endless escalator......STOP I want off.....no way man. Craig I completely identify with all you are saying. sorry about the rectal blip.....pleazzzze try not to fuss too much.

    good for you for surviving numero uno....I hated the 5FU bolus....good for you....

    sending hugs and would you like some cold hard rain? NO?

    darn cuz it's raining cats and dogs here.....

    all best love and hugs and a big smooch

    mags
  • Hatshepsut
    Hatshepsut Member Posts: 335
    Sundanceh said:

    Work In Progress...
    Well, wrapped up #1 Tx with CPT-11 and Leucovorin, the 5fu bolus, and the lovely 46-hour 5fu fanny pack. Unhooked tomorrow 'bout this time. Have to immediately start taking Neulasta shots, WBC's were low for the first Tx.

    Doing OK so far - no bad news to report. Hopefully, I'll be able to tolerate this better. On Folfox, I would be under the weather by now, but I'm pleased with what's transpired - so far:)

    Radiation plan still being formed. Apparently, I will have to do the 5fu pump 24-hours a day - every day - for the entire radiation treatment, which is going to 5 or 6 weeks long.
    Fill 'er up, eh?

    Another strange thing - I got my CEA's back yesterday and there are the lowest on record @ 0.7 That's with cancer present in the pleura of my lung right now. I guess CEA's really are a strange marker, I used to think mine meant something, but now don't know.

    Thank you for all your wonderful responses and taking the time to reply. I really appreciate everyone!

    -Craig

    Progress...

    Craig:

    I'm glad to hear that your first treatment went well. I hope you make progress each day.

    Who is that handsome dog next to you in the photo? Is that the famous Harley? He had gotten even more handsome. I'll bet he is a great companion and comfort to you as you heal.

    You are in my thoughts.

    Hatshepsut
  • Sundanceh
    Sundanceh Member Posts: 4,392

    Progress...

    Craig:

    I'm glad to hear that your first treatment went well. I hope you make progress each day.

    Who is that handsome dog next to you in the photo? Is that the famous Harley? He had gotten even more handsome. I'll bet he is a great companion and comfort to you as you heal.

    You are in my thoughts.

    Hatshepsut

    Hatsepshut - You Are Close
    Hi L

    First, I cannot tell you how good it is to see and hear from you - I've missed you on my posts:)

    And the picture of my Avatar is of me and Jerry Lee (Harley's papa) right before he won Best of Show.

    He's a handsome devil, and Harley is starting to look just like him all over. I'll have to post some new pics of Harley soon.

    Thinking of you as well - really glad to see you:)

    -Craig
  • sfmarie
    sfmarie Member Posts: 602
    Sending my prayers
    Your way Craig. You are our inspiration! An inspiration to everyone battling this disease end your endless spirit and wisdom have touched us all.

    Blessings,
    Marie

    PS-The puppy has gotten so big!
  • pluckey
    pluckey Member Posts: 484
    Sundanceh said:

    Work In Progress...
    Well, wrapped up #1 Tx with CPT-11 and Leucovorin, the 5fu bolus, and the lovely 46-hour 5fu fanny pack. Unhooked tomorrow 'bout this time. Have to immediately start taking Neulasta shots, WBC's were low for the first Tx.

    Doing OK so far - no bad news to report. Hopefully, I'll be able to tolerate this better. On Folfox, I would be under the weather by now, but I'm pleased with what's transpired - so far:)

    Radiation plan still being formed. Apparently, I will have to do the 5fu pump 24-hours a day - every day - for the entire radiation treatment, which is going to 5 or 6 weeks long.
    Fill 'er up, eh?

    Another strange thing - I got my CEA's back yesterday and there are the lowest on record @ 0.7 That's with cancer present in the pleura of my lung right now. I guess CEA's really are a strange marker, I used to think mine meant something, but now don't know.

    Thank you for all your wonderful responses and taking the time to reply. I really appreciate everyone!

    -Craig

    Craig - I was on the same
    Craig - I was on the same cocktail. Never had nausea, which i was thankful for. Tired the next day, but would always rally, and you, well, that's what you do, dear Craig, you rally...

    be well

    (hugs)

    Peggy
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252
    Sundanceh said:

    Work In Progress...
    Well, wrapped up #1 Tx with CPT-11 and Leucovorin, the 5fu bolus, and the lovely 46-hour 5fu fanny pack. Unhooked tomorrow 'bout this time. Have to immediately start taking Neulasta shots, WBC's were low for the first Tx.

    Doing OK so far - no bad news to report. Hopefully, I'll be able to tolerate this better. On Folfox, I would be under the weather by now, but I'm pleased with what's transpired - so far:)

    Radiation plan still being formed. Apparently, I will have to do the 5fu pump 24-hours a day - every day - for the entire radiation treatment, which is going to 5 or 6 weeks long.
    Fill 'er up, eh?

    Another strange thing - I got my CEA's back yesterday and there are the lowest on record @ 0.7 That's with cancer present in the pleura of my lung right now. I guess CEA's really are a strange marker, I used to think mine meant something, but now don't know.

    Thank you for all your wonderful responses and taking the time to reply. I really appreciate everyone!

    -Craig

    Very weird
    Very weird about your CEA. Hmmmm?

    You're a couple days ahead of me. I'm on day 2 FOLFIRI w/Avastin. So far it is a LOT easier than my first round of FOLFOX. I did get Emend which I didn't have with my first FOLFOX round.

    Leucovorin shortage kept me from getting that to go with my 5-FU. So I did get the bolus, which had been removed after my first round of FOLFOX.

    Here's to hoping we both have a lot easier time on FOLFIRI than FOLFOX!

    Keep on hangin' on. You're doing great!