Sundance Scope Results AND Chemo Under Way Tomorrow *UPDATE*

Sundanceh
Sundanceh Member Posts: 4,392 Member
edited March 2014 in Colorectal Cancer #1
Hey!

Well, the scope went down. I was hoping for some good news on this front. PET/CT had shown no uptake to the colon area, so I was mildly optimistic that I might win one here.

What do I know?

I couldn't win the lottery in a One Horse town, LOL:)

It looked mostly good, but they did pop my balloon when they found a nodule below the Dentate Line of the rectum. The pictures are scary and just in time for Halloween too:)

But seriously, I'd be lyin' if I said I was not concerned. I got a resident and she did not come by afterwards to tell me what happened, she did talk to my wife, but she was kind of confused by what she said.

And she did not try to cut it out or even biopsy it, because I guess below the dentate line, it gets very painful and her authority with the scope only went so far. OK.

So, I'm being referred now to a colorectal surgeon for analysis and/or....something? We'll see how that goes.

I've done some research and I hope that it is a Hypertrophied Anal Papilla. They can be skin tags from anal fissures (have had) or from previous hemhorroids (had surgery) and it appears they can be addressed, depending on many factors, including just watching them.

But, it's another trip to a new doctor, and you know the drill. On top of everything going on at the moment.

I also start chemo tomorrow and am still waiting on word of when radiation starts. Chemo is going to be Folfiri and 5fu by pump - Vectibix could be added etc. etc.

Cancer and its associated culprits are alot like Al Pacino in Godfather III, where Michael Corleone says, "The more you try to get away - they pull you right back in."

It just seems never ending to me right now. Like quicksand - the harder I flail, the quicker I sink.

Still, it's official and I'm back in the fight, up to my elbows - but still blessed if I try and look at it the right way.

This scope thing will be on my mind until I can get a good answer from the medical community, I'm no doctor after all, but think I've made a reasonable assessment. Until then, I just try not to worry about it and maybe it will be just a "cause and effect" from something I've had prior during all of these treatments and surgeries. Let's hope so.

Take care - that's it from my end - for now. "I'll be in touch, so you stay in touch."

LOL:)

Craig
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Comments

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    Hang in there
    Dear Craig,

    Sorry for the inconclusive news. Too bad you had just a resident who didn't seem to know too much. Seems the least she could have done was take a still pic to pass on to someone more knowledgable.

    You are one great warrior in efforts and attitude.

    Maybe you should buy a lottery ticket...who knows...you could be the big winner!

    Take care. Hugs

    Marie who loves kitties
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    Craig
    Sorry for this glitch. I want to wish you well as you get back in the fight with the chemo. Remember I am in the trenches with you.
  • lisa42
    lisa42 Member Posts: 3,625 Member
    your news
    Hi Craig,

    So many ups and downs- frustrating, I'm sure. Hey, if the rectal thing does turn out to be a tumor, my onc told me that they can do cyberknife on rectal or colon tumors. I had that discussion since my PET still shows metabolic activity in my rectum. Since I already had radiation on my rectal tumor, I was told then that I had a lifetime max exposure of radiation in the pelvic region. With cyberknife, however, I'm told it can still be done since it's so precise just at the tumor. I haven't gotten to the point of needing to do anything there, though, and am just continuing chemo for now.

    Hang in there, as you're doing. Thinking about ya and praying for you-

    Hugs,
    Lisa
  • abmb
    abmb Member Posts: 311
    Postive thoughts
    I will send you my prayers and postive thoughts. Margaret
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Scope
    Wow just so sorry that they didn't give you an all clear on the scope as at least this would have been some good news for you. Hopefully, like you said, it will be the result of something that has happened previously and not cancer related. Good luck on starting your chemo tomorrow. You have a great attitude and love your spirit. Thinking and praying for you always.

    Kim
  • sheri22
    sheri22 Member Posts: 273
    Hope you get some good news soon
    Craig what a rollercoaster ride huh? I am glad you are going to do your best not to worry about this as we all know worry is just a waste of time what will be will be and no matter what we deal with it and do the best we all can

    take care and fight on dont forget them boxing gloves

    Sheri22
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    sheri22 said:

    Hope you get some good news soon
    Craig what a rollercoaster ride huh? I am glad you are going to do your best not to worry about this as we all know worry is just a waste of time what will be will be and no matter what we deal with it and do the best we all can

    take care and fight on dont forget them boxing gloves

    Sheri22

    Sheri:)
    The "gloves are off."

    It's bareknuckle fighting now, LOL:)

    -Craig
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    sheri22 said:

    Hope you get some good news soon
    Craig what a rollercoaster ride huh? I am glad you are going to do your best not to worry about this as we all know worry is just a waste of time what will be will be and no matter what we deal with it and do the best we all can

    take care and fight on dont forget them boxing gloves

    Sheri22

    Hey Craig
    No... you not sinking in quicksand..... You just been taking 2 steps forward and 1 back...BUT...that is still keeping you OUT of the hot water!!!! All things considered, you are doing really good.... keeping everything in a forward motion. I know it feels like a never ending thing but your vacation is right around the corner.... I ain't talkin CP8...I am talkin NED. Time off for you and your body to breathe.... and build back up. Oh,just in case... Cyberknife WOULD be an option for you as Lisa said...... I'm kinda up on that info right now for some strange reason...... :) You take care my friend!

    Jen
  • geotina
    geotina Member Posts: 2,111 Member
    Craig:
    So, you are back in the fight and fight you will. Those pictures are really scary. I look at George's and want to puke, it is truly disgusting.

    Your poor wife, when those docs come out they talk so fast you almost can't take in what they are saying. It all becomes a fog after the words "we found something".

    Good luck with your chemo tomorrow. You have been there before so you know what to expect.

    Take care - Tina
  • Luv2lunch
    Luv2lunch Member Posts: 270
    Hi Craig,
    I'm sorry about

    Hi Craig,
    I'm sorry about your news. Keep on fighting though. Me and my mom have a saying we say to each other when the going gets tough. "What's the alternative". Maybe that sounds kind of dumb or simple, but it keeps it in perspective for us.
    Again, you are in our thoughts and prayers,
    Love,
    Linda and Ellie
  • chicoturner
    chicoturner Member Posts: 282
    Good thoughts and prayers
    Good thoughts and prayers are coming for you! You are so courageous and such an encouragement to me! Hang in there. Jean
  • AnnaLeigh
    AnnaLeigh Member Posts: 187 Member
    Hemorrhoid bump in the road
    Craig,

    Really hoping this is just a hemorrhoid bump in the road and all will turn out okay. With your knowledge and experience I would love to be a fly on the wall when you have that consultation with the surgeon. Is he in for a treat !!

    Ask those questions until you get an answer that makes sense and fits the Physician's Desk Reference you carry around in your brain.
  • Fight for my love
    Fight for my love Member Posts: 1,522 Member
    Hi Craig,no matter what it
    Hi Craig,no matter what it is,doctors and you will take care of it.I am happy to know your spirit is high.You fight and you win.Take care.
  • coolvdub
    coolvdub Member Posts: 408 Member

    Hi Craig,no matter what it
    Hi Craig,no matter what it is,doctors and you will take care of it.I am happy to know your spirit is high.You fight and you win.Take care.

    Craig,
    So sorry to find out

    Craig,

    So sorry to find out you didn't get the all clear you were hoping for. Try not to dwell on the unknown, as you know it can really mess with you. You have the right frame of mind, so relax for now and rest up for your upcoming Chemo. Just take on one thing at a time.

    Don
  • Aud
    Aud Member Posts: 479 Member
    Craig
    good luck with starting chemo again. I'm really hoping with you that nodule is nothing to worry about.
    holding you in the Light for strength and a peaceful mind, especially with all you've been through.
    ~Aud
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Oh, dear.
    Craig,

    You have such a checkeder medical history! I'm really praying things clear up for you and let you get a good break soon. Love you!

    *hugs*
    Gail
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    Craig
    It is what it is, isn't that what Buzz said? Well, heck, so be it, it is, and we fight, and we win.
    I'll be joining you tomorrow back to the chemo land, I had a wonderful two month break because of low platelets, but I needed it, so tomorrow the battle begins anew and we shall come back victorious!!!!! As with all battles, it is NEVER easy.
    So my brother from another mother, let's go to battle once again, and win this tiresome war!!!
    Winter Marie
  • luv3jay
    luv3jay Member Posts: 533 Member
    Oh Craig! The road does get
    Oh Craig! The road does get long at times, huh? I'm just glad that we all have each other to walk the path with daily. You keep fighting and stay strong. You know I'm praying for and with you. Someone once told me (his wife is fighting breast cancer) that he had to realize that just like the military, God only sends His strongest and bravest soldiers into battle! Keep up the good fight, buddy.

    -sheri
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    luv3jay said:

    Oh Craig! The road does get
    Oh Craig! The road does get long at times, huh? I'm just glad that we all have each other to walk the path with daily. You keep fighting and stay strong. You know I'm praying for and with you. Someone once told me (his wife is fighting breast cancer) that he had to realize that just like the military, God only sends His strongest and bravest soldiers into battle! Keep up the good fight, buddy.

    -sheri

    Feell sorry for this unexpected and uncertain resutl!
    cheers! (can't do a new colonoscopy ?)
  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    Oh my, you have been through

    Oh my, you have been through so much this year. My best wishes and prayers are being sent your way. My Dad's motto was always, "Never give up!" (ex-Army). These words mean more to me now than they ever did. So, Craig, just keep fighting the good fight. Take care, and God bless. - Cynthia