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I got the answer to the question I never wanted to know the answer to

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

Well, I have the probable answer to the question I really never wanted to know the answer for. What lit up on my liver and the lymph nodes that were enlarged and lit up on last fall's PET scan were most likely cancer. I have 3 nodes now enlarged and active, The biopsy was positive, I am stage IV.

The plan is FOLFIRI with Avastin. Maybe I'll get lucky and that will do the trick. Or I'll just be on chemo for the rest of my life. My onc did promise me breaks when I think I need them.

I pretty much knew this was going to be the result today, but that doesn't make it any easier...

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

I'm giving it a good shot - FOLFIRI might have more leverage than FOLFOX with my cancer cells. Or at least it might get me a nice long vacation like it did for Jennie.

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Kathryn,

I feel for you & know how you feel- there was one point in time where I was told I was NED (this was before I joined CSN), but that NED status lasted only four months for me & I've been fighting the beast ever since. It will be hard, but then you get back into the "okay, now that I've digested and mourned this news, I'm now ready to give it all I've got and fight hard!". Folfiri can kick the cancer cell's butts!!

I'll be thinking about you and praying for you.
Take care,

Lisa

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

I guess we have that in common too. NED for 3 months till we discovered I didn't really make it to 3 months. Hoping FOLFIRI and Avastin will scare these stubborn cancer cells. I'm ready for a good fight again. I had a bit of a break. I just need this thyroid fixed too so I get a little more energy to do this.

Sandi1's picture
Sandi1
Posts: 278
Joined: Aug 2008

Kathryn,

My husband is also stage IV, he was diagnosed 3 years ago. He was put on the same chemo that you are going on for 6 months, and when they did his pet scan, the chemo had gotten everything, the Onc. took him off for 4 weeks and then did another pet scan, he had a small spot show up and she put him right back on chemo and took care of that. He is now cancer free and will be on chemo for the rest of his life - 3 days every 3 weeks. The onc. is good, she gives him breaks whenever he feels he needs them or wants to go on vacation or for holidays. But she limits him to 2 breaks a year - so he is careful when he chooses them. You will do great, that chemo will kill those little buggers and you will live a long live, and so what if you have to have chemo for the rest of your life, as my husband says, it's a small price to pay to be around for a long time; or until i get sick of him...LOL !!! Anyway, you will do great - i'm praying for you. Keep us informed.

khl8
Posts: 810
Joined: Nov 2009

Kathryn,
I am keeping you in my prayers!
Kathy

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

It is good to hear the successes of managing stage IV. I'll be happy if I get to push it out to 3 week cycles if I have to be on maintenance after this next 12 cycles using FOLFIRI. My 12 cycles of FOLFOX were pure hell, but I'm expecting that FOLFIRI shouldn't give me quite as much trouble.

lesvanb's picture
lesvanb
Posts: 911
Joined: May 2008

Holding you close in my heart; we'll be in touch.

Love, Leslie

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

Thank you.

luv3jay's picture
luv3jay
Posts: 534
Joined: May 2009

I'm sorry to hear this Kathryn. Chemo for life is hard to comprehend but let's just pray that we can put this mess in remission.

Sheri

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

I'm going to give it my best shot to wipe out the rest of this cancer. I'm always in the tiny odds cateogory, so maybe this time that will work to my advantage! ;)

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