I got the answer to the question I never wanted to know the answer to

2

Comments

  • Nana b
    Nana b Member Posts: 3,030 Member
    #22
    thready said:

    Not knowing what to say
    Kathryn,
    We started together it this ugly war, you went through a hell of a battle with cancer and with the chemo, it seems so unfair that you have to do it again. We will all be with you cyberly.
    I hate this disease!
    Jan

    Dang it!
    I am stage !V and have a very aggressive ONC, be sure you have one too!! You can do it!! Keep positive, smile and kick butt!
  • KathiM
    KathiM Member Posts: 8,028 Member
    #23
    ....or even wanted to know the question!!!!
    I'm sorry, dearheart, for the news...but knowing can be a power, also....

    I haven't had mets, but 2 primary cancers...rectal, stage III, breast, stage II.

    I really don't know which is worse...mets or multiple primary sites...I know what my insurance company thinks...if you are clean for 5 years from mets, you are insurable. If you have multiple primaries (like me), you are never insurable again...sigh...

    Hugs, Kathi
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #24
    KathiM said:

    ....or even wanted to know the question!!!!
    I'm sorry, dearheart, for the news...but knowing can be a power, also....

    I haven't had mets, but 2 primary cancers...rectal, stage III, breast, stage II.

    I really don't know which is worse...mets or multiple primary sites...I know what my insurance company thinks...if you are clean for 5 years from mets, you are insurable. If you have multiple primaries (like me), you are never insurable again...sigh...

    Hugs, Kathi

    Kathryn , so sorry for the news but cheer up!
    You got a PM from me.
  • dorookie
    dorookie Member Posts: 1,731 Member
    #25
    I hate this news
    I am so sorry you got this news, but please dont give up or in, FOLFIRI might just do the trick and get rid of those spots, there is that chance too. I will be praying for you..

    HUGS
    Beth
  • Unknown
    Unknown
    #26
    dorookie said:

    I hate this news
    I am so sorry you got this news, but please dont give up or in, FOLFIRI might just do the trick and get rid of those spots, there is that chance too. I will be praying for you..

    HUGS
    Beth

    This comment has been removed by the Moderator
  • ktlcs
    ktlcs Member Posts: 358
    #27
    unknown said:

    This comment has been removed by the Moderator

    Bad News
    I am so sorry to hear this. But you have a good plan that I pray will work for you. Stay strong and fight the beast!

    Kathy
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #28
    I know
    Hi Kathryn,

    I feel for you & know how you feel- there was one point in time where I was told I was NED (this was before I joined CSN), but that NED status lasted only four months for me & I've been fighting the beast ever since. It will be hard, but then you get back into the "okay, now that I've digested and mourned this news, I'm now ready to give it all I've got and fight hard!". Folfiri can kick the cancer cell's butts!!

    I'll be thinking about you and praying for you.
    Take care,

    Lisa
  • Sandi1
    Sandi1 Member Posts: 277
    #29
    My husband also
    Kathryn,

    My husband is also stage IV, he was diagnosed 3 years ago. He was put on the same chemo that you are going on for 6 months, and when they did his pet scan, the chemo had gotten everything, the Onc. took him off for 4 weeks and then did another pet scan, he had a small spot show up and she put him right back on chemo and took care of that. He is now cancer free and will be on chemo for the rest of his life - 3 days every 3 weeks. The onc. is good, she gives him breaks whenever he feels he needs them or wants to go on vacation or for holidays. But she limits him to 2 breaks a year - so he is careful when he chooses them. You will do great, that chemo will kill those little buggers and you will live a long live, and so what if you have to have chemo for the rest of your life, as my husband says, it's a small price to pay to be around for a long time; or until i get sick of him...LOL !!! Anyway, you will do great - i'm praying for you. Keep us informed.
  • khl8
    khl8 Member Posts: 807
    #30
    Sandi1 said:

    My husband also
    Kathryn,

    My husband is also stage IV, he was diagnosed 3 years ago. He was put on the same chemo that you are going on for 6 months, and when they did his pet scan, the chemo had gotten everything, the Onc. took him off for 4 weeks and then did another pet scan, he had a small spot show up and she put him right back on chemo and took care of that. He is now cancer free and will be on chemo for the rest of his life - 3 days every 3 weeks. The onc. is good, she gives him breaks whenever he feels he needs them or wants to go on vacation or for holidays. But she limits him to 2 breaks a year - so he is careful when he chooses them. You will do great, that chemo will kill those little buggers and you will live a long live, and so what if you have to have chemo for the rest of your life, as my husband says, it's a small price to pay to be around for a long time; or until i get sick of him...LOL !!! Anyway, you will do great - i'm praying for you. Keep us informed.

    Kathryn,
    I am keeping you in
    Kathryn,
    I am keeping you in my prayers!
    Kathy
  • lesvanb
    lesvanb Member Posts: 905
    #31
    Kathryn
    Holding you close in my heart; we'll be in touch.

    Love, Leslie
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #32
    KathiM said:

    ....or even wanted to know the question!!!!
    I'm sorry, dearheart, for the news...but knowing can be a power, also....

    I haven't had mets, but 2 primary cancers...rectal, stage III, breast, stage II.

    I really don't know which is worse...mets or multiple primary sites...I know what my insurance company thinks...if you are clean for 5 years from mets, you are insurable. If you have multiple primaries (like me), you are never insurable again...sigh...

    Hugs, Kathi

    Two primaries for me too
    This is my second primary. I fought cervical cancer for a couple years. I was NED for 5 years, then last fall my Pap was ASCUS. I didn't have a repeat check because chemo messes them up. I was going for the repeat the end of this month. But now it will be tomorrow before I start chemo again. I was just a stage IIa for cervical.

    I'd take a dozen more primaries at stage II than one stage IV. But I'd prefer to have none of any kind, as we all would!
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #33
    Sundanceh said:

    Stage IV Club
    Knowing the answers seldom makes it any easier, I have found throughout this trial. But, at least knowing is knowing and from there, we can move forward.

    Your protocol sounds "sound." We'll absolutely hope that does the trick.

    I'd say Welcome to the "club" but being a Stage IV doesn't make the ballons fall out of the ceiling, it just makes our road a little bit harder to hoe.

    But knowing you, I know you can stand in there, Kathryn. I've got a bunch of stuff ahead myself with more chemo and radiation, so I understand how it was to hear what you already knew.

    The road looks long now, but we've walked down this road together before, so we know the road markers ahead. I'll see you at the first "rest stop" - we'll chat:)

    -Craig

    Although
    Although you are a great role model, I'm not aspiring to be just like you. I'm not sure I'm up to dealing with robots. ;)

    Not just a bump in the road like first time around - now we just keep going over lots of bumps. But we've had practice, so while they might wear us down a bit more, we learn little tricks to deal with them better than before. And I don't see how Irinotecan can possibly attack me the way oxaliplatin did, with every weird side effect and the allergy. I'm going into the winter not having to worry about the cold issues with oxy either - another plus.

    I hope you are getting enough rest to get you through your recovery right now. You've had a tough year. I'm pretty darn tough, but not sure if I'm put together quite as tough as you. I'll give it my best shot though!
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #34
    HollyID said:

    Kathryn,
    This is a post that I never wanted to read from you. I am so sorry.

    I am going to pray like mad that the FOLFIRI and Avastin kick it's butt.

    Love and Hugs,

    Holly

    Thanks
    Thanks Holly - that is what I'm hoping. Oxy was hard on me - I expect Irinotecan and Avastin to be hard on the cancer!
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #35
    abmb said:

    Prayers
    Thoughts & Prayers are with you. God Bless. Margaret

    Thanks
    Thank you!
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #36
    AnneCan said:

    So sorry Kathryn
    I am sorry to hear this news. Here's hoping Folfiri + avastin will do the trick + make those nasty buggars go away.

    Thanks
    Thanks - me too!
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #37
    AnneCan said:

    So sorry Kathryn
    I am sorry to hear this news. Here's hoping Folfiri + avastin will do the trick + make those nasty buggars go away.

    Thanks
    Thanks - me too!
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #38
    AnneCan said:

    So sorry Kathryn
    I am sorry to hear this news. Here's hoping Folfiri + avastin will do the trick + make those nasty buggars go away.

    Thanks
    Thanks - me too!
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #39
    AnneCan said:

    So sorry Kathryn
    I am sorry to hear this news. Here's hoping Folfiri + avastin will do the trick + make those nasty buggars go away.

    Thanks
    Thanks - me too!
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #40
    AnneCan said:

    So sorry Kathryn
    I am sorry to hear this news. Here's hoping Folfiri + avastin will do the trick + make those nasty buggars go away.

    Thanks
    Thanks - me too!
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #41
    AnneCan said:

    So sorry Kathryn
    I am sorry to hear this news. Here's hoping Folfiri + avastin will do the trick + make those nasty buggars go away.

    Thanks
    Thank you - me too!

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