I got the answer to the question I never wanted to know the answer to

Kathryn_in_MN
Kathryn_in_MN Member Posts: 1,252
edited March 2014 in Colorectal Cancer #1
Well, I have the probable answer to the question I really never wanted to know the answer for. What lit up on my liver and the lymph nodes that were enlarged and lit up on last fall's PET scan were most likely cancer. I have 3 nodes now enlarged and active, The biopsy was positive, I am stage IV.

The plan is FOLFIRI with Avastin. Maybe I'll get lucky and that will do the trick. Or I'll just be on chemo for the rest of my life. My onc did promise me breaks when I think I need them.

I pretty much knew this was going to be the result today, but that doesn't make it any easier...
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Comments

  • HollyID
    HollyID Member Posts: 946
    Kathryn,
    This is a post that I never wanted to read from you. I am so sorry.

    I am going to pray like mad that the FOLFIRI and Avastin kick it's butt.

    Love and Hugs,

    Holly
  • abmb
    abmb Member Posts: 311
    Prayers
    Thoughts & Prayers are with you. God Bless. Margaret
  • AnneCan
    AnneCan Member Posts: 3,673
    So sorry Kathryn
    I am sorry to hear this news. Here's hoping Folfiri + avastin will do the trick + make those nasty buggars go away.
  • lizzydavis
    lizzydavis Member Posts: 893
    AnneCan said:

    So sorry Kathryn
    I am sorry to hear this news. Here's hoping Folfiri + avastin will do the trick + make those nasty buggars go away.

    Kathryn, I am saying the
    Kathryn, I am saying the same to you as I said to Eric...
    Fight, fight, fight!! Eat well - veggies and fruits, drink lots of fluids and juice. Do everything you can to fight this. Stay strong and positive. We are pulling for you, honey.

    Love,
    Lizzy
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Stage IV Club
    Knowing the answers seldom makes it any easier, I have found throughout this trial. But, at least knowing is knowing and from there, we can move forward.

    Your protocol sounds "sound." We'll absolutely hope that does the trick.

    I'd say Welcome to the "club" but being a Stage IV doesn't make the ballons fall out of the ceiling, it just makes our road a little bit harder to hoe.

    But knowing you, I know you can stand in there, Kathryn. I've got a bunch of stuff ahead myself with more chemo and radiation, so I understand how it was to hear what you already knew.

    The road looks long now, but we've walked down this road together before, so we know the road markers ahead. I'll see you at the first "rest stop" - we'll chat:)

    -Craig
  • Jaylo969
    Jaylo969 Member Posts: 824
    Kathryn
    I am so sorry you got this bad news.I can only guess how hard this news is to hear, even if you did suspect the results beforehand. My thoughts are with you.From reading your posts I suspect you are one strong lady. Here's hoping, as always, that you will do well with the plan you have.

    -Pat
  • Fight for my love
    Fight for my love Member Posts: 1,522
    I know it's very hard,no
    I know it's very hard,no matter how much you could prepare to listen to the bad news.You are in my prayers,hopefully the treatment goes well.Take care.
  • Crow71
    Crow71 Member Posts: 679
    Crap !!!
    I'm really sad and pissed to read this. Is there any scenario where surgery would be an option?
    "Chemo for life." I've heard the same thing. It's hard to take. Hang in there. We'll just keep living the best life we can and never lose hope.
    Many sparks - Roger
  • geotina
    geotina Member Posts: 2,111
    Dear Kathryn:
    Not the news I wanted to hear. Well, go and have yourself a total freak out, scare the kids, scream, whatever,then take a deep breath and get back in the fight. Any chance you can have surgery or radiation to the liver before chemo?

    I was thinking about you all day today and waiting for your post. I'm so sorry the news you received was not what you wanted to hear.

    Take a deep breath, digest the news, meet with your docs and let us know what the game plan will be.

    Hugs from Michigan to you - Tina
  • karguy
    karguy Member Posts: 1,020
    The bad news
    The bad news sucks,I'll be praying for you.I hope the plan works.Just keep fighting.
  • grammadebbie
    grammadebbie Member Posts: 464
    Praying
    Dear Friend,

    I am so sorry to hear of the news you got today. Really don't have the words to express my sorrow that you have to go thru all this. I know that you will dig deep and find the strength to continue to fight this. I am praying for you and your family.

    Big hugs and prayers,

    Debbie
  • Annabelle41415
    Annabelle41415 Member Posts: 6,715 Member
    So Very Sorry
    This news is not what we all hoped for. Hoping that you have a plan of action with your oncologist for treatment. So sorry that this is your outcome. You are in my thoughts and prayers.

    Kim
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    You're tough
    This is not at all what we wanted to read about you, dear. As has already been stated, though, you are a very strong person. Cancer better look out! Kick its butt!!!

    *hugs*
    Gail
  • pf78248
    pf78248 Member Posts: 209
    So very, very sorry
    Dear Kathryn,

    My heart aches for you when I read your post. That wasn't what any of us wants to hear. I am so sorry but you are such a fighter and I know you can beat this. Everyday I hate cancer more. My thoughts and prayers are for you to win this battle. Let us know how you are doing.

    Hugs and Healing,
    Priscilla
  • pf78248
    pf78248 Member Posts: 209
    So very, very sorry
    Dear Kathryn,

    My heart aches for you when I read your post. That wasn't what any of us wants to hear. I am so sorry but you are such a fighter and I know you can beat this. Everyday I hate cancer more. My thoughts and prayers are for you to win this battle. Let us know how you are doing.

    Hugs and Healing,
    Priscilla
  • pf78248
    pf78248 Member Posts: 209
    So very, very sorry
    Dear Kathryn,

    My heart aches for you when I read your post. That wasn't what any of us wants to hear. I am so sorry but you are such a fighter and I know you can beat this. Everyday I hate cancer more. My thoughts and prayers are for you to win this battle. Let us know how you are doing.

    Hugs and Healing,
    Priscilla
  • pf78248
    pf78248 Member Posts: 209
    So very, very sorry
    Dear Kathryn,

    My heart aches for you when I read your post. That wasn't what any of us wants to hear. I am so sorry but you are such a fighter and I know you can beat this. Everyday I hate cancer more. My thoughts and prayers are for you to win this battle. Let us know how you are doing.

    Hugs and Healing,
    Priscilla
  • idlehunters
    idlehunters Member Posts: 1,787
    pf78248 said:

    So very, very sorry
    Dear Kathryn,

    My heart aches for you when I read your post. That wasn't what any of us wants to hear. I am so sorry but you are such a fighter and I know you can beat this. Everyday I hate cancer more. My thoughts and prayers are for you to win this battle. Let us know how you are doing.

    Hugs and Healing,
    Priscilla

    Kathryn
    Yep.... Suck it does!!!! So sorry for your news. I gotta tell ya... that Folfiri/Avastin.... worked wonders on me. I thought I was dead for sure.... NOPE! It ate up almost 20 tumors between my liver and lungs...went from difficulty breathing to remission...... had a 7 month vacation... and now back in the fight again.... thats stage IV.... like they say...not curable...but treatable. Don't let that stage IV live rent free in your head!!! You gotta fight no matter what stage you are. You are going to be just fine. You take care.

    Jennie
  • coolvdub
    coolvdub Member Posts: 408

    Kathryn
    Yep.... Suck it does!!!! So sorry for your news. I gotta tell ya... that Folfiri/Avastin.... worked wonders on me. I thought I was dead for sure.... NOPE! It ate up almost 20 tumors between my liver and lungs...went from difficulty breathing to remission...... had a 7 month vacation... and now back in the fight again.... thats stage IV.... like they say...not curable...but treatable. Don't let that stage IV live rent free in your head!!! You gotta fight no matter what stage you are. You are going to be just fine. You take care.

    Jennie

    I hate Cancer
    Kathryn,

    I remember when you came on the board, you were so active and asked all the right questions. You are a fighter, keep asking questions of your team and keep your chin up. You can beat this, but I'm still going to pray real hard for you.

    Don
  • thready
    thready Member Posts: 474
    Not knowing what to say
    Kathryn,
    We started together it this ugly war, you went through a hell of a battle with cancer and with the chemo, it seems so unfair that you have to do it again. We will all be with you cyberly.
    I hate this disease!
    Jan