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Update on....... Everything!!

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Hello to my semi family!!!

I have missed you all and will try to play catch up on the posts!. It has indeed been a VERY busy week.

MONDAY - Went to oral surgeon and had back tooth removed. Chemo had just destroyed it and when the cap came off..the tooth fell apart and had to be dug out. I was so numb I didn't feel a thing...except the pressure but the cracking and breaking of tooth pieces made me sick..yuk! So glad thats over and not much pain afterwards.

TUESDAY - 1st day of Cyberknife. It takes 2.5 hours at each session counting set-up time. I watched a movie in a ceiling screen during the whole procedure. Time flew by until the last 30 minutes when I started getting a backache.... then I could not wait for it to get done. Afterwards there was no pain..no nothing... it was wierd.. I kept thinking...did they REALLY do something??? I mean you see no radiation beams like I "thought" you might...just hear clicking noises..strange.

Wednesday - 2nd day of Cyberknife.... back hurting after an hour of laying on hard table....movement must be kept to nothing. The area where I broke my back last year was having shooting pains. It finally got to the point of tears.... I cried.... but had to do so with no excess breathing or panting or movement..man, that sucked. So I just layed there and the tears streamed from my eyes and snot ran from my nose but I could not move my arms to wipe either... I was a mess. So when it was all over that day I had a talk with doc and he gave me Vicoden for the next day for my back. I was so scared to take them.... for those of you who know my past with pain pills.... you know why. Doc assured me I would only be taking 4 pills and NO addiction would happen so I agreed to take them.

Thursday - 3rd day of Cyberknife.... took my pain pill before coming in for treatment. When we arrived we were told the Cyberknife machine was not functioning properly so they had to cancel my treatment that day. Dang... couldn't they have called BEFORE i took a pill i didn't need??? Oh well... so we rescheduled that day for Monday...today.

It was kind of a relief not to have treatment Thursday since I started cooking for my daughters graduation party that night. Party not till saturday but over 100 coming and LOTS of food needed.

Friday - that was then my 3rd Cyberknife treatment since Thursday was cancelled. Took my pain pill and that day was ok. By this time the only side effect I am having is the poops. Pooping out all the dead cancer cells...YAY!

from the time I got home from treatment Friday until 2am I spent cooking and preparing for the party. My 2 daughters and several friends came by and helped out. Thank God for them. No way I could have done all that myself...no way! After preparing 125 pieces of fried chicken, 60 brats, 300 jello shots, 8 gallons of vodka/lemonade, 160 party wieners, 350 barbq meatballs, 15 side dishes, 6 desserts, .... I was beat!!!!

Saturday - Graduation Party was for my youngest daughter who just completed Nursing School and has accepted a position at a local hospital in Labor & Delivery... which is her passion. Party started at 1pm with swimming, fishing .... MANY nice fish were caught!... Badmitton, washers. 3 ice cold kegs of BudLight...YUMMMMMMM!!! Many, many guests came and just kept coming thru the course of the night. The DJ started playing at 6pm and oh yeah... I was out there for several dances shaking my booty! I had to show these 25 year olds how that stuff is done!!! late in the night I did notice a few of the men had lost their swim trunks and were naked in my pool and hot tub.... YES..I did look...A LOT..okay!!! man, how could you not???? The party ended around 3am and boy was I glad. I have never wore a wig for that many hours and all I wanted to do was take my bald A$$ to bed.

Sunday - Woke up feeling 90 years old. I had sore muscles I didn't even know I had.... It was all that dancing...woke those babies up...dang!!! My feet & legs were just not working so walking was SLOW...then my back was very sore from the Cyberknife and my head was raw from that wig rubbing it for 14 friggin hours....then I looked outside..OMG!..looked like WW2 out there...what a mess!!! Luckily many had camped out and I got their butts up and we all cleaned house. Party was a huge success!!

Monday- Went today for my 4th and last Cyberknife treatment. YAY!!! It appears that the Cyberknife was successful in eliminating the tumor BUT that will be inconclusive until a PET/CT is done in 30 days. All in all, the doc was very satisfied thus far. I got the thumbs up..YAY!! I see my Onc in 3 weeks and we will decide then what the future holds. Previous talks included 2 more chemo sessions... and then maintenance chemo. BUT... I have been looking into other options for treatment and may begin a new journey for treatments. that will be another thread.

For now... I am extremely satisfied with the Cyberknife, I feel really good physically...other than soreness from activities and time will heal that.Mentally, I am in a good place as well.

Thank you to all of you who have been inquiring about me and my Cyberknife outcome. It truly feels good to know you have friends "family" out there that got your back. I love you all.

Jennie

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Whoa, a lot of news there. How fantastic the party you threw for your daughter sounded. Good Mom you are.
Congrats on the cyberknife going so smoothly.
So glad to hear all is going well.
Now go rest up after all that partying!!!!
Winter Marie

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Thanks for the "Good Mom" compliment and the well wishes!!! Also, I know you were checking on me while I was away...Thank you for that Marie... really. I will definately be taking it easy for the next few days!!! You take care girl!

Jennie

impactzone's picture
impactzone
Posts: 532
Joined: Aug 2006

Sounds Greta! Congrats and that seems to be such good news!
Chip

Crow71's picture
Crow71
Posts: 681
Joined: Jan 2010

Jennie - You f#@&ing ROCK!!! I'm so glad to hear that Cyberknife went well. Sorry you were in pain, but It's over chick!!!! I want an invite to your next party. It's so great to hear from you. Rock on!!!
Roger

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Dude.... I have missed you!! You are definately on the guest list for the next party!!! How are you doing??? Update me on you! Take care

Jennie

Crow71's picture
Crow71
Posts: 681
Joined: Jan 2010

Going in for my 2nd treatment of folfori tomorrow (Tuesday) morning. The wound from surgery in April still hasn't completely healed. I still have a little piece of intestine showing, and wanted to heal completely before starting chemo, but I really needed to start chemo again.
I've got a few small lung tumors and many in the liver. No worries. Chemo and Kale juice will nock this **** out. And perhaps a touch of Bud and Jack Daniels along the way - just a touch. I'm just so glad to hear from you.
Caw Caw

pf78248's picture
pf78248
Posts: 209
Joined: Jul 2008

I am thrilled your Cyberknife procedures seemed to go so well, but I can't imagine laying still for so long while in pain. You are really brave and strong, Jennie!

But to do all of that for a party that lasted into the wee hours! Wow, your daughter is so veery lucky to have you!a. Tell her congrats for me on her graduation. I am in awe of nurses and what they do!

Hugs and Healing,
Priscilla

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Wow.... Talk about brave and strong..... that would be YOU!! I just read your posts and I am in awe over what is happening in your life. Please, if there is anything I can do for you ... let me know...anything. You take care and I will be sending good vibes your way.

Jennie

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Wow Jennie... when you throw a party, you throw a PARTY! I can only imagine how much fun that must have been :)

But now, I don't really know anything about Cyberknife procedures and so I can't comment on them but, as with any kind of treatment, chemo, radiation, etc.... don't ya think maybe you should have slowed down a little bit?? And you wonder why you were so beat up the next day??? Oh, it must have been that you were wearing the wig for so many hours... uh huh, yep, that must have been it!! You goofball!!! :D

But that is brilliant that you are feeling so good throughout all of this. I know, with the RFA procedure I had when they zapped a tumour on my lung, I felt exactly the same... absolutely no side affects whatsoever. And they even used a General Anesthetic, but as soon as I was awake, I was awake... and ready to go. They let me go that same day and I swear, I could have gone shopping for the rest of the day. I wasn't allowed to... but I felt like I could!! :D

Anywho.. keep up the good work... and let the monster know who's in charge! :)

Cheryl

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

You crack me up!!! You KNOW it was that wig.... right???? LOL...right!! I know I should have slowed down... even the doc says.."Make sure you are getting plenty of rest" Yeah Right! Not possible with that party smack in the middle of it all. It's all good though... it all turned out ok so life is good.

You know I am always looking for places to take vacations.... I am gonna make it your way so I can see my "actress friend" perform.... Never been in your neck of the woods and Never seen an "adult" play. Uh ohhh...BUCKET LIST!!! LOL You take care

Jen

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Now YOU are cracking ME up!! I never professed to be an actress!! ROTFL!! Oh my word... if I were to get up on stage, the audience would all wonder what they had done so wrong in their lives that they have to sit through this!!! No, No, No... I am strictly behind the scenes ... more likely you will find me in the administration office, the Producer's office, or even in the theatre, but behind a camera. Currently, I am a Publicist and this past weekend just opened a wonderful show "Brighton Beach Memoirs" by Neil Simon. Hahaha... this was a show that I literally had to publicize in the last couple of weeks because I was involved with a Musical Theatre company all summer. So, like you, where maybe it would have been a good idea for me to be taking it easy this summer (I'm also going through 8 rounds of Xeloda... and am on #4 at the moment), I didn't have time to take it easy all summer, let alone between shows. I also have just finished putting together an issue of a Theatre Community eNewsletter that goes out Sept 1. Normally I give myself a month to put these together... but this time I only had a week! Yikes!

Sooooo... I totally understand where you are coming from when there are things that are planned and just have to get done... and sometimes our treatments come at the worst of times... but hey, we all are warriors and we just work them around our already busy lives :)

But hey.... you get up here to the PNW, hop over the border to Vancouver, and I'll make sure you get to see some wonderful theatre... to the point you'll wonder how the heck you missed out on this magical world for so long!! :D

Now... take that wig off and get some rest, girlfriend!!! :) :)

Cheryl

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

And all this time I thought you were a PERFORMER.... yes..SUPERSTAR!! LOL.... I bet you are laughing your butt off girl! However, I am even more impressed to find out you take care of all that behind the scenes stuff. Thats big...shoot... oh..just give me your autograph anyway!!! LOL. I am for real going to take you up on your offer to see some theatre.. count on it..me and my wig.... later girlfriend!!

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Oh Jennie.... it really hasn't been all that long (ok, maybe I did miss out on what... close to a year around here?) but the change in you from when I first met you here on the boards to now is like night and day!! OMG!! You are one changed woman and such a heck of a great one at that.... wig and all .

Ok, you know people are going to call me real, real weird, but hey... I've been called worse :D When I first knew I was going to have to do the chemo and radiation thing, after I got used to the shock and fear of it all... I got to thinking (and I have to admit, it had to be the theatrical drama queen in me)... well, losing my hair won't be that bad... after all, it will grow back in... and just think of all those different wigs I can try? Long hair, short bobs, pixie cuts... I can be a walking hair model!! And then, with the chemo and radiation, I'm BOUND to lose my appetite and in the process lose poundage... so I can be a normal size, flaunting my many different hair styles. This could be a really good thing!!

Well, I had talked myself into how good this was all going to be... you can imagine my disappointment to find out that I DIDN'T lose my hair. Oh sure, it thinned out a lot, but not to the point where I had to cut it short or shave it off and start my new career as a wig model. And about that poundage?? Naaaa... it was here to stay and wasn't going anywhere. I didn't get sick-sick... and when I did feel the nausea coming on, well, I had my ways of quickly getting rid of that... so I didn't even have time to lose my appetite.

All I managed to get out of the chemo/radiation treatments was nerve damage in my legs/feet and it really aggravated the arthritis I didn't know I had!! Grrrr!

Now, here I am, back on chemo again... started up at the beginning of July. Well, I was sooooo busy, we were just opening two big musicals (Singin' In The Rain and Joseph and the Amazing Technicolor Dreamcoat) that would play in rep with each other (Monday would be Singin', Tuesday Joseph, Wed Singin', Thur Joseph, etc) for 7 weeks, 7 days/week. So the cast/crew would have every second day off since it was two different casts, 2 different crews... but us Administrators didn't get any days off until we were ready to drop, then we'd sneak one and have someone cover for us. Hehe... so you can imagine with a crazy schedule like that, I didn't have a lot of time to have a pity party for myself, or fantasize about my career as a wig model, or slim, trim early retiree :)

Well, here I am now, almost finished the 4th cycle of Xeloda (Cycle = Mon- Fri on chemo, weekend break, Mon-Fri on chemo, 9 day break) and I just realized that not only have I not lost any weight (even with that wacky schedule), I haven't even had any hair loss, I haven't even had it thinning at all. I had a HECK of a time in the first two cycles with SEVERE INTENSE pain in both feet.... equivalent to someone taking a razor blade and slicing the bottom layers of my feet off and then having to walk on them. Of course, it was nothing like that ... if you looked at the bottom of my feet, there was nothing to see... they looked perfectly fine. But it was the chemo attaching the already damaged nerve endings in my feet. I knew I couldn't go on with that kind of pain... and yet, I really didn't want to go back on the intravenous 4FU. But that's when I got the brainstorm... what would happen if we increased my Lyrica, the blocker med that tells the brain to ignore the messages of pain? Sure enough... we did that and this past 2 cycles I have had no problem with pain in the feet from the chemo... go figure??

Sooooo.. why am I babbling on about this to you and anyone who hasn't gotten bored and already left this post?? To say that back when I first met you online and tried to take you under my wing (you kept escaping!!!)... there is no way I would have been able to tell you this story. You were in such a state of fear and panic, you would have totally missed the humour and would have picked out key words (wigs??? loss of hair??? nausea??? pain??? nerve damage???) and totally freaked over them. So then I would have to grab you, stuff you back under one of my wings, thump you on the head a couple of times and think I had you calmed down and you'd go running out from under my wing crying, "The sky is falling! The sky is falling!" I would have to go chasing after you (which is no easy task when one isn't losing weight) and drag you kicking and screaming and shove you back under my wing :)

Now look at you!!! You have done such an about face AND you are here for others who are going through the fear and panic and they are looking up to you and asking, "How do you do it??" But you ARE doing it... and doing such a wonderful job of it. I am soooo happy to see you doing so well! And you are so much fun to boot!!! :D

Hugggggggs!

Cheryl

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

You but a new meaning to Cancer Warrior. Way to go!!

Brooks

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

thank you Brooks!!! Hope you are doing well!

Jennie

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Jennie!

I was wondering about you and starting to worry, so it was good to read your post.
Glad the week of cyberknife went well, overall- other than the one bad day of back pain. I know those radiation tables are soooo hard, aren't they? I never had cyberknife, so I never had to lie there as long as you did, but I remember even from my "regular" radiation, how much that hard glass table hurt my lower back & I'd have shooting pains during the radiation sessions.

Glad your daughter's party was fun (definitely on the wild side!)
You take care & rest up now- promise?!

Lisa

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

l was really worried not for cyberknife but for the party, no age for that!(its a joke!)
LOL!

Best!!!

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

You so funny... jajajajaja!!! (It's a joke) LOL Thank you for keeping me in your thoughts!

Jennie

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Seems we go thru a lot of the same stuff! Thanks for the well wishes and I am definately taking it easy for a few days. Just been soaking the back in the hot tub and enjoying the company of MaryJane..... chillin!.. You take care girl!

Jennie

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

Lol would hum the theme tune to that, but erm can't figure how to do that by post. Great to hear from you and that you managed to do everything! Hope your resting now.

Hugs

khl8
Posts: 810
Joined: Nov 2009

Jennie,
Now that is the way to party!!! So happy you could do this and enjoy it, hard work and all! We all need to learn how to play harder. We got one shot at this and we need to enjoy it! Aldo glad to hear you made it through the cyber knife without too much discomfort!! Now take your bald butt and get some rest!!!

P.s. I want to come to your next party, or at least have you plan a semi colon party!

Kathy

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

I am hearing the theme tune..... yep...good job! This week I did feel like a wonder woman but now my body is wondering who this woman is!!! LOL You take care

Jennie

Lovekitties's picture
Lovekitties
Posts: 3330
Joined: Jan 2010

Sounds like you have life under control.

Glad the Cyberknife experience seems to have done its job. Praying for all good news as you get new scans, etc.

Now that we know that you can cook for the masses...when are you inviting us all over???
Sounds like you had a grand time and so did your guests.

So very glad to see your post as we were all wondering about you.

Marie who loves kitties

ktlcs's picture
ktlcs
Posts: 360
Joined: Jan 2010

Sounds like a rockin party! and congrats on the cyberknife treatments, sounds as if all went well

Kathy

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Im glad to have ya back in here...I knew you'd be ok...it was the Drs and Nurses I was scared for...LOL...Glad the party went so well, Im sure the daughter was very proud of her mom as mom is of her...Jello shots and pool parties....Hmm...you deserve it....have fun but please be a little easier on yourself for a little while...Love to ya, Buzz

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Buzz.... I knew you knew I'd be ok :) and yes, those Drs and Nurses best be scared. I am such a sissy for pain and that sometimes makes me be a beotch!!! Go figure... It was mentioned I should throw a party for the semi's.... YOU would have a great time here.... I have Super Sized Crappie in my lake!! Know that I am chillin now and for the next few days so I will finally get a little break. Thank you for the love.... I am feelin it "sweetheart"....... Jen

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Thanks so much for all your concern. I am so happy the Cyberknife went well. Hopefully soon I will be NED again and can breathe a little easier.... for now anyway! You take care.

jennie

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

I know you love kitties but do you know a lot about them? Like how the heck do you tell a boy from a girl when they are only 8 weeks old????? I have a litter of 5 and everyone keeps asking me that question and shoot... I have no idea! Anyway, thanks for the prayers...can always use those. If I thought I could get a lot of semi's to come to Southern Illinois... I would have a party! Great to hear from you! You take care

Jennie

Lovekitties's picture
Lovekitties
Posts: 3330
Joined: Jan 2010

I am no expert on kitties, even though I have had a number of them through the years.

I don't know if 8 weeks is long enough for the boys to get those 'little bumps' in the back or not...LOL.

Take care...have a spin in the hot tub for me...miss mine and the pool I had in FL.

Marie who loves kitties

luv3jay's picture
luv3jay
Posts: 534
Joined: May 2009

It's so good to hear from you and how you are healing well and enjoying life. Tell your daughter congratulations on graduation

Sheri

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Hey Girl..... Passed on the congrats to the daughter...Thank you for the well wishes. How are you doing these days? You take care

Jennie

Annabelle41415's picture
Annabelle41415
Posts: 6249
Joined: Feb 2009

Wow girl what an update that was. You have been so busy and yes we were all wondering how things have been going. So glad that this is over with for you but it sounds like you just trooped through it like your usual strong self. So proud of you in so many ways. Sounds like you really know how to throw a party and all that food you made. Seems like your doctors are pleased with the outcome which is great news. You better rest up from that party because now people know that you are the party throwing girl and they are going to want you for their next event. :)

Kim

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Thanks for all the compliments!!! Yes, so far the docs are pleased as I am. In 30 days the scans will tell it all...keeping my fingers crossed!!! Getting some R&R now that all that is done. You take care

Jennie

AnneCan
Posts: 3692
Joined: Oct 2009

OK Jennie, I think you are setting the bar too high! Seriously, you are like Superwoman - most of us would have been happy to get through 1 of these activities! I am glad Cyberknife went well, but I am sorry it was so uncomfortable for you. Keep on inspiring us, you are doing a fantastic job! It sounds like you know how to throw a party. That was a ton of food for you to prepare! Congrats to your daughter.

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

What? I checked my mailbox and didn't see my invitation, LOL:)

Sounds like something alright - might want to get the pool cleaned, no tellin' what happened:)

Tell Brittani hi and congrats!

-Craig

dorookie
Posts: 1736
Joined: Jul 2007

I so cant wait to meet you, my gosh girl you are awesome...Glad things went well, glad you had a great party...and I will continue to pray the beast is beaten and you will be alright..

HUGS
beth

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Jennie,

You are awesome! Glad it's all going so well!

*hugs*
Gail

Aud's picture
Aud
Posts: 480
Joined: Oct 2009

so glad the cyberknife went well and that you're feeling good. sounds like a great party! Congratulations to your Daughter for completing Nursing School. You must be so proud.
love, hope, and continued strength to you.
~Aud

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Man...you go away for a week and LOTS has happened..... a lot of good stuff though and thats always great to hear. BETH-- I cannot wait to meet you too. I think we are going to have a terrific time at Palooza!! Just want to say thank you to all of those I have not personnally addressed. I tried to play catch up with the posts but TIME is such a valueable asset right now. I value each and every one of you and appreciate your comments SO much. You all take care

Jennie

WinneyPooh's picture
WinneyPooh
Posts: 318
Joined: Jul 2009

Jeanie, glad to hear your doing well i was away for ili reversal and when i touched back to the board so much sadness had happened and then someone mentioned "does anyone know how jennie's doing" and i freaked like oh no whats going.

So i was so happy to see you post and to know you where just fine and preforming super women duties, able to withstand cybernife and party plan while putting out fires.

so happy to hear about your daughter you can really be proud of her and yourself for doing a good job as a mom.,

Live, love, play
Winnie

karguy's picture
karguy
Posts: 1024
Joined: Apr 2009

Congratulations on finishing the cyberknife,and on your daughters graduation,and on the party.I'm glad everything was sucessfull.Good luck.

lesvanb's picture
lesvanb
Posts: 911
Joined: May 2008

I am so glad to hear that your week went as well as it did. That was some week! And all that cooking for your daughter too. Way to go keep on keeping on.

all the best, Leslie

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