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I'm not a doctor!

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

I called the Imaging place to pick up result's, I always do, crazy I know, but I feel I have some control reading the result's. I don't know if it's good or bad news as of yet, there is still activity in my pelvic region, the Ilium bone to be exact. I feel the good news is that it seems to be the only area left. I have two treatments left so maybe the Chemo will knock it out, the issue I have is that I thought it should all be gone by now. But like I said I'm not a doctor LOL! I will see my Onc on Wednesday, hopefully I'm headed in the right direction!!!!! Vinny

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Vinny,
I didn't see this post before I commented in a prior post. I guess we just need to wait until Wednesday and see what your onc says. I sure hope he will say that a couple more treatments will knock the remaining cancer, right out of there. I feel this is good news,(only one place)pelvic bone, but I'm no doctor either! I'll be thinking good positive thoughts for you, and thats for sure! Sue

merrywinner's picture
merrywinner
Posts: 627
Joined: Aug 2009

I honestly don't know what this all means and your MD will be able to clear it up. Refresh my memory. Did you have bone marrow involvement? That whole pelvic area is where we have the most bone marrow which is why they take it from there. If you had bone marrow involvement then it doesn't surprise me that the chemo is still actively targeting that area. It will get it but has to work very hard. Again so much will depend on what your MD is able to interpret from those results. Otherwise all the rest is gone? That shows you are a responder so I think you have an excellent chance of going all the way with this. One more day to get through. I'll keep my fingers crossed while praying. Mary

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Thanks Mary, I will find out tomorrow, I had bone marrow involvement yes, a tumor in my chest, (which is gone), cancer in the L-4 and L-5 region on the spine, which I think is also gone, a metabolism along the upper sternum and a lymph node in the right posterior around the thorax, all which I think are gone. My original diagnosis was osseous metastasis which I take as bone involvement. Thanks for the prayers!!!! Vinny

onlytoday's picture
onlytoday
Posts: 603
Joined: Jun 2010

Good luck on Wednesday. I'm just like you, I like to get all the info I can, read it and then when the doc talks to me I have an idea about what she's saying. I also ask a ton of questions. Hopefully your doc will clear up any questions you have and the rest of your treatment will get you into REMISSION!!!! (That is my new favorite word :) )

Prayers to you Vinny!

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Ah yes remission!!!!!!!! I can't agree more!!! hahahaha

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Vinny,
I had my midway scan a couple of weeks ago and there was a comment on the report that said "Diffusely-increased metabolic activity throughout the osseous structures, which is likely cosistent with recent chemtherapy". You know how they like to use those big terms. Anybody else have a report that read that way. So maybe I guess it might be normal in some cases. Maybe the same in your case. Hope so anyway. John

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

I sure hope so, I will find out tomorrow, my counts are so low now , she is making me take the Predisone for the next 4 days, I take 5, but I'm taking one for two days, half for two more days after that, all in a effort to keep me from crashing........ Yuck

yesyes2
Posts: 592
Joined: Jul 2009

Vinny, By the time we're done with all this we certainly are on our way to being doctors, LOL. At least of our own bodies. So sorry that there was some uptake on your scans, but you will know tomorrow what it all means. You seem to be staying pretty calm. Don't think I could. Maybe it could have something to do with your low blood counts. Whatever it means we'll be here for you, you can count on that. I have a friend who's platelet count dived a year after he finished his chemo. Had to go on high dose prednisone for 2 months. I felt so sorry for him because prednisone is definitly no fun, as we all are aware of.
Take care my friend, I'll be thinking of you tomorrow.
Leslie

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

thanks Leslie, I came to the realization a long time ago when I had cancer the first time, I have no control over anything accept my attitude, what will be will be! Your not going to believe this but I've have been smoking a pork shoulder now for 13 hrs!!! hahahaha I have nothing but time! Talk to you soon.... Vinny

forme's picture
forme
Posts: 1162
Joined: Aug 2010

Hi Vinny,
Wow that sounds so good. I have had such a hard time with food lately, and not much sounds good to me. What are you going to do with it when it's done. I don't know what part of the country your in, maybe you have some local specials. I sure hope your counts are doing better. That can be so tiring.
BTW , last night I had a craveing for an oatmeal cookie. Thought I would make a half batch, alas, not enough oatmeal. Hubby was already in his pjs. Oh well, went to get my pjs on, came downstairs and he was gone. So sweet , he went to get me oatmeal. So of course I made a whole batch. Yummy. Shared some with the grandkids and my elderly mom today. It felt really good to bake sometime and not be totally wiped out from it. Keep cooking and baking...
Thinking of you, Lisha

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Vinny,
Yum...bet it's going to taste good! I didn't know what to eat tonight so I settled for 2 scambled eggs and toast with peanut butter. Hit the spot and didn't make me sick. I drank a big glass of carnation instant breakfast with it. Don't really have an appetite right now. Anyways...good luck to you tomorrow and know you are in my prayers!
Sue

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Thank's Sue!!! it's just your first cycle, I think your appetite will come back, for me I can't stop eating because of the stupid Presidone. Gained weight, lost my hair!!!!! hahaha Talk to you soon! Vinny

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

I'm in South Jersey, when I make the pulled pork I have a couple of sauces made, some like the Carolina Vinegar base sauce, others like the sweet BBQ. It's sucks you are having problems with food, that's one thing that makes this type of cancer manageable for me is that I can still taste food, not to beat a dead horse, but with my head and neck cancer, I could not even drink a glass of water without getting sick and throwing up! Everything tasted like battery acid....... Those oatmeal cookies sound yummy!!!!! Vinny

truckingalong
Posts: 444
Joined: Aug 2010

Hi,Vinny,

Oooh, that BBQ sounds so good! Yes, thank god, you and I can enjoy tasting food. But am having gas with indigestion. Is it from chemo but I had it over a week ago.. Hmmm, few days ago I was fine and now am trying to figure out the routine of my tummy cooperating. I eat healthy stuff - maybe have to eat tons of fiber... oh well, my aunt just offered to make oatmeal cookies from her best recipe for me. Yayy!

Liz

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Liz,

If you don't get relief from meds for the constipation, please try acupuncture. I got instant and permanent relief from it where the meds did absolutely nothing for me.

Kaye also had good response to it.

It's worth a shot honey!

Take care,
Beth

truckingalong
Posts: 444
Joined: Aug 2010

Beth,

Yes, I heard that acupunture really helps. I kept putting off to make that phone call for that service... been trying to find house cleaner, going through refinancing my house, seeing physical therapist for my back, dentist, etc etc. Oh boy, caring for my body is a lot of work, ha ha.

Will make priority to use that service.

Thanks for the encouragement.

Liz

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Vinny,
I am sure you are back from your Dr. visit so what did he have to say? I sure hope it is good news. Been thinking about you as I am sure the other have too. Oh yea, I know all about the Carolina pork sauce thats where I live,Hmmmm Good. John

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

I posted under Good News, John.... Check it out!!!!! Anemia is knocking me out!

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