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Update on my mom

hope0310's picture
Posts: 324
Joined: May 2010

Well, mom has now been in inpatient PT for a little over 2 weeks. She is progressing slowly, mainly due to her unwillingness to participate. :( It is sad to think that she is currently in remission yet remains so weak and is not willing to give it her all to come home and be able to walk.

She has walked 50' with the walker, but not consistantly and needs help getting to an upright position.

Her cognotive skills have decreased too I feel. I just don't get it. I know the effects of WBR can be delayed and some issues be forever, but her last WBR was March 19th and she is worse than she has ever been.

Thanks for listening....it has been a tough 5 months, plus add in the fact that my husbands mother was dx w/esophogeal, it has been very trying....

Posts: 23
Joined: Jul 2010

Just wanting you to know that I read your post and am sending you good vibes. Not easy, I know -- what you're going through. Just remember that everything is temporary and that accepting that and letting go provides us comfort in and of itself.


stayingcalm's picture
Posts: 654
Joined: Feb 2007


It was at least 6 months after my WBR that I began to notice that I was forgetting things, having a hard time concentrating and unable to multi-task. Probably other people noticed it sooner ;) I can think of something I want to do in another room, and by the time I get there I've forgotten what it was. I have a small house, too! Bear with her, it may get better, mine seems to be. If it doesn't, she may need to be seen by a neurologist.

You have a lot on your plate, Hope - try to take some time off for yourself, too.
My best wishes to you and your mom,

hope0310's picture
Posts: 324
Joined: May 2010

Thanks guys, I truly appreciate it! You would think I was a kid, but I am 46, mom 66, but prior to dx, looked and acted 50....my best friend...

Taking her to onco tomorrow, thinking maybe she needs fluid or blood, we shall see.

It is so hard because you hear "remission" and your mind wants to think "great, all good, back to normal"....this is hardly the case, and such a tough pill o swallow.

My best to you all, be good to yourselves.....


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