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Monday at 10:15

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Cancer clinic just called and asked if me and my husband could meet with my doctor on Monday morning at 10:15. The nurse said all of my test results from the BMB are back and as soon as they get the heart test results (tomorrow) Doctor will be completely ready to share and discuss her plans for starting my treatment. I didn't even ask what the results were because Monday will be soon enough for me. Soooo...looks like the waiting is about to end..."YES"! I'm going to just chill out while hubby is gone fishing and watch some chick flicks and be calm. Thanks for being so patient with me...I know I've gotten a little weird from time to time...ha! That was a happy phone call...thank goodness!
Sue

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Put your seatbelt on Sue, the ride is about to begin and it all will move very quickly. Almost to the point of thinking "slow down" my brain can't comprehend all the information overload.

I was really surprised to find out some info today from my onc. Didn't realize how much radiation we are exposed to.

Enjoy the chick flicks and the time to just be quiet. I treasure my alone time :)

Let us know how Monday goes chickie!

Beth

merrywinner's picture
merrywinner
Posts: 627
Joined: Aug 2009

Glad to hear things are moving. Enjoy your peaceful weekend. Relax and recharge. Good luck on Monday and of course keep us posted. Blessings. Mary

onlytoday's picture
onlytoday
Posts: 603
Joined: Jun 2010

Glad your waiting is finally over on Monday! Let the healing begin!! Enjoy the alone time. Keep us posted... :)

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

easier said then done, but have a great weekend! Best of luck Monday.... Vinny

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Well today is the big day for your treatment plan. Let us know what they are planning. Be sure to ask your questions. If they say anything you don't understand be sure to question it. if you don't it will bug the heck out of you when you get home. Good Luck, John

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Great advise John. I took someone with me so they could make sure I got answers to the questions I had.

Hopefully they'll get started soon, the waiting is torture. Once things start moving they seem to go so fast it's hard to keep up.

How you feeling by the way?

yesyes2
Posts: 592
Joined: Jul 2009

Hey Sue,
Just wanted to let you know I'm thinking about you today and sending positive thoughts and prayers your way. You'll do fine and remember we're all here for you.
Let us know how your doing.
Leslie

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Thanks Leslie...
It was a l-o-n-g day with alot of information to wrap my head around. The next two weeks are going to be hectic, so get ready for plenty of questions...soooo glad I found this group of wonderful people!!!
Love...Sue

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Feeling just fine. Wouldn't you know it,I go in for round 3 tomorrow. So the feeling fine will be short. How about you, doing ok? John

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Nice to hear John, take those days when you get them, for me they are few and far between!!!! LOL, I'm going in wednesday for my 4th treatment, we are half way their my friend!!!! Vinny

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Vinny, sorry to see you're getting worn down, but the goal is in sight!

Are you having any issues with neuropathy yet? I got to the point that I couldn't hardly write and getting my hands and feet to work properly was an everyday battle!

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Believe it or not my left foot goes completely numb, and I start getting leg cramps in the same leg, when my WBC's go in the bucket. It's like my body's own alarm clock working...... wierd! Vinny

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Vinny, Yea I been lucky so far with the treatments. I hope it keeps up. I did notice with the second one I had shaking in the hands about 3 days out. It only lasted a day, but it felt like I had MS. I could not control it. Its like a bad case of the nerves. It is not painful just aggravating. I go tomorrow for round 3 and with a little luck I hope it goes well. I know you are going for round 4 and hope you do well. Have you heard anymore about your blood counts?

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hey John, my count's drop so low after Chemo,but bounce back after the two shots they give me after Chemo...... would be great just one week not to have to get two shots!!!!! I don't think that will happen, my Onc told me it's because of the prior Chemo I had for my Head and Neck cancer....... good luck tomorrow, give them hell!!!!!! Vinny

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hey John...Glad your feeling good today! Bummer you won't stay that way with round 3 happening tomorrow. How long will it take for you to feel better again in between each round? I wish the "great days" would last longer for you. Sorry!
Sue

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Sue, I will be fine for about 2-3 days after treatment and then start to yoyo back and forth. It will be more down days than up ones. About ten days out it will start to even out more. The week before the next round and it will be more ups than downs. The 3 -4 days before the next round I am ready to climb Mt. Everest because I am feeling so good. Then, BOOM its time for the next round. The second round was better than the first,but I don't know how round three will go. The neulastra shot has really helped a lot though. I get that the day after the chemo. They have to wait 24 hrs. I really consider myself lucky so far with very little side effects. Just the usual tiredness. The tiredness is hard to explain. I feel like my body is worn out, but I am not really sleepy. When I do go to sleep I will wake up just as tired. Thats when I know its going to be one of those days. It does not get any better as the day goes on. If I wake up feeling good then thats usually how it is the rest of the day. Thats how it goes for me me anyway. It is a real roller coaster ride to say the least. John

KC13167's picture
KC13167
Posts: 215
Joined: Jun 2010

Sue,
My 3rd R-Chop is Wed Aug 4th. I will feel better about 8 days after that. My counts have been good, no need for red or white cell boosting shots. That doesn't mean that my counts haven't been on the low side or that I haven't been afraid of infection, I have. I was diagnosed with Diffuse Large B Cell NHL on June 21, 2010. Positive bone marrow involvement, so stage 4, no sweats, so, type A (I think).

My side effects from treatment are not as bad as what other people suffer. i like and crave very spicy foods...black bean soup, kosher pickles, bbq ribs....so hard to understand how differently this disease and treatment effects each of us; for me especially because by profession, I am a registered professional nurse; by LOVE of trade, I am a general manager of a large, nation wide pet specialty retail store....oh, or at least I was until my onco said that I couldn't work anymore due to exposure to germs. I'd be glad to offer you any information from my personal experience with this disease, just ask. You have a positive attitude and appear to be a fighter; I imagine you will do fine. Kellie

KC13167's picture
KC13167
Posts: 215
Joined: Jun 2010

Oh, yeah... Like John said, tired. I left that out. Tiredness that is very overwhelming. Just plan on taking many naps and embrace each and every one of them!

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