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Checking up on Vinny and Cobra

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

I know you two are in the beginning of the worst of the cycle and hope you are both ok. I know TIRED doesn't begin to describe what you are feeling. Just know that by the end of this week you should be starting to "feel a little more normal".

Hopefully the taste thing will get better. I was fortunate that food tasted good to me, I needed the weight desperately.

Stay inside and repeat my mantra "Naps are a VERY good thing!"

Beth

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Beth, I am still trying to find that bus that ran over me. Vinny says it was a small one that hit him. I think it was a double decker that mowed me down. I do feel a bit better today though. Chemo brain is really setting in too. I almost forgot what I was going to type. Even went outside for a bit even though it was hot and humid. Thanks for the concern. John

dixiegirl's picture
dixiegirl
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Joined: Apr 2006

Glad you're feeling a little better today. As for the bus? It's long gone for now but will be back next week for another round. At least you know now what to expect next time so it won't be such a surprise.

I am curious though. Is it as bad as you thought it would be?

COBRA666's picture
COBRA666
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I really did not know what to expect. It was really rough being so tired all the time. I guess it wasn't as bad as I could have imagined it.

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Beth, I did call the onc nurse today to check about the pain I was having in my lower back. They are very reassuring. She explained everything to me.She said it could be the hip bone marrow producing stem cells. She said that was a common complaint. I guess, like you said to know what to expect next time, but I certainly am not ready for it. John

KC13167's picture
KC13167
Posts: 215
Joined: Jun 2010

I hate chemo brain! It's my 2nd day out of my 2nd R-CHOP and chemo brain sucks!

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

hey Beth, thanks for the thoughts, yesterday by far was the worst day for me,started to get mouth sores, like John said, I feel very sore, I see my Onc today for the weekly blood work, she told me that it would take a week to start feeling run down and boy she was right! hahahaha I,m still working which is cool but that will stop on the 29th, can't do the driving.Like I told John only 7 more to go!!!!!! sure sounds better then 16 weeks!!!!!! take care

COBRA666's picture
COBRA666
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Vinny, I know how you feel. I did not get the mouth sores, at least not yet. I felt pretty good yesterday, but feel a little down today. Hopefully it will get better as the day goes on. If you are like me you will feel like you are celebrating your 100th birthday next week instead of your 51st at times. From what I read we will have the up and down days for awhile. My down days started right in the beginning. The worse was about 2 days into it. I hope you feel better today than yesterday anyway. Just take it easy. John

vinny59's picture
vinny59
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Joined: Nov 2006

Thanks a lot John, no better today, work is gonna be hard today...hahahahaha lol about my birthday THAT is so true... not to sound morbid but at least I'm around to celebrate it!!!!!!!!!!!!!!

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Yea, I guess no one ever thinks how mortal they are until something like this hits them. The thing is we are all mortal. Nobody is immune from anything,just watch the news and see. Most people never think that tomorrow is really a gift and that includes ALL people on this earth. Its just when something like this hits us it makes us a little more aware of it.

vinny59's picture
vinny59
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Joined: Nov 2006

Amen to that!

COBRA666's picture
COBRA666
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Joined: May 2010

Vinny, Be sure to let us know how that blood work goes. I am sure they can tell you right away. I have had my blood work a few times and they let me know within 20 minutes. My bld work has been on the high side everytime so far,but I have not had it done since the chemo.I am sure your blood will be down due to the chemo, but hopefully not to low for the next round to be postponed. Sounds funny putting it that way don't it? We just want to get thru this with a straight shot and no postponements if we can. John

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

I will let you know.......... can't wait for this day to end...... wow

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Just wondering how this second treatments going guys! I hope better than the first. Is your counts coming back up?

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Dixie, this is John. It seems that I am really doing better this 2nd round than the 1st. I am not as tired this time. Blood counts are good. The hips are a little more sore this time. This time it is both hips. I feel like I will be 107 years old on my next birthday as far as the hips go. The hair is really starting to go. The main thing is I don't feel as dragged out, at least not yet. I was fortunate in that my counts never actually went down. They were pretty high before chemo started. They are lower than before chemo but well in the normal range. I try not to overdo anything. I bought some Ensure from the center today. That stuff taste good. Thanks for checking in on me. So how are things going with you?

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hi thanks for checking in, my counts were real low again, had to get a double shot on Wednesday, kinda bouncing back, but a rough week. What sucks is I have to get treatment Monday, which is two days earlier, but hey another down! Sould be getting my CT scan in a week to see if this is working or not, fingers crossed....... Vinny

COBRA666's picture
COBRA666
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Vinny my fingers are crossed. Hang tight, you will be ok. Just another bump in the long road. john

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

thanks John, on my way for treatment this morning,I just can't sleep anymore its kind of crazy! My sleeping pills get me to sleep, but two hours later I'm tossing and turning... Vinny

COBRA666's picture
COBRA666
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Vinny,
Just wondering if things are any better today for you. I finally feel like I am starting to spring back after 2 days of feeling like crap. Hope I can maintain it. Keep us up to date. John

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hey John, knew this day would come, I was in the shower and the hair was going down the drain, I have always had a goatee, lost that too, I look in the mirror and I don't see myself, pretty wierd, really suck's....... as far as feeling any better I still have a little shortness of breath and my dam port still bothers me..... hey all part of the experience!!! LMAO! just take a day at a time, get my booster shot on Monday, should make me feel better! You keep feeling well my friend, we will get through this!!!!! Vinny

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Kinda sucks at first every time you look in the mirror. I would keep going to the mirror to check myself out after a a couple days it got better....I did however have issues with rubbing my head almost endlessly LOL.

Didn't even realize I was doing it till my husband would say something to me LOL.

Grab the kleenex Vinnie, the nose hairs go too my friend! So will the eyebrows and eyelashes, so be careful when washing your face! Would also say all the hair on your chest, legs.....it all goes.

I saved all kinds of money on razorblades :)

Take care,
Beth

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hey Beth, wow, can't believe it will happen, just makes me feel sick, when I look at myself in the mirror, joked with my wife, telling her we need to drape all the mirrors over LOL..... when I had cancer before i lost some of my hair not from the chemo, but the rads, but I did not lose it all, the worse for me was the color of my skin, was almost a yellow grey color! thought this would be different, I guess like before you come to accept it...... I will but not in a day!!!! Vinny

allmost60's picture
allmost60
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I'm sorry Vinny about the hair going...I still have all of that to go through. UGH! Hope your shot perks you up!
Sue

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Thanks Sue! It has to happen for us to get better!!! I keep telling myself that! Vinny

COBRA666's picture
COBRA666
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Joined: May 2010

Vinny, I know what you mean. I brushed my hair and checked the brush and it was full of hair. Didn't want to clog up the shower drain. After I got out of the shower EEEEKKKK!!!!!!!!!!!!. It was plugged up anyway. Got more out of the shower drain than I got off the brush. Still waiting to shave it the rest of the way. I guess the facial hair,eyebrows and lashes will be next.

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hey John, it was a real freak show, the nubs of my hair were just failing out in my hand, thank god I did shave my hair!!!!!! I'm trying to look at it that the drugs are doing thier thing, fighting what's inside me!!! Monday I get my shot, and Tuesday is the P.E.T. scan!!!! Oh boy that's going to be intense. Expecting the worse, hoping for the best!!! LOL

m-star's picture
m-star
Posts: 444
Joined: Apr 2010

its wierd cus when i had my chemo,i didn't lose my hair.

But when i had mantle rads,i lost the underneath at the back where it cross sectioned from my lower jaw!
I had straight hair and the underneath came back as what can only be described as pubic!!!!! LOL!!!!!
It was like i had a curly perm underneath my long,straight hair. But like i say,i lost none during chemo.

I was that upset at the thought of losing my lovely long hair,my onc changed one of the drugs so there was less chance of it coming out. These days i wouldn't give a damn about my hair,so long as it cured me! lol funny how differently your mind works when you're 17!

Vinny~ think of all the sxy,bald men in the world! he he

Vin Deisel, Jason Statham, Bruce Willis etc etc!! ;-)

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

I HAVE HEARD OF THAT HAPPENING. THE HAIR GROWS BACK TOTALLY DIFFERENT THAN BEFORE. DOES IT STAY THAT WAY OR EVENTUALLY GO BACK TO THE WAY IT WAS IN THE BEGINNING? MY HAIR IS FINE AND STRAIGHT. DON'T THINK I WOULD LOOK GOOD WITH AN AFRO.

m-star's picture
m-star
Posts: 444
Joined: Apr 2010

COBRA~ yeah its wierd how it can grow back curly. I am a hairdresser, and when you do the theory side of it, you learn that its the shape of the hair follicle that determines if you have straight or curly hair.

Straight hair comes from a round 'O' shaped follicle,where as curly hair comes from a kidney shaped follicle. The more deformed the hair follicle is,the curlier your hair is! In reality,anything other than perfectly stright hair is whay you'd class as deformed!! LOL

Now i dont know if they chemo changes the shape of the follicle??? Not sure if thats even possible?? Or the rads. But alot of ppl who's hair grows back curly when it used to be straight,will eventually straighten out again.

Mine has stayed a LITTLE bit wavy but its neither one thing nor the other.

VINNY~ yeah i guess the no-eyebrow/lashes thing is the give away sign! Women can stick on false lashes and pencil in their brows,but this may look a little odd on a bloke!!! LOL
To be honest,i think a woman can get away with a wig/turban and false lashes and brows so the 'chemo-look' is lessened. Men have a harder time disguising it i think. My step brother has alopecia and he has no hair,brows or lashes and to be fair,he looks like he's on chemo!

wow,i think i have just found a niche in the market! MAN BROWS!! Stick-on ones like you get for lashes!!

**rushes off to think of designs!** LOL

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

There are a lot of men that look good bald, but they have facial hair, eye brows, and eye lashes!!!!!!!!!!!!!!!!! LMAO............ but ladies in the big scheme of things, you do have it a hell of a lot worse!!! bald man are a dime a dozen......... take care guys! Vinny

KC13167's picture
KC13167
Posts: 215
Joined: Jun 2010

My hair started to fall out just like the literature said it would. This past week; two days after R-Chop #2, the thinning began. I'd had it cut short but, now need a shave. The loss of hair with the pallor of my skin looks awful; worse than I had anticipated. Trying scarves. Bought a wig, thanks to TLC and will have it styled next week. Don't know which way to go. I may stick with scarves at home and a wig when I go out for something. Almost seams like the wig is more socially acceptable for women. Bald men are a dime a dozen...sorry guys! See how it feels. What do you ladies think? Kellie

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

UGHHHH!...Thats what I think...ha! I had L-O-N-G hair all of my life. 2 weeks ago I got it all cut off short..(see profile picture). I cut it in order to brace myself for losing "ALL" of it...at the time it seemed like the best way to be pro-active before I start chemo. I'm fine with it short and kind of wish I'd cut it years ago. With that being said...I'm still not fully ready to lose "ALL" of it. Short hair is one thing..."NO" hair is another thing. Eyebrows and lashes falling out has me a little freaked out, but I'm sure I'll learn to adjust...(eyebrow pencil, fake lashes) can be a quick fix. We need to be compassionate for the guys.They have vanity issues also. Just because they don't primp and fuss like we do doesn't necessarily mean they don't care about how they look. The playing field has never been level when it comes to stuff like what women have to go through versus men...pregnancy...pap smears..mammograms..periods...menopause etc, etc. This cancer really levels that old playing field. It's an equal opportunity "self esteem" bummer...ya know? Sad deal for "ALL" of us...guys and gals alike.
Sue

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