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THE PAIN OF HAVING CANCER & SECOND OPINION- PLEASE HELP!!!

nubis's picture
nubis
Posts: 98
Joined: Mar 2008

My husband is having a pain in the neck (burning sensation)and doctor told us could be the lymph nodes. He ordered a CT-SCAN I'm scared. This cancer is still there and my husband now is tired and weak. Before he was with more energy, but now he is sleeping a lot. Doctor increased the pain medication and since he started the new medicine he is very sleepy. Doctor said it is normal. In addition he had a seizure (the third one) and he is taking steroids. Somebody experiencing any kind of pain?

For those with Small cell- Which chemo worked better on you??

It's valid a second opinion. Somebody has done a second opinion?

gkukurin
Posts: 9
Joined: May 2010

If you can find someone locally to do this it may help.

http://www.atlantapaindoctors.com/pain-relief/tvns-transcutaneous-vagus-nerve-stimulation

Since it also suppresses seizures, it might have that added effect.

Consult your doctor before trying this or any recommendations from the Internet.

nubis's picture
nubis
Posts: 98
Joined: Mar 2008

Thank you for your advice. I'm going to ask.

hope0310's picture
hope0310
Posts: 324
Joined: May 2010

I am curious as to why they do not have him on anti-seizure meds? They had mom on Keppra, she never had a seizure but they gave to her since she had the brain mets. She is now off of them, I would ask about it.

Moms is small cell, her chemo is VP16 and carboplatin, she has tolerated those well.

Still around
Posts: 2
Joined: Jun 2010

I have small cell stage 4. I also have brain mets, originally 6 now 3 very small. I've never had a seizure, but am told I will never be allowed to drive. I'm reading of folks who have a similar diagnosis and are driving. Is your mom allowed to drive?

hope0310's picture
hope0310
Posts: 324
Joined: May 2010

She has NOT driven, but she is allowed. Are you in the states? I think the law, at least in NC is that you forbidden to drive until you are seizure free for 6 months.....that is awful that you have not had a seizure and they told you that you were not allowed to drive.

Still around
Posts: 2
Joined: Jun 2010

Thank you so much for your response. I'm in Pennsylvania. Everything I've been reading says 6 months since last seizure. My medical oncologist said 6 months, which made sense. Then 2 weeks ago I called my radiation oncologist to see if I could maybe drive early since they had shrunk and via his nurse I was told I was not allowed to drive EVER due to fear of seizures. Would be not a real big deal, but I'm a single parent and I really need to get back to work. I feel fine, if it weren't for being bald I would forget I have cancer! I'm lucky there, I don't know what I'm going to do financially if I can't go back to work. It was a real shock to me, because I was diagnosed in February and two weeks ago was the first I had heard I'd never be allowed to drive, I was under the impression that I had to wait 6 months was all.

deb_needhope
Posts: 38
Joined: Jun 2010

Yes, they put my Mom on anti-seizure meds last week since she is at high risk for a seizure now with the brain tumor.

augigi
Posts: 89
Joined: Dec 2009

My mom has mesothelioma and did get the lymph node pain (sore, swollen and hot to the touch).. but it disappeared after dr restarted the dexamethasone.

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