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CPT11

bdee
Posts: 305
Joined: Feb 2009

My CEA was up again for the eighth time in a row. It is up to 8.4 now so the onc decided to add CPT 11 to my Avastin, 5FU, and my Flolic Acid. He was telling me to expect early onset diarrhea, but didn't say a thing about nausea. I am so sick again, just like when I was on oxy. I don't want to move, I don't want to eat and everything I've tried to drink comes right back up. Hey, but no diarrhea.
Can anyone help? I take Ativan for the nausea because Phenegran makes me sick and really drags me down.

Thanks,
Debbie in Arkansas

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

I haven't done it, so don't have any good advice. Just wanted you to know I'm thinking about you and sorry it's so rough.

*hugs*
Gail

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

Gave you chemo with no anti-nausea meds??? are they crazy?? of course nausea is right up there with the diarrhea, and I'd rather have that be sick.

Please tell them to put you on Emend, dexamethasone, Zofran and compazine. I take all those pills, and never feel sick from my chemo. Maybe a lil queasy here and there, but got good ole maryjane for that, I hope you feel better next time, they need to give you more for the sickness.

Hugsss!
~Donna

bdee
Posts: 305
Joined: Feb 2009

I get plenty of pre-meds: Aloxi, Phenegren, Previcid, Ativan and two shots of Atriphin before I even start the chemo drugs. I only have Ativan at home to take for nauseau. So you think I should ask for the ones you mentioned to take at home? Do you take CPT 11?

Debbie

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

definitely ask for some to take at home! The premeds work great for day 1, and sometimes day 2, but you need something after that, obviously, since you are still dealing with nausea. I agree with Donna, Emend-decadron combo worked great for me! I also had phenergan on hand, which is good for putting you to sleep as well as controlling nausea. None of the "non-drowsy" meds really did the trick for my nausea (Zofran, Kytril to name a few).
mary

bdee
Posts: 305
Joined: Feb 2009

I'm going to ask for some of these next time. Phenergan is on hand, but really makes me more nauseated. I leaves a taste in my mouth that really makes me feel sick.

Thanks, again,
Debbie

bdee
Posts: 305
Joined: Feb 2009

It is always good to know you have people thinking about you when you are going through this.

Debbie

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

So, I sipped ginger ale (with sugar...NOT diet), and coke (cocacola...not the other...lol!)

I ate VERY small bites...more like a nibble...whenever I felt hungry.

Licorice (sp?) is great to suck on, and also gives relief.

Hugs, Kathi

bdee
Posts: 305
Joined: Feb 2009

I've tried the Ginger Ale, but it was diet because I'm diabetic and I've never really cared for coke. I will need to keep something I can eat in bed by me because just the process of getting up make me sick.

Thanks,
Debbie

abrub's picture
abrub
Posts: 2131
Joined: Mar 2010

It's been reported in various journals that taking ginger capsules (1 capsule twice/day) in addition to the anti-nauseants increases their effectiveness. I've heard that it is best to start the ginger 3 days before chemo.

You can google "chemo and ginger" to see the research.

bdee
Posts: 305
Joined: Feb 2009

I take Ginger capsules three days before and two days after, they just didn't work with this new chemo.

Debbie in Arkansas

P.S. I also have Appendiceal Cancer, Stage IV, and have been told I have, at the best, five years to live. I'm so glad to read about someone who has actually beaten this kind of cancer. Maybe they caught your tumor faster than mine.

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

smoke pot. Works like a charm

bdee
Posts: 305
Joined: Feb 2009

Tried that while taking oxi and not being able to eat. Didn't do a thing but burn my lungs.

Thanks,
Debbie

jenhopesprays's picture
jenhopesprays
Posts: 129
Joined: Sep 2007

Ativan worked for me.

It was a miracle drug.

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

Can you smoke it?
;-)

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

I am laughing soooooo hard!!!

Hugs, Kathi

bdee
Posts: 305
Joined: Feb 2009

That is what I have been taking and took all day Tuesday. It didn't work at all this time.

Thanks,
Debbie

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