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From Sonny- Update with latest testing and Oncologist Visit Today

WHW's picture
WHW
Posts: 189
Joined: Jul 2009

Hello my PCa brothers and sisters,

Haven't been here in a while and I apologize. Been following my son's end of season baseball tournaments and getting him moved back home. Big adjustment on this one I tell you. His team made the regional's and was knocked out with a 2-2 record. He pitched well and garnered a little more MLB interest. Now we just have to wait on the MLB draft in June and see what happens.

I just got home from my visit with the Medical Oncologist and here is the latest.

My latest PSA has gone back down to 1.2 from the 1.3 the last time. They configured my doubling time to be a little longer than 9 months. At this point the doc said he doesn't want to do another PSA for 3 months and wants to see me in three months. He said we will hold off on the HT discussion until then. It may be that my PSA is just going to settle in at 1.0 to 1.2 for a while.

On another front, we went over the details of the SF PET Scan. While it is apparent that I face some issues with osteo-arthritis in the future, especially in the area of the spine, it seems to be in keeping with someone my age who has been as active as I have been in sports for so long.

Sadly, the scan also found a single lytic lesion in my body; "There is a single lytic lesion in the lateral aspect of the left femoral head with a peripheral rim of sclerosis and increased F18 uptake. This may represent an early osseous metastatic focus as there is no adjacent bony structure to degenerative changes."

So I have an appointment with the Rad Onco next Friday to discuss doing radiation treatment on the lesion. My doc said that if it was in a rib or something he would take a wait and see approach, but since it is in a major weight bearing location and could cause real problems in the future, he wants to go ahead and zap the thing and stop it's development and growth.

The really gooder news belongs to my wife. On February 4th I dropped off a package of all her medical records and disability application to the offices of Social Security. Given her forced disability retirement at the young age of 53, we were advised to look into it. Two days ago she received a call from Social Security telling her that "She Was Approved for Social Security Disability". They were sending her retroactive check electronically to her bank account and it should be there by the end of the week, today. I gotta say that with all of the stories we hear, read and see on TV about the approval process, this is nothing short of fantastic that it took slightly less than four months from beginning to end.

So in conclusion, Good News- PSA stabilizing, Gooder News- wife's quick approval for SS Disability and Carppy News- looks like I get to wear the "Radiant Personality Tee-Shirt for another rad go-round.

See you guys in the funny pages and "Every Day is A Bonus- live it that way",

Sonny

60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.

lewvino's picture
lewvino
Posts: 1010
Joined: May 2009

Sonny,
Thanks for checking in! Sorry to hear the bad news and of course happy for the good news!
Don't forget you need to get that mobile beast of a mobile home up this way to Tn.

Larry

WHW's picture
WHW
Posts: 189
Joined: Jul 2009

Good to hear from you again. I hope things are going okay for you and your family.

This is just a little blip in the PCa path. Everything will work out and we will get the beast on the road soon I hope.

Sonny

fathersson's picture
fathersson
Posts: 121
Joined: Nov 2009

Hey Sonny...Good luck with the radiologist.. and hope your son does well with the baseball.As a young buck..I lived for the game and played as much as I could.. then got my kids through little league and played softball for a few years.. Nothin like the feel of hitting a nice line drive.. (: Be well Sonny.

randy_in_indy's picture
randy_in_indy
Posts: 495
Joined: Oct 2009

You missed one piece of good news...Your Son is a great shinning part of both you and your wife and perhaps on a path to some interesting athletic paths if he gets picked up by a farm team. You both are proud I'm sure and it's great that you participate in his endevours! You have lots of good stuff going on around you and that will carry through the not so good and hopefully over shadow and create the good outcome in the end.

Best to you and family

Randy in Indy

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