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Cured???

imagineit2010's picture
imagineit2010
Posts: 153
Joined: Jan 2010

Are there any active members on here that are cured?? I don't mean NED for a year or two. I mean over five years with no reccurence OR treatment. I know Emily is but who else? How long (over five years) and what was your treatment course? What do you credit, your treatment, your will, luck, God, lifestyle, or unknown??? Does anyone KNOW someone that is "cured" (same criteria)? What did they do???
Thanks

Jaylo969
Posts: 827
Joined: Jan 2010

Yes, 2 people who had colon cancer surgery only.15 yrs and 20 yrs ago. I don't know what or who they attribute their success to.They just got cancer, had surgery and lived.I *think* what stage the cancer is might have something to do with this.

I have been on other forums for another disease and I noticed that as people got well ( or were cured) many of them didn't have such a need for a support group and they didn't visit as often. That could be why you only know of one on here that has been NED for over 5 years.

Wish I had the answers to your questions.

-Pat

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

It makes one ponder doesn't it?

Stage III, went through the wall and with 2/19 positive lymphs and did not do any of the mainstream protocol for cancer treatment beyond surgery, yet alive and kicking with ZERO recurrences for 8 years and 9 months. Hmmmm.

Maybe just maybe I'm on to something. N'est ce pas?

peace, emily who is cured but cautious (meaning I still juice like a madwoman and watch every single thing that goes in my mouth and in my mind and in my soul)

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

I am considered cured. I was stage 3c with 6/13 nodes involved. Surgery and 48 weekly sessions of chemo. Have been ca free for 12 1/2 years.Ron.

neon356
Posts: 137
Joined: Mar 2004

I was diagnosed 17 years ago at age 53, stage 3, 10 of 15 nodes infected. Did the standard treatment of chemo/radiation. For the first two years I suffered from many blockages due to radiation damage, and needed 2 additional surgeries to remove damaged colon and adhesions. But I'm still cancer free, and credit a great team of Docs and surgeons, very aggressive treatment, and extremely strong desire to beat the beast. I haven't really changed my lifestyle to any great degree. I know that many people here feel the need to radically change their diet, especially when it comes to meats and sugars, but in the several years now that I've been on this board I really don't think that I see that making much difference in who survives and who is less fortunate. Why I survived and others didn't is a mystery to me.
Carl

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

A friend at church told me her mother was dx'd at the age of 50, Stage III (Dukes C) with lymph node involvement. She had surgery but no chemo or CT scans. She died, at age 84 from a stroke!

The mother of our Home School Group President was dx'd Stage III (Dukes C) at age 34! She had surgery and no chemo or CT scans. She's in her mid 60's and has never been ill again. Her grown kids have not been checked. :-(

The woman who did some Xrays when I thought I had an obstruction said her husband was dx'd Stage III 7 years ago and has had a polyp that could have someday turned to cancer but other than that, has remained healthy.

There's a HUGE thread on Colon Club of NED people, with some 12 -14 years out. :-)
NED For How Long? Click HERE

Kerry S's picture
Kerry S
Posts: 607
Joined: Dec 2009

When I was in the drunk farm I learned that a person that puts one foot too far in the past and the other foot too far in the future, does nothing but pee all over today.

Live for today.

Kerry

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

... that have lived over five years with no reocurrence?

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

Lisa P. who posts as Scouty was dx'd with small mets to her liver and lung! 6 years and 3 months later, still CURED!

Lisa's very first post HERE

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Lisa Rose did she make it?

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

Here's a list Scouty had up last Oct. :-)
Stacy 8 years NED
Emily 8 years NED
Spongebob 8 years NED
Lisa Rose 7 1/2 years NED
Kanort 6 years NED
Shmurciak 5 years NED
KathiM almost 5 years NED
CherylRobb 3 years NED
Trainer 1 year NED

C Dixon
Posts: 202
Joined: Jan 2010

Are these all Stage IV?

Catherine

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Diane, thank you, thank you so very much for that post. I needed to see that right now since I've been crying off and on for the past three hours. I try to be strong for Rick when he's at home, but I break down when he's with his kids, which is every other weekend. I'm so very scared, and so alone. I have no family, or close friends near here, so he's all I have. And I love him so very very much... I've been looking for Stage 4 survivor stories, so your post gives me hope. Thank you dear. God Bless you. - Cynthia

menright's picture
menright
Posts: 258
Joined: Oct 2008

Thanks for the encouragement. I look forward to adding my name to the list.

Mike

imagineit2010's picture
imagineit2010
Posts: 153
Joined: Jan 2010

Thanks Diane, that's awesome. You keep pretty good track of people on here. I realize many NED people stop coming on here after a while but it's good for newer people to see these numbers. I hope more people chime in and I hope to see alot more names added to that list, including yours.

elizabethgd
Posts: 146
Joined: May 2009

I too have wondered how the survival numbers stack up.My diagnosis is rectal stage III. Wondering if survival has any connection to being diagnosed rectal rather than colon dx. I know lots of people who have lived 10 years with colon dx, but find fewer dx with rectal living that long. I have also noticed many articles/abstracts discussing Kras mutation and MSI related to survival time..Just wondering if others have had these tests?

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RickMurtagh's picture
RickMurtagh
Posts: 585
Joined: Feb 2010

If it is cancer and you can die from it and you are still not dead, that counts, even stage I (is there such a thing as stage I?).

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tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Yes, Rick, there is a Stage 1. That was my diagnosis 2 1/2 years ago. I had a colon resection and have so far been NED, but have suffered chronic pain and have had periodic hospitalizations.

*hugs*
Gail

abrub's picture
abrub
Posts: 2130
Joined: Mar 2010

It's a hellish trip regardless. Congratulations on being 9 years out, and many, many more healthy years!

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

http://ibdcrohns.about.com/cs/colorecalcancer/a/crcancerstages.htm

Stage I
Stage I colon cancer involves more than just the inner lining of the colon. The polyp has progressed to a tumor, and extends into the wall of the colon or rectum. Treatment can include surgery to remove the section of the colon that is cancerous. This type of surgery is called a resection. The healthy, non-cancerous sections of the colon are reconnected again. The five-year survival rate is 95 percent.

Stage II
Stage II colorectal cancer is when the cancer has spread beyond the colon to the tissue that surrounds the colon but has not spread to lymph nodes. Cancer spreading in this manner from one part of the body to another is called metastasis. A resection surgery may also be used to treat this stage of cancer. The five-year survival rate drops dramatically to 60 percent.

Stage III
Cancer that has spread outside the colon and on to the lymph nodes in the area surrounding the colon is known as Stage III. In this stage, the cancer has not spread to other organs in the body, and treatment is more aggressive. Surgical resection of the colon, chemotherapy, and other medical therapies may be necessary. The five-year survival rate is 35 to 60 percent.

Stage IV
In this stage, the cancer had spread to other organs in the body such as the lungs or liver. In addition to a surgical resection and chemotherapy, radiation treatment and surgery to remove other affected parts of the body may be necessary. At this stage, there is only a 3 percent chance of reaching the five-year survival time.

Recurrent Cancer
Cancer that comes back again after treatment, either in the colon, or in some other part of the body, is called recurrent. Even after successful treatment of colon cancer, regular check ups are necessary to catch any recurrent cancer early.

In the early stages, colon cancer is one of the most curable cancers. In the later - it is the second most deadly. Colon cancer is the second leading cause of death from cancer in America (lung cancer is the first). Contrary to popular belief, only 15 percent of colon cancer patients must have a permanent colostomy.

Please talk to your doctor about your risk factors for colon cancer, and get screened when appropriate. Some discomfort and embarrassment during a colonoscopy is a small price to pay for your life.
Suggested Reading

* Colon Cancer and IBD: Are You at Risk?
* Colon Cancer: Risks and Prevention
* What You Need to Know-Colorectal Cancer

Elsewhere on the Web

* Duke's Colorectal Cancer Program

New posts to the Irritable Bowel/Crohn's Disease forums:

* Hair Loss
* Ileostomy
* Surveys

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LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Hi all,

I just wanted to mention that for those getting a liver resection, the survival rates go up quite a bit! This was taken from a 2006 article by a doctor at MD Anderson Center.

Patients who undergo surgical resection of liver metastases from colorectal cancer have a higher survival rate than those who undergo other treatments, and some are truly cured of cancer. Now, doctors are finding ways to make liver resection an option for more patients.

“This survival rate for patients with stage IV colon cancer is remarkable,” Dr. Abdalla said. “Furthermore, those who remain disease free at 7 years frequently stay that way, and some may actually be cured.” In fact, the 5-year disease-free survival rate in this study was 50%.

http://www2.mdanderson.org/depts/oncolog/articles/06/4-apr/4-06-1.html

- Cynthia

jmaddox915's picture
jmaddox915
Posts: 80
Joined: Nov 2009

Thank you for posting this. I was dx with Stage IV with one met to the liver July of 2009. I finished my chemo treatment and had a liver resection in March of this year. My doctor stated this resection was my shot at a cure. First time I had heard that word since this all started.

This gives me even more hope.

AnneCan
Posts: 3692
Joined: Oct 2009

I don't like looking at stats, + these ones were particularly depressing for someone like me, with liver mets. I don't think this is the place to post "survival" stats; this is a place, in my opinion for encouragement, hope + understanding. It is important to remember that the stats are outdated + often do not even include people on treatments that are currently being given. Cynthia, your "stats" are a LOT more encouraging!

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

Those survival stats were from a study that ended over 3 years ago so most of those in the study would have either had no chemo (Stage I and Stage II) or 5FU alone. Oxi adds another 10%.

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

I went back to your post about your anniversary, and I hope you saw that I and several others have replied to that post. I'm very happy for you that you've been cancer free for 9 years!

*hugs*
Gail

P_I_T_A's picture
P_I_T_A
Posts: 133
Joined: Oct 2009

Was dx when she was 47, she's 67 now. Resection, now chemo...no reoccurances.

imagineit2010's picture
imagineit2010
Posts: 153
Joined: Jan 2010

Thanks to everyone for taking the time to reply. With the recent sad news on here lately I try to focus on the positive outcomes of this illness. I hope to hear more. When I joined here several months ago this board lost four members in one week (I think). My first reaction was, "crap, everyone dies from this" so it's important to have subjects to show the light in this sometimes very dark tunnel. Also, let's face it, when first diagnosed we all want to know the stats of survival. And while I think we all agree that statistics aren't reliable it is good to see them and then to hear from the actual people who prove them wrong every day. It is hope. We can hope to be as brave in the face of death as many on here have been, but we can also hope to be as courageous in life as so many on here are. You are all a testament to the human capacity to love and the will to survive. I salute you all.

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Are you saying now chemo, or no chemo, what stage was she?

coloCan
Posts: 1956
Joined: Oct 2009

dated 3/30/10, by a Dr Jeff Hersh entitled "The Stages of colorectal cancer":

"The prognosis depends on the stage. For stage 3A, more than 80 percent of patients are still alive five years later, although this figure drops to 64 percent for stage 3B and 44 percent for stage 3C." I'm sure others can cite other figures......steve

P_I_T_A's picture
P_I_T_A
Posts: 133
Joined: Oct 2009

That was no chemo. She never really mentioned what she was staged. Not even sure if she chose to be as informed as I have with mine. It was 20yrs. ago, I'm assuming stage 1 or 2.

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