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Maybe a dumb question...I'm not sure

Jaylo969
Posts: 827
Joined: Jan 2010

Ok here goes...As some of you know I was taken off Folfox Feb.16th due to intense neuropathy in feet/legs/ and left hand.Started Xeloda on Feb.23rd. My feet and legs seem to be a smidge better but the left hand hasn't changed, especially numb on last joint of fingers.I am aware that it might take some time for this to be resolved ( if it even does heal up) but now, here is my (probably) dumb question.

Can anyone tell me why when I sit down in a chair my left arm & hand has electric shocks running up & down it all the way to my shoulder? This just started happening one week ago and it only happens when I sit down.

I have 2 theories...

1. I must have neuropathy in my butt and it sends signals up my arm or...

2. Something is telling me to get up off of my butt and get busy

Seriously though, I'd appreciate your input. I already have a quadrillion questions for my doctors appt. on Tuesday and maybe this is one I wouldn't have to ask her.

Getting up now out of my desk chair.

-Pat

lcarper2
Posts: 638
Joined: Dec 2009

I have been on Xeloda for 7 months and I have neuropathy in my legs and if I bend over to pick something up from a standing position (bend at the waist) I get that electric shock feeling in my left arm all the way down to my finger tips have no idea what this is but will ask my ONC tomorrow...

TxKayaker's picture
TxKayaker
Posts: 177
Joined: Jun 2009

I had something similar but it has since gone away when I bent my head down it would send the shock from my neck to my feet.
I had my last tx of 5FU mid Nov of '09 and I am slowly getting back to a normal feelings in my fingers but my feet have a ways to go.

Jaylo969
Posts: 827
Joined: Jan 2010

I and a few others apparently want to know what your doc says about the arm thing tomorrow. I'm mostly curious as to what is going on with mine and is there anything I should or shouldn't be doing. After reading these posts I am just giving thanks that I don't have the nodding neck syndrome...yet :)

-Pat

lcarper2
Posts: 638
Joined: Dec 2009

I will let you know what he says but I think he will say you are getting old and are going to sound like a bowl of rice crispes when milk hits them snap crackel and pop...

Crow71's picture
Crow71
Posts: 681
Joined: Jan 2010

Butt neuropathy - That's a new one. When I nod my head, I get the same electrical feeling down my legs and into my feet. I don't know why this happens. I've just become aware of it in the last few weeks. It feels similar to the pain in my back I have had on and off for the last ten years. I'm going to start going to my chiropractor again. Let me know what you dr. says.
Roger

thready's picture
thready
Posts: 475
Joined: Sep 2009

I am off of oxi because of allergic reaction and neuropathy. The Dr told me yesterday that the reason it is a bit worse is because the oxi is gone so the nerves are starting to fire back up, this leads to the increase in pain, not hot or cold sensations but pain. I am thinking that have in your hands what others refer to as a sonic boom they get in their feet when they move their head, but you are moving something that is sending it to your hands. Let your Dr know, there is a medication called Neuronton (SP) that helps releave the symptoms, it does not make the neuropathy better but it might help you feel better. I am told this sonic boom thing does clear up.

One other thing, my hands-especially my left hand hurt and my finger nails feel like I have a lot of pressure under them, it really hurts. This is not fun because I am very left handed! We will get better over time it just takes time!
Take care.
Jan

Jaylo969
Posts: 827
Joined: Jan 2010

Yep, I have the sore nails too. How can something so sore also be numb at the same time? Beats me! My middle finger, left hand has a nail that feels like steel packed into my nail bed. But this is the good thing...and you are SO right...we will get better.

-Pat

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Didja' accidentally set the cell phone to vibrate?

I don't do chemo, but had what you're describing, and it
tuned out to be the beginning of carpal tunnel due to my
"new" seating behind the laptop.

If -my- arm continued to vibrate like that, I'd seriously consider
using it ___ __________ _____ !

Just sayin'....

(In a fit of sudden sanity, I decided to edit my piggy post)

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

I think it's old age. Sometimes I will get a pain somewhere for whatever reason and then 20 seconds later it's gone. I told my doctor about it a few years ago and he said "I think we're just getting older". I hope that it for you!

Life is funny sometimes
Brooks

Kerry S's picture
Kerry S
Posts: 607
Joined: Dec 2009

When woman in their 50s look hot, you know you are getting old.

Jaylo969
Posts: 827
Joined: Jan 2010

You men…LMAO…Y’all are a trip.

John, I am still speechless at your suggestion. Ah, I just noticed the edit…LOL

Brooks, you might be right. Not everything is cancer or chemo related. Old age, huh? I’m not quite convinced although I am half a century plus 6. Life IS funny that way.

Kerry you make me laugh. Thank you for your humor.Nothing wrong with 50 yr.old women. Mature & stable. Fortunate for me my husband still thinks I am hot….of course his sight is going fast:)

Laughter is good medicine. Thanks!

-Pat

lcarper2
Posts: 638
Joined: Dec 2009

you look in the miror and say OMG I am my mother...

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Don't you hate it when someone says : "it's the first thing to go",

when you know damned well a few things that went before that "first thing"..

ugh.

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