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Hey~~ The ball is now rolling "Million Cancer Survivors Walk"

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

I started a group in Facebook~~ Me and a few of my friends are looking to raise Cancer Awareness by getting people people together for the 2011 "Million Cancer Survivors Walk" I think we're looking to come together sometime in March 2011. This is just starting to get off the ground so we really need to get the word out to everybody..

As my friend BUZZARD says~~ "Million Cancer Survivors Walk" for Cancer Awareness....Relays for Life are the utmost, but still there is not the PUSH-SHOVE attitude taken by government to wipe out this horrible disease. We even through this site are a strong, bunch, a dedicated crew. We show it through pain , suffering, and the not so simple act of survival. We need desperately to rise to the occasion. Can we not make this happen in 1 calendar year. That gives us ample time to spread the word throughout this Nation and it can be done. We are cancer survivors, we can do anything we want, we have fought and won larger battles than this would be. Pessimist or Optimist when you feel like something of this magnitude would be an overwhelming task to accomplish, think of Martin Luther King, Abraham Lincoln, Neil Armstrong, how do you think these people got not only national attention, but world-wide attention.

Lets roll!!

Brooks

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Cool, Brooks! Count me in!

Lisa

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Facebook reaches Millions of people all over the world, what better way to reach out and get this going... My wife stays on there all the time in farmville. I will inform her to start reaching out as well. I haven't been or joined facebook but will do things through my wife's account until I figure out what I need to get started with it. I also need to get a set date and time. I am throwing the idea around to do a Nation/World wide walk at the same time but in each individual state, country or continent to accommodate people that have trouble with simple day to day survival, that enables them to be a physical part of a dream that may happen in their lifetime and allows them to be able to afford it without the cost of airfare,rooms,etc. Most people in this treatment may not be able to handle the expense and we have to include everyone that is a survivor,caregiver,or anyone that is adamant to the cause of Stepping for a Cure. Combining all states may make all survivors eligible for enabling them to maybe be able to make a 10-250 mile drive to attend theirs in their state, which will occur the same time and day in every state so that it is a combination and culmination of power in numbers. We have to start talking with Media, we have to start advocating to everyone about the "Million Cancers Survivors Walk" "Stepping for a Cure". This beast delves into every facet of our lives. If you do survive it then there are still financial issues that are left to deal with. Homes, retirements lost because of the enormity of debt incurred just by co pays alone, much less loss of jobs, emotional issues etc. The list goes on and on. I was almost one of these tragedies and if I was to re occur it would be the same for me. The first time broke me, the second time will ruin me. We have to stop this somehow, we simply have to.

Sorry for the rambling, its just something that I have become obsessed with and I will with the help of my friends here and all cancer survivors (and for JR.. that's anyone diagnosed and still alive.....:) )...make this happen ....Thank you Brooks, and everyone else that has persevered this dreaded disease for being the people you are...survivors in the battle...To all of you, please PM, post,email, or anyway you want to present ideas or things you are doing to facilitate this happening, I need all the ideas I can get to make this become real, and its my dream of all that are affiliated in someway with this disease to have a day when all of us are showing our solidarity to end the hardships, both physically, mentally, and financially that this disease causes......Love to all of you and may 2010 be "the Year of the Cure".......Buzz

Jaylo969
Posts: 827
Joined: Jan 2010

Don't worry about the rambling. You are right on the money...or lack of, in lots of cases. My job and paycheck ceased to be the day I was admitted to the hospital. I'm lucky so far as I had a little bit buried in a coffee can in the back yard but it is going fast. For instance, my insurance paid every 2 wks over 10k for my infusions. No cost to me. Now that I will be on Xeloda I must pay $120.00 every 2 wks because they are pills...peanuts to some, but my coffee can is empty.

On the other hand, I am revved up about this "Stepping for a cure" and hope I can participate. A few years ago I was interviewed by Woman's Day magazine when they were doing an article on autoimmune disease.Just an idea...contact some of the magazines to get the word out. There are some very informed people on this forum who could do an excellent interview.

-Pat

Jaylo969
Posts: 827
Joined: Jan 2010

I couldn't find it on Facebook. Can you guide me to it?

-Pat

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

Just type in "Million Cancer Survivors Walk" under serch or groups. Let me know if you have any problems.

Brooks

Jaylo969
Posts: 827
Joined: Jan 2010

Found it and made myself the 20th member. Left a message on my FB page for all of my friends to consider joining too.

-Pat

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

One at a time!!!

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Im gonna get the wife to get in and find it..I wanna see and add my name on it...

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

http://www.facebook.com/profile.php?id=1188756855&ref=profile#!/group.php?gid=312557191443&ref=mf

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slamb58's picture
slamb58
Posts: 32
Joined: Jul 2008

This is a great idea. I was member number 45!

jillpls's picture
jillpls
Posts: 241
Joined: Mar 2008

when and where? I'm a walker so this is my passion. I will walk for a cure anytime
Jill

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

Bump

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

This month, with our tax refund, I paid the last amount owed to my surgeon and three bills to people I'm not sure what they did. I THINK everything is finally paid in full, 13 months after dx and surgery! Actually, I owed a facility fee and couldn't get my colonoscopy scheduled until we tracked that bill down at some collection agency. Now waiting for a call back once the all clear is sent to the office.

Last year, 1/5th of our income went to my doctor bills and co pay and the hospital had a foundation that paid my co pays to them!

There's a lot more to cancer than many people know. Well said, Clift!

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

I am awestruck by the amount of positive attention this is getting..I am also dumbfounded by the way that people picked this up and ran with it. I am having to run to keep track of everything that is happening. Brooks, Thank you for the Facebook entry, it is growing every hour...everyone so far has taken it so well, I am speaking with a lawyer Sunday (our church has one as a member) to see what all legal ramifications there might be to maybe starting a foundation as one of my "buds" brought up. The dream is to maybe be able to help as well others with other needs besides just cancer co pays and such...Lodging, gas, bills, it is so overwhelming right now but with the help of everyone and some people on here I really think its going to come to reality...
We all have hard times every once in a while, but to go through this which destroys families and lives, and then have the inability to pay simple household bills after you have fought for your life and have heat,lights,gas,phone,or even computer cut off because medical bills have consumed every penny you have and any more you ever expect to come up with, its absolutely ridiculous, no its absolutely heartbreaking...and there are people in here right now loosing their homes because of trying to pay the bills that cancer leaves them along with the disability to work because of the way that this disease disables you...

Sorry, Im getting started again, I am just sick of hearing the sad stories that tear families apart because of this disease...The American Cancer Society is moving along so gracefully in all its endeavors to fight this dreaded disease, yet even it has its limits on what it can do. Maybe, just maybe, this will enable us someday soon to do just a little more for those that are a little less fortunate than others. That is the bottom line in this endeavor. To maybe make one life a little easier to live with by doing something that may be insignificant to some, but enormous to others.....

Thats all for now....Love to you all, and may 2010 be the year of "The Cure"

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

Thanks to you Buzz for lighting a fire under our butts. You got the ball rolling we're just helping you carry it. I'm here to help. We now have 104 members in the Facebook Group

Life is funny sometimes
Brooks

lcarper2
Posts: 638
Joined: Dec 2009

can't find away to add my name to the list of supporters

SueRelays
Posts: 489
Joined: Dec 2009

ME EITHER....going to go back in and loko again!!!

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

http://www.facebook.com/group.php?gid=312557191443

Jaylo969
Posts: 827
Joined: Jan 2010

Already 176 joined up on Facebook within 2 days!! WoW!

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

From what I'm hearing.. 177 members in less then 48 hrs is VERY GOOD!!!

Pass the word
Brooks

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

I have to get in today and see this...My wife admitted to me last night when I asked her about searching for it that she was trying to stay away from all things cancer, that makes her sad. Well, I guess I understand her situation but I don't know how to get in there and find it...Where theres a will though theres a way. I am gonna create my own FB page ...Thanks again Brooks...and I am getting more mail, thanks all for the help on this...I am looking for a March Date to go full blown with this...and sometimes in March for the Walk to happen........I may be asking for 1 or more reps in each state to do some of the media attention getting for the walk planned March 2011...also to start maybe emailing friends and having them email their friends etc etc to get out the word . We will try and keep all of this posted up so that everyone can keep abreast of things happening. All brainstorming is more than welcome, you are all a part of this, you are survivors......Thanks again guys and gals.....Buzz

lcarper2
Posts: 638
Joined: Dec 2009

I have e mailed 5 local tv stations here in tulsa asking them to do a segment in march about cc and awareness to early testing to prevent it hope to hear soon from them if not I will be calling them ...

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

http://www.facebook.com/group.php?gid=312557191443

That is the link for the group so you can join.

Mchapp's picture
Mchapp
Posts: 96
Joined: Jul 2009

LOVE this idea! I sent to 20 facebook friends and within 3 seconds - litterly - 3 of my friends joined!
Thanks Brookes for setting this up!

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

We are up to 210!!! Bang the pots, stomp your feet, and spread the word "Million Cancer Survivors Walk 2011"

Jaylo969
Posts: 827
Joined: Jan 2010

I am banging the pots but my feet are too numb to stomp right now. The FB page looks real good. I invited friends & family but most of them seem too busy with Mafia Wars. Shame on them! My daughter joined up though and she will help if needed.

Congrats! You have done a good job as well as all of your helpers.

-Pat

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

I have 7 who joined!

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

Just keep on sending the invites, We wont get everybody but if we can get SOME of them we're doing goo. Make sure you tell them to pass it on the there friends!!

lcarper2
Posts: 638
Joined: Dec 2009

wow they are really joining this wonderful cause I am proud to be a member don't know how I joined but sure glad I did LOL

SandyL
Posts: 220
Joined: Feb 2009

and invited my family and friends who are not already part of this board. I also plan to notify the TV and radio stations via email (I'm in TX now and not at home in Ohio) about colon cancer and the need for early detection. Maybe even get an interview with our onc. How awesome would that be?
Sandy

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

Great Job Sandy.. We're up to 250 Members on Facebook. Who would have thunk? Isn't it great how we're taking something so negative and turning into something positive? I love it!!

Life is funny sometimes
Brooks

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Lookin Good...The foundation is going to be a large endeavor to tackle...Surely we can find a way around all the loopholes to help people in need. Keep thinking, we'll get there...Lookin good people............My wife is setting up a FB account this evening after I get home...Then I can get started also....I don't wanna take up time on this site for a lot of posting but it does need to stay active to keep people aware and up to date on how its coming along.Thanks everyone

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

We have to keep people interested to visit the site, maybe posting some articles, stories??

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

We got 289 Members on Facebook!!

Way to go everybody. You should be proud
Brooks

ninetoes's picture
ninetoes
Posts: 81
Joined: Jun 2009

This is a great idea. I was member number 297!

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

we leave it all in this one thread and keep all postings on this one only we won't hold up anything new coming in for newbies or info. This is "cancer" info, I just want to ensure the integrity of the forum also. I think it will be fine if kept in this one thread...and yes keep the enthusiasm alive...we are gonna make it happen in March 2011.....Im wondering if maybe we can post up some personal testimonies on the facebook page...if so I would be willing to post one. Maybe simply for the people that have not been touched by this to understand a little of what families go through. If we touch one individual, one person, and they are caught early enough to never ever have to go through this then all will be worth it............Love to all, Buzz

SueRelays
Posts: 489
Joined: Dec 2009

Here's the shirt I was telling you about Brooks. Docs and Durses got a kick out of it when I wore it the day after my liver resection. So this is my survivor sign! Liked it enough to change my profile pic to it!

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

sorry, but no shirt pic...but the pic thats up is nice...Thanks for sharing......Buzz

SueRelays
Posts: 489
Joined: Dec 2009

It's a little hard to read Buzz....but says Cancer couldn't stop me even WHEN it tried. I have a sticker on my car that says. NICE TRY CANCER....but I'm still here~ Forever fighting the enemy. At least for the last 3 years I have been. STUPID C WORD!!!

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

Great shirt and what a way to represent!!

Brooks

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

I'll go back to my corner........:)

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Hey Buzz.... this is such a great idea. I had an idea for more exposure. How about a letter to the "ELLEN DEGENERES" show??? She sponsers breast cancer awareness and many many other fund raisers. I watch her show every day and have actually sent a few letters in the past about the semi's. However, I did not receive any response. My letters explained about CSN and I was seeking out a way for all of us to meet one another but expense was such a factor because so many are financially drained..... My hope was that she would sponser something for us....BUT... I did not have luck at the time. PERHAPS....this event would draw more interest to her show as it will be a National event. What ya think?? What we got to lose?? ELLEN is also on Facebook. I am heading to FB now to sign up for the walk. Let me know if you want more info and I can get you links to here webpage and FB. This is SOOOO exciting!!!

Jen

dorookie
Posts: 1736
Joined: Jul 2007

But what about this, what if we ALL sent a letter, then maybe they would pay attention? Plus I bet if I wrote a standard letter, all my friends would print it, sign it and mail it too. What do you think Jen, should we show Ellen what we are made of??? Just let me know.

Beth

SueRelays
Posts: 489
Joined: Dec 2009

Thanks Brooks.... and THANK YOU for all you are doing! Surviving is something we need to celebrate every day in some way. And when we can join together and make it a HUGE event.....EVEN BETTER!!!

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Keep firing emails and notes to her and maybe she will sometimes soon reply. and yes talk about the walk would also be something else to send to her. I think if this gets big enough "then" they might start to take notice...it usually takes a great event for many people to decide they want to be a part of it...let me know if you need some added help with this....Thanks, Love and Hope, Buzz

ya'll are the shizzle....... :)

lcarper2
Posts: 638
Joined: Dec 2009

I have sent Oprah an E mail about our cause and ask her to help us get the word out...

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Great idea about the letters all being signed and sent from friends. It might make the show take notice if they get all these letters coming in on the same subject. I will follow suit and do the same with my friends.... I say...YES!...lets do it.... get some action going.

Icarper2......... Way to go on the Oprah email.... She and Ellen are good friends... I will have to mention in my letter to Ellen that she better get the ball rollin before Oprah gets a jump on her!!!

Jen

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