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Results, the future, and hope

krf's picture
krf
Posts: 99
Joined: Dec 2009

My husbands scans looked good. He continues to respond well to the treatment. Over all he has had a 30& reduction in cancer since beginning treatment on Sept. 1, 2009. We had an excellent appointment with the onc. today. I was feeling very disturbed by our last talk with him- the "I don't think I can cure this cancer" talk. Well, my husband begins the conversation by telling the Doc that we had been thinking a lot about our last appointment and our onc. immediately said he was very upset by that conversation. he showed a side that I was so touched to see. He said he did not want to take away any of our hope and he felt like he did that to us every time. I told him that, to be fair, I asked many of the same questions, worded in different ways, looking for an answer I wanted to hear. I asked him what else we should be doing, what he would be doing if it were his wife- treatments in Germany? Other procedures not yet approved in the states? He said no, and I know that is what he believes. ANd from what I see here, I think the FOLFOX + avastin is the most aggressive thing we can be doing for ROger right now. That said, we were able to have a conversation about the next step. Our doc was careful to say that Roger might not get to a point where he is a surgical candidate. But in six months the medical team will get together and evaluate where he is at. He will have to have the primary rectal tumor removed, a liver resection, and surgery
on the peritoneal lining. It sounds like staging those surgeries will be extremely difficult. I imagine ROger and I will have many tough decisions ahead.

SO, back to one day at a time. It is easier to do one day at a time when I have a general idea of where we need/hope to be headed.
Roger's platelets were back up so he had the full treatment today. By the way, the magnesium and calcium drip they give him at the beginning and end of his treatments with oxaliplatin help him so much with the neuroathy.
His CEA is only 1.6! It was 20 when he started chemo, which I know is low anyway, but I am so excited that it has gone down with every treatment. (Our onc doesn't pay much attention to those, but I love watching those numbers!)
ANd last night I played armchair radiologist- I know, yikes!- and I could actually see that the tumors had shrunk from the last scan in October. It was very nice to be right! I admitted that I had done that and the Doc. gave me one of those grins- the kind your kid's pediatrician gives you when you say, "I was looking on the internet and am worried my kid has..."
The news today was good. Even though it really made even more clear what an incredible beast this is to fight- and the prospect of so many life threatening surgeries is daunting, I feel more hope than ever.
Thank you all for being here and sharing the journey.
Kim

MelanieT's picture
MelanieT
Posts: 188
Joined: Nov 2009

Kim I am SO happy for you guys:) What better way to start off the new year.. I hope it just keeps getting better and better. Chris had his scans today and we get results tomorrow, must say i am more than nervous.. I will let everyone know tomorrow and again... SO HAPPY for ya!!!!!

loves,
Mel

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Hi, Kim.

I'm so glad this visit went so much better than the last one. Sounds like your oncologist is a good guy, trying to do his best.

I'll be praying that things keep getting better!

*hugs*
Gail

geotina's picture
geotina
Posts: 2120
Joined: Oct 2009

I am so happy you heard encouraging news. Looks like your hubby, like mine, showed a good response to the whole Folfox thing. Things are going in your direction and I hope they continue to do so. Take care - Tina

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Kim

It sounds like you have a gameplan and things are moving in the right direction...sounds very promising.

Just one step at a time, and one day at a time as you mentioned - the journey of a thousand miles, begins with the first step - and you guys are doing great!

-Craig

zenmonk
Posts: 198
Joined: Nov 2009

for sharing. This sounds like positive stuff. Avastin worked wonders for me.

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Kim,
That sounds like a good talk with the Onc. Hope is so important in the fight. You are right there with your hubby and I'm sure he gets a lot of encouragement from you.
Best to both of you in 2010.

Aloha,
Kathleen

krf's picture
krf
Posts: 99
Joined: Dec 2009

Thanks to all of you for your posts. What a comfort you all are! Happy New Year!
Kim

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Yourself, remember, every caregiver has a great deal of stress, emotionally, physically, and it sometimes gets quite overwhelming.....Be absolutely sure to take plenty of "your time" where you can vent, cry, or simply remove yourself from all the ups and downs , if only for a little while. Everyone is dependent on the caregiver for the most part and a lot of the time they suffer far worse than the patient. Love is a many splendid thing but it does have its consequence...In a nut shell, "If you are not OK, then no one is OK....OK ?
Now, start planning for things to do at the end of this year, and also trips or plans for 2011, that's when you get the peace of mind. Want for patience and small victories......Happy New Year and may 2010 bring all good news to you and yours......

Hope and Love, Buzz

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

Things continue to improve and get better
Big hugs
Sonia

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