Endometrial CA Advocacy Group Forming

MoeKay
MoeKay Member Posts: 396 Member
edited March 2014 in Uterine Cancer #1
Hi All:

I recently received a copy of the latest Gynecologic Cancer Foundation's Newsletter in the mail. It includes information about the newly-formed Endometrial Cancer Advocacy Group, and states that this initiative marks the first time that there has been a national endometrial cancer (EC) group whose purpose is to create awareness about early warning signs of EC and prevention steps, as well as to create a dialogue among women diagnosed with EC.

For more information, or to join the group, the Newsletter instructs you to contact Marsha Wilson, GCF's Director of Communications and Advocacy Relations at [email protected] or by calling 301-332-0117.

I thought I would pass this information along in case some of you might be interested.

Happy New Year,

MoeKay (Maureen)

Comments

  • kkstef
    kkstef Member Posts: 688
    Advocacy Group
    Maureen, thank you for sharing this info. I will CERTAINLY check into it! A very much needed effort in my opinion!!

    Karen
  • daisy366
    daisy366 Member Posts: 1,458
    kkstef said:

    Advocacy Group
    Maureen, thank you for sharing this info. I will CERTAINLY check into it! A very much needed effort in my opinion!!

    Karen

    What do you think ladies about asking for more RESEARCH - on UPSC and other aggressive endometrial cancers. If we all ask, maybe they will do it. We can reference this site as a treasure trove of willing participants.

    I will be one to step up and request, and I invite you too!!
  • Rewriter
    Rewriter Member Posts: 493
    daisy366 said:

    What do you think ladies about asking for more RESEARCH - on UPSC and other aggressive endometrial cancers. If we all ask, maybe they will do it. We can reference this site as a treasure trove of willing participants.

    I will be one to step up and request, and I invite you too!!

    Yes, we need MUCH more research
    I am thrilled that we may finally have a chance to be heard. I am calling Marsh Wilson on Monday.
  • Songflower
    Songflower Member Posts: 608
    Advocacy Group
    I am ready to roll up the sleeve and work. I will be calling when I return for my trip. Research and those new molecular drugs are on my agenda!


    Diane
  • deanna14
    deanna14 Member Posts: 732

    Advocacy Group
    I am ready to roll up the sleeve and work. I will be calling when I return for my trip. Research and those new molecular drugs are on my agenda!


    Diane

    I'm in!
    I am interested in sharing. Going to send an email!
  • susie1143
    susie1143 Member Posts: 105
    Advocacy Group
    Glad to hear that a group is forming. I will be calling tomorrow for more information. Certainly not enough research has been done on any level with endometrial cancer. I'm considered Intermediate (Stage 1C, Grade 2) and there wasn't even a study available to me. All kinds for breas cancer but very few for endometrial.

    Happy New Year,
    Susie (Lilly the Clown)
  • shortmarge
    shortmarge Member Posts: 291
    susie1143 said:

    Advocacy Group
    Glad to hear that a group is forming. I will be calling tomorrow for more information. Certainly not enough research has been done on any level with endometrial cancer. I'm considered Intermediate (Stage 1C, Grade 2) and there wasn't even a study available to me. All kinds for breas cancer but very few for endometrial.

    Happy New Year,
    Susie (Lilly the Clown)

    EC Advocacy Group
    I emailed Marsha and following is her response. Please let's all let her know we are very interested in such a group.

    Hello, Marge,

    Thank you for your interest. We are just in the formative stages and wanted to gauge the
    interest in forming such a group.

    I am going to add you to the list and you will be hearing from us soon. We are very
    pleased with the response to date.

    Best regards,

    Marsha



    Here is her info again:

    For more information, or to join the group, the Newsletter instructs you to contact Marsha Wilson, GCF's Director of Communications and Advocacy Relations at [email protected] or by calling 301-332-0117.

    Hugs
  • livealot
    livealot Member Posts: 19

    EC Advocacy Group
    I emailed Marsha and following is her response. Please let's all let her know we are very interested in such a group.

    Hello, Marge,

    Thank you for your interest. We are just in the formative stages and wanted to gauge the
    interest in forming such a group.

    I am going to add you to the list and you will be hearing from us soon. We are very
    pleased with the response to date.

    Best regards,

    Marsha



    Here is her info again:

    For more information, or to join the group, the Newsletter instructs you to contact Marsha Wilson, GCF's Director of Communications and Advocacy Relations at [email protected] or by calling 301-332-0117.

    Hugs

    sounds good and needed
    I just called and left a message for Marsha saying that I too would be interested in this.
    elizabeth
  • deanna14
    deanna14 Member Posts: 732

    EC Advocacy Group
    I emailed Marsha and following is her response. Please let's all let her know we are very interested in such a group.

    Hello, Marge,

    Thank you for your interest. We are just in the formative stages and wanted to gauge the
    interest in forming such a group.

    I am going to add you to the list and you will be hearing from us soon. We are very
    pleased with the response to date.

    Best regards,

    Marsha



    Here is her info again:

    For more information, or to join the group, the Newsletter instructs you to contact Marsha Wilson, GCF's Director of Communications and Advocacy Relations at [email protected] or by calling 301-332-0117.

    Hugs

    This is
    the same response that I received from Marsha.