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Need a favor

donnare
Posts: 266
Joined: Jun 2009

Hi everyone,

Tomorrow is chemo #8, AND we get the results of my husband's scan. Lots of "scanxiety" tonight, in addition to the usual "night before chemo blues" (just when he starts to feel better, it's time to do it again). He's tough, and has been a trouper, but it's starting to get to him.

Please say a prayer, send good thoughts, energy, etc., for Brian, that the treatment is working, and that the liver mets have shrunk or possibly even disappeared.

Thanks so much!
Be well,
Donna

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shrevebud
Posts: 106
Joined: Aug 2009

Hi DannL

I'll say a special prayer for you and your husband tonight. Be well and take care. Roy

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Donna,
I'm praying for you and Brian right now. I hope he gets an all clear. :)

Aloha,
Kathleen

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ittapp
Posts: 385
Joined: Jun 2009

I will say a prayer for you guys tonight. GOd Bless, Patti

daydreamer110761's picture
daydreamer110761
Posts: 497
Joined: Dec 2008

Always say something before I go to work, and always add my family.

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dianetavegia
Posts: 1953
Joined: Mar 2009

Certainly will!

menright's picture
menright
Posts: 258
Joined: Oct 2008

I hope your husbands scan shows clear. I will pray for good results and wish you the best.

Mike

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Buzzard
Posts: 3073
Joined: Aug 2008

on their way...........for all clear scans......

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angelsbaby
Posts: 1171
Joined: May 2008

all is clear.

michelle

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butterfly23
Posts: 257
Joined: Mar 2008

Prayers are coming your way for Dave! I will be thinking of the both of you!

Karyn

butterfly23's picture
butterfly23
Posts: 257
Joined: Mar 2008

I am sooo sorry, I called your husband Dave, I mean Brian! I apologize.
I'll send Dave some prayers too, whoever the heck he is! Hee Hee

Karyn

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lizzydavis
Posts: 893
Joined: May 2009

Praying for Brian.

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Shayenne
Posts: 2370
Joined: Jan 2009

The chemo is working for him as well! I bet it is! Hopes and Prayers coming your way, and don't worry about things till there is something to worry about, just live, love and laugh, I know harder said then done, but don't let the scans get to you!

Hugsss!
~Donna

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just4Brooks
Posts: 988
Joined: Jun 2009

Hey Brian, Hang in there. I know it gets hard sometimes. I have my moments too and I know it's not easy. My next chemo is 6 out of 9 and it seems to be getting harder on me too. I'm sure things will look good on the scan. No worries there. I'll be thinking about you today.

Life is funny sometimes
Brooks

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Muzzy
Posts: 178
Joined: Sep 2009

Prayers are on the way. i went thru the same thing,but just said to myself 8 down 4 to go. There is light at the end of the tunnel. My thuoght and prayers are with you .
Jeff
Just happy to be Here!!

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patsy1954
Posts: 85
Joined: Sep 2009

Just said a prayer for both of you. I just got done 12 of 12 on OCt 19th, it gets tough but think of it as 2/3 of the way there. Scan will be good, just keep saying that and it will happen, I know it will!

Pat

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nudgie
Posts: 1482
Joined: Sep 2006

I am sending prayers, good vibes, and mojo your way.

Fight for my love
Posts: 1530
Joined: Jun 2009

You and your husband are in my prayers!I hope there is a very good outcome from the scan.Best luck with it!

coloCan
Posts: 1956
Joined: Oct 2009

Here;s hoping Brian's scan come up clean.....Steve

donnare
Posts: 266
Joined: Jun 2009

So, some good news and not so great news.

Good news:

--Lesions on liver have shrunk some more - MOST IMPORTANT.

--No chemo today, so Brian will be feeling good for his trip this weekend to San Diego to see the Eagles/Chargers game. Twenty guys are going out for four days. It was planned well before his dx, his friends insisted he still go, and were all willing to adjust their plans out there to accomodate him if he was sick. I was worried, and he was bummed, that he would be sick from chemo this week, and be far from home, etc., so no chemo means he will be feel well enough to enjoy the trip and the game (provided the Eagles don't disappoint - HA HA).

--Change in chemo schedule means he won't have chemo the day before Thanksgiving, and two days before Xmas, so he will be able to enjoy the holidays.

--He has an appt. with a naturopathic doctor tomorrow night to support him through treatment and beyond.

--We have contacts at UPenn and MSK if his comfort level with Fox Chase starts to wane.

Not so great news:

--Lesions on liver are all still there - eleven - three largest are still measureable, though smaller, and at this point, he is still not a candidate for any targeted therapies for liver.

--No chemo today because his platelets are down. We both get concerned that missing chemo gives lesions a chance to grow - scary, and he is anxious to get through the twelve.

--Onc's answer to his question "...what happens after the twelth if lesions are still there...?" She told him, "...More chemo, twelve is just a number...we hope that they will continue to shrink and that we will be able to do something, but we don't know at this point. Of course, we want you to live your life .... we understand it is difficult to make long range plans ... we're in this for the long haul...", etc., etc., etc.

--Chemo schedule change wreaks havoc on my work schedule, which is already arranged and covered, meaning I may not be able to go with him to the next few treatments, and I don't want him to be alone for even one minute of this thing.

--No chemo today means he has to postpone dental work he is waiting to have done, and more importantly, have the internal stitch that keeps working its way to the surface, causing him pain, taken care of.

Overall, good news - we are moving in the right direction, and that is most important. I don't want to seem like I am ungrateful, and failing to embrace a blessing - I know how much worse it could be. But, I think he - we - kind of lulled ourselves into thinking the chemo would end at some point in the near future (I think only you guys would understand), and that he could get on with things, especially getting the incision/stitch issue addressed. Hopefully, that will happen.

He has been a little down as the treatments have progressed. He is tired of not feeling well, and being tired; he is frustrated by not being able to do the things around the house he always did (and secretly likes to I think - it took me 23 years and a Stage IV cancer dx to get him to hire someone to cut the grass); he is frustrated by not being able to make plans, and know he will be well enough without worrying about "what if I'm sick, or need surgery, or hooked up to the pump, etc., etc., etc.

Anyway, thank you for your prayers, and for allowing me to vent - sorry this is so long. One day at a time, right ... and some good news is always better than any bad.

I pray for all of you on this board and your loved ones too. I pray that God, as you know him/her will bless and heal you all, that you'll be well and always have peace in your hearts.

Thanks again,
Donna

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

I'm glad you had some good news. And I think the break from chemo is actually good news too. A chance to have some fun with his buddies might be exactly what he needs right now to boost his spirits, which in turn may help boost his health and prepare him to get tough for continuing the fight. (Plus having breaks around the holidays is wonderful too.)

I can totally relate to the schedule change worries - those bother me too.

And the unknown... we'd all love to say we'll get through 12 cycles of chemo and be NED and done forever. But in reality only a portion of us do get to say that, and others have to battle a little harder.

The great news is the forward progress that is happening. I pray that he continues to keep making progress towards beating this, and doesn't have to continue too many extra cycles with chemo.

Holdtight
Posts: 151
Joined: Aug 2009

Thank you for sharing that information it helps those of us with any outstanding concerns to. I have a stitch that feels like a piece of steel that surfaced 2-months after my surgery. I went back to the surgeon and he told me it was a suture knot and it should be gone in a month well it disappeared but now its back again. Does Brian have to have his removed and does it sound like i have the same type of thing going on? Thanks.

tootsie1's picture
tootsie1
Posts: 5065
Joined: Feb 2008

Donna,

I'm so glad for the good news. I do wish, as you do, that the lesions were all gone and not an issue at all. But we'll just keep praying about that.

Looking forward to hearing about his trip. Hope he has a fabulous time!

*hugs*
Gail

damama24
Posts: 175
Joined: Nov 2009

I will add you and your husband to my prayer list today DEB

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

I read your post and I know what you're talking about. The surgeries don't help either. I am off of chemo now for about 5 weeks and I feel good other then the port in my chest, my neck aches all the time. I go to bed and say I am going to take time to reflect and you know all I do is go right to sleep, it's like my body is healing from all the chemo. My body is taking all the sleep it can get. I used to wake up over the littlest things, now I wake up and it's morning. Hmmmmm, where am I going with this. Guess reflecting. lol. Take it one day at a time and do the count down. Rest whenever you can, both of you. Try to smile.

God bless....

Holdtight
Posts: 151
Joined: Aug 2009

I feel you. I am now going into my 6th with great anxieties with the upcoming scans. I will say some special prayers for you. Hope all is clear for you. God Bless.

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