Need a favor

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  • damama24
    damama24 Member Posts: 174 Member
    #22
    need a favor
    I will add you and your husband to my prayer list today DEB
  • Holdtight
    Holdtight Member Posts: 151
    #23
    Hi!
    I feel you. I am now going into my 6th with great anxieties with the upcoming scans. I will say some special prayers for you. Hope all is clear for you. God Bless.
  • Nana b
    Nana b Member Posts: 3,030 Member
    #24
    damama24 said:

    need a favor
    I will add you and your husband to my prayer list today DEB

    Hi there...
    I read your post and I know what you're talking about. The surgeries don't help either. I am off of chemo now for about 5 weeks and I feel good other then the port in my chest, my neck aches all the time. I go to bed and say I am going to take time to reflect and you know all I do is go right to sleep, it's like my body is healing from all the chemo. My body is taking all the sleep it can get. I used to wake up over the littlest things, now I wake up and it's morning. Hmmmmm, where am I going with this. Guess reflecting. lol. Take it one day at a time and do the count down. Rest whenever you can, both of you. Try to smile.

    God bless....
  • Holdtight
    Holdtight Member Posts: 151
    #25
    donnare said:

    Thanks everyone
    So, some good news and not so great news.

    Good news:

    --Lesions on liver have shrunk some more - MOST IMPORTANT.

    --No chemo today, so Brian will be feeling good for his trip this weekend to San Diego to see the Eagles/Chargers game. Twenty guys are going out for four days. It was planned well before his dx, his friends insisted he still go, and were all willing to adjust their plans out there to accomodate him if he was sick. I was worried, and he was bummed, that he would be sick from chemo this week, and be far from home, etc., so no chemo means he will be feel well enough to enjoy the trip and the game (provided the Eagles don't disappoint - HA HA).

    --Change in chemo schedule means he won't have chemo the day before Thanksgiving, and two days before Xmas, so he will be able to enjoy the holidays.

    --He has an appt. with a naturopathic doctor tomorrow night to support him through treatment and beyond.

    --We have contacts at UPenn and MSK if his comfort level with Fox Chase starts to wane.

    Not so great news:

    --Lesions on liver are all still there - eleven - three largest are still measureable, though smaller, and at this point, he is still not a candidate for any targeted therapies for liver.

    --No chemo today because his platelets are down. We both get concerned that missing chemo gives lesions a chance to grow - scary, and he is anxious to get through the twelve.

    --Onc's answer to his question "...what happens after the twelth if lesions are still there...?" She told him, "...More chemo, twelve is just a number...we hope that they will continue to shrink and that we will be able to do something, but we don't know at this point. Of course, we want you to live your life .... we understand it is difficult to make long range plans ... we're in this for the long haul...", etc., etc., etc.

    --Chemo schedule change wreaks havoc on my work schedule, which is already arranged and covered, meaning I may not be able to go with him to the next few treatments, and I don't want him to be alone for even one minute of this thing.

    --No chemo today means he has to postpone dental work he is waiting to have done, and more importantly, have the internal stitch that keeps working its way to the surface, causing him pain, taken care of.

    Overall, good news - we are moving in the right direction, and that is most important. I don't want to seem like I am ungrateful, and failing to embrace a blessing - I know how much worse it could be. But, I think he - we - kind of lulled ourselves into thinking the chemo would end at some point in the near future (I think only you guys would understand), and that he could get on with things, especially getting the incision/stitch issue addressed. Hopefully, that will happen.

    He has been a little down as the treatments have progressed. He is tired of not feeling well, and being tired; he is frustrated by not being able to do the things around the house he always did (and secretly likes to I think - it took me 23 years and a Stage IV cancer dx to get him to hire someone to cut the grass); he is frustrated by not being able to make plans, and know he will be well enough without worrying about "what if I'm sick, or need surgery, or hooked up to the pump, etc., etc., etc.

    Anyway, thank you for your prayers, and for allowing me to vent - sorry this is so long. One day at a time, right ... and some good news is always better than any bad.

    I pray for all of you on this board and your loved ones too. I pray that God, as you know him/her will bless and heal you all, that you'll be well and always have peace in your hearts.

    Thanks again,
    Donna

    HI!
    Thank you for sharing that information it helps those of us with any outstanding concerns to. I have a stitch that feels like a piece of steel that surfaced 2-months after my surgery. I went back to the surgeon and he told me it was a suture knot and it should be gone in a month well it disappeared but now its back again. Does Brian have to have his removed and does it sound like i have the same type of thing going on? Thanks.
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #26
    donnare said:

    Thanks everyone
    So, some good news and not so great news.

    Good news:

    --Lesions on liver have shrunk some more - MOST IMPORTANT.

    --No chemo today, so Brian will be feeling good for his trip this weekend to San Diego to see the Eagles/Chargers game. Twenty guys are going out for four days. It was planned well before his dx, his friends insisted he still go, and were all willing to adjust their plans out there to accomodate him if he was sick. I was worried, and he was bummed, that he would be sick from chemo this week, and be far from home, etc., so no chemo means he will be feel well enough to enjoy the trip and the game (provided the Eagles don't disappoint - HA HA).

    --Change in chemo schedule means he won't have chemo the day before Thanksgiving, and two days before Xmas, so he will be able to enjoy the holidays.

    --He has an appt. with a naturopathic doctor tomorrow night to support him through treatment and beyond.

    --We have contacts at UPenn and MSK if his comfort level with Fox Chase starts to wane.

    Not so great news:

    --Lesions on liver are all still there - eleven - three largest are still measureable, though smaller, and at this point, he is still not a candidate for any targeted therapies for liver.

    --No chemo today because his platelets are down. We both get concerned that missing chemo gives lesions a chance to grow - scary, and he is anxious to get through the twelve.

    --Onc's answer to his question "...what happens after the twelth if lesions are still there...?" She told him, "...More chemo, twelve is just a number...we hope that they will continue to shrink and that we will be able to do something, but we don't know at this point. Of course, we want you to live your life .... we understand it is difficult to make long range plans ... we're in this for the long haul...", etc., etc., etc.

    --Chemo schedule change wreaks havoc on my work schedule, which is already arranged and covered, meaning I may not be able to go with him to the next few treatments, and I don't want him to be alone for even one minute of this thing.

    --No chemo today means he has to postpone dental work he is waiting to have done, and more importantly, have the internal stitch that keeps working its way to the surface, causing him pain, taken care of.

    Overall, good news - we are moving in the right direction, and that is most important. I don't want to seem like I am ungrateful, and failing to embrace a blessing - I know how much worse it could be. But, I think he - we - kind of lulled ourselves into thinking the chemo would end at some point in the near future (I think only you guys would understand), and that he could get on with things, especially getting the incision/stitch issue addressed. Hopefully, that will happen.

    He has been a little down as the treatments have progressed. He is tired of not feeling well, and being tired; he is frustrated by not being able to do the things around the house he always did (and secretly likes to I think - it took me 23 years and a Stage IV cancer dx to get him to hire someone to cut the grass); he is frustrated by not being able to make plans, and know he will be well enough without worrying about "what if I'm sick, or need surgery, or hooked up to the pump, etc., etc., etc.

    Anyway, thank you for your prayers, and for allowing me to vent - sorry this is so long. One day at a time, right ... and some good news is always better than any bad.

    I pray for all of you on this board and your loved ones too. I pray that God, as you know him/her will bless and heal you all, that you'll be well and always have peace in your hearts.

    Thanks again,
    Donna

    Some good news
    Donna,

    I'm so glad for the good news. I do wish, as you do, that the lesions were all gone and not an issue at all. But we'll just keep praying about that.

    Looking forward to hearing about his trip. Hope he has a fabulous time!

    *hugs*
    Gail

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