CSN Login
Members Online: 13

You are here

5 years NED for this stage IV survivor............cancer free/cured?

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

I recently had my semi-annual testing and everything looked great. My oncologist was pretty animated (very rare for him) with trying to figure out what and when to test with me going forward since I am in non-surgical remission.

It seemed to freak him out that he can't "explain" my NEDness which strikes me as strange. You would think that after 30 plus years in GI oncology that he would have seen enough things that he can't explain that he would just admit that there are things out there that docs can't explain (DUH!!!). He came across as uncomfortable until I said I'd like to some back a year from now for testing so we agreed to that.

I was disappointed I didn't get to hear him say the word CURED but he just wouldn't do it. He did say cancer free so I will take that until the day I force him to say I am cured!!!

My emotions are all over the place as I remember some dear friends I have lost to this monster and watch so many others fighting for their lives. I will take them all with me to Key West in a few weeks to celebrate live and lives @ ColonPalooza 7!!!

For you newbies out there, I was given 2-3 years to live in March 2004 with mets to my liver and left lung. Surgery was not an option so I did chemo for 8 months but stopped it once I felt it was attacking my spirit and soul. I did lots of alternative things and my situation just got better and better over the last few years. I do pinch myself to make sure I really am still alive.

Don't stop believing and as fedester says never give up!!!!

Ironically while we are in Key West, I will celebrate the 5th anniversary of my last chemo treatment!!!! We will send cyber toasts to you all!!!

SEMI-COLONS ROCK!!!

Lisa P.

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

Keep me posted on how y'all are doing!!!

I'm not on here as much as I used to be. I am taking an on line chocolate class (seriously) and adding that to my usual schedule takes away from computer time.

Much love back at you both!!!

Fight for my love
Posts: 1530
Joined: Jun 2009

Hi dear Lisa,this is so cool!I am always extremely happy to hear stories about long term survivors.Congratulations!Enjoy being NED and enjoy everyday!

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

I hope this thread brings out some of the others that inspired me!!!!

Stacy and Foxy come to mind first!!!

Fb489
Posts: 69
Joined: Sep 2009

You are one of the lucky ones. My husband is stage four colon cancer that spred to his liver.
He is reluctant to do chemo. What alternative treatment did you do.
Would appreciate any advise you have.

Hatshepsut's picture
Hatshepsut
Posts: 340
Joined: Nov 2006

Lisa:

I am delighted to read your post. Congratulations on such a wonderful outcome. Whatever treatment choices people make in their cancer battles, eating healthful foods and taking extra time to exercise, relax and seek inspiration can complement their healing plans.

Hatshepsut

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

I look forward to seeing docs acknowledge how much some of the easy little things we all can do can help us save our own lives.

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

But I also researched a great deal, calculated when the best time to stop chemo was, and then worked very hard on my keeping my blood levels up and my urine alkaline (hours a day every day for months and months).

You can read more about what I did on my personal web page here. If you still want to know more, just drop me a personal email here.

Devasted
Posts: 186
Joined: Jun 2009

Scouty,

You have truly been an inspiration to us. When reading the stats on the internet the day my husband was dx'd things seemed impossible and I found this site...it has given us hope for tomorrow. Thanks to you all ;)

Enjoy Key West

changing2
Posts: 118
Joined: Jul 2008

Go celebrate and enjoy life to the fullest!

jean13
Posts: 1
Joined: Oct 2009

Hi Scouty,

Congratulations on your CURE.

I was diagnosed Stage IV last year with a liver met that was surgically treated, then Folfox for 6 months. Unfortunately it's back in my liver again. So, probably more surgery in my future.

I would love to hear what sort of alternative things you did that might have helped you beat this. What chemo did you get?

Enjoy Key West! Hope to hear from you.

Jean

catherine58's picture
catherine58
Posts: 92
Joined: Feb 2007

That's great news, Lisa. Well done!

Catherine

StacyGleaso's picture
StacyGleaso
Posts: 1250
Joined: Mar 2003

I had the honor of meeting "scouty"...(Lisa)....back in 2003 through this site. She is one of the "staples" here who I regard as a very close friend. Yes, we have locked horns at times, mainly because we're cut from the same cloth! But when it's all said and done, she's like one of my sisters. We are forever united with our cancer diagnoses, and now are forever united with our CURED status. You have educated, inspired and intrigued SOOOOOOOO many on here. You have given back to this community without hesitation.

So on this joyous day, I raise my glass of COORS LIGHT (no carrot kelp...throw caution to the wind!) to you my friend....may you live to enjoy many more sunrises and sunsets and may you always have the comfort of knowing we all love you!!!!!!!!!

Hugs!!!!!!

Stacy

valeriec's picture
valeriec
Posts: 350
Joined: Oct 2006

That's what you are!! I was so happy to see your post tonight. Wonderful, wonderful news for a wonderful, wonderful person. I will never forget how helpful you were to me and my family when my mom was diagnosed. Celebrate and enjoy your time in Key West.
Love to you-
ValerieC

Moesimo's picture
Moesimo
Posts: 1080
Joined: Aug 2003

Lisa,

What great news!!! WOOOOHOOOO!!!

I am so happy for you that you reached this milestone.

Have a great time in Key West, have a drink for me. I will have one for you in MA.

My docs have also not used the words cured and I am 6 years out from my stage 3 diagnosis.

You have been such an inspiration to me and others on this board.

Maureen

elizabethgd
Posts: 146
Joined: May 2009

It is wonderful to hear your great news!!! You have been a life saver for many of us. Thank you for all you have done ...Have a great time in Key West!!
Elizabeth

serrana
Posts: 163
Joined: Apr 2009

Bravo Lisa, what an inspiration your story is. I've read your story and wonder if you would post your specific alt med program for us? Also, I have problems digesting ( the dreaded runs) raw veggies........did you have that problem w/ juicing? If so what did you do?
Serrana

Fb489
Posts: 69
Joined: Sep 2009

this is the posting I told you about

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Since a lot of us were beginning to feel depressed, thank you Fb489 for finding these postings and bringing them to the forefront for us to read and to uplift us.
Thank you.

Anonymous user (not verified)

This comment has been removed by the Moderator

sasjourney
Posts: 395
Joined: Jul 2010

Lisa,

I am a new member with stage IV cancer and I really needed to hear your great news. There is so much sadness and devastation with this disease and it helps everyone to hear when someone is "cured" and you are. Thank you for sharing...you are an inspiration.

Enjoy your beautiful life!!!

Love,

Sara

chicoturner's picture
chicoturner
Posts: 285
Joined: Apr 2009

CONGRADULATIONS, your story made me cry in joy! Thank you for sharing, as you give us all hope. It seems there has been lots of sadness lately and we all needed to hear your story. Thank you so much! Jean

impactzone's picture
impactzone
Posts: 538
Joined: Aug 2006

Just awesome news...
Congrats and thanks for all your uplifting help and comments
Chip

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

I read this and didn't realize it was an old post from 2009 until Lisa mentioned Colon Palooza 7 and I thought "hey, I thought colonpalooza 8 is coming up", then I looked at the date. This is great to read, though!

Lisa P., if you're reading this, know that you are an inspiration! I always forget that you were stage IV. It' been about a year, did you ever go for that follow up w/ your onc & if so, what did he say?

I understand why oncs are always hesitant to say "cured", but wow- 10 years! I would think that'd be considered cured! What is the time difference between when something is a recurrence and when it would be considered a new cancer just due to the amount of time that has elapsed since being deemed "cancer free"? Anyone?

Lisa 42 (who's now 44, lol!)

kristasplace's picture
kristasplace
Posts: 956
Joined: Oct 2007

Whomever dug up this old post, thank you so much! Lisa's story is exactly what i needed to hear right now. Especially since i've opted out of chemo. I'm so devastated by all the losses this month, particularly Kimby since our histories were so similar, and her passing was such an unexpected surprise. We can't know which outcome we'll have when fighting this disease, and i often wonder why i think i'll come out on the winning side when the odds are not that good. Just the fact that it's possible to survive because we've seen those who have keeps me holding on to the notion that i WILL be one of them. We need to hear more stories like Lisa's, so i will start a discussion asking for them.

Love you guys!
Krista

jams67's picture
jams67
Posts: 927
Joined: May 2006

This marks my 5th year as a stage 4. I read Lisa's post and remembered that she had her 5 year anniversary last year, and then noticed the date. Just wanted all of you to know that I am 5 years cancer free also. My onc is flirting with the "cured" word but hasn't said it yet. Any of you thinking of CP8, please try to come, it is so much fun and not morose at all. We do take time to talk and remember, but mostly just have a good time together celebrating the fact that we are still alive. I've experienced so many things in the 5 years that I've been given, and I'm looking forward to whatever is in store for me, knowing I could be run over by a truck tomorrow. The way I drive, it wouldn't be too surprising.
Jo Ann

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

I have met amazing people at the Colonpaloozas....looking forward to meeting more this year!!!

Hugs, Kathi

traci43's picture
traci43
Posts: 775
Joined: Jul 2007

I too am a stage IV going on 3 years, but with 2 recurrences. I hope that one day I will make 5 yrs NED like you. What alternative things did you do?

jams67's picture
jams67
Posts: 927
Joined: May 2006

Not much of any for me. I exercise as I did before and eat a semi-healthy diet for my semi-colon. I've been NED since '05 and count this site as a life saver. Love all of you and pray for you very often. Jo Ann

JADot's picture
JADot
Posts: 720
Joined: Jan 2006

Scouty,

You go girl! You did it. Congratulations!

Ying

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

Right, Scouty?

To the original dancer from the one inspired!!!

Hugs, Kathi

Fb489
Posts: 69
Joined: Sep 2009

very happy for you.
May more people be lucky like you.

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

FB489- I'm so glad you found this post of Lisa's (Scouty) and commented on it- it is a year and a half, almost 2 years, old, so that means that Scouty has now been cancer free for 6-1/2, close to 7 years!!
This so does give me hope- she was stage IV with nodules in her lungs and liver- and now she's cancer free!
I think I'm going to send Scouty a PM!

Lisa

luvmum
Posts: 457
Joined: Dec 2010

Thank you very much Fb489! This post gives me hope...

Scouty, you are truly my inspiration and reading your post and history always give me hope! Thank you very much for being here for all of us.

Love Dora

thxmiker's picture
thxmiker
Posts: 1282
Joined: Oct 2010

Seriously Congrats to you!

Don't look back, and leave cancer behind you! Statistics are in your favor!

Best Always, mike

TMac52's picture
TMac52
Posts: 358
Joined: Aug 2010

Scouty, you were the 1rst person I friended on this board. You sent a note in response to my post and I then read your profile. I was very impressed by your journey and wanted to have you as a friend as was just starting mine. I am so happy to see your victory over this beast. lately it has been sad for me to read about so much pain here. I have my last post-op chemo treatment on Monday and want so much to follow in your footsteps to recovery.
I also want to get your address so I can hide in a tree the next time your doing the naked happy dance in your front yard HAHAHA !!!!
Have a blast in key west!! Cheers!!
Tom

Love2Cats's picture
Love2Cats
Posts: 127
Joined: Dec 2010

Thanks for sharing your story. It really feels good to hear such a positive outcome, you give me hope!

Sandy

Kenny H.'s picture
Kenny H.
Posts: 503
Joined: Aug 2010

Congrats & great news...
Its posts like this I love to read & gives us all inspration!

k1
Posts: 220
Joined: Dec 2009

Research has shown that using a dog for companionship and comfort can lead to a longer, healthier life.

LOL

I have a tshirt that says that.

Just read your post and saw your profile pic with the dog and couldn't resist making the comment.

You give us all hope.

Kim

Pages

Subscribe to Comments for "5 years NED for this stage IV survivor............cancer free/cured?"