Pet scan results pt 2

Options
snommintj
snommintj Member Posts: 601
edited March 2014 in Colorectal Cancer #1
Well. I'm still smiling but it's bad news. I have 10 new tumors. 4 in my left lung, one in my right. Plus 5 in my liver. The results seemed puzzling since my last CT scan in April showed only one possibly tiny spot in each lung. I start chemo on monday. I would have had my Thyroid and lung tumors taken out at the end of the month but the liver involvement has pushed that back at least three months. This recent set back is worrisome. I don't know how much longer folfox is going to be effective. I've had 9 rounds. I don't respond to folfiri at all. They did the KRAS study and I probably won't respond to erbitux. So this could be my last stand. Luckily all my tumors are resectable. My lung tumors are small and on the outer perimeter of my lungs. My surgeon said they wouldn't be a problem. The tumors in the liver are confined to one lobe and he said he would remove the entire lobe if necessary. So I still have a shot, but this could very well be my last. Hopefully I will continue to respond well to the chemo long enough to get things turned around. If nothing else I was NED for about a week.

Comments

  • lisa42
    lisa42 Member Posts: 3,625 Member
    #2
    Options
    Oh, man!
    Hi John,

    I'm sorry to hear it- I am thinking of you and am pulling for you. If nothing else has been gained through going through cancer treatments, it's definitely a "toughening" process. We learn to deal with crappy news and still go on. I've discovered I'm now a lot better at dealing with setbacks or difficult situations in other areas of life now than my husband is or any of my other family members are. Dealing with "the beast" has "helped" me deal with many things in life now. It definitely does suck, though- man, I feel your disappointment and pain, and I'm "kicking cans" for you.
    You take care and keep at it- you just never know- you may have a miraculous response to the chemo this time!

    Blessings,
    Lisa
  • kayb48
    kayb48 Member Posts: 13
    #3
    Options
    I will say a pray for you
    I will say a pray for you everyday. Keep fighting. Prayer has gotten me through the last six months. Kay
  • Shayenne
    Shayenne Member Posts: 2,342
    #4
    Options
    lisa42 said:

    Oh, man!
    Hi John,

    I'm sorry to hear it- I am thinking of you and am pulling for you. If nothing else has been gained through going through cancer treatments, it's definitely a "toughening" process. We learn to deal with crappy news and still go on. I've discovered I'm now a lot better at dealing with setbacks or difficult situations in other areas of life now than my husband is or any of my other family members are. Dealing with "the beast" has "helped" me deal with many things in life now. It definitely does suck, though- man, I feel your disappointment and pain, and I'm "kicking cans" for you.
    You take care and keep at it- you just never know- you may have a miraculous response to the chemo this time!

    Blessings,
    Lisa

    Don't Give Up!
    You never know, the next or so chemo treatments may work also! keep thinking positive, I know harder said then done, but with bad there's good somewhere! Don't let this news get you down too much, maybe you could always go for a second opinion elsewhere if they think they done all they can??? I know I would! I'm so sorry for this setback, just keep your chin up, and know we're all still here for you! You will still be in my thoughts and prayers!

    Hugsss!
    ~Donna
  • VickiCO
    VickiCO Member Posts: 917
    #5
    Options
    Oh John
    I am sorry for this setback. But you are a FIGHTER, as you have proven over and over again. Keep fighting. We are here for you as well.

    Many, many hugs coming your way. Vicki
  • Paula G.
    Paula G. Member Posts: 596
    #6
    Options
    Damn it
    Sorry John, I really hated to hear your news. I hope you will respond to the chemo and the surgery will be a success. We will all be pulling for you so keep us updated. You will be in my thoughts and prayers. Don't give up.
    I don't know much about other treatments so I'm not much help. My huband is on FOLFOX + Avastin now. He will have it six months and he says a round is two treatments?? He isn't here now so I can't ask. I'm sure you know more because you have been through so much already. Anyway stay strong and don't give up. Paula G.
  • grandma2selena
    grandma2selena Member Posts: 199
    #7
    Options
    Sorry
    I am so sorry that you had to recieve this news. I will be praying for you. Hang in there, be tough, have faith in yourself and in your fight!

    Debbie
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #8
    Options
    Man
    Oh, John. I'm really, really sorry you got that news. Not what we wanted to hear at all. You seem really positive and strong, and I just pray you'll get through this setback in much better shape than you might be thinking now. Keep us posted on what's going on.

    *hugs*
    Gail
  • kimby
    kimby Member Posts: 797
    #9
    Options
    Piffle!
    That just sucks! You've fought the good fight before....here you go again. sigh. Live Strong, dear friend.

    Kimby
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    #10
    Options
    kimby said:

    Piffle!
    That just sucks! You've fought the good fight before....here you go again. sigh. Live Strong, dear friend.

    Kimby

    John..... Boxing Glove Time
    I know you won't give up hope because in just the short time I have read your posts I hear your strength.

    "IT'S NOT THE SIZE OF THE DOG IN THE FIGHT ..... IT'S THE SIZE OF THE FIGHT IN THE DOG"!!!

    By the way, my oncologist back in Illinois is working on a clinical trial for stage IV peoples who are not responding to any current chemo's and he said he is having a good success rate. New things are on the horizon.

    Take care

    Jennie
  • eric38
    eric38 Member Posts: 583
    #11
    Options
    kimby said:

    Piffle!
    That just sucks! You've fought the good fight before....here you go again. sigh. Live Strong, dear friend.

    Kimby

    I think anything that is
    I think anything that is resectable still leaves a chance for cure or at least long term remission. I am sorry to hear the news but there is always hope.
  • eric38
    eric38 Member Posts: 583
    #12
    Options
    idlehunters said:

    John..... Boxing Glove Time
    I know you won't give up hope because in just the short time I have read your posts I hear your strength.

    "IT'S NOT THE SIZE OF THE DOG IN THE FIGHT ..... IT'S THE SIZE OF THE FIGHT IN THE DOG"!!!

    By the way, my oncologist back in Illinois is working on a clinical trial for stage IV peoples who are not responding to any current chemo's and he said he is having a good success rate. New things are on the horizon.

    Take care

    Jennie

    Jennie - Considering your
    Jennie - Considering your state of mind when you began this journey I am glad to see that you are in such a positive frame of mind. Apparently full of vinegar and ready to fight. Don`t use the boxing gloves. Take them off and don`t pull any punches.

    Eric
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #13
    Options
    John
    John,
    So sorry about the news. You are such a fighter and your spirit is strong! It sounds good that everything looks resectable. I'll pray for you. I hope the chemo does turn things around.
    Aloha,
    Kathleen
  • mom_2_3
    mom_2_3 Member Posts: 953 Member
    #14
    Options
    Strong thoughts
    John,

    You are a fighter and those pesky mets are not going to stop you. My thoughts and prayers are with you and your family as you move forward with your gameplan.

    Amy
  • califsue
    califsue Member Posts: 80
    #15
    Options
    mom_2_3 said:

    Strong thoughts
    John,

    You are a fighter and those pesky mets are not going to stop you. My thoughts and prayers are with you and your family as you move forward with your gameplan.

    Amy

    John
    John,

    I'm sorry that new tumors showed up on your PET. You have always been an inspiration to me. Your fighting attitude reminds me of The Four Agreements, written by don Miguel Ruiz. 1) Be impeccable with your word; 2) Don't take anything personally; 3) Don't make assumptions; and 4) Always do your best.

    Together in hope,
    Susan
  • Paula G.
    Paula G. Member Posts: 596
    #16
    Options
    Wondering
    Hey John, Are there any studies you could go on??? I don't know if you have done this or not. I was just thinking about it. Might be worth checking into it. PaulaG.
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    #17
    Options
    califsue said:

    John
    John,

    I'm sorry that new tumors showed up on your PET. You have always been an inspiration to me. Your fighting attitude reminds me of The Four Agreements, written by don Miguel Ruiz. 1) Be impeccable with your word; 2) Don't take anything personally; 3) Don't make assumptions; and 4) Always do your best.

    Together in hope,
    Susan

    John
    Eric touched base when he said my state of mind has changed drastically since I first came on board here. Buzzard said get "pissed" at this disease..... and I did... and it helped. I no longer feel sorry for myself... I thrive off of strength that people like yourself have given me. The knowledge I gain here is pnenominal(sp?) Keep your head up....it will be ok

    Jennie
  • Julie 44
    Julie 44 Member Posts: 476 Member
    #18
    Options
    Paula G. said:

    Wondering
    Hey John, Are there any studies you could go on??? I don't know if you have done this or not. I was just thinking about it. Might be worth checking into it. PaulaG.

    HOLY CRAP

    John,
    OMGosh what the hell!!!! I am sooo sorry for everything you are going through...enough is enough you have been going through more than your fair share...I give you alot of credit for fighting as hard as you do..I hope you are proud of yourself cause you are one of a kind...I don't know if I could fight as hard as you do....Keep on pushing forward and you will prevail!!! Good luck!!! Just know we are all fighting hard for you... You have helped me out sooo much with your additude and knowledge and bravery that I can't say thank you enough...I am here for you now...
    I am praying hard for you and your family... JULIE
  • jillpls
    jillpls Member Posts: 238
    #19
    Options
    keep a positive attitude
    I'm really sorry to hear your news but you do seem to have a good attitude and that will get you through this. I hope you are seeing the best drs your insurance will allow. There are some clinical trials out there that might work for you. Talk to your dr. Keep fighting and I'll keep you in my thoughts and prayers.
    Jill

Discussion Boards