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Adamantinoma

cunderwood
cunderwood CSN Member Posts: 1
edited March 2014 in Bone Cancers #1
Do you have Adamantinoma?
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Comments

  • Rebecca Graham
    Rebecca Graham CSN Member Posts: 1
    #2
    Looking for info and support
    Hi my six year old little girl has recently been diagnosed and we are hoping the treatment chosen is the best, they have taken 13cms of her tibia and we have just started to regrow the bone.Is there any body going through the same kind of thing that can share with me their experiences
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  • sugary_snacks
    sugary_snacks CSN Member Posts: 11 Member
    #3
    https://csn.cancer.org/discussion/comment/698782#Comment_698782

    Hi Rebecca, I see your post is from 13 years ago. My son is 12 and is going through a similar experience: OFD-life adamantinoma on the left tibia. So, I wanted to ask you how things went for your daughter. She must be around 19 now?

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