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Back from Hospital

Annabelle41415's picture
Annabelle41415
Posts: 6722
Joined: Feb 2009

Hi all: Just wanted to let you know I'm home from surgery. Doctor told my husband that it went better than expected and he was able to do a j-pouch with temporary ileostomy and that everything looked good and the tumor had shrunk really well. Surgery was to last anywhere from 4-6 hours and it was about 4 1/2. I was so sick from anesthetic because I told them how frightened I was from seeing that movie "awake" so they gave me a little extra, but of course I didn't wake up.

I've been drinking a lot of water and trying to walk as much as possible, but my appetite is just not there. I think it is from drinking so much water. Yesterday I had 1 egg and half a piece of toast and today I had 1 egg and 1/2 pudding cup.

Wow it is so hard to turn over in bed without the side rails there. I sure counted on those to get me in and out of bed.

I have the home care nurse coming tomorrow so I am gathering a list of questions. I feel lost with this ileostomy as I didn't know until less than a week before surgery I was having it (thought it was a permanent colostomy) so I'm not sure of what to expect.

Thanks for keeping me in your thoughts and prayers.

Hugs!
Kim

PamPam2's picture
PamPam2
Posts: 376
Joined: Jan 2009

Hi Kim. Glad to hear you got through surgery ok and home already. Also great to hear the ostomy can be reversed. I was sure glad when I got mine reversed, though I guess it got pretty routine to deal with it, after a while. The couch became my bed after surgery for awhile, as I could prop myself up sideways on it easier and get on and off it much easier than my bed, and I pulled the coffee table up close to keep all my stuff close. If you have any questions about the ostomy just ask, there are lots of us here that have had to deal with one. Be careful as you heal, and wishing you best as you recuperate.
Pam

Glv49
Posts: 206
Joined: May 2005

So glad your home and everything went well for you. I don't know anything about the illeostomy, only the colostomy. You will be up and feeling good in no time. My hubby's surgery is this Friday, for his liver resection. As always, keeping everyone here in my prayers.

Gail

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

I am glad it went so well and you are home already. I have been thinking of you and praying a lot. Take it one day at a time...and keep walking. It truly does help.

Welcome back! Vicki

usakat's picture
usakat
Posts: 625
Joined: Jul 2006

Hello Kim ~

Glad your surgery went well and that you seem to be recovering as close to perfectly as possible. Good for you! You have an amazing spirit and a great attitude - you'll be fine. I truly admire your strength.

Keep us posted on your progress and let us know how we can help.

My thoughts and prayers for comfort and healing are yours!

Gentle Hugs,
Katie

spongebob's picture
spongebob
Posts: 2598
Joined: Apr 2003

Hey, Kim -

Glad to hear things went well for you. Good to have you back!

Be well

- SB

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

I am so glad to hear you are home and the surgery went well! I was lucky the first time I went in for the abdominal surgery, my mother (a retired RN) was with me and showed me how to get myself up and out of my bed without any trouble! I do remember not only being afraid I wouldn't be able to get out of bed, but I was afraid of the darkness of my room! After having those lights constantly at the hospital, my small town home was very, very dark at night! In fact, I had to leave a light on in my closet for the first few nights! :) Hope you recover super fast and I look forward to more posts on your journey! I continue to pray for you.
mary

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Hi Kim,
It is so good to see you posting and to see your smiling face. It's good to hear your home. We're thinking of you. I hope the nurse visit tomorrow goes well and you get all your questions answered.
Aloha,
Kathleen

mom_2_3
Posts: 965
Joined: Nov 2008

Kim,

So glad you're home. I found that my mental attitude was so much better as soon as we pulled into the driveway of our home. "There's no place like home, there's no place like home."

When getting out of bed remember not to try to sit straight up but to roll-over to one side and get up from the position.

Best wishes for a speedy recovery!!

Amy

kmygil
Posts: 881
Joined: Feb 2007

Hi Kim,

It is good to hear that you are home and that your surgery went well. Yes, getting out of bed without those railings is not easy, but I found that rolling onto your side and sitting up sideways, rather than straight up like a situp, is much easier. It becomes sort of a rolling motion out of bed instead of a series of straight motions. Anyway, heal quickly.

Praying for you,
Kirsten

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

I remembered you in prayer and am so happy to hear your report! I'll be thinking of you during the day and sending up a prayer for your pain and appetite (other needs, too). Welcome Home gal!

Hey, how many of your 8 kids still live at home? I almost fell out of my chair when I saw you have 8 children! Whew! God bless ya, woman!

dixchi's picture
dixchi
Posts: 438
Joined: Jun 2008

So glad to hear the surgery went smoothly and that you are back
home; ditto on the suggestion about walking as much as you can
and be good to yourself.....am sure the appetite will pick up
soon.
Hugs,
Barbara

Kanort's picture
Kanort
Posts: 1275
Joined: Jan 2004

Hi Kim,

I'm glad you are recovering at home. Being around the things you love is very healing in itself. Take care and keep us posted on your progress.

Hugs,

Kay

lmliess's picture
lmliess
Posts: 331
Joined: Dec 2008

Glad everything went well. Keep walking and drinking that water!

angelsbaby's picture
angelsbaby
Posts: 1171
Joined: May 2008

Theres no place like home, get well soon

michelle

kimby's picture
kimby
Posts: 804
Joined: Oct 2007

Heal well and take care of yourself. I'm glad it went well and know it will get better everyday.

Hugs,

Kimby

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Kim,

I'm so glad to hear from you and that you're home and doing alright. I remember following my surgery (liver, not colon) that I thought I'd never be able to get up or move on my own again. Lying in bed once home, propped up with pillows behind me and on both sides of me for a couple of weeks was quite an experience too. Then, little by little, it gets better and easier. You'll be fine. I'm glad to hear you were able to get the temporary ileostomy with the j pouch.
Try to keep moving, but listen to your body and don't overdo it. I tried to be a bit "too brave" at first and ended up overdoing it so that I could hardly move again for a couple of days, at one time. I learned then that I needed to push myself gently (sounds like an oxymoron doesn't it- can one gently push oneself? :) Anyhow, that's what I did from then on and it worked.

Take care and God bless,
Lisa

lmliess's picture
lmliess
Posts: 331
Joined: Dec 2008

I noticed in one of your posts you had liver resection done? I am heading to MD Anderson next week for my mets to be removed by Dr Curley. 2/3 of the liver. I am starting to get anxious. What can I expect afterwards pain wise? Where do they actually go in? Front or back? I am still recovering from the colostomy surgery so I just wanted to get an idea how much this will put me back down?

Any suggestions or advise?

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi,

You probably noticed already (hopefully) that I responded to this in your other thread where you asked about my liver resection.
Take care-
Lisa

tootsie1's picture
tootsie1
Posts: 5065
Joined: Feb 2008

I'm so glad to hear from you, Kim. Glad you did well in the surgery! I'll be praying your pain will be less very soon. Sending good thoughts your way right now!

*hugs*
Gail

Monicaemilia's picture
Monicaemilia
Posts: 455
Joined: Nov 2006

Hi Kim: First of all, I am really happy that everything went well and you are well on the road to recovery. I have had an iliestomy for three years and I have had a colostomy for a short while. An Iliestomy is much easier to handle and deal with. To me it is now part of me and does not bother me at all. If you have any questions that I can help with, please do not hesitate to e-mail me directly. Monica

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

so glad you made it through.i have been out of the loop for a few day #2 treatment did a doosey on me.my face even swelled up.you take care.i picked me out a path in my house and walked it several times a day this really helped me heal faster after surgery.Godbless....johnnybegood

PhillieG's picture
PhillieG
Posts: 4912
Joined: May 2005

Welcome back. I hope you have a very speedy, easy recovery
-p

Annabelle41415's picture
Annabelle41415
Posts: 6722
Joined: Feb 2009

Thank you for your warm welcome home and recovery messages. After posting that, I haven't been on the computer much at all.

I'm having a hard time getting any nutrition since I can't seem to eat much without getting full. Think drinking all that water to stop from being dehydrated is causing that. I'm trying to eat but just get too full

Also, it seems like some people go off pain meds pretty quickly after returning home. Wow, I can't do that. I went 8 hours and I was hurting so bad I couldn't even walk so I'm trying not to overdo it and make sure I take it at least every six hours (except at night). I am trying to walk quite a bit too and I know that does help.

I pray for you all.

Hugs! Kim

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

by drinking koolaid or gatorade, or some other energy drink. The extra calories in the sugar may be what you need to get that extra boost to better healing. Of course, ensure and it's imitators would be better, lower sugar, but it might be too thick? And of course, if liquids is all you can handle right now, get someone to juice for you! Emily will tell you that's the BEST way to get nutrition in liquid form and lets your intestines and things rest while not depriving your body of the nutrition it desperately needs to heal!
mary

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Don't worry about staying on meds. I had a rough time with pain and actually I am still on meds 7 weeks later. The Docs say my problem was radiation more than the surgery...I am just not healing from the burns quickly. And then each time I have chemo or another setback of diarrhea, the bleeding and pain starts again. I am now on a 24/7 Fentynal patch and use Vicodin for breakthrough pain. I did worry about the drugs, but the doctors say I will heal faster if I don't have the stress of the pain.

As for nutrition, your appetite will come back. I finally tried adding pudding and glasses of milk (if you are tolerant) and it helped a lot. But mostly I ate cantaloupe. For me it's the perfect food and has the added benefit of being a natural emend, helping with the nausea as well.

Hang in there. And keep walking. Vicki

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