Can we do a ROLL CALL with everyone posting their name, cancer diagnosis, & where they are in treatm

lindaprocopio
lindaprocopio Member Posts: 1,980
edited March 2014 in Uterine Cancer #1
We have so many wonderful new people posting and I have been so busy with treatments and trying to keep my head above water at work. I am afraid I haven't really welcomed everyone (I APOLOGIZE; you can't possibly KNOW how glad I am that you all have found us!), and I am having trouble keeping everyone straight in my poor chemo-brained head.

So could you each just post under this thread with the name you'd like us to call you, what your cancer diagnosis is (if you have it yet), and where you are in your treatment. And if you want to say where you live, that would be cool too. I'll start it off:

Linda Procopio:
Stage III-c UPSC, radical hysterectomy 10/10/09; just finished 6 rounds of carboplatin/paciltaxol (sp?); with 8 weeks of radiation coming up after I recover from the chemo. I live in central Pennsylvania.
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Comments

  • barb55
    barb55 Member Posts: 91
    Kris Ann said:

    Hi Barb,
    Your the only

    Hi Barb,

    Your the only other lady I saw on this website that has received whole abdominal radiation besides my mom.. My question is did you have a lot of side effects from that radiation? My mother still gets lots of belly aches and diarhea etc. She had that abdominal radiation for almost 7 weeks. She is getting a ct scan this weekend. We are from MAss.. she goes to Dana Farber.. How about you? I see your from Rhode Island. Thanks for any info.. Kris Ann

    Hi neighbor
    Kris Ann, I was treated right next door at Beth Israel Hospital in Boston but had my radiation back here in Rhode Island. The radiologist in Boston strongly recommended the whole abdominal- my doc here in RI wasn't really keen about it at first but he performed it and took great care of me. Your mom is in a great hospital . Yes- the radiation was in some ways harder than the chemo. I remember being very nauseous and had plenty of diarrhea too, but it gradually retreated after the radiation ended. Fatigue lasted the longest. When did your mom's radiation treatment end?
  • mas910
    mas910 Member Posts: 6
    I'm Margaret from Ohio
    Hi, My name is Margaret and I am 54 years old. I was diagnosed with breast cancer in 1997, had mastectomy, 6 months of chemo and 6 weeks of radiation. Had one positive lymph node. Was on Tamoxifen for 5 years, ending in 2003.
    I had a TAH January 21, 2009. Found UPSC in a polyp in my uterus. I consulted with a gyn/onc at Ohio State University. I am scheduled to have lymph node biopsy with DaVinci robot on April 1st for staging. My gyn/onc has already said I will receive 3 rounds of taxol/carboplatin if all nodes negative and more chemo if any positive nodes found.
    I am an RN working in Hospice. This has really given me more insight to the patients that I care for. I guess there is always a silver lining if you look hard enough!
    I absolutely love this site, have learned a lot from all of you! Thanks!
  • Kris Ann
    Kris Ann Member Posts: 26
    barb55 said:

    Hi neighbor
    Kris Ann, I was treated right next door at Beth Israel Hospital in Boston but had my radiation back here in Rhode Island. The radiologist in Boston strongly recommended the whole abdominal- my doc here in RI wasn't really keen about it at first but he performed it and took great care of me. Your mom is in a great hospital . Yes- the radiation was in some ways harder than the chemo. I remember being very nauseous and had plenty of diarrhea too, but it gradually retreated after the radiation ended. Fatigue lasted the longest. When did your mom's radiation treatment end?

    Hi again Barb!! My mother's
    Hi again Barb!! My mother's last radiation was Oct. 3rd.. but that was last brachy.. her abdominal ended Sept. 15 approx... but she is still having crazy belly aches and stuff sometimes. Like it flairs up once in a while. And the radiologist at Dana Farber strongly reccomended the whole ab-radiation where as her oncologist said she could have done avastin for 1 year every three weeks.. but she ended up getting the radiation cuz the avastin was kind of a new optional treatment.
  • satarell
    satarell Member Posts: 1
    mas910 said:

    I'm Margaret from Ohio
    Hi, My name is Margaret and I am 54 years old. I was diagnosed with breast cancer in 1997, had mastectomy, 6 months of chemo and 6 weeks of radiation. Had one positive lymph node. Was on Tamoxifen for 5 years, ending in 2003.
    I had a TAH January 21, 2009. Found UPSC in a polyp in my uterus. I consulted with a gyn/onc at Ohio State University. I am scheduled to have lymph node biopsy with DaVinci robot on April 1st for staging. My gyn/onc has already said I will receive 3 rounds of taxol/carboplatin if all nodes negative and more chemo if any positive nodes found.
    I am an RN working in Hospice. This has really given me more insight to the patients that I care for. I guess there is always a silver lining if you look hard enough!
    I absolutely love this site, have learned a lot from all of you! Thanks!

    hi im satarell from texas
    hello my name is satarell or sat for short. I am 27 years old and I was diagnosed with adenosarcoma about 2 weeks ago. They want to do a full hysterectomy but keep going back for more biopsy. I haven't had any kids so they have gone to 3rd and 4th doctors to see if there are any options. They removed a cerviacl polyp that had mixed cells. They also found another mass on my right ovary.
    I worry they are to concerned over child birth more then the cancer.
  • deanna14
    deanna14 Member Posts: 732
    satarell said:

    hi im satarell from texas
    hello my name is satarell or sat for short. I am 27 years old and I was diagnosed with adenosarcoma about 2 weeks ago. They want to do a full hysterectomy but keep going back for more biopsy. I haven't had any kids so they have gone to 3rd and 4th doctors to see if there are any options. They removed a cerviacl polyp that had mixed cells. They also found another mass on my right ovary.
    I worry they are to concerned over child birth more then the cancer.

    Roll Call
    Hi, I am Deanna. I am 39 years old and my doctor performed a hysteroscope in July 2008 where he found a polyp that was malignant. I was seen by a gyn/onc in August 2008, who then performed a total abdominal hysterectomy with staging on September 11, 2008. I had Stage IIIC Mixed endometrial and papillary serous carcinoma, I had one positive pelvic lymph node. I started treatment with 25 external radiation in October 2008 and finished in December with 3 internal HDR txs. I also planned a wedding and got married in November while taking radiation treatments, lol! I started chemotherapy in Jan.and will have carbo and taxol every 21 days for 6 or 7 cycles. I have already complete 3 of these treatments and tx #4 postponed due to low blood counts. I am being treated at by Cox Health Systems in Springfield Missouri at the Hulston Cancer Center.
    God Bless you all,
    Live Strong!!
    Deanna
  • justada
    justada Member Posts: 6
    I'm here--sometimes.
    My name is Ada. As of June, I will celebrate 4 years cancer-free. I was diagnosed endometrial hyperplasia in January, 2005. Was treated with meds until a biopsy in May of that year. They found atypical complex cells at that time. I was given the options of more meds, D&C, or hysterectomy. I chose the hysterectomy. They removed a fibroid at the same time. Pathology found stage 1 cells in both the uterus and the fibroid.
    Sometimes I don't even feel as if I even had cancer, but I'm reminded of this fact every time I have a screening appointment. I pray that everyone here gets the best treatment and that we all become not only survivors, but overcomers.
  • shortmarge
    shortmarge Member Posts: 291
    justada said:

    I'm here--sometimes.
    My name is Ada. As of June, I will celebrate 4 years cancer-free. I was diagnosed endometrial hyperplasia in January, 2005. Was treated with meds until a biopsy in May of that year. They found atypical complex cells at that time. I was given the options of more meds, D&C, or hysterectomy. I chose the hysterectomy. They removed a fibroid at the same time. Pathology found stage 1 cells in both the uterus and the fibroid.
    Sometimes I don't even feel as if I even had cancer, but I'm reminded of this fact every time I have a screening appointment. I pray that everyone here gets the best treatment and that we all become not only survivors, but overcomers.

    Hi I'm Marge and Yes I'm Short!
    Stage IIA UPSC and Clear Cell Carcinoma. Radical hysterectomy 10/23/08; 4 rounds of carbo/taxol with 3 rounds of internal radiation (vagnial cuff) sandwiched in between. Finished treatments on January 14, 2009 and I'm feeling fabulous!!! (Except for my feet, ankle and hip pain and the hot flashes, hmmmmm what else did that stupid chemo and surgery do to me. Oh yes, memory lose... LOL.) I live in sunny North Carolina.

    MIND, BODY AND SOUL!

    Hugs.
  • kellyw314
    kellyw314 Member Posts: 51

    Hi I'm Marge and Yes I'm Short!
    Stage IIA UPSC and Clear Cell Carcinoma. Radical hysterectomy 10/23/08; 4 rounds of carbo/taxol with 3 rounds of internal radiation (vagnial cuff) sandwiched in between. Finished treatments on January 14, 2009 and I'm feeling fabulous!!! (Except for my feet, ankle and hip pain and the hot flashes, hmmmmm what else did that stupid chemo and surgery do to me. Oh yes, memory lose... LOL.) I live in sunny North Carolina.

    MIND, BODY AND SOUL!

    Hugs.

    My name is Kelly and I was
    My name is Kelly and I was diagnosed in May of 2006 with uterine cancer following a D & C - Total hysterectomy by a gyn/onc and was diagnosed with endometrial cancer/ Stage 1-C -- abdominal washing and 42 lymph nodes were all negative, but cancer had spread to 60% invasion of the uterine wall - received 27 external radiation treatments and internal radiation was not recommended because tumor had been confined to the upper third of my uterus - had a CT scan prior to radiation treatments to assist with radiation planning -- for the first 2 years had 3-4 month check-ups with gyn/onc (routine internal with occasional PAP)- at 2nd anniversary, the follow-ups have been extended to 6 month intervals--thus far all has been good -
  • Deblittleton
    Deblittleton Member Posts: 56 Member

    Hi I'm Marge and Yes I'm Short!
    Stage IIA UPSC and Clear Cell Carcinoma. Radical hysterectomy 10/23/08; 4 rounds of carbo/taxol with 3 rounds of internal radiation (vagnial cuff) sandwiched in between. Finished treatments on January 14, 2009 and I'm feeling fabulous!!! (Except for my feet, ankle and hip pain and the hot flashes, hmmmmm what else did that stupid chemo and surgery do to me. Oh yes, memory lose... LOL.) I live in sunny North Carolina.

    MIND, BODY AND SOUL!

    Hugs.

    Hi I'm Deb
    I was diagnosed with Stage IIIC endometrial cancer. Feb 3rd had a total abd hyst and oophorectomy with 25 lymph nodes removed. All 25 tested negative. This past week was my second round of chemo with taxol and carbo via a PICC line. I receive Neulasta 24 hrs after each treatment even before my numbers are known. Once I finish my 6 treatments it will be on to radiation for 5 wks-5 times a week. Then brachy. Not sure how much of that yet. I live in Colorado by way of Boston. My best therapy will be in April when the 4 grandkids from Boston come out to visit Nana. I can not wait!
  • irishohiogirl
    irishohiogirl Member Posts: 10
    Roll Call
    Hi my name is Kelly with a screen name of irishohiogirl. I live in Westerville Ohio, I was diagnosed Sept 2007 at the age of 39 after a hysterectomy for fibroids with grade3 adenocarcinoma endometrial cancer. Had a second surgery for staging -removed close to 30 lymph nodes with 3 being positive one in my para aorta node. I am stage 3C grade3. Went through six weeks of radiation to abdomen and pelvis (still have abdominal pain and gastrointestinal issues as a result)and then 6 months of chemo Carboplatin and Taxol. Had lots of problems with white blood cells and received Neulasta after every chemo. Finished chemo in July and now have to have CT scan on April 9th after my check up CT revealed "conspicuous" enlarged lymph node in my chest. I feel blessed to be here and am grateful for all of you who share your journeys.
  • tbsjewels
    tbsjewels Member Posts: 7
    Hi, my name is Terry and I
    Hi, my name is Terry and I hail from a small town just outside of St. Louis, Mo. I recieved my treatments at Siteman Cancer Center. I was originally diagnosed with Endometrial Cancer following a hysterectomy for other reasons in 2002. It was very small and early stages and I recieved no further treatment, just followup, 3 months first year and then 6mon. for next 4 years. I was just shy of 5 yrs. when I had a reoccurrance which involved a 15cm. tumor wrapped around my transverse colon. After my surgery in Aug. 07 I did the standard 6 treatments with Taxol/Carboplatin. Currently I'm 1 year and 2 months since the end of treatment and have been NED ever since. It's pretty scary since it came back almost 5 yrs. after my initial diagnosis. Hopefully the chemo got anything leftover and it won't return again.
  • jankenb
    jankenb Member Posts: 28
    roll call
    Hi I am Janet
    I am a 52 year old physician who had radical hysterectomy Feb 25, and since 2 pelvic nodes positive and washings positive, I am stage 3c Grade 1
    I started Chemo on March 25th with Carbo/taxol, I will recieve a total of 6 rounds.
    I start brachy therapy on April 17th for 3 weekly and then External beam radiation on May 11th for 25 rounds

    I had a PET/ctscan on March 25th because my doc thought this was all unusual for grade 1 tumour, and it was negative.

    I am not certain what UPSC means but my tumour is endometrioid

    janet
  • deanna14
    deanna14 Member Posts: 732
    jankenb said:

    roll call
    Hi I am Janet
    I am a 52 year old physician who had radical hysterectomy Feb 25, and since 2 pelvic nodes positive and washings positive, I am stage 3c Grade 1
    I started Chemo on March 25th with Carbo/taxol, I will recieve a total of 6 rounds.
    I start brachy therapy on April 17th for 3 weekly and then External beam radiation on May 11th for 25 rounds

    I had a PET/ctscan on March 25th because my doc thought this was all unusual for grade 1 tumour, and it was negative.

    I am not certain what UPSC means but my tumour is endometrioid

    janet

    Welcome Janet!
    So sorry that you are going through all of this, but glad that you found this site. We have a really supportive group of ladies here. Your treatment sounds similar to that of most of us here. UPSC is uterine papillary serous carcinoma, it tends to be more aggressive and recurrent than endometriod uterine cancer. Thank goodness that yours is endometriod, I think the cure rate is pretty high for your type of cancer. We are all in various stages of recovery and treatment. It really helps to have these ladies as a sounding board, I hope you find it helpful also. Feel free to ask any questions, we are all pretty open and supportive. I hope you are feeling well after your first chemo treatment.
    Take care... hugs,
    Deanna
  • Rribbit
    Rribbit Member Posts: 9

    Roll Call
    Hi my name is Kelly with a screen name of irishohiogirl. I live in Westerville Ohio, I was diagnosed Sept 2007 at the age of 39 after a hysterectomy for fibroids with grade3 adenocarcinoma endometrial cancer. Had a second surgery for staging -removed close to 30 lymph nodes with 3 being positive one in my para aorta node. I am stage 3C grade3. Went through six weeks of radiation to abdomen and pelvis (still have abdominal pain and gastrointestinal issues as a result)and then 6 months of chemo Carboplatin and Taxol. Had lots of problems with white blood cells and received Neulasta after every chemo. Finished chemo in July and now have to have CT scan on April 9th after my check up CT revealed "conspicuous" enlarged lymph node in my chest. I feel blessed to be here and am grateful for all of you who share your journeys.

    Hi Kelly and all - My name is Paige and I'm 38. I was diagnosed Jan. 09 after hysterectomy for fibroids. Unfortunately - due to the surgery plan we had for fibroids, they left in my ovaries, tubes and of course nodes, not knowing the cancer was there. Initially they thought I was 1C with about 65% myometrial invasion and grade 3 hybrid histologic type of large cell/neuroendocrine(small cell) cancer. But I had a PET scan in March that revealed spread to 1 pelvic, 1 paraaortic and 1 portal lymph node (still can't figure out exactly where that is, but have been told it's up high behind the liver). So they now consider me stage 3C at a minimum and probably stage 4. All other organs are clear thus far. Started Cisplatin/Etoposide chemo in Feb and just finished 3rd round last week w/3 rounds to go. Will repeat the PET scan next week to see if chemo is working and determine next steps for radiation. Plan is for full abdominal radiation for 6 weeks in the middle of chemo. However I am scared about the long-term side effects I see some of you having from this :(

    Drs believe my portal node is a metastasis because it measures 3 cm. I am told that the portal node would be a highly risky surgery to do to go in and remove and also near impossible to radiate so chemo is the primary hope to reduce/eliminate it.

    So far my only side effects have been low white blood counts and random chest heaviness. Kelly did the Neulasta work for you? did you have any side effects from it? My Dr told me it might not work as well for me since I'm doing 3 days in a row every 3 weeks and it works better for 1 day plans....but I don't want to delay treatment. Apparently the neuroendocrine part of my cancer typically recurs within 2 years, so I'm willing to blow a nuke bomb off in my body if it will help prevent recurrance! From what I understand, once it recurs - there's not much more that can be done? But just chemo that can buy you a few months of time? Anyone have any knowledge or experience otherwise?
  • irishohiogirl
    irishohiogirl Member Posts: 10
    Rribbit said:

    Hi Kelly and all - My name is Paige and I'm 38. I was diagnosed Jan. 09 after hysterectomy for fibroids. Unfortunately - due to the surgery plan we had for fibroids, they left in my ovaries, tubes and of course nodes, not knowing the cancer was there. Initially they thought I was 1C with about 65% myometrial invasion and grade 3 hybrid histologic type of large cell/neuroendocrine(small cell) cancer. But I had a PET scan in March that revealed spread to 1 pelvic, 1 paraaortic and 1 portal lymph node (still can't figure out exactly where that is, but have been told it's up high behind the liver). So they now consider me stage 3C at a minimum and probably stage 4. All other organs are clear thus far. Started Cisplatin/Etoposide chemo in Feb and just finished 3rd round last week w/3 rounds to go. Will repeat the PET scan next week to see if chemo is working and determine next steps for radiation. Plan is for full abdominal radiation for 6 weeks in the middle of chemo. However I am scared about the long-term side effects I see some of you having from this :(

    Drs believe my portal node is a metastasis because it measures 3 cm. I am told that the portal node would be a highly risky surgery to do to go in and remove and also near impossible to radiate so chemo is the primary hope to reduce/eliminate it.

    So far my only side effects have been low white blood counts and random chest heaviness. Kelly did the Neulasta work for you? did you have any side effects from it? My Dr told me it might not work as well for me since I'm doing 3 days in a row every 3 weeks and it works better for 1 day plans....but I don't want to delay treatment. Apparently the neuroendocrine part of my cancer typically recurs within 2 years, so I'm willing to blow a nuke bomb off in my body if it will help prevent recurrance! From what I understand, once it recurs - there's not much more that can be done? But just chemo that can buy you a few months of time? Anyone have any knowledge or experience otherwise?

    Neulasta
    Hi Paige I am sorry for the delayed response I have been away from a computer for a few weeks. The Neulasta frequently couldn't get me up to par. I had several delays in treatment and was very frustrated. After the Neulasta I had bone pain in all of my large bones about 12 hours after the injection that lasted for about 3 days. My doc had given me a prescription for the pain that worked just grand and I was able to accomplish all of my daily activities. After I started drinking Echinacea tea by Yogi I noticed my ANC go up and between the Neulasta and the tea was able to get back on track. I would ask your doc if you can drink Echinacea tea just to be on safe side but it appeared to help me. I totally understand your thinking about nuking the bugger into oblivion...that will be my prayer for you:) Take good care of yourself.
    Big Hugs Kelly
  • bonniesue
    bonniesue Member Posts: 124
    nursey420 said:

    My Name is Lisa
    Hi everyone My name is Lisa I am a RN in the state of Minnesota. I was diagnosed on Jan 20 2009. Had total hyst on Feb 22 via Divinci robot. The cancer was 69% thru the wall and into my cervix. Lymph nodes and washing negitive. I am stage 2B. Started external beam radiaiton on 3/23 and will have internal HDR after the external is completed.I need 25 session of external and 4 session of internal. So every morning I get up and go to radiaiton. I was very happy to find this site as I felt that no one knew what I was going thru. There are support groups in my area for every cancer but mine.

    again concerns over my mom- nurse lisa and those with this
    I know you have responded in the past, but I am still anxious and I think you have about the same as my mom--Grade 1 stage 1C or 2B depending on which path report I look at and plus or minus lymphovascular invasion. Neg pelvic nodes and washings but only six pelvic lymph nodes taken. My concern is still that some are recommending just brachtherapy and some both. One plan was 27 txs of IMRT and two brachy so 4800 dose of rad plus brachy to add to 6000 as I understood it. My mom has started with this but I again am worried she will have bad complications like fistulas or small bowel problems and even though she is otherwise healthy(still working) very social she is 71 yo. These different recommendations come even as a difference within the rad. oncs and even between gyne oncs. I do not want a complication nor recurrence but it sounds like pelvic rad can give up to 5-15% complication rate. any advice?? my mom will be compliant and just feels frustrated and worried which is not helping her recovery and she was up post op day 1 and home after the robotic-- told all was well and then got the news two weeks later that the path report was more invasive which caused a frenzy of us getting other thoughts and opinions which takes a lot of time which cuts into your treatment and makes you jump to a decision. thanks bonnie
  • daisy366
    daisy366 Member Posts: 1,458 Member
    bonniesue said:

    again concerns over my mom- nurse lisa and those with this
    I know you have responded in the past, but I am still anxious and I think you have about the same as my mom--Grade 1 stage 1C or 2B depending on which path report I look at and plus or minus lymphovascular invasion. Neg pelvic nodes and washings but only six pelvic lymph nodes taken. My concern is still that some are recommending just brachtherapy and some both. One plan was 27 txs of IMRT and two brachy so 4800 dose of rad plus brachy to add to 6000 as I understood it. My mom has started with this but I again am worried she will have bad complications like fistulas or small bowel problems and even though she is otherwise healthy(still working) very social she is 71 yo. These different recommendations come even as a difference within the rad. oncs and even between gyne oncs. I do not want a complication nor recurrence but it sounds like pelvic rad can give up to 5-15% complication rate. any advice?? my mom will be compliant and just feels frustrated and worried which is not helping her recovery and she was up post op day 1 and home after the robotic-- told all was well and then got the news two weeks later that the path report was more invasive which caused a frenzy of us getting other thoughts and opinions which takes a lot of time which cuts into your treatment and makes you jump to a decision. thanks bonnie

    Bonnie
    I am grade 3a UPSC and not an expert on anything medical. I have been reading the stories of the UPSC sisters and wonder why my doc is not recommending radiation like most others. He is a very reputable doc - gyn/onc - in the field and I have decided that I need to trust him. I questioned him and he said he did not see any evidence that I need it (radiation). I have to admit that I am ambivalent - on the one hand relieved but the other concerned that I am "undertreated". When I questioned about recurrence he reminded me that I have a 60% change of NOT having a recurrence. I decided to trust his judgement.

    So, to you I say, get educated here and by your doctors and get a second opinion and then decide the best course to take and trust your doctor. It sounds like there is no exact science, but there are protocols. I have checked the NCCN website for the protocol on UPSC. You can check that too and see if your doc's advice is within these standards.

    For what it's worth.... and God Bless you and your mom.

    Mary Ann
  • MaryAnnOnTheBay
    MaryAnnOnTheBay Member Posts: 20
    Mary Ann, San Francisco Bay, UPSC recurrent
    Mary Ann, UPSC, diagnosed February 2006. IIIa I think. Anyway III. Nothing in lymph nodes, a few rare cells in the wash. Surgery at California Pacific Medical Center, SF. Chemo at San Franisco Oncology, which has offices adjacent to CPMC. Carboplatin and taxol, Summer 2006, ending Sept 15, 2006. Hair presentable in December 2006. Recurrence discovered July 2008. Node found in omentum during surgery and nodes on base of lungs during CT scan. Smaller doses of taxol and carboplatin due to kidney problems. December 2008 through March 17, 2009. Due to start topotecan, used for recurrent cancer, about the end of May 2009, once a week. Never any discomfort from the disease itself, discomfort comes from treatment and kidney problem treatment. 73 years old. Never had radiation. retired. My friend in the picture is Lobo. You can call me Mary Ann on San Francisco Bay, or Mary Ann On The Bay, or Mary Ann SF (shorter) or anything to distinguish me from early member Mary Ann/Daisy.
  • Ro10
    Ro10 Member Posts: 1,561

    Mary Ann, San Francisco Bay, UPSC recurrent
    Mary Ann, UPSC, diagnosed February 2006. IIIa I think. Anyway III. Nothing in lymph nodes, a few rare cells in the wash. Surgery at California Pacific Medical Center, SF. Chemo at San Franisco Oncology, which has offices adjacent to CPMC. Carboplatin and taxol, Summer 2006, ending Sept 15, 2006. Hair presentable in December 2006. Recurrence discovered July 2008. Node found in omentum during surgery and nodes on base of lungs during CT scan. Smaller doses of taxol and carboplatin due to kidney problems. December 2008 through March 17, 2009. Due to start topotecan, used for recurrent cancer, about the end of May 2009, once a week. Never any discomfort from the disease itself, discomfort comes from treatment and kidney problem treatment. 73 years old. Never had radiation. retired. My friend in the picture is Lobo. You can call me Mary Ann on San Francisco Bay, or Mary Ann On The Bay, or Mary Ann SF (shorter) or anything to distinguish me from early member Mary Ann/Daisy.

    Thanks for sharing MaryAnnSF
    I appreciate hearing your history. I looked up the topotecan. I see it has been used for ovarian and small cell lung cancer treatments. Will you be taking it as a pill, or are they giving it IV? I pray for success for you. You said they found a node in the omentum during surgery in July. What kind of surgery did you have then? I hope your kidneys tolerate this new medication. Lobo looks like a great friend. HUGS to you.
  • MaryAnnOnTheBay
    MaryAnnOnTheBay Member Posts: 20
    Ro10 said:

    Thanks for sharing MaryAnnSF
    I appreciate hearing your history. I looked up the topotecan. I see it has been used for ovarian and small cell lung cancer treatments. Will you be taking it as a pill, or are they giving it IV? I pray for success for you. You said they found a node in the omentum during surgery in July. What kind of surgery did you have then? I hope your kidneys tolerate this new medication. Lobo looks like a great friend. HUGS to you.

    No topotecan
    No topotecan. More Taxol/carboplatin. I'll postthat soon. Two surgeries in July, one to fix my right uterer (between kidney and bladder) and then surgery to unkink my intestine when it became kinked after the first surgery. Nodule found during second surgery and tested. But kidney function seems ok now. Mary Ann on San Francisco Bay