Can we do a ROLL CALL with everyone posting their name, cancer diagnosis, & where they are in treatm

lindaprocopio
lindaprocopio Member Posts: 1,980 Member
edited January 2023 in Uterine/Endometrial Cancer #1
We have so many wonderful new people posting and I have been so busy with treatments and trying to keep my head above water at work. I am afraid I haven't really welcomed everyone (I APOLOGIZE; you can't possibly KNOW how glad I am that you all have found us!), and I am having trouble keeping everyone straight in my poor chemo-brained head.

So could you each just post under this thread with the name you'd like us to call you, what your cancer diagnosis is (if you have it yet), and where you are in your treatment. And if you want to say where you live, that would be cool too. I'll start it off:

Linda Procopio:
Stage III-c UPSC, radical hysterectomy 10/10/09; just finished 6 rounds of carboplatin/paciltaxol (sp?); with 8 weeks of radiation coming up after I recover from the chemo. I live in central Pennsylvania.
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Comments

  • yerba
    yerba Member Posts: 4
    #2
    Thank you, Linda - sending you good wishes
    Linda,

    Thanks for welcoming newbies here.

    I go by "yerba" (I love plants.)
    Diagnosed with endometrioid endometrial cancer, on biopsy, 1/23/09.
    I'm taking 80 mg Megace/day and in the process of looking for any alternatives to hysterectomy (if anyone knows of any cases of good outcomes w/o hysterectomy.)
    I live in Northern California and am going to see a gynecological oncologist near Stanford University April 10.

    **
    Linda, I see you offer a lot of support and information on here for others, and hope that all your generosity comes back to you a thousand fold in support, and healing through your treatments. Best wishes.

    yerba
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #3
    yerba said:

    Thank you, Linda - sending you good wishes
    Linda,

    Thanks for welcoming newbies here.

    I go by "yerba" (I love plants.)
    Diagnosed with endometrioid endometrial cancer, on biopsy, 1/23/09.
    I'm taking 80 mg Megace/day and in the process of looking for any alternatives to hysterectomy (if anyone knows of any cases of good outcomes w/o hysterectomy.)
    I live in Northern California and am going to see a gynecological oncologist near Stanford University April 10.

    **
    Linda, I see you offer a lot of support and information on here for others, and hope that all your generosity comes back to you a thousand fold in support, and healing through your treatments. Best wishes.

    yerba

    Mary Ann - southwest Florida
    I have stage 3a uterine papillary serous carcinoma (UPSC) with metastasis in distant lymph nodes, radical hysterectomy 9/08, finished 6 rounds of taxol/carboplatin in Feb.

    I just got verbal results of CT scan which showed "shotty" evidence of cancer still in neck and axilla (underarms) - bummer :( I will review films next week and meet with my new doctor soon to discuss next line of attack.
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #4
    My name is Roberta
    My family all calls me Ro. I have Stage 3 C UPSC with 5 out of 21 positive lymph nodes, and metastatic cells in the abdominal washing. I had the DaVinci Hysterectomy on 1/5/09. I finished 3 rounds of chemo Taxol/Carboplatin. Will start radiation therapy on April 6th, and then have my last 3 rounds of chemo. We winter in Florida and will be returning to Illinois for the radiation therapy and last 3 chemo.
    Linda thanks for all your information you share with us and keeping us organized.
  • nursey420
    nursey420 Member Posts: 52 Member
    #5
    Ro10 said:

    My name is Roberta
    My family all calls me Ro. I have Stage 3 C UPSC with 5 out of 21 positive lymph nodes, and metastatic cells in the abdominal washing. I had the DaVinci Hysterectomy on 1/5/09. I finished 3 rounds of chemo Taxol/Carboplatin. Will start radiation therapy on April 6th, and then have my last 3 rounds of chemo. We winter in Florida and will be returning to Illinois for the radiation therapy and last 3 chemo.
    Linda thanks for all your information you share with us and keeping us organized.

    My Name is Lisa
    Hi everyone My name is Lisa I am a RN in the state of Minnesota. I was diagnosed on Jan 20 2009. Had total hyst on Feb 22 via Divinci robot. The cancer was 69% thru the wall and into my cervix. Lymph nodes and washing negitive. I am stage 2B. Started external beam radiaiton on 3/23 and will have internal HDR after the external is completed.I need 25 session of external and 4 session of internal. So every morning I get up and go to radiaiton. I was very happy to find this site as I felt that no one knew what I was going thru. There are support groups in my area for every cancer but mine.
  • Kris Ann
    Kris Ann Member Posts: 26
    #6
    nursey420 said:

    My Name is Lisa
    Hi everyone My name is Lisa I am a RN in the state of Minnesota. I was diagnosed on Jan 20 2009. Had total hyst on Feb 22 via Divinci robot. The cancer was 69% thru the wall and into my cervix. Lymph nodes and washing negitive. I am stage 2B. Started external beam radiaiton on 3/23 and will have internal HDR after the external is completed.I need 25 session of external and 4 session of internal. So every morning I get up and go to radiaiton. I was very happy to find this site as I felt that no one knew what I was going thru. There are support groups in my area for every cancer but mine.

    I am writing for my mother
    I am writing for my mother Judy C.

    She has papillary serous/clear cell stage 4 cancer. Diagnosed March 10th, 2008.. Had radical hysterectomy with debulking. The cancer was positive in 1 lymph node, 1 fallopian tube, cervix, omentum, and a small patch on her intestine. Negative washings.
    Treated with 4 rounds of chemo. 35 treatments of whole abdominal radiation then 4 treatments of internal vaginal radiation. She is being treated at Dana Farber in Boston.

    We have an issue right now. Her ca-125 jumped to a 40. Her last 1 month ago was a 26 and the one befor that was a 16. She is getting a ct-scan this Sunday morning at Dana then her follow up to discuss results is April 2nd... We are praying its not the worst scenario.
  • cookie1948
    cookie1948 Member Posts: 77
    #7
    intro update
    Hi,
    I'm posting for my mom and have found this site invaluable. My name is Linda, but there are so many Lindas that some people call me Cookie. She had total abdominal hysterectomy on March 12th as she was told she had uterine papillary serous carcinoma. The pathology came back as stage 1a, she is not having treatment. She is 85 and oncologist/gyn stated if she was younger maybe some treatment, but he is hopeful she needs none. Caught in earliest possible stage per oncologist. It was contained in a polyp inside uterus.
    I will remain watching this site as it is so informative and helpful.
    It is reminding me that i need to go for check ups myself and keep putting it off. Thanks to all,
    Linda aka Cookie :)
  • barb55
    barb55 Member Posts: 91
    #8
    Roll call
    Hi. I'm Barbara sometimes Barb. I'm 59 years old and live in Rhode Island. I was diagnosed with stage 3C UPSC in August 2007. Before that I was diagnosed with DCIS breast cancer, had a lumpectomy and was treated with Tamoxifen until the uterine cancer diagnosis. For the UPSC I had a total abdominal hysterectomy and oophorectomy. Lymph involvement was extensive- I had 39 lymph nodes removed, 7 of them showed metastasis. This was followed by 4 rounds of carboplatin/paciltaxol , followed by full abdominal radiation(can't remember how many weeks) and 1 round of internal vaginal radiation. It will be 1 year since my treatments ended. I feel great and grateful. Wish me luck ladies for this Monday- I'm going in for my 3 month evaluation. I follow this site regularly for the knowledge, strength and support. Thank you Linda for bringing us together. It was very lonely there for awhile.
  • Kris Ann
    Kris Ann Member Posts: 26
    #9
    barb55 said:

    Roll call
    Hi. I'm Barbara sometimes Barb. I'm 59 years old and live in Rhode Island. I was diagnosed with stage 3C UPSC in August 2007. Before that I was diagnosed with DCIS breast cancer, had a lumpectomy and was treated with Tamoxifen until the uterine cancer diagnosis. For the UPSC I had a total abdominal hysterectomy and oophorectomy. Lymph involvement was extensive- I had 39 lymph nodes removed, 7 of them showed metastasis. This was followed by 4 rounds of carboplatin/paciltaxol , followed by full abdominal radiation(can't remember how many weeks) and 1 round of internal vaginal radiation. It will be 1 year since my treatments ended. I feel great and grateful. Wish me luck ladies for this Monday- I'm going in for my 3 month evaluation. I follow this site regularly for the knowledge, strength and support. Thank you Linda for bringing us together. It was very lonely there for awhile.

    Hi Barb,
    Your the only
    Hi Barb,

    Your the only other lady I saw on this website that has received whole abdominal radiation besides my mom.. My question is did you have a lot of side effects from that radiation? My mother still gets lots of belly aches and diarhea etc. She had that abdominal radiation for almost 7 weeks. She is getting a ct scan this weekend. We are from MAss.. she goes to Dana Farber.. How about you? I see your from Rhode Island. Thanks for any info.. Kris Ann
  • barb55
    barb55 Member Posts: 91
    #10
    Kris Ann said:

    Hi Barb,
    Your the only
    Hi Barb,

    Your the only other lady I saw on this website that has received whole abdominal radiation besides my mom.. My question is did you have a lot of side effects from that radiation? My mother still gets lots of belly aches and diarhea etc. She had that abdominal radiation for almost 7 weeks. She is getting a ct scan this weekend. We are from MAss.. she goes to Dana Farber.. How about you? I see your from Rhode Island. Thanks for any info.. Kris Ann

    Hi neighbor
    Kris Ann, I was treated right next door at Beth Israel Hospital in Boston but had my radiation back here in Rhode Island. The radiologist in Boston strongly recommended the whole abdominal- my doc here in RI wasn't really keen about it at first but he performed it and took great care of me. Your mom is in a great hospital . Yes- the radiation was in some ways harder than the chemo. I remember being very nauseous and had plenty of diarrhea too, but it gradually retreated after the radiation ended. Fatigue lasted the longest. When did your mom's radiation treatment end?
  • mas910
    mas910 Member Posts: 6
    #11
    I'm Margaret from Ohio
    Hi, My name is Margaret and I am 54 years old. I was diagnosed with breast cancer in 1997, had mastectomy, 6 months of chemo and 6 weeks of radiation. Had one positive lymph node. Was on Tamoxifen for 5 years, ending in 2003.
    I had a TAH January 21, 2009. Found UPSC in a polyp in my uterus. I consulted with a gyn/onc at Ohio State University. I am scheduled to have lymph node biopsy with DaVinci robot on April 1st for staging. My gyn/onc has already said I will receive 3 rounds of taxol/carboplatin if all nodes negative and more chemo if any positive nodes found.
    I am an RN working in Hospice. This has really given me more insight to the patients that I care for. I guess there is always a silver lining if you look hard enough!
    I absolutely love this site, have learned a lot from all of you! Thanks!
  • Kris Ann
    Kris Ann Member Posts: 26
    #12
    barb55 said:

    Hi neighbor
    Kris Ann, I was treated right next door at Beth Israel Hospital in Boston but had my radiation back here in Rhode Island. The radiologist in Boston strongly recommended the whole abdominal- my doc here in RI wasn't really keen about it at first but he performed it and took great care of me. Your mom is in a great hospital . Yes- the radiation was in some ways harder than the chemo. I remember being very nauseous and had plenty of diarrhea too, but it gradually retreated after the radiation ended. Fatigue lasted the longest. When did your mom's radiation treatment end?

    Hi again Barb!! My mother's
    Hi again Barb!! My mother's last radiation was Oct. 3rd.. but that was last brachy.. her abdominal ended Sept. 15 approx... but she is still having crazy belly aches and stuff sometimes. Like it flairs up once in a while. And the radiologist at Dana Farber strongly reccomended the whole ab-radiation where as her oncologist said she could have done avastin for 1 year every three weeks.. but she ended up getting the radiation cuz the avastin was kind of a new optional treatment.
  • satarell
    satarell Member Posts: 1
    #13
    mas910 said:

    I'm Margaret from Ohio
    Hi, My name is Margaret and I am 54 years old. I was diagnosed with breast cancer in 1997, had mastectomy, 6 months of chemo and 6 weeks of radiation. Had one positive lymph node. Was on Tamoxifen for 5 years, ending in 2003.
    I had a TAH January 21, 2009. Found UPSC in a polyp in my uterus. I consulted with a gyn/onc at Ohio State University. I am scheduled to have lymph node biopsy with DaVinci robot on April 1st for staging. My gyn/onc has already said I will receive 3 rounds of taxol/carboplatin if all nodes negative and more chemo if any positive nodes found.
    I am an RN working in Hospice. This has really given me more insight to the patients that I care for. I guess there is always a silver lining if you look hard enough!
    I absolutely love this site, have learned a lot from all of you! Thanks!

    hi im satarell from texas
    hello my name is satarell or sat for short. I am 27 years old and I was diagnosed with adenosarcoma about 2 weeks ago. They want to do a full hysterectomy but keep going back for more biopsy. I haven't had any kids so they have gone to 3rd and 4th doctors to see if there are any options. They removed a cerviacl polyp that had mixed cells. They also found another mass on my right ovary.
    I worry they are to concerned over child birth more then the cancer.
  • deanna14
    deanna14 Member Posts: 732
    #14
    satarell said:

    hi im satarell from texas
    hello my name is satarell or sat for short. I am 27 years old and I was diagnosed with adenosarcoma about 2 weeks ago. They want to do a full hysterectomy but keep going back for more biopsy. I haven't had any kids so they have gone to 3rd and 4th doctors to see if there are any options. They removed a cerviacl polyp that had mixed cells. They also found another mass on my right ovary.
    I worry they are to concerned over child birth more then the cancer.

    Roll Call
    Hi, I am Deanna. I am 39 years old and my doctor performed a hysteroscope in July 2008 where he found a polyp that was malignant. I was seen by a gyn/onc in August 2008, who then performed a total abdominal hysterectomy with staging on September 11, 2008. I had Stage IIIC Mixed endometrial and papillary serous carcinoma, I had one positive pelvic lymph node. I started treatment with 25 external radiation in October 2008 and finished in December with 3 internal HDR txs. I also planned a wedding and got married in November while taking radiation treatments, lol! I started chemotherapy in Jan.and will have carbo and taxol every 21 days for 6 or 7 cycles. I have already complete 3 of these treatments and tx #4 postponed due to low blood counts. I am being treated at by Cox Health Systems in Springfield Missouri at the Hulston Cancer Center.
    God Bless you all,
    Live Strong!!
    Deanna
  • justada
    justada Member Posts: 6
    #15
    I'm here--sometimes.
    My name is Ada. As of June, I will celebrate 4 years cancer-free. I was diagnosed endometrial hyperplasia in January, 2005. Was treated with meds until a biopsy in May of that year. They found atypical complex cells at that time. I was given the options of more meds, D&C, or hysterectomy. I chose the hysterectomy. They removed a fibroid at the same time. Pathology found stage 1 cells in both the uterus and the fibroid.
    Sometimes I don't even feel as if I even had cancer, but I'm reminded of this fact every time I have a screening appointment. I pray that everyone here gets the best treatment and that we all become not only survivors, but overcomers.
  • shortmarge
    shortmarge Member Posts: 291
    #16
    justada said:

    I'm here--sometimes.
    My name is Ada. As of June, I will celebrate 4 years cancer-free. I was diagnosed endometrial hyperplasia in January, 2005. Was treated with meds until a biopsy in May of that year. They found atypical complex cells at that time. I was given the options of more meds, D&C, or hysterectomy. I chose the hysterectomy. They removed a fibroid at the same time. Pathology found stage 1 cells in both the uterus and the fibroid.
    Sometimes I don't even feel as if I even had cancer, but I'm reminded of this fact every time I have a screening appointment. I pray that everyone here gets the best treatment and that we all become not only survivors, but overcomers.

    Hi I'm Marge and Yes I'm Short!
    Stage IIA UPSC and Clear Cell Carcinoma. Radical hysterectomy 10/23/08; 4 rounds of carbo/taxol with 3 rounds of internal radiation (vagnial cuff) sandwiched in between. Finished treatments on January 14, 2009 and I'm feeling fabulous!!! (Except for my feet, ankle and hip pain and the hot flashes, hmmmmm what else did that stupid chemo and surgery do to me. Oh yes, memory lose... LOL.) I live in sunny North Carolina.

    MIND, BODY AND SOUL!

    Hugs.
  • kellyw314
    kellyw314 Member Posts: 51
    #17
    shortmarge said:

    Hi I'm Marge and Yes I'm Short!
    Stage IIA UPSC and Clear Cell Carcinoma. Radical hysterectomy 10/23/08; 4 rounds of carbo/taxol with 3 rounds of internal radiation (vagnial cuff) sandwiched in between. Finished treatments on January 14, 2009 and I'm feeling fabulous!!! (Except for my feet, ankle and hip pain and the hot flashes, hmmmmm what else did that stupid chemo and surgery do to me. Oh yes, memory lose... LOL.) I live in sunny North Carolina.

    MIND, BODY AND SOUL!

    Hugs.

    My name is Kelly and I was
    My name is Kelly and I was diagnosed in May of 2006 with uterine cancer following a D & C - Total hysterectomy by a gyn/onc and was diagnosed with endometrial cancer/ Stage 1-C -- abdominal washing and 42 lymph nodes were all negative, but cancer had spread to 60% invasion of the uterine wall - received 27 external radiation treatments and internal radiation was not recommended because tumor had been confined to the upper third of my uterus - had a CT scan prior to radiation treatments to assist with radiation planning -- for the first 2 years had 3-4 month check-ups with gyn/onc (routine internal with occasional PAP)- at 2nd anniversary, the follow-ups have been extended to 6 month intervals--thus far all has been good -
  • Deblittleton
    Deblittleton Member Posts: 56 Member
    #18
    shortmarge said:

    Hi I'm Marge and Yes I'm Short!
    Stage IIA UPSC and Clear Cell Carcinoma. Radical hysterectomy 10/23/08; 4 rounds of carbo/taxol with 3 rounds of internal radiation (vagnial cuff) sandwiched in between. Finished treatments on January 14, 2009 and I'm feeling fabulous!!! (Except for my feet, ankle and hip pain and the hot flashes, hmmmmm what else did that stupid chemo and surgery do to me. Oh yes, memory lose... LOL.) I live in sunny North Carolina.

    MIND, BODY AND SOUL!

    Hugs.

    Hi I'm Deb
    I was diagnosed with Stage IIIC endometrial cancer. Feb 3rd had a total abd hyst and oophorectomy with 25 lymph nodes removed. All 25 tested negative. This past week was my second round of chemo with taxol and carbo via a PICC line. I receive Neulasta 24 hrs after each treatment even before my numbers are known. Once I finish my 6 treatments it will be on to radiation for 5 wks-5 times a week. Then brachy. Not sure how much of that yet. I live in Colorado by way of Boston. My best therapy will be in April when the 4 grandkids from Boston come out to visit Nana. I can not wait!
  • irishohiogirl
    irishohiogirl Member Posts: 10
    #19
    Roll Call
    Hi my name is Kelly with a screen name of irishohiogirl. I live in Westerville Ohio, I was diagnosed Sept 2007 at the age of 39 after a hysterectomy for fibroids with grade3 adenocarcinoma endometrial cancer. Had a second surgery for staging -removed close to 30 lymph nodes with 3 being positive one in my para aorta node. I am stage 3C grade3. Went through six weeks of radiation to abdomen and pelvis (still have abdominal pain and gastrointestinal issues as a result)and then 6 months of chemo Carboplatin and Taxol. Had lots of problems with white blood cells and received Neulasta after every chemo. Finished chemo in July and now have to have CT scan on April 9th after my check up CT revealed "conspicuous" enlarged lymph node in my chest. I feel blessed to be here and am grateful for all of you who share your journeys.
  • tbsjewels
    tbsjewels Member Posts: 7
    #20
    Hi, my name is Terry and I
    Hi, my name is Terry and I hail from a small town just outside of St. Louis, Mo. I recieved my treatments at Siteman Cancer Center. I was originally diagnosed with Endometrial Cancer following a hysterectomy for other reasons in 2002. It was very small and early stages and I recieved no further treatment, just followup, 3 months first year and then 6mon. for next 4 years. I was just shy of 5 yrs. when I had a reoccurrance which involved a 15cm. tumor wrapped around my transverse colon. After my surgery in Aug. 07 I did the standard 6 treatments with Taxol/Carboplatin. Currently I'm 1 year and 2 months since the end of treatment and have been NED ever since. It's pretty scary since it came back almost 5 yrs. after my initial diagnosis. Hopefully the chemo got anything leftover and it won't return again.
  • jankenb
    jankenb Member Posts: 28
    #21
    roll call
    Hi I am Janet
    I am a 52 year old physician who had radical hysterectomy Feb 25, and since 2 pelvic nodes positive and washings positive, I am stage 3c Grade 1
    I started Chemo on March 25th with Carbo/taxol, I will recieve a total of 6 rounds.
    I start brachy therapy on April 17th for 3 weekly and then External beam radiation on May 11th for 25 rounds

    I had a PET/ctscan on March 25th because my doc thought this was all unusual for grade 1 tumour, and it was negative.

    I am not certain what UPSC means but my tumour is endometrioid

    janet

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