CSN Login
Members Online: 4

You are here

Scan and Radiologist Anxiety

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Well, I guess I'm into countdown mode. On Friday, I go for my lung CAT scan. This is a twofold scan. It is being done at the hospital I had my Lung RFA done as the 8 week followup scan after my RFA procedure and at the same time I will be having the followup appt. with the radiologist who did the lung ablation.

I really don't have any doubt that the lung ablation is healing just fine. I have not had any problems, or complications or even anything that indicates a procedure was done with my lung. The whole procedure went so smoothly and from the moment I awoke from the anesthetic, I was back to my normal self. No sign of breathing problems, no lung congestion.. nada. So I really do think this appt. is more a formality than anything else and the chance for the radiologist to check with the CAT scan that the scar tissue is healing as expected.

What I'm somewhat nervous about is the remaining nodules and whether they have grown or new ones have shown up since the CAT scan in January. I'm sending positive energy to the lung area that the nodules have not grown and there is no sign of new growth. So, if for the next 2 days you all can just take a moment here and there and send positive energy/thoughts that the nodules are dormant or shrinking on their own, I would appreciate it.

Now, I really must go to bed and get some beauty zzzzz's :)

Hugggggs,

Cheryl

taraHK
Posts: 1961
Joined: Aug 2003

Sending positive vibes/best wishes/prayers your way!

Love,
Tara
(a fellow lung-met gal -- but currently none -- yea -- I'm sending that vision your way!)

mom_2_3
Posts: 965
Joined: Nov 2008

Cheryl,

Positive thoughts from NJ!!!

Amy

shoppergal
Posts: 118
Joined: Mar 2009

I'm new here but I'm still sending you positive vibes and energy. I know what it's like waiting for scan results,just like everyone else here. It's the waiting thats the worst!I'll be thinking of you.

Wendy

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Cheryl,

Yes, waiting sucks, but we are here and gearing up positive thoughts! Vicki

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

The very best to you in your scans.....God Bless ya hun.....hugs, Buzz

dixchi's picture
dixchi
Posts: 438
Joined: Jun 2008

Am hoping for the very best on your scans; somehow I think it will be
ok but I know it is tough living from scan to scan.....have some quality
time with little Bridget....I know when I hug my Kelsie and play with her...
my spirit lightens and a sense of calm settles over me.....

Hugs,
Barbara

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

I hope you won't be offended if I pray for you to get only great news.

Big Hugs!
Diane

shoppergal
Posts: 118
Joined: Mar 2009

I can understand you're wanting to hear the letters NED! I thought I would be able to say that also. I had my first pet/ct scan in Feb 2008 right after I started chemo (Folfox/oxi) and thry detected some nodes near my left kidney, although my colon, liver, and kidneys were clear. My onc presented the results to a surgeon to see if I should have a biopsy. but he thought it was to dangerous because of where it was. They had a wait and see attitude since I was first starting chemo. When I took my second scan 2 months after I finished my chemo, the nodes were no longer detected, which was great news for me. Now 2 wks ago I took another pet/ct scan and guess what they saw again? Thats right the nodes are back, which was so discouraging for me. I didn't even think about them when I took my scan because I didn't think they would be back. Once again my onc presented this to the surgeon to see if we can do a biopsy, because were not even sure if it's definately cancer. It's still too dangerous, so it can't be treated since we don't know what it is. The only thing to do is wait and see, which I HATE!! I now have to wait 3 months and I'll have a cat scan with contrast to see if anything changed. If it gets bigger or more grow than I might be able to have it biopsied to make sure of what it is. If it is cancer I will most likely be on Xeloda. If nothing changes then we wait another 3 months and scan again. This waiting and not knowing what it is or if it's going to spread into more nodes,my liver or kidneys is a horrible waiting game! But there's nothing more I can really do and being alive is still a wonderful thing! Take care, I'll be thinking of you.

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

Did you NOT have scans before surgery for colon cancer?

I'll remember you in prayer, too.

Diane

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Shoppergal,

I'm sorry to hear you're dealing with the lousy "wait and see" game that is definitely no fun. I'm curious that you mentioned that you had your first pet/ct scan after you started chemo. Did you have just a regular CT or any kind of scan at all right after diagnosis before your surgery, or no scan at all then? It's considered standard practice and routine, even if nothing is suspected to have spread, to do a CT scan right away to either determine yes or no if anything has spread or if there's anything suspicious anywhere else in the body. I believe it would be considered negligent if they really didn't do any kind of scan on you until after you had surgery and started chemo. If that's the case, I guess it's too late to do anything about now, but I'd question your doctor about it and maybe even consider a different oncologist if that's how he/she practices. I don't want to sound too overreactive, but it really was a huge oversight if they didn't scan you prior to surgery. I had my CT scan within two weeks of first being diagnosed (which we thought I was stage 2 & no lymph nodes were found on their ultrasound sigmoidoscopy, so they didn't suspect anything had spread- it was considered "just routine". All doctors were very surprised to discover on the CT that it had, indeed, spread to my liver and lungs. Because no lymph nodes showed up initially on the scope sigmoidoscopy, they would have not known at all it was in the liver and lungs if they hadn't chosen to do the CT scan that quickly. I found out that colon and rectal cancer can sometimes spread directly through the bloodstream, bypassing the lymph nodes. It's definitely more rare, but can happen, and did happen in my case.

I will be thinking of you and including you in my prayers for the anxiety to lessen and for things to stay small or even go away.

Take care-

PhillieG's picture
PhillieG
Posts: 4912
Joined: May 2005

Hi Cheryl,
I am sending truckloads of good healing energy your way. I think you will be just fine but I understand how you feel with the anxiety and all. I'm sure you know the routine, try to keep yourself busy, that seems to help the most.

I had a RFA done once and it was great, a walk in the park. I could not believe how simple the procedure was and there was basically no recovery time.

You're in my thoughts
{{{hugs}}}
-phil

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

(((your scans will be clear))) :) Let us know as soon as you find out anything!
mary

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

My dearest girl: I am sending all best wishes, hopes and hugs for a positive outcome on Friday. We have the time difference so you will be a little later but we will be waiting to hear your news.

All positive energy flowing your way

Canuuckkisses

~Mags~

Glv49
Posts: 206
Joined: May 2005

You will be in my thoughts and prayers, and all good vibes coming your way.

Gail

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

What a treat to sign on tonight and find so many supportive posts! I managed to keep myself very busy today. Bridget and I went to the theatre office and it just so happens we are really busy right now. My friend, Jill, and I were working away and the next thing we knew, it was 7pm!! LOL! Ok, so the plan was that we would leave the office around 4:30pm or so... but we both were being very productive ;)

Anywho... tomorrow morning I'll have an easy morning... I may even treat myself to breakfast out. But, knowing me, but the time the morning rolls around, I'll be too lazy to get ready early and get out for breakfast... so I'll probably just have one here and putter around on the computer ;)

I'll be leaving my apartment around 1pm... then spending the afternoon at the hospital (well, first I have to get there and this particular hospital is about an hour away). Once I am through at the hospital, I'm meeting a friend and the two of us are going to do dinner and a movie night... looks like we will be seeing the new Julia Roberts "Duplicity" thriller ;)

Soooo, I won't be getting home until probably around 11pm... but assuming I'm not exhausted, I will check in here no matter how late it is ;)

Huggggggs,

Cheryl

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Cheryl,

I will definitely be sending energy your way in the form of a prayer that you will not be too anxious awaiting your Dr. appt and getting your results, and that your results will be good. I, obviously, can very well relate to that anxiety, having just experienced this!

I know you will let us know how it goes, but take your time if you need it (even though you're normally always so quick to post!)

You take care and I'll be awaiting your next post.

Hugs,
Lisa

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

I've remembered you in prayer and can't wait to hear good news! Have a wonderful day!

Diane

dorookie
Posts: 1736
Joined: Jul 2007

Cheryl,

Have lots of fun, no worries, cuz you have so many great people sending very positive thoughts your way, including me. Let me know how the movie was if its worth going to see or wait for the rental...LOL....Be safe and again have a great time..

God Bless ya
Beth

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Hehehe... will let you know what I think of the movie ;) I do like Julia Roberts although I'm not sure I'm big on thrillers... but hey, I'm always willing to vary my movie watching ;)

Well, this morning I did my last visualization session before getting ready and heading out to New West where the hospital is. I find these sessions where one visualizes healthy tissue and focuses ones' energy to the area (rather than having thoughts and energy scattered in every direction) really tend to help centre oneself and have surprising results.

Obviously I'm going to be interested in what's going on in the lungs, and it has only been 2 months since the last CT scan, but I have been taking the supplement "IP6 & Inosotil". I figure, it can't hurt to take it and if there's even a slight benefit from what it might be able to do, then what the heck? Here's an excerpt from an article, which is why I've been taking it for the last 2 months:

Department of Pathology, University of Maryland School of Medicine, MD 21201, USA. ivucenik@umaryland.edu

Inositol hexaphosphate (IP(6)) is a naturally occurring polyphosphorylated carbohydrate, abundantly present in many plant sources and in certain high-fiber diets, such as cereals and legumes. In addition to being found in plants, IP(6) is contained in almost all mammalian cells, although in much smaller amounts, where it is important in regulating vital cellular functions such as signal transduction, cell proliferation, and differentiation. For a long time IP(6) has been recognized as a natural antioxidant. Recently IP(6) has received much attention for its role in cancer prevention and control of experimental tumor growth, progression, and metastasis. In addition, IP(6) possesses other significant benefits for human health, such as the ability to enhance immune system, prevent pathological calcification and kidney stone formation, lower elevated serum cholesterol, and reduce pathological platelet activity. In this review we show the efficacy and discuss some of the molecular mechanisms that govern the action of this dietary agent. Exogenously administered IP(6) is rapidly taken up into cells and dephosphorylated to lower inositol phosphates, which further affect signal transduction pathways resulting in cell cycle arrest. A striking anticancer action of IP(6) was demonstrated in different experimental models. In addition to reducing cell proliferation, IP(6) also induces differentiation of malignant cells. Enhanced immunity and antioxidant properties also contribute to tumor cell destruction. Preliminary studies in humans show that IP(6) and inositol, the precursor molecule of IP(6), appear to enhance the anticancer effect of conventional chemotherapy, control cancer metastases, and improve quality of life. Because it is abundantly present in regular diet, efficiently absorbed from the gastrointestinal tract, and safe, IP(6) + inositol holds great promise in our strategies for cancer prevention and therapy. There is clearly enough evidence to justify the initiation of full-scale clinical trials in humans.

Like I say... the worst case scenerio is that it's helping me with my blood pressure and these days when we have reason to be anxious (I'm actually not anxious at all today, but then I did have a wonderful calming, visualization session which settled all my energies back into their rightful positions) :)

If today I find there is no new growth, then I think it's off to the health store to pick up another supply of this supplement :)

Huggggggs,

Cheryl

sheri22
Posts: 278
Joined: Jan 2009

Cheryl

Hope all goes well for you seems like the worst part is the waiting but your keeping pretty busy waiting good luck my prayers are with you

Sheri22

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Cheryl,
I'm praying the nodules are dormant or shrinking. I pray that you have some peace during this difficult waiting period.
Hugs to you.
Aloha,
Kathleen

PhillieG's picture
PhillieG
Posts: 4912
Joined: May 2005

Good energy coming your way.
Keep us posted Cheryl
-p

ldot123's picture
ldot123
Posts: 276
Joined: Apr 2008

Hey Cheryl,

I too am sending the most positive of vibes to you for a good scan. We are all thinking of you.

Cheers,
Lance

tootsie1's picture
tootsie1
Posts: 5064
Joined: Feb 2008

I'm sorry. Somehow I missed replying to this last night. Just wanted you to know that I just said a prayer that everything went well.

*hugs*
Gail

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Tired... but home :) And so far... happy :)

I have one heck of a bruised right arm... my darn veins just would not cooperate for an IV today for the contrast dye for the CAT scan. The CAT scan techs finally had to call IV Therapy to come take over. Hehehe... that nurse was an ornery old biddie but she did manage to get a needle in and an IV working ;)

The CAT techs then took a CAT scan without and then with contrast dye. And then I was off to meet with the radiologist for the followup visit. It went much better than I had thought... he was NOT full of doom and gloom. He wasn't cheery and bubbling with positive chatter, but for him, I think it was pretty darn positive ;) He said that the site where the ablation took place is doing very well, is healing as expected and there's no sign of infection or problems.

Now, the purpose of this appt. was for a followup for the ablation, so he didn't go over in detail the other nodules. He says they are still there and as far as he knows, there are no new ones... and the ones that are there are still too small to be ablated. As a matter of fact, he said they are too small to light up a PET scan. I asked him about the second largest nodule (second to the one that he had ablated) and if it had grown at all. He said it was still around 7mm and that it was really too small to ablate. I then asked him outright that IF it were to grow bigger or if any of the other smaller ones were to grow ... would he consider ablating them, and he said yes (totally different attitude from when I last met with him and he said he really didn't see where ablation would be a benefit for me). So, something has changed his attitude... not sure what, but what a relief it was!

Next week (Fri) I have an appt. with my onc and she will be able to let me know more where we stand but it sounds like if the nodules have not grown and there is no new growth, then we continue on life in happy land with no need for current treatment :) :)

I think I'm going to pick up another 2 month supply of the IP6 and Inositol. I have no idea if it has slowed down the already slow growth or not... but it obviously hasn't hurt so, what the heck :)

Cheryl beez a happy camper tonight... and now I'm going to crawl into bed with a snuggly little schnauzer, a good book and at midnight, the World Figure Skating competition will be re-aired, so let's see if I can stay awake for some of it :)

Hugggggs and many many thanks for the positive energy thoughts!!!

Cheryl

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Wonderful to hear that news girl........Yep, I bet you are smiling like a champ....God Bless ya sweetheart,you certainly deserve it.........

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Glad you are a Happy Camper! Many good vibes sent out to you.

Hug that Schnauzer extra for me! Vicki

PhillieG's picture
PhillieG
Posts: 4912
Joined: May 2005

It does sounds like very good news. Will keep the positive vibes/energy coming your way.
-phil

dixchi's picture
dixchi
Posts: 438
Joined: Jun 2008

What joy......am so glad to hear that all is going well...
skipping the light fantastic.....
Hugs,
Barbara

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

sorry i didn't wait up for you last night kiddo....had the old Friday night zaaaa and bottle of vino and suddenly asleepo. :)

Cheryl that all sound like very good news to me. congrats and keep on keepin on and trying to stay calm. It's very good news in fact.....

Hugs
~Mugs~

Subscribe to Comments for "Scan and Radiologist Anxiety"