CSN Login
Members Online: 0

You are here

survivors of Terminal Stage 4 lung cancer

Stardust1
Posts: 44
Joined: Jul 2008

Dear Members,
Please let me know if there are ANY survivors out there with Stage 4 Lung Cancer, (Terminal)taking radiation.

God Bless All

Stardust

ldoman
Posts: 9
Joined: May 2011

I was diagnosed last March 2011 with a stage 4 metastatic lung cancer. I went through a toracentesis to take 1200ml of fluid from my lungs. After evaluation of the pleural fluid, the my oncologist diagnosed me. That was 3 months ago. I started Tarceva, 150 mg, and had my ctscan last june 15 and the result was amazing. Please do not loose hope. There is a miracle out there. Just pray, eat healthy foods, rest and be happy. My doctor said I had a remarkable change and response to the pill. Take care, you will be fine.
Lorna

mfarner
Posts: 6
Joined: Jun 2004

Feb 12, 2012 will be my ten year anniversary surviving Small Cell Lung Cancer that spread to my stomach lymph nodes. Every time I would inhale I'd get a really sharp pain in my rib. I thought I cracked a rib screwing around on the floor with my son the night before. I went in to be checked because my wife (a Radiation/Oncology R.N. at the time) insisted. They told me I had muscle pain and tried to send me home. My wife insisted they give me an X-Ray. They found a mass in my right lung. I was given a CT Scan the very next day and a needle biopsy the day after that. The insensitive clods called me at work on my birthday Feb 12, 2002 to inform me over the phone that I had terminal small cell lung cancer. I was 37 with a 12 year old and a 15 year old boys at home. I was devastated.

The fear is the worse part. To make a long story short, after many chemo and radiation treatments they told me that my cancer was not responding anymore and to go home and spend time with my boys. From the beginning the fear sucker punched me. Then I started praying and the fear went away. I asked God to let me live long enough to see my sons graduate from High School so my wife wouldn't have to raise two teenage boys alone. Every single time I was asked I'd say God is going to let me live. Well he did. I have never been in remission or told NED. Every single CT Scan shows masses in my right lung and stomach nodes. They just stopped growing. They just sit there and don't spread anymore. I watched my youngest graduate from High School a long time ago. I also attended the Graduation Ceremony for my oldest graduating from Purdue University with his B.A. I haven't had a cancer treatment since Oct 2002.

Hope this give someone hope. When I was first diagnosed I had to stop reading the net about Small Cell and its horrible outcomes. I was told last month I am a two percent survivor. You can be too. You can reach me here or my email rush@yahoo.com if you need me. Mark

Gelly
Posts: 5
Joined: May 2011

Hi Mark. I was diagnosed stage 4 small cell lung cancer (mastitis to brain) in May. I have had a lot of prayers and said a lot of prayers. I believe this and a positive attitude helps. My brain tumor was gone after 15 radiation treatments and my lung tumor has shrunk from the size of a grapefruit to the size of a cocktail weenie (dr.'s words, lol). I am currently having radiation on my lung and will be re-scanned next month. Doc told me he would then determine if I needed 2 more treatments or 5 and I told him I wouldn't need any, because the tumor will be gone....and I truly believe it!

Thank You for sharing your story, it gives everyone hope.....and I hope it turns them to God too.

reddar7's picture
reddar7
Posts: 4
Joined: Oct 2012

Thats what we all want to hear. Me same as you 2 except only been on a 6 month journey so far. Am putting all efforts into research on what people like you had for treatments, and
well the idea is to run with what worked long term for others. Seems like what to do.
Faith in God to lead me and all of us in the right direction best of all.
My sclc isn't going to get me without a fight. I still got things to do.

mgood
Posts: 1
Joined: Jan 2012

I"m new on here. Not sure how all this works, so I thought I would just reply to your post. My husband is 37 and was just diagnosed in October with Stage 4 NSCLC. Barely any symptoms. And when we found it, it had already spread into his liver. No brain or bone mets though. He's about to have his 4th chemo treatment. Carbo, Alimta, and Avastin. His is inoperable at this time, but maybe that will change in the future. We were pretty much devastated with the news. We have 2 children ages 15 and 7. I know the survival rate is awful, but does it take in effect the nonsmokers out there? The ones who were so healthy, they didn't even have a doctor? My husband is a general surgeon in Arkansas. So he knows all the statistics. This makes him really negative about everything. I'm glad I found your post because I need to read that people do survive this awful disease.

thatng
Posts: 2
Joined: Jul 2012

Hi Mgood,

How is your husband doing? How is his progress? My mom was diagnosed with Stage 4 NSCLC last month. She is going to have a second dose of Carbo and Alimta (pemtrexed) tomorrow. I asked about the Avastin previously but the oncologist didnot recommended since it can cause internal bleeding and my mom has previously cough up some amount of blood. Has your husband seen any reduction in the tumor? My mom has noticed reduction on a few of her nodules (lumps). I hope all is well with your husband.

keepthehope
Posts: 1
Joined: Dec 2011

my mum has lung cancer stage 4 and it is already spreading to her Liver and pancreas.
I took them to China to have a treatment.
I am so lost when the Doctor said there is no more hope :((
I do not want to lose hope.

I would like her to have a chemo but my dad worry that my mum can't take it and she will be in pain.

what should I do? She is kinda weak...
I am trying to starting the cancer diet right away...

iola_s_mom_is_so_brave's picture
iola_s_mom_is_s...
Posts: 16
Joined: Jan 2012

Hi keepthehope, My mom got lung cancer stage 4 as well. We are in Shanghai.
Which city are you staying?
Maybe we can help with each other. I need hope too...
My mom is also weak, but believe me, you need to encourage her just like your ID: keep the hope!
We have not told my mom the truth yet. I am planing to tell her and I have faith in her! COME ON! If one person can make it which means it is reachable! Keep the hope, okay?
Leave msgs if you feel want to share. I will keep you posted about me and my mom. You are not alone!!!

Must live
Posts: 2
Joined: Jul 2013

Hi there,

 

I'm from Shanghai too and my family lives in Sydney of Australia. My mum was diagnosed Stage IV Non-small cell lung cancer in May 2013. She received radiation therapy for her spine which seemed work, then the doctors put her on Tarceva for 2 months (type of drug), and if it worked, it would shrink the size of the tumors and help controlling others from growing/spreading. Unfortunately, the my mum did not respond to the drug and we are looking to start chemotherapy. What's worse is that one tumor on one of her ribs grew over the 2 months and she will need to receive radiation on that too.

Overall not great news, I'm hoping/praying very very hard for my mum that chemo will work for her like a miracle ....

My mum is only turning 57 yrs old in next month, her life can't end here, I have strong belief and demand her to live long to see me being pregnant, giving birth and raising her grandchildren. She MUST LIVE.

raven79
Posts: 3
Joined: Dec 2011

Lung Cancer survivor 6 years gets carcinomatous meningitis
by raven97 on Sat Dec 24, 2011 09:30
Hi, My sister six years ago at 37 was diagnosed with stage four lung cancer. She survived by taking Tarceva/Avastin. But she had to battle 3 brain tumors with cyber knife after having seizures. A month ago she had blinding headaches, confusion and double vision which messed up her sight permanently. At the ER she was tested with spinal tap the only way to see cancer in the fluid and lining of the brain and spinal cord. The doctor said as lung cancer survivors live longer this is a progression of lung cancer. (so make sure you ask your doctor for a spinal tap if you are a long term survivor) They had to put a port in her head but she was on Avastin a long time and hemorrhaged and it paralyzed her on the left side. They have given her weeks as this cancer moves fast and attacks the nervous system. I will post a link for more on it. She is 42 now. I just wanted to address this and warn as long term lung survivors will get this more and more. http://www.ehow.com/about_5167093_carcinomatous-meningitis-t

z's picture
z
Posts: 1413
Joined: May 2009

Thank you for sharing, and I'm so sorry your sister is not doing well. I have you and your sister in my thoughts and prayers. Lori

River view
Posts: 7
Joined: May 2012

Stardust, I celebrated 5 years this past March. I contribute it to incredible doctors and they say it is my determined attitude. It might be both but after the shock and anger wore off, I decided to do my best to stay positive while waiting for science to step up. I had it in both lungs and then it spread to my neck and adrenal gland. NOTHING is showing right now and I go for scans every 3 months. So Always have faith, hope and most important, BELIEVE in your own strength to WIN.

taylor9475
Posts: 1
Joined: Oct 2012

I'm so happy that I found this discussion board because it's exactly what I needed to read to feel hopeful again.
Back in February of this year, my mother, who is 66, was diagnosed with breast cancer, but was a different type than the breast cancer she beat nearly 30 years ago. In any case, she had a mastectomy and her lymph nodes were supposedly clear of any cancer. Fast forward to this September in which she was to undergo a hysterectomy for suspicious spots on her ovaries. When she went in for pre-op tests, she also needed to have a chest xray done. At first they were just going to use the x-ray she just had not even four months prior, but the hospital had not sent them over in time, so a new set of x-rays were done. If it wasn't for that, we would have never learned that my mother had 8 tumors on her lungs. I feel like that was a miracle in itself, and makes think there is a reason why that had all happened in the first place.

Today we received results from her brain MRI and they found a tumor in her brain. She also has a lump under her arm, and her pelvis, and has been complaining of bad back pain.

My mind instantly went to the worst place possible, and doing goggle searches of life expectancy was a terrible idea on my part, but that was until I found this forum. Reading all of your stories and positivity brings my hope alive again. I have to remind myself that everyone's situation is different, and cancer is not always a life sentence. We all don't live forever, but you always hope that somehow that won't apply to our loved ones. My dream is to have my mother watch me walk down the aisle, but regardless of any outcome, I know she'll forever be with me.

dennycee
Posts: 836
Joined: Mar 2011

Everything did happen for a reason. Sorry you had to find your way over to this site. Do they think the lung and brain are breast mets or will they be doing another biopsy? Have they tested her for HER-2? It is my understanding that there are lung mutations that are related

Please take care of yourself. Would you give us an update? Maybe by starting a new thread to make it easier to find.

mgt
Posts: 2
Joined: Jul 2012

dear members

if we create a cocktail of pd 1 pd 53 and mdx 1106 can we all share the results looking to start my own trial at moffit in tampa august 2012

thanks
mgt

ellegonzalez
Posts: 13
Joined: Aug 2016

I have been diagnosed with stage 4 lung cancer in both lungs, right side non-small cell, left side small cell with mets to the lymps. I also suffer from CHF congestive heart failure and am presently operating on 45% of my heart, I have had multiple strokes and have early onset of Altzheimers and Parkinsons, I am currently on Hospice care , but I am still going, I am 49yrs old (X) Marine married and happy. I ride in a power wheel chair because the Parkinson and chemo have effected my brain. But I am not sorry I did chemo it bought me more time with my wife and 5 grandchildren. Sometimes we just have to believe that things will work the way their suppose to and that all things will be okay. Everything has risks, but if we don't try than we have let go of hope. I don't mean try something that is off the wall, but treatments that have a good chance of working , even a little are worth it to me. I don't want to think of the future but I am not scared of it, I have been doing treatments since apirl of 2008 and just hope for more time.

My prayers are with all who have this disease and their families, that they find peace and continue to live life no matter what the diagnosis is.. enjoy life and laught, it helps.

jorola's picture
jorola
Posts: 231
Joined: Mar 2016

Thinking of you too

TheShyOne22
Posts: 5
Joined: Sep 2016

My mother went into the hospital with difficulty breathing.  They said she had a pulmonary embolism.  In addition, they found two large masses in her right lung, spots in her left left, fluid around lung and heart, spots on her adrenal glands, kidney, and liver.  They said she also broke a rib in that area a few months ago.  She never fell.  She lost weight without trying, no appetite, and had some confusion.  Lung also collapsed due to fluid and had a stroke.  Anyone survive this?

DCnative
Posts: 1
Joined: Oct 2016

My mother was diagnosed only a short while ago...stage 4 lung cancer, adenocarcoma.  4cm mass, spread to lypmh nodes in chest, her liver, her spine, and her ribs.  As well as to her pelvic bone.  They are checking her spine and brain this week.  She is 67, smoked most of her life.  She has lost a lot of weight, and has trouble eating without getting nauseous (i got her a really good blender this week in the hopes that smoothies might be easier to digest/keep down).

I know the odds aren't good.  She is going to be put in a clinical trial, and the doctor said chemo is the only treatment at this point.  I just watched a friend die of cancer not even 2 months ago.  My mother looks like she did in her final months and i am terrified.

Not sure exactly what I'm hoping for from this board, maybe just a chance to have a shared experience and hear from others.  I have a support network for myself in my friends and my partner, but, i am all my mother has and i am afraid that I will let her down. 

donna59utah
Posts: 1
Joined: Jan 2017

I am new to this community, and am desperately wanting to communicate with someone who is a survivor or caregiver. My husband was diagnosed Dec.23, 2016, and it has been a roller coaster ride.  Prognosis is dismal to say the least.  We have been through chemo and radiation, and in August preventative Brain Radiation Therapy, which I was against, so now its a waiting game!!! I hate this, no luck in finding any Long term survivors!  Please Help, I need encouragement!

z's picture
z
Posts: 1413
Joined: May 2009

Hello, There are long term survivors.  Not many posters visit this discussion board, but I hope some will reply to you soon. 

I am a stage 1a lung cancer survivor.  I also visit the Inspire Health lung website where there are many long term survivors who post all the time.  I hope you will visit that web site. 

I wish you and your husband well.  Lori

dennycee
Posts: 836
Joined: Mar 2011

Donna, you will find long term survivors at the inspire.com website.

delores123
Posts: 2
Joined: Oct 2014

I was diagnosed with nsclc in 3/2014 had 1/3of lung removed the cancer came back 1year later in lung,lymph nodes 4 brain mets I had 4 gamma knife 30 rounds radiation on lymph nodes

Began opdivo 14,months ago last 5 scans no new growth or movement.feel opdivo might have giving me some more time

Praying for all of you anyone else having luck with opdivo

patriciaghalpin
Posts: 2
Joined: Apr 2017

my husband went from a stage 2 to a stage 4 while taken strong chemo. how is that possible and why could't they have tested him sooner instead of waiting for a month after the chemo ended than only ordered a cat scan which led to another pet scan. Shouldn't he had the pet scan as soon as he got done chemo to check then. also he was in the local hospital with an uper GI bleed they couldn't pinpoint and blamed it on his low plateletts. He was bleeding from the recdom when he went in . I think his cancer doctor should have ordered a pet scan then instead of a cat scan. 

 

jorola's picture
jorola
Posts: 231
Joined: Mar 2016

that the chemo might not have slowed down anyway. Best to ask a dr who has the medical expertise to answer your question.

patriciaghalpin
Posts: 2
Joined: Apr 2017

there was no other cancer showing up on the pet scan when he took the chemo now he is full it just didn't work that is what the oncoligest said. Now he is taken Opdivo when won't cure it. 

 

 

 

Taylors2018
Posts: 6
Joined: Mar 2018

I would love to hear survivor stories of this cancer,, please

ClaCla
Posts: 137
Joined: Jul 2017

Taylors 2018, I would suggest starting a new discussion thread.  This one is so old that it was difficult to find your post in it.  There are many 10+ years survivors of Stage 4 lung cancer.  There re some on this site and quite a lot on Inspire.com.

I was diagnosed just last summer with stage 3a, and CT scans thus far have shown no evidence of disease.

All the best to you.

Pages

Subscribe to Comments for "survivors of Terminal Stage 4 lung cancer"