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Starting Chemo Tomorrow!

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

I woke up not feeling very good today, some pain in my right side, but it's better now, with a couple motrin, but it upset my husband enough to call the doctor and see why I have to wait till Monday to start chemo (My dr. appt was almost 2 weeks ago) he hated the thought of me waiting so long to even start chemo, even though I was just diagnosed a few weeks, so they have an appt for me tomorrow morning, I register in for my first day of chemo at 8:15 a.m. a 2 hour drive, but I'm sure I'll sleep most of the way.

I am very scared, yet just wanting to get this battle on already! any advice on how what to do or take the first time around? it's going to a long 5 hour infusion.. I wonder if they'll let me at least sleep or read or something.. I have never even seen the infusion floor before.

Well, here I go, and thanks everyone I just love reading all your wonderful posts. I had a bad crying day today because of my nerves again, but I will be ok! hope to talk to you all soon, and will let you know how it goes when I get back tomorrow night :)

Hugsss!
~Donna

drmrgirl47's picture
drmrgirl47
Posts: 129
Joined: Mar 2004

Hi Donna,
I just wanted to share with you how terrified I was going to my first chemo appt. I remember crying hysterically. So much so that the nurses had to take me in another room and just calm me down and explain everything to me. That made me feel a whole lot better. I guess we are always nervous about the unknown. Your nurses and doctor will make you feel a whole lot better. Try to not be soooo scared. I know, easier said than done. But take it from a ninny like me...you will be ok. You will probably be allowed to read, maybe watch tv, sleep if you want and maybe even converse with others who are getting their treatments. Nothing was as bad as I had imagined it. If you do get anxious, I am sure there are meds available if you so choose. I was offered Ativan. I took it maybe once or twice and then didn't need it. You seem strong though. But hey, whatever makes you feel good. Remember that. Please let us know how you made out. That 2 hour drive; will you be doing that for all your treatments? I will be thinking of you and wishing you peace. Annette

neon356
Posts: 137
Joined: Mar 2004

Hey Donna,
Break a leg, as they say. I'm sure you'll do fine tomorrow. Sure, bring a book, sleep, do crosswords, listen to music, whatever you want. Five hours is a long time, that for me was the hardest part. And just keep thinking about all that chemo drug going thru your system and kicking the s**t out of all those cancer cells. Good luck, be sure to let us know how it went, ....Carl

rrob
Posts: 160
Joined: Nov 2007

Donna,

Good luck tomorrow! Everyone is different, so I hope tomorrow is smooth sailing. I always took a book and my ipod. The other thing I took later in my treatments was my sunglasses. I know that sounds weird, but the lights would give me a headache by the end of treatment. Other people I know took the little portable DVD players with movies to watch. I also always took a few bottles of water. They had water, crackers, etc., at my infusion center, but I could only do the room temperature water so I always took some with me. If you have a favorite blanket or pillow, you might want that. Be sure to wear something comfortable--I'm sure you already thought of that! Good luck and I'll say prayers for you tonight. You're on your way--the chemo countdown has started and the sooner you start, the sooner you'll finish! Oh, by the way, I'm a stage iv, too. I finished my chemo in June 2008, and my last scan Dec 30th showed I'm still NED. I'll be praying that NED comes to see you soon!

Rebecca

confused1's picture
confused1
Posts: 50
Joined: Feb 2009

I Sarted chemo last Aril 2008 . And it is really no big deal. It wasn't for me any way.I don't make to make it sound so litely but All they do is put it on your port. In our Climic I get my own room T.V control it is really nice. I usually sleep the whole time. Once they put the benedrill in the lights are out for me. I drive myself there and everything. And it is an hour 1 way. Now The only time I get scared is when I amm waiting for what ever test results to come back. You will be just fine. It is just the first visit is scarey because u don't no what to expect. I am thinking of and my prayer's are with u.Take Care Love Colleen

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

like everyone else said, tomorrow will be WAY easier than you are imagining! I got a portable DVD player and brought 2 movies with me. I usually fell asleep during the second one, but it was nice to have the distraction! They have a tv in the room as well, but usually SOMEBODY is watching soaps! I would bring snacks as well and some water. They have all kinds of snacks there as well, all you have to do is ask! Some people even had their loved ones bring in fast food while they were there! I always ate a good meal a few hours before I went in then had something to be fixed a bit after I got home; snacks between (usually a sandwich went down nice!). If you are a talker, usually somebody is up for some conversation and you can tell pretty easily which ones are and which ones aren't! I remember one man who just stuck his blanket over his head and everything and snoozed the whole time he was there! You'll be fine. Did your doc give you a prescription for Ativan? If so, take one before you head out and you will be nicely relaxed! Sleep well and I will be praying for you, waiting for you to come back on and tell us how it went!
mary

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Donna,

Your feelings are very normal- I was quite scared when I started too. Depending upon what they give you for premeds (antinausea, etc.), you may actually get quite sleepy and sleep through much of the infusion time. If so, consider it a blessing because it helps pass the time easier and more quickly! If not, bring something to read and maybe an ipod/MP3 player w/ calming music to listen to. Sometimes, I enjoy talking to some of the other people around me. Other times, the others aren't up to talking, or sometimes I'm not feeling very socialable- I'm sure this will be different each time for you.

I'm keeping you in prayer and will be thinking about you- for a restful sleep tonight so you don't worry all night and for everything to go smoothly for you tomorrow.

Take care!!!
Lisa

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Dearest Donna,
I will be praying for you tomorrow. You will be in so many people's thoughts and prayers. You are a strong woman with a beautiful spirit.
Take care.
Aloha,
Kathleen

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

I usually lay back and sleep. It makes the time go by fast...It will be over before you know it and #1 will be done......God Bless ya hun......

pamness
Posts: 513
Joined: Nov 2007

I postponed my beginning of chemo - probably due to anxiety, they put me on an anti-depressent, I went - I did it and am now ned.

Your first chemo is so scary - at least for me - because I thought I would have a fatal reaction to the drugs - I didn't. I had a horrible time with the oxaliplatin, but the actual chemo infusion - not a problem at all - I ate the sandwich that was offered at lunch. I took emend, decadron, zolfran, compazine, and attivan to manage nausea.

I will guess you will have a much easier time, I was not the standard. I am fine. I will bet you will be OK. The first chemo is nerve wracking - it gets easier.

Pam

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tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Donna,

I'll be praying for you that it goes very, very well. I didn't have chemo, but I know I'd be scared if I had to, so I understand the anxiety. I hope by this time tomorrow you'll be thinking, "Wow. That wasn't so bad."

*hugs*
Gail

dorookie
Posts: 1736
Joined: Jul 2007

I remember it like it was yesterday. Things went so fast right after I was DX'd, that I had the surgery and before I knew it it was time for Chemo. I had my port put in the day before my first chemo. I remember going in to the IV room and just started crying, I was so scared and didnt even know why. The nurses there came over and gave me hugs and pretty much held my had through it all, they were great. But it went smoothly, I pretty much just slept my treatments away. I would bring in a movie but never seemed to be able to stay awake to finish it. I talked to others, like someone has said you will know who is in the mood for talking and who isnt. It will all be over before you know it and you will be saying that wasnt so bad. And soon you will be an old pro and then it will all be over and you will be well on your way to NED. I will say a prayer for you that you have a nice calm day and that you will do good with little side effects. Good Luck Donna
God Bless
Beth

daydreamer110761's picture
daydreamer110761
Posts: 497
Joined: Dec 2008

the first time - I was so nervous in the waiting room that I paced the whole time, and when they called my name I bursted out in tears, and that was just to go to the lab for blood work! By the time they actually called me I couldn't stop crying. The nurses explained everything to me, but it really didn't help. When they finally stuck me, I was like, "is that it?" I was actually embarrassed that I cried so hard for a 47 y/o!

I've actually settled into a routine now, Nick and I go to the hospital cafeteria and have breakfast (this place actaully has decent food), sometimes if short on time we bring it up and eat it while I am being infused. Our infusion rooms have tv/dvd's in them, and I'm tired of their movies, so we bring our own, and a book, and my ipod. They always have donuts, cookies, snacks and drinks. If I am there at lunch they even bring a menu around and we eat lunch there also. Usually by the time lunch is over I am ready to go home. I go back there for my disconnect and then I take Nick out for lunch. It's just our way of making a not so pleasant experience a little more like a date...?

Good luck Donna, I'm sure you'll be fine.

Sherrie

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

The nurses and the other patients comforted me. Like my onc nurse said, everyone in there has a story. You are not alone. I had a pump, so my visits were shorter - 2hours or less - but I made friends, crocheted, read, whatever it took.

You can do this! Good luck, Vicki

kmygil
Posts: 881
Joined: Feb 2007

Hi Sweetie,

How did it go? I know the terrified feeling, and it's something of a leap off a cliff when you get your first chemo. Then it's kind of anti-climactic, because most of it is apprehension and once you've done it the first time, well then the journey has started. You will be fine, with ups and downs along the way. Just know that we are always praying.

Hugs,
Kirsten

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Hi Donna,
I woke up praying for you today. With the time difference, I figured you were in the midst of your treatment. Know that you are in many people's thoughts and prayers.
Aloha,
Kathleen

PhillieG's picture
PhillieG
Posts: 4888
Joined: May 2005

Hi Donna,
It's normal to be scared, it's something new and it's not the best way to spend a day. Most facilities have TV's, reading material, and I always bring an Ipod with music or a book on mp3. They usually let you sleep too but it's not always the most restful because they may have to wake you to take your vitals, or to change meds or something. One thing that is really nice about where I go (MSK) is that they have heated blankets so it's like getting a blankie from the dryer. I hope all went well.
You're in my thoughts
-phil

maglets's picture
maglets
Posts: 2589
Joined: Jun 2006

Hi Donna.....welcome home. I am praying it went well. Do you remember the fuss I made last week? and then it was over and we're on our chemo way. Totally understandable those first time jitters....

Let us know how you are,
Best hugs
Mags

mom_2_3
Posts: 964
Joined: Nov 2008

Hi Phil,

I also go to MSK and I do love the heated blankets too. Luckily I have no side effects at all (other than cold sensitivity) to my FOLFOX treatments (have had 5 so far).

I am scheduled for next Friday to have liver and colon surgery and put in HAI pump with Dr D'Angelica and Dr Paty at MSK and my onco is Dr Kemeny. Was this your team? How are you doing now? Dr D'A said 50% chance of recurrence after liver surgery and was wondering about your experience.

Sorry Donna to hijack your thread a bit. I hope you had a good day today and found that chemo is not so bad after all. It's now in your body fighting all the nasty critters and that is a good thing. I hope you're feeling well.

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

What wonderful advice you all gave me!! I took them all to my heart, and brought books, my favorite pillow and blanket, I did cry when I got to the dr's, and told her "I was so gonna kick this cancer's a@#!!!! and she just laughed at me and said "Now that's what I want to hear!!!"

I was taken to the 11th floor (and yes I do drive the 2 hours back and forth to the James in Columbus because I trust them and like them very much there), and that's when I lost it.. they called my name to go in, I got a private room that had a bed in it, tv, computer, a few chairs for your loved ones, and the nurses were all so wonderful. I was mainly afraid of having my port accessed for the first time, and glad I did glob on that cream, I didn't even feel the poke of the needle, she did it so gently! she then also gave me some Zofron? and Decadron for the nausea, and ativan to calm me down.

Then came the Avastin, and then the FOLFIRI, I even ate! they had menu, and crackers, cookies, hot coffee, tea, whatever you needed! I thought I would throw it all up, but was too hungry to wait and eat, I'm still waiting to eat, having had any nausea yet, and have my fanny pack buddy home with me till the nurse comes to my house and disconnects me on Friday, then I go back for Round #2 on Feb 25!

I can't believe how horrified I was to do this, and now believe I can do this, I was such a baby, and really everyone, you were all right, that I worked this up to be nothing! thank you for all your prayers, I am just going to wait on the side effects now, I am sure I'll have some, I had some lasagna when I got home, and ate well so far, so we'll see if I have an appetite in the next coming days!

Thanks you beautiful, wonderful people!

Hugggssss!
~~Donna

daydreamer110761's picture
daydreamer110761
Posts: 497
Joined: Dec 2008

that it went well. not to scare you - because mostly it is nothing (my frame of mind) but an annoyance! I cant imagine having to drive 2 hours to get to it - more of an annoyance! I was the one who wanted to make a 30 minute rush hour trip into a roll out of bed 5 second trip down the street - DON'T DO IT!! I learned the cancer center people know more what they are doing than the hospital with the new infusion center down the street just for convenience! The side effects weren't so bad the first time, however as time goes on, they seemed to last longer and be a bit more annoying. Also as I said before, my doc said I am in the 1% that has had a bit of everything, but nothing to a bad degree.

Again - glad it went well for you - see, it's not so bad.....

**hugs**

Sherrie

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Donna,
I'm so glad to hear you came through it okay! I'm also jealous you got a nicer room/setup than I have! My "chemo room" is filled with about 16 chairs and you pick a chair when you come in. Sometimes all the others are full & sometimes not. The nurses are wonderful there, though. You can do this, and Yes you're going to kick cancer's ***!!!

Lisa

3dogsmom
Posts: 8
Joined: Feb 2009

Hi Donna! I stayed up pretty late last night reading all about you and the many words of encouragement. I know this sounds silly, especially since I didnt post any comments in the past, but like reading a good book, I feel I know and can relate to you, the main character. Anyway, I want you to know that I'm really proud of you! Of course, chemo is terrifying! I too had a 5 day round of chemo. My oncologist hospitalized me for my first round because he thought I would become very ill. He wanted to monitor me closely for dehydration and other side effects. (I am very thin and had already lost 8 lbs from stress) Any how, I was fine and never had a problem with either round.

I was asked by a friend to record my story/journey. I really had a difficult time doing it and instead provided her with a top ten list, David Letterman style. I want to share it with you. Later, I'll give you my list of what not to say to a person going through cancer treatments. A sense of humor is needed for that one.

I'm praying for you! Leann

10. If you know someone with cancer, don’t avoid them. Sending a card, e-mail or occasional text message means more than you know, even if it goes unanswered. It’s comforting to know that people care and are thinking of you.

9. Allow friends and family to help with meals, errands, cleaning the house, etc. This is your gift to them. They love and support you and feel compelled to help in any way they can. You are not alone….remember, this is their fight as well.

8. Cancer is a very personal experience and there is justification for everything you’re feeling, whether you understand it or not.

7. Don’t think of cancer in terms of “stages”…..it’s too overwhelming. Just focus on the fight and give it all you’ve got.

6. Beware of doing too much research as it can be very scary. Researchers report on case studies and statistics and do not take li festyles into consideration.

5. Try to stay positive and keep your sense of humor. Laughter really is great medicine.

4. Your hair will grow back. In the meantime, savor the feeling of a hot shower on your bald head…..there is nothing like it and you will miss it when it’s gone.

3. You will find strength and courage in faith, family and friends.

2. Cancer is not synonymous with death, repeat it and believe it.

1. Cancer is a journey. Recognize the blessings that lay in your path.

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

I LOVE your list of 10 instead of a journal/diary. Every single one of those statements is sooooo true, so it's great to see them all in writing in one spot. What an excellent list... and one that would be great to do up a little handout card so that you can actually hand them out to family/friends who seem nervous about not knowing what to say to you when they hear you are going through a rough time or treatments!

Hugggggs,

Cheryl

3dogsmom
Posts: 8
Joined: Feb 2009

Im glad you liked my top 10 list. I was supposed to write my story for a cancer calendar that my friend is organizing. I didnt want to be in the calendar AT ALL, however she talked me into it. Great idea about printing out some cards. I may do that.
Thanks!
Leann

tiny one
Posts: 467
Joined: Jan 2009

The nurses where I received chemo were very fast in accessing the port. Sometimes when you get stuck you'll get a little rush. It's kinda of like a light headed feeling. It was pretty neat. With the cream sometimes you don't even feel the stick. Everyone reacts to their treatments differently. I had very few side effects, hopefully you won't have many either. I used to call the fanny pack my Bad Buddy. It seemed like it would get in the way. I used to push mow and even painted rooms with the darn thing on. You are not a big baby. You're very brave. You may want to keep a journal of all this. I did and look back every so often to see how I was feeling. It's a good way to vent and you can keep track of how you're feeling. My second course of chemo was oxiplatin. I was one who tolerated this bad boy very well. Check out support groups, they are really helpful with questions that you may have and the people there know exactly what you're going thru. Sending lots of love and prayers to you. Stay strong and God bless.

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Glad you are felling better about this. There will no doubt be side effects, but now you know you can deal with it! I am proud of you.

Vicki

drmrgirl47's picture
drmrgirl47
Posts: 129
Joined: Mar 2004

Hi Donna,
You did it!!! See, not as bad as you thought it would be. You said they gave you your own room with a bed, tv, computer and chairs; boy was that nice. My chemo office was awful. The waiting room was always crowded. Then you go in the chemo room. There were around 8 reclining chairs with patients in them. Family and friends had to wait in the waiting room. One tv. No food available, only what you bring in yourself. And to me, it smelled awful. I couldn't believe that Long Island had such a sh---y place to go for treatment. Thank God, I didn't have to sit there as my chemo consisted of a quick push into the vein and out I ran. I found it so depressing there and dreaded every single time I went. Some people were so very sick. I felt there should have been more privacy. I still hate going there as I have to go every 6 months for a CEA level check. The nurses were wonderful to me though and that helped alot. Anyway, enough of me whining. I am just so happy you got through the day and am praying you have an easy time with your treatments. Sounds like you have a good appetite. I never lost mine through all the chemo and radiation...hahaha My husband still doesn't know where I put it all....take care, Annette

sheri22
Posts: 278
Joined: Jan 2009

Donna Dont wait on those side affects I just had round 2 of chemo Monday took my buddy pack off Wed just a little tired and a little nauseaus woeked Thurs though took phenegren and kept working keep the phenegren handy and as far as appetite I think I eat too much now
just listen to your body when you feel tired stop and rest my prayers are with you ,

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Hi Donna,
I thought of you and prayed for you a lot today. Glad that it went well. You are strong, you will win!
Aloha,
Kathleen

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Awwwww... sorry, Donna! I missed this thread earlier... and now, you are probably sound asleep and will be on your way before you get to read the newest notes.

Sooooo... when you come back you will see that it's not nearly as bad as your imagination will have made it out to be on the long drive there. If anything, you are going to come home tired... but that is going to be because you drove 2 hours to get there, sat in the chair for 5 hours and then 2 hours back home. That's a nine hour day, so no matter what you would be doing for 9 hours straight, you are going to be tired.

And let's hope that that's exactly how the chemo treatments go for you... that the worst part of it is how tired you are because of the 9 hours it takes you to go and get your treatment and get home. When you get home, have some yummy comfort food! Heck, you might want to think of that in the future... to have your favourite comfort food already prepared and ready to pop into the oven when you get home... even if it's just a small, light meal. Comfort food in your own home will be wonderful medicine :)

Huggggggs,

Cheryl

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Oh Geez, not only am I late in responding, it wasn't today that is your first day but it's already done and over with! I swear there is something crazy going on with my computer since I posted the above last night and it only showed up this morning. Not only that... I changed my picture last night but it still hasn't changed. That one I don't understand... whenever I change my avatar picture here on the support forum it takes at least 24 hours to display the new one. I just assumed that it is a computerized system but maybe someone is actually having to approve each change a member makes to their profile??

Anywho... you are doing just fine and I'm sooooo glad the "terror" of that first visit is over for you and you can see for yourself that your imagination (as is all of ours) is a lot more scary that reality :) Also, I agree with an above post that said the side affects may get more annoying and of longer duration as time goes on BUT the good news is you will be over the terror and each treatment is one more close to the end that you'll find you adapt and don't really notice it being any different other than you'll be excited that you are getting close to the end of treatments. Of course, you may laugh now, but once the treatments are finished, there's this psychological adjustment period where you will be bummed out that they are over! But trust me... THAT will pass :)

Huggggs,

Cheryl

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

I come on and see these 2 separate posts of yours Cheryl and had to laugh! I thought I was reading it backwards or something lol!

Yes, it went ok, I"m not going to say this is a ball of fun, that's for sure, and I think the nurse said once the nurse comes to take my fanny pack tomorow, that's when I may end up feeling the queasiness and all, and is that what happens?? the more you go for treatments, the more worse it gets? The nurse said at the first twinge of any kind of nausea take the pills, no matter what, and also the "chemo diarrhea" once it hits, I may need to take like 12 Immodium ID's! since it won't be the normal diarrhea, but chemo diarrhes, I am getting alittle queasy here and there, but am taking the pills.

I love your pic you have on now as your avatar, you just look like such a beautiful, fun-loving, sweet person! I'm not sure how long the pics do take to change, I didn't know they took abit.

I'm so looking forward for the nurse to get the fanny pack though, I find this abit annoying definitely, but I just hope it doesn't get worse as the treatments go on.

Thanks to all for these comments, they really did help me!

Hugsss!
~Donna

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Oooooh, I hear you on looking so forward to the nurse coming to unhook you! Even though it's just a couple of days, the annoyance of carting that little baby bottle-like bottle around really drove me nutz. I was thrilled when the nurse arrived... and those home care nurses are angels! Hahaha... I wore my chemo bottle on a belt. It fit nicely in one of those water bottle holders that joggers or runners use, that slip on to a belt... but still, it was a total pain since I only owned ONE belt... and it was this silly multi-striped fabric belt that went with absolutely nothing I owned!! (I have since gone out and bought a plain black belt should I ever need to go through this again!) :) It was NOT a good fashion statement, let me tell you :)

Hmmm... now, again, everyone is different, but I didn't find I had a problem with chemo diarrhea. There were a couple of times that I had a bout of it, but then diarrhea was not normal for me at the best of times so I have no idea if this was really bad or just a normal bout. For me, when it happened, I took 2 Immodium and if that didn't curb it, I took 2 more. I think the most I took were 6 over the course of about 4 hours and that did the trick.

Nausea... I would get a little queasy here and there, but no particular pattern (on chemo or after the pump came off). In all fairness, I had more nausea and actual vomiting pre-diagnosis when I was in pain but no one knew what was wrong. For no reason (or none that I knew about at the time) I would up and have to vomit. I didn't feel sick, didn't have a temp., just a "excuse me... be right back" and that was it. Once I started chemo, I would have a few "oh oh, I think I feel queasy" but the anti-nausea pills never did anything for me so I gave up on them and used a puff or two of natural products and one puff took away any queasiness.

So, just like this first chemo adventure didn't turn out to be as bad as you thought it was going to be, keep that attitude regarding the possible side affects you might have. Yes, the affects can be accumulative BUT I was told that whatever you experience on your first and/or second treatment, that is what you can probably expect for the others. In my case, I was lucky and had very few side affects... and if I did, then I certainly don't remember them now, which means they didn't have a lot of impact on me. My worst that I can remember is that darn sensitivity to the cold, as well as the neuropathy in my feet/hands. I also have gotten leg pain but that has come after the treatments, so we still are not sure what is causing that.

So, you are right... chemo is not a ball of fun and certainly not a recommendation for a recreational drug ... but it's also not as scary as it was 10-15 years ago, for the majority of us. There still are some who have a really bad time of it, or a combination of radiation/chemo... and my heart goes out to these people.

Huggggs,

Cheryl

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

I think over a period of time it keeps accumulating in your body but in order to erradicate any lingering critters it needs to stay as long as possible. As Mary stated to me in another post the Leucouvrin I take is to keep it in the system longer thus the reason I was sluggish longer. As usual the women are right again...LOL...But as you proceed in the journey it may get a little worse but know that with each treatment you are getting closer to being done and taking care of business.....Hang in there hun, your doing fine, you now know what to expect. 1 down 11 to go...........God Bless ya...

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

I thought my avatar wasn't getting updated until somebody would comment on my new picture. Turns out my browser, Firefox, wasn't updating the page information so when I submit a new photo I hold down the CTRL key and click the refresh button and I see the new picture. Perhaps it's really your browser that's suspect? I know the website doesn't have a delay in posting them cause I post new pictures all the time :)
mary

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Well, how about that... I emptied the cache in my Firefox preferences and voila... the picture is now there :)

Thanks, Mary!

Huggggggs,

Cheryl

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

Ain't technology wonderful!
mary

betina61's picture
betina61
Posts: 644
Joined: Aug 2006

sorry Donna I'm 2 days late to answer you so your first chemo day was yerterday, I'm sure everything went fine, let us know.

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

When I was home, the 2nd day with my fanny pack, on Thursday, I experienced some awful nausea, I couldn't sleep the whole night, and Friday morning, couldn't eat or drink a thing, it was scary.

When the nurse came by yesterday afternoon and unhooked me, I started feeling a little better, and had a popsicle. She told me to drink alot of fluids, to get the stuff out of my system, and said I may feel better in a day or 2. She was right, I felt alot better today, and actually ate a couple popsicles, and some soup and crackers. Man, it wiped me, and now I'm back to being scared of my 2nd treatment, gosh I hope it doesn't get worse, the anti-nausea pills didn't seem to be working at all, but I just kept taking them anyway. I didn't throw up since I had nothing to throw up, but the nausea is the worse feeling in the world! I was just able to now get on the computer since Wednesday, since I wasn't feeling well :(

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Donna,
I was thinking of you today wondering how you are doing after your first treatment. I'm so sorry that you had the nausea. I am glad to hear you are feeling better today. My husband will be starting his FOLFOX in about 2 weeks. We think we know what to expect but we are learning it is very different for everyone.
Know that you are in my thoughts and prayers.
Aloha,
Kathleen

daydreamer110761's picture
daydreamer110761
Posts: 497
Joined: Dec 2008

well, you are on a different med then me, so the nausea, well, I had that only 2 times, to a limited degree, just felt funny. fluids, to get it out, I try, but i think it may be psychological, but because I can't drink cold, i want it more. a popsicle, wow!

Hey, don't be scared of the second one, it's not any worse than the first, sometimes the cold thing lasts a bit longer, but nothing to different, just don;t go anywhere else like i did!

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

It is the best for nausea......also I drink Sunkist Orange drink at room temp...only thing I can drink for 4 days......I simply go to bed for 4 days and then it starts getting better. Hang in there, it will be over before ya know it...puke, spit, whatever it takes but get through it. Im almost home....you will be too real soon..............God Bless ya....

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

I know it sucks, but it's good to see you made it through the first and are bouncing back. I remember reading somewhere that the nausea doesn't get worse with each treatment, but if it's not managed, it's sure not going to get better! I'm with Buzzard, emend is the BEST and the only thing that really worked for me. Since you are eating popsicles, I am guessing you are on CPT-11 instead of Oxaliplatin? (FOLFIRI vs FOLFOX). Talk to your doc about better nausea meds, that's one of the side effects they want to keep under control cause it's the one that's going to make us decide we don't want to continue with chemo. Stay strong, rest when you need to and don't sweat the next treatment. At least you now know you aren't going to have a heart attack when they hook you up! (or was that just me?!)
mary

impactzone's picture
impactzone
Posts: 531
Joined: Aug 2006

As a tough coach and surfer, I thought I could get through it but I cried a lot, felt terrible walking into the clinic and was very apprehensive. The nurses were great, people were kind and it was not as bad as I feared. I was able to get a room with a bed (7hr infusuion here) and watched TV, tried to read but the only thing that worked were stupid magazines as my head was spinning too much to get through alot. A great gift for me was an ipod and I listened to a mix that tried to pump me up. Mostly the surreal feeling that this was someone else hit me. Once I got started though I at least felt like I had a fighting chance. As you'll find out, the effects are cumulative so the last sessions can be harder than the first, for me, but I also was well prepared with meds at home, food already made and a great support system. I feel for everyone on here and I pray you will do well.

Chip

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